Today is a good day to renew your membership or join Kokua Mau as an individual member.  Details below and thank you for your support. 




I hope you can join us next week at our own Kōkua Mau Monthly meeting. Details are below.

In case you attended our Virtual Palliative Care conference last week, and you are interested in CEU credits, please make sure you follow the instructions outlined in the email(s) sent to all participants by Friday, August 26.

Thur. 8/25 Monthly Kokua Mau Meeting

Please join us next week for our August monthly meeting to learn, mingle and network. If can't attend in person, please call in (details below). We will have an interesting session with Heather Lusk who will be presenting: End of life issues for the Transgender Community.

Thur August 25 , 2016
3pm-5pm
Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu

We have set up a conference call for those who are unable to participate in person.  Conference Dial-in Number (712) 775-7100; Participant Access Code 1079885#. Please let us know ASAP if you will be calling in so we can get you the slides. We will NOT be available to send you the slides on the day of the meeting.  
 
Parking is validated and click here for a map and further details.  Please RSVP to Jeannette for a basic headcount and to get the slides.  (You can certainly come even if you didn't RSVP.)

Preview of Future Meetings:
September:  Selected sessions for the virtual palliative care conference
October:  Spirituality - Anke Flohr, Pacific Health Ministry & JP Sabbithi, Hospice Hawaii
December:  Self Care over the holidays
Introducing Kokua Mau's Let's Talk Story Program

Help us to get our community talking. We have renamed our Speakers Bureau to the Let's Talk Story Program and we are ready to go out into the community to get conversations going.  A team of 19 speakers are ready to go. We have two avenues you can explore to get 'THE Conversation' started.
  • Let's Talk Story program
  • Free Screening of "Being Mortal"
The goal of our Let's Talk Story Program in a nutshell:
  • Learn how to talk with your loved ones about what matters most to you.
  • Share about the kind of care you want to receive with your doctor. You'll feel more confident and ready for the future.
Kōkua Mau wants to get our community talking about wishes for care at the end of life. Our new Let's Talk Story Program will go out to community organizations, churches and temples with our free, 2-hour interactive sessions facilitated by Kōkua Mau's trained experts. We know these are not easy conversations but they are some of the most important that you will ever have. Please help us spread the word about this great opportunity to facilitate "The Conversation."

Our goal is to help individuals and families understand decisions they may need to make and find resources and information in our community to talk about their wishes for care at the end of life.

If your group or somebody you know is interested in a free workshop on this important topic, contact Kōkua Mau at info@kokuamau.org or (808) 585-9977.

Please visit our website for more details and download the PDF of the flyers for our Let's Talk Story program.
Talk Story Program Option: Free Screening of "Being Mortal"

Do you want to show the documentary "Being Mortal" at your facility, organization or meeting? Kokua Mau is now an 'official site' to show the hour-long PBS documentary for free in Hawaii. Please contact us and we can collaborate on a screening for you.
 
"Being Mortal" delves into the hopes of patients and families facing terminal illness. The film investigates the practice of caring for the dying and explores the relationships between patients and their doctors. It follows a surgeon, Dr. Atul Gawande, as he shares stories from the people and families he encounters. When Dr. Gawande's own father gets cancer, his search for answers about how to best care for the dying becomes a personal quest.
 
After the screening, we encourage you to have guided conversation on how to take concrete steps to identify and communicate wishes about end-of-life goals and preferences. Watch a short trailer here

Multilingual Questions about Tube Feeding 

Looking for Tube Feeding information in another language? Making a decision about a long-term feeding tube for yourself or for someone you love may be challenging and emotional, so translated materials might come in handy. At Multilingual Questions about Tube Feeding you can download a copy in:

*    Chinese simplified
*    Chinese traditional
*    Ilocano
*    Japanese
*    Spanish
*    Tagalog
*    Tongan
*    Vietnamese

All multilingual resources are intended as tools to help members of our community with limited English proficiency. As is common with such complicated issues, these documents do not replace a one-on-one conversation, sometimes with the help of an interpreter, to walk people through the decisions they have to make for themselves or their loved ones. We translated six key documents into 10 languages:
  • Hawai'i Advance Health Care Directive
  • Advanced Directive Information Brochure
  • The official POLST Form for Hawai'i
  • POLST Information for Consumers
  • Information about CPR
  • Information about Tube Feeding
For all multilingual resources (currently 48 PDF files) click on the "languages" menu button in the top right corner of our website, with two ways to access the multilingual PDF files:
  • By Language: Click on the language link and you get a list of all resources available in that language. We will add selected materials in the language (such as the Conversation Starter Kit) when we become aware of it.
     
  • By Document: Further down on the "Languages" page just click on the "multilingual" link for e.g. Consumer Guide to POLST and you find all the languages available for the Consumer Guide to POLST on one webpage.
Once you open one of the PDF files you will see that, for example, the Multilingual Advance Directive or POLST form have a cover sheet in English providing additional specific information. This background information is important for healthcare workers or English-speaking loved ones and make each PDF file a stand-alone document.

Please click on one of the links and explore the multilingual resources. We are looking forward to your ideas and feedback.

We want to thank all the volunteers who have dedicated countless hours reviewing documents and giving us feedback. It has been a herculean task but our community project is finally a reality thanks to all of you that helped us with your expertise.

We thank the collaborative effort of our sponsors that made this translation project possible.
  • AlohaCare
  • Executive Office on Aging (EOA)
  • Hawaii Health Systems Corporation (HHSC)
  • Hawaii Medical Service Association (HMSA)
  • Kaiser Permanente in Hawaii
  • 'Ohana Health Plan
  • University Health Alliance (UHA)
  • United Healthcare
facebook.com/kokuamau

In response to popular demand we have created (hot off the digital press) our brand new Kokua Mau FaceBook page. We hope FB to become an additional avenue to share information about Advance Care Planning and available resources in Hawaii with a wider community.

Go to www.facebook.com/kokuamau and check it out. If you are on FB please do what you do best, such as liking us and/or sharing our events or post. If there is anything else you would like to see on our FB page, please let us know.

Join Kokua Mau or renew your membership for 2016

We ask you to join or renew your Kōkua Mau Membership. Membership is tax-deductible and your financial support helps us to maintain and expand our programs. This includes the e-newsletters, free materials for download (including POLST and the new Advance Directive), our well-visited website, various training opportunities, monthly meetings, Palliative Pupus, and our expanding Speakers Bureau.

We look forward to incresead outreach activities with churches, temples and other community groups - let us know if you would like to schedule our Speakers Bureau to visit. We also look forward to ongoing education and networking opportunities for professionals, both those organized by Kōkua Mau and those where we can collaborate with partners.

Membership and donations are an essential part of keeping Kōkua Mau fiscally sustainable.  Last year we had nearly 100 individuals who joined and details for membership are below.  We especially encourage organizational membership by community leaders that support our mission. Please contact Kokua Mau's Executive Director Jeannette Koijane for details.
 
How do I join? 2 easy ways
 
Download a membership form, include a check and and mail it to the Kokua Mau address on the form.  (Renewing members can just send in a check without the form.)

Online: Chose your membership level online or on the PDF file and click the Donate Now button on the right hand side of the webpage. Please put 'membership' in the 'Designation (Optional)' field, click 'add to giving cart' and follow the subsequent steps. We know, the free version of network for good does not look exciting but it is free.

With all donations going into programs we don't offer you another tote bag, but we still do have the ever popular: low cost virtual Kōkua Mau mug.

In thanks for your membership: All members are honored on the Kōkua Mau website and on written materials that are displayed at events

Thank you!
 
Benefits of Joining Kōkua Mau?
 
Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (Kōkau Mau is not a state agency!) 

Expanding networking and education for professionals. 
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
  • Kōkua Mau e-newsletter providing updates on local and national events, resources and research
  • Kōkua Mau website is well visited and constantly updated with free materials for the community
  • Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
  • Palliative Pupus - our cutting-edge, clinical case discussion
  • Coming soon: Key documents in 10 languages
For over 17 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.
Best wishes and please share your updates with us, 


Jeannette Koijane
Executive Director
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