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June 2016 Kōkua Mau eNewsletter
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Have you see our Op-ed article in Island Voices on Thur. May 26? "Palliative and hospice care a critical need at end-of-life stage" by Daniel Fischberg, MD, PhD, Jeannette Koijane, MPH and Rae Seitz, MD and cosigned by board members Lori Miller, Emese Somogyi, MD, Kenneth Zeri, RN, MS and Nathan Hokama. We hope that you can share this with your networks and we look forward to hearing your feedback. The piece is in Honolulu Star-Advertiser, May 26, 2016, Page A11, Island Voices. You can find a PDF on our website or link to the Honolulu Star-Advertiser archive (access for subscribers only). There are a number of interesting events coming up in the coming months including several thought provoking movies. We hope you can put the new resource from the Conversation Project focusing on Alzheimer's to good use. And please join us on June 30 for the monthly Kokua Mau meeting where Mark Lee will be presenting on his recently completed local research: Ethno-Cultural Differences in Later-Life Caregiving Expectations, Caregiver Burden, Family Dynamics, and Healthcare Decision-Making Factors. (The interactive session on Spirituality has been resecheduled to October so Mark can present before he leaves for Med School in August.) |
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Save the Date: Aug 9,10 & 11 Virtual Palliative Care Conference
Challenges on the Front Lines: Effective Approaches to Complex Cases The virtual conference is designed to advance the provision of innovative, evidence-based, exceptional hospice and palliative care. The conference addresses the complexities, challenges and complications faced by professionals delivering hospice and palliative care, to provide strategies and approaches to effectively address them and to ensure the provision of high quality, evidence-based, exceptional care. MoreThe American Academy of Hospice and Palliative Medicine (AAHPM), Hospice and Palliative Nurses Association (HPNA) and National Hospice and Palliative Care Organization (NHPCO) will host the Virtual Conference. Aug 9, 10 & 11
6:30am -11:30am
HMSA
Participation is free of charge (a $400 value for individuals)! We will need and accurate headcount to accommodate everybody and will ask you to please register ahead of time. Registration details will be sent in July. As we did in the past we will meet at HMSA at 6 am, drink coffee and watch the live web-broadcast together.
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The Conversation Project: NEW Alzheimer's Resources
Families caring for loved ones with cognitive impairments face special challenges when it comes to managing their end-of-life care. Often caregivers of patients with Alzheimer's disease and other forms of dementia are left to make critical decisions on their own, as the afflicted are no longer able to speak for themselves. The new Starter Kit created specifically to address the issues associated with Alzheimer's disease and other forms of dementia is the first of its kind and is now available free for download as a PDF on the The Conversation Project's website. More. This Alzheimer's focus is a new additional resource. The Conversation Project's (writable PDF) Starter Kit that will help you or your organization to get your thoughts together and then have the conversation is also available on our website. |
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Wed. 6/15 Free Screening of How to Die in Oregon
Presented by Death Café Honolulu:
Wed. June 15th
6:00-8:30pm
at Islands Hospice
1301 Young St #300, Honolulu
This documentary explores real life responses to Oregon's "Death with Dignity Act," the first law in the U.S. to allow physicians to prescribe lethal doses of drugs to the terminally ill. A middle-aged woman with terminal liver cancer, prepares to take her own life, while another cancer patient decides to suffer through his illness even though death is just as certain for him. More. Discussion will be held after the movie. Please RSVP by email or groundgivesway@gmail.com or on www.meetup.com/Honolulu-Death-Cafe-Meetup |
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6/24-26 Family Camp 2016
Each year Hospice Hawaii hosts a family camp for children and teens (ages 7-17) and their family members who have lost a loved one through death. The theme for this year's camp is "The Rhythms of Life."
June 24-26
Queen Liliu'okalani Children's Center
53-516 Kamehameha Hwy
Hau'ula, Oahu
Campers participate in various arts and crafts, and outdoor activities. At camp there is an emphasis on healing and remembrance, and the opportunity to connect with others who are grieving. For more information and to sign up, please visit their website or call the Bereavement Counselor at 808-791-8093; or email FamilyCamp@HospiceHawaii.org. Camp costs $50 per family.
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Tue. 6/28 Free Screening: Being Mortal: Medicine and What Matters in the End
St. Francis Healthcare System, in collaboration with the Hawaii Family Caregiver Coalition, presents a free screening of Being Mortal: Medicine and What Matters in the End. A documentary that explores the hopes and wishes of patients and families facing terminal illnesses. Based on the nationally best-selling book by surgeon Dr. Atul Gawande, this film aired nationally on the PBS program, " Frontline," in February 2015. Tue, June 28, 2016
9 am - 11:30 am
Borthwick Mortuary, 1330 Maunakea Street, Honolulu
Check-in and breakfast begin at 8:30 am Limited free parking. Please register by Tuesday, June 21, with Felicia Marquez-Wong. |
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Thur. 6/30 Kokua Mau Meeting
Please join us at the last day of June, Thursday the 30th for our monthly meeting to learn, mingle and network. If can't attend in person, please call in (details below). We will have an interesting session with Mark Lee who will be presenting the results of his Honors Thesis from UH.
Ethno-Cultural Differences in Later-Life Caregiving Expectations, Caregiver Burden, Family Dynamics, and Healthcare Decision-Making Factors
Thursday, June 30, 2016
3pm-5pm
Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu We have set up a conference call for those who are unable to participate in person. Conference Dial-in Number (712) 775-7100; Participant Access Code 1079885#. Please let us know ASAP if you will be calling in so we can get you the slides. We will NOT be available to send you the slides on the day of the meeting.
Parking is validated and click here for a map and further details. Please RSVP to Jeannette for a basic headcount and to get the slides. (You can certainly come even if you didn't RSVP.) Future Meetings: July - NO MEETING August - End of life issues for the Transgender Community, Heather Lusk October: Spirituality - Anke Flohr, Pacific Health Ministry & JP Sabbithi, Hospice Hawaii
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7/30 Date change: Kaiser Oncology on Canvas 2016
Oncology on Canvas helps people living with cancer and those that love and care for them to cope with disease through art. No previous art experience is needed, there are no age restrictions and everyone is welcome!! Mark your calendars: The Oncology on Canvas event at Kaiser originally scheduled for Saturday, May 7th is rescheduled for Saturday, July 30th at Moanalua.
Kaiser Permanente Hawaii
New date: Sat. July 30
9am-3pm 2nd Floor - Auditorium Moanalua Medical Center 3288 Moanalua Rd., Honolulu, HI 96819
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IOM Report on Dying in America - 18 months later. Has anything changed?
Time for a Status Update: Have we improved quality of care for people nearing the end of life?
To assess progress since the release of the Dying in America report in September 2014, and to inform the work of a new Roundtable on Quality of Care for People with Serious Illness, the National Academy of Medicine is conducting a nationwide survey to track improvements over the past 18 months, discover barriers that have prevented progress, and better understand current areas of need.
Your feedback will help the new roundtable shape its work over the next three years. Please share your experiences, and encourage your friends and colleagues to take the survey as well.
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Resource: Conversation Stopper?
Conversation Stopper: What's Preventing Physicians from Talking with Patients About End-of-Life and Advance Care Planning?
Findings of a national poll exploring the views of primary care and specialist physicians about end-of-life and advance care planning conversations with patients was presented by The John A. Hartford Foundation with the California Health Care Foundation and Cambia Foundation.
In "Conversation Stopper," virtually all physicians surveyed agree that talking with patients about end-of-life and advance care planning is important, and they overwhelmingly support a new Medicare benefit that reimburses them for having those discussions.
The survey identified barriers that keep physicians from engaging in these sensitive conversations, with nearly half (46 percent) reporting that they frequently or sometimes feel unsure of what to say, and less than one-third (29 percent) reporting having had any formal training specifically on talking with patients and their families about end-of-life care. (Webinar slides in the middle of the page)
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Play the "Go Wish" game online
Looking for a way to get the conversation going, now you can use the Go Wish cards for free on line. This interactive "game" allows you to talk about the importance of different issues as you discuss care at the end of life. Or you can order and buy the cards directly. You can also order the bi-lingual Chinese-English 'Heart to Heart' cards based on the Go Wish cards! |
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Join Kokua Mau or renew your membership for 2016
We ask you to join or renew your Kōkua Mau Membership. Membership is tax-deductible and your financial support helps us to maintain and expand our programs. This includes the e-newsletters, free materials for download (including POLST and the new Advance Directive), our well-visited website, various training opportunities, monthly meetings, Palliative Pupus, and our expanding Speakers Bureau. We look forward to incresead outreach activities with churches, temples and other community groups - let us know if you would like to schedule our Speakers Bureau to visit. We also look forward to ongoing education and networking opportunities for professionals, both those organized by Kōkua Mau and those where we can collaborate with partners. Membership and donations are an essential part of keeping Kōkua Mau fiscally sustainable. Last year we had nearly 100 individuals who joined and details for membership are below. We especially encourage organizational membership by community leaders that support our mission. Please contact Kokua Mau's Executive Director Jeannette Koijane for details. How do I join? 2 easy ways
Download a membership form, include a check and and mail it to the Kokua Mau address on the form. (Renewing members can just send in a check without the form.) Online: Chose your membership level online or on the PDF file and click the Donate Now button on the right hand side of the webpage. Please put ' membership' in the ' Designation (Optional)' field, click 'add to giving cart' and follow the subsequent steps. We know, the free version of network for good does not look exciting but it is free. With all donations going into programs we don't offer you another tote bag, but we still do have the ever popular: low cost virtual Kōkua Mau mug. In thanks for your membership: All members are honored on the Kōkua Mau website and on written materials that are displayed at events Thank you! Benefits of Joining Kōkua Mau? Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (Kōkau Mau is not a state agency!)
Expanding networking and education for professionals.
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
- Kōkua Mau e-newsletter providing updates on local and national events, resources and research
- Kōkua Mau website is well visited and constantly updated with free materials for the community
- Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
- Palliative Pupus - our cutting-edge, clinical case discussion
- Coming soon: Key documents in 10 languages
For over 17 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities. |
| Best wishes and please share your updates with us,
Jeannette Koijane
Executive Director
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Useful quick links to Kōkua Mau Topics
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