Today is a good day to renew your membership or join Kokua Mau as an individual member.  Details below and thank you for your support. 
3rd May 2016 Kōkua Mau eNewsletter


Aloha,  

We hope you can join us for our Monthly Kōkua Mau meeting next week.  Looking ahead to August please save the date for the next Virtual Palliative Conference.
Thur. 5/26 Kokua Mau Meeting
 
Please join us next week Thursday for our monthly meeting to learn, mingle and network. If can't attend in person, please call in (details below).

Our guest speaker this month is our own Beth Freitas, RN, MS, OCN, ACHPN, PhD(c) who will be presenting about her PhD research. Beth is an APRN on the Palliative Care Service at The Queen's Medical Center. She will discuss the adventures and outcomes of her research on spiritual/religious beliefs and resuscitation preferences. She hopes to complete her dissertation defense this fall.

Interesting and Incidental Findings: Spiritual/Religious Beliefs, Resuscitation Decisions, and Hospitalized Patients
 
Thursday, May 26, 2016
3pm-5pm
Conference Room 224 
Weinberg Building 
St. Francis Healthcare System of Hawai'i 
2226 Liliha Street in Honolulu

We have set up a conference call for those who are unable to participate in person.  Conference Dial-in Number (712) 775-7100; Participant Access Code 1079885#. Please let us know ASAP if you will be calling in so we can get you the slides. We will NOT be available to send you the slides on the day of the meeting.  
 
Parking is validated and click here for a map and further details.  Please RSVP to Jeannette for a basic headcount and to get the slides.  (You can certainly come even if you didn't RSVP.)     
Tue. 5/31 Workshop: The Conversation Project

This is the second part of a two session workshop. Even if you missed the first part you are still invited to join us for the second workshop.

Have you been looking for a good way to start the conversation with a loved one?  Come and join these workshops put on by the Kokua Mau Speakers Bureau at the invitation of Windward UCC.

If you could not speak for yourself would your loved ones know your health care desires?
The Conversation Project - A free two-part seminar

Tuesdays, May 17 & 31
6:30-8:30 pm
Windward United Church of Christ
38 Kaneohe Bay Drive, Kailua, HI 96734

Have you spoken with your loved ones about your end-of-life wishes? Let the folks from Kōkua Mau empower you for this important task during this 2-part interactive class.  Please invite your loved ones, friends and family to this workshop by the Kokua Mau Speakers Bureau.

The Conversation Project's Starter Kit  can help you get your thoughts together - for yourself or someone you love or for your doctors and we encourage you to read through it before the sessions.

Space is limited.  R.S.V.P. to the church  office at 808 254-3802

The Conversation Project: NEW Alzheimer's Resources

Families caring for loved ones with cognitive impairments face special challenges when it comes to managing their end-of-life care. Often caregivers of patients with Alzheimer's disease and other forms of dementia are left to make critical decisions on their own, as the afflicted are no longer able to speak for themselves.

The new Starter Kit created specifically to address the issues associated with Alzheimer's disease and other forms of dementia is the first of its kind and is now available free for download as a PDF on the The Conversation Project's website. More.

This Alzheimer's focus is a new additional resource. The Conversation Project's (writable PDF) Starter Kit that will help you or your organization to get your thoughts together and then have the conversation is also available on our website.

Save the Date: Aug 9,10 & 11 Virtual Palliative Care Conference

Challenges on the Front Lines: Effective Approaches to Complex Cases

The virtual conference is designed to advance the provision of innovative, evidence-based, exceptional hospice and palliative care.

The American Academy of Hospice and Palliative Medicine (AAHPM), Hospice and Palliative Nurses Association (HPNA) and National Hospice and Palliative Care Organization (NHPCO) will host the  Virtual Conference.

Aug 9, 10, 11
6:30am -11:30am
HMSA

As we did in the past we will meet at HMSA at 6 am, drink coffee and watch the live web-broadcast together. Registration details to follow in June.
6/15 Free Screening of How to Die in Oregon

Presented by Death Café Honolulu:

Wed. June 15th
6:00-8:30pm
at Islands Hospice
1301 Young St #300, Honolulu

This documentary explores real life responses to Oregon's "Death with Dignity Act," the first law in the U.S. to allow physicians to prescribe lethal doses of drugs to the terminally ill. A middle-aged woman with terminal liver cancer, prepares to take her own life, while another cancer patient decides to suffer through his illness even though death is just as certain for him. More.

Discussion will be held after the movie.

Please RSVP by email or  groundgivesway@gmail.com or on www.meetup.com/Honolulu-Death-Cafe-Meetup

6/24-26 Family Camp 2016

Each year Hospice Hawaii hosts a family camp for children and teens (ages 7-17) and their family members who have lost a loved one through death.  The theme for this year's camp is "The Rhythms of Life."

June 24-26
Queen Liliu'okalani Children's Center
53-516 Kamehameha Hwy
Hau'ula, Oahu

Campers participate in various arts and crafts, and outdoor activities.  At camp there is an emphasis on healing and remembrance, and the opportunity to connect with others who are grieving. For more information and to sign up, please visit their website or call the Bereavement Counselor at 808-791-8093; or email FamilyCamp@HospiceHawaii.org. Camp costs $50 per family.

7/30 Date change: Kaiser Oncology on Canvas 2016

Oncology on Canvas helps people living with cancer and those that love and care for them to cope with disease through art.  No previous art experience is needed, there are no age restrictions and everyone is welcome!!
Mark your calendars:

The Oncology on Canvas event at Kaiser originally scheduled for Saturday, May 7th is rescheduled for Saturday, July 30th at Moanalua.

Kaiser Permanente Hawaii 
New date: Sat. July 30 
 9am-3pm
2nd Floor - Auditorium
Moanalua Medical Center
3288 Moanalua Rd., Honolulu, HI  96819
IOM Report on Dying in America -  18 months later.  Has anything changed? 

Time for a Status Update: Have we improved quality of care for people nearing the end of life?

To assess progress since the release of the Dying in America report in September 2014, and to inform the work of a new Roundtable on Quality of Care for People with Serious Illness, the National Academy of Medicine is conducting a nationwide survey to track improvements over the past 18 months, discover barriers that have prevented progress, and better understand current areas of need.
 
Your feedback will help the new roundtable shape its work over the next three years. Please share your experiences, and encourage your friends and colleagues to take the survey as well.
Resource: Conversation Stopper?

Conversation Stopper: What's Preventing Physicians from Talking with Patients About End-of-Life and Advance Care Planning?

Findings of a national poll exploring the views of primary care and specialist physicians about end-of-life and advance care planning conversations with patients was presented by The John A. Hartford Foundation with the California Health Care Foundation and Cambia Foundation.

In "Conversation Stopper," virtually all physicians surveyed agree that talking with patients about end-of-life and advance care planning is important, and they overwhelmingly support a new Medicare benefit that reimburses them for having those discussions.

The survey identified barriers that keep physicians from engaging in these sensitive conversations, with nearly half (46 percent) reporting that they frequently or sometimes feel unsure of what to say, and less than one-third (29 percent) reporting having had any formal training specifically on talking with patients and their families about end-of-life care. (Webinar slides in the middle of the page)
Play the "Go Wish" game online

Looking for a way to get the conversation going, now you can use the Go Wish cards for free on line.  This interactive "game" allows you to talk about the importance of different issues as you discuss care at the end of life.  Or you can order and buy the cards directly.  You can also order the bi-lingual Chinese-English 'Heart to Heart' cards based on the Go Wish cards!

Join Kokua Mau or renew your membership for 2016

This is the time of the year when we ask you to join or renew your Kōkua Mau Membership. Membership is tax-deductible and your financial support helps us to maintain and expand our programs. This includes the e-newsletters, free materials for download (including POLST and the new Advance Directive), our well-visited website, various training opportunities, monthly meetings, Palliative Pupus, and our expanding Speakers Bureau.

2016 will certainly be busy as we look forward to more outreach activities with churches, temples and other community groups - let us know if you would like to schedule our Speakers Bureau to visit. We also look forward to ongoing education and networking opportunities for professionals, both those organized by Kokua Mau and those where we can collaborate with partners.

Membership and donations are an essential part of keeping Kōkua Mau fiscally sustainable.  Last year we had nearly 100 individuals who joined and details for membership are below.  We especially encourage organizational membership by community leaders that support our mission. Please contact Kokua Mau's Executive Director Jeannette Koijane for details.
 
How do I join? 2 easy ways
 
Download a membership form, include a check and and mail it to the Kokua Mau address on the form.  (Renewing members can just send in a check without the form.)

Online: Chose your membership level online or on the PDF file and click the Donate Now button on the right hand side of the webpage. Please put 'membership' in the 'Designation (Optional)' field, click 'add to giving cart' and follow the subsequent steps. We know, the free version of network for good does not look exciting but it is free.

With all donations going into programs we don't offer you another tote bag, but we still do have the ever popular: low cost virtual Kōkua Mau mug.

In thanks for your membership: All members are honored on the Kōkua Mau website and on written materials that are displayed at events

Thank you!
 
Benefits of Joining Kōkua Mau?
 
Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (Kōkau Mau is not a state agency!) 

Expanding networking and education for professionals. 
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
  • Kōkua Mau e-newsletter providing updates on local and national events, resources and research
  • Kōkua Mau website is well visited and constantly updated with free materials for the community
  • Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
  • Palliative Pupus - our cutting-edge, clinical case discussion
  • Coming soon: Key documents in 10 languages
For over 17 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.
Best wishes and please share your updates with us, 


Jeannette Koijane
Executive Director
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Kokua Mau Hawaii Hospice and Palliative Care Organization | P.O. Box 62155 | Honolulu | HI | 96839-2155