2nd June Kōkua Mau eNewsletter

How is POLST being used in long-term care in Hawaii? 

Please join us for the June 25 Kokua Mau meeting to learn from Dr. Pamela Sebastian about her award-winning research on POLST usage in Hawaii.  She surveyed a number of facilities in Hawaii and has very interesting results to share.  We will also have updates and announcements. 

Save the date for the Virtual Palliative Care Conference July 21-23. We should have online registration available soon.  This time participation is free, but registration is required. Details below.

In this Issue and from Past Newsletters:
Thur. 6/25 Kokua Mau Meeting

'The next Kokua Mau monthly meeting will be Thur. June 25  at St. Francis. Monthly meetings are open to all. Please join us.

How is POLST being used in long-term care in Hawaii?  Please join us for the June 25 Kokua Mau meeting to learn from Dr. Pamela Sebastian about her award-winning research on POLST usage in Hawaii.  She surveyed a number of facilities in Hawaii and has very interesting results to share.  We will also have updates and announcements.

Thursday, June 25, 2015

Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu

Join us for other local updates and please let Jeannette know if you have items for the agenda. 

Parking is validated and click here for a map and further details.  There will be real coffee and refreshments as well.


Save the date! 7/21-23 Virtual 2015 Palliative Care Conference

Virtual Conference 2015: Clinical Advances in the Art and Science of Care.

The conference is designed to advance the provision of innovative, evidence-based, exceptional hospice and palliative care.

The American Academy of Hospice and Palliative Medicine (AAHPM), Hospice and Palliative Nurses Association (HPNA) and National Hospice and Palliative Care Organization (NHPCO) will host the Virtual Conference.

July 21 - 23, 2015
Honolulu location TBA

As we did in the past we will meet at a central location and watch the live web-broadcast together. Details on when and where to follow.

Registration is free!  However, you will need to register to participate. Registration information will be available next week.

Please note: The way the software is set up by ConstantContact, you will have to register for each day separately. Since we need an accurate head count, you may have to register three times if you want to participate in the entire conference.

Wed. 7/15 Palliative Pupus

Please join us Wed. July 15 for Palliative Pupus.  Come hear another interactive interdisciplinary story from the cutting edge of hospice and palliative care and mingle with colleagues in 2015.   

Wed. July 15, 2015
5:15 to 7:00 PM
The Queens Conference Center (QCC) Room 200
510 S. Beretania Street, Honolulu, HI 96813

Please bring some pupus to share and invite your colleagues. This is a great chance for people who wonder what palliative and hospice care really looks like as we describe and discuss a real person and their journey.

Please note Palliative Pupus participants: There is FREE parking after 4 PM in the municipal lot on South Beretania, just Diamond Head of Queen's. See our website for a map.

Advance Care Planning in Chinese

Looking for materials on Advance Care Planning in Chinese? 

Visit the Chinese American Coalition for Compassionate Care http://www.caccc-usa.org/   Although the information is not specific to Hawaii, the materials are good for providing background information on advance care planning.

Kokua Mau is currently working to translate some of our key documents (Advance Directive, POLST and explanatory information ) into 10 languages - Korean, Vietnamese, Chinese (Traditional and Simplified), Marshallese, Japanese, Spanish, Tagalog, Ilocano, and Tongan. 

If you speak, read and write any of these languages and would like to help double check the translations before they are finalized, please let Jeannette know.


Sat 7/25 Free Caregiver Workshop: Reinventing Caregiving

AARP Hawaii and Catholic Charities Hawaii present a free workshop for family and volunteer caregivers of older adults. If you know people who are currently involved in helping older adults, please let them know about this excellent opportunity to learn new approaches to caregiving.

Saturday, July 25, 2015
8:30 a.m. to Noon
Catholic Charities Hawaii
1822 Ke'eaumoku Street, Honolulu

Topics: The Organized Caregiver, by Amy Goyer Get easy, practical tips for managing your time and creating systems that work. Learn how to gather, store and update key documents and information as well as how to use technology to get organized, access, and share information with your caregiving team.

Pathways to Love, Leadership and Living While Caring for Elders by Lyla Berg. Learn ways to navigate more smoothly through life's complexities and confusion, turn frustration into fascination, and handle conflicts with grace.

Refreshments will be provided. Registration is required. Register: aarp.cvent.com/reinvent7-25 or toll-free 1-877-926-8300


Fri. 7/10 Home- Based Palliative Care Services

HMSA Supportive Care & UHA Concurrent Care Programs in Hawaii. JABSOM Palliative Care Initiatives in Micronesia

Presenter: Ritabelle Fernandes, MD
Associate Professor, Dept. Geriatric Medicine
JABSOM, University of Hawai'i

July 10th, 2015 Friday
Hawaii Neuroscience Conference Room
Hawaii Pacific Neuroscience - Honolulu
2230 Liliha Street # 104 Sullivan Wing
Honolulu, HI 96817
(@ St Francis Liliha Campus)
This is part of the Honolulu Interdisciplinary Neuroscience Weekly Presentation & Discussion


8/13&20 Eden at Home

Compassionate Caring for elders who live at home. The two session workshop focuses on changing perceptions of elders at home and in the community. It will provide practical strategies to improve the quality of life for elders and their care partners.

Applying Eden at HomeTM concepts and The Ten Principles of The Eden Alternative, this workshop will broaden awareness and provide practical strategies to improve quality of life for elders and their care partners by eliminating the three plagues of loneliness, helplessness, and boredom. The workshop consists of 2 - four hour sessions. 

August 13 and 20 (two Thursdays)
9 am to 1 pm
Kailua United Methodist Church
1110 Kailua Rd, Kailua HI 96734

Workshop is limited to 14 participants.

To register by August 6 please email or call 263-0136 or 483-0762.

Registration fee is $10 to pay for part of the cost of the workshop manual. Please mail (check payable to 'Project Dana') to: Project Dana * 902 University Ave * Honolulu HI 96826. Please note place and date of your training on your check.
From past eNewsletters

Advance Care Planning Speakers wanted!

People interested in speaking in the community
about Advance Care Planning. Kokua Mau is getting more and more requests for presentations from community groups and we would like to expand the number of speakers we can send out to meet face-to-face.

We will train you and give you materials but you should have a good understanding of the topic and be comfortable talking to groups. If you are interested in helping, let Jeannette know.


Hospice News Network Available for Hawai'i!

Hospice News Network: A great opportunity to be better informed.

Hospice News Network, is a national e-newsletter that provides a summary of hospice, palliative and end-of-life care articles. The stories cover local, state and national issues and come from a variety of sources.

If you would be interested in getting this weekly newsletter, just let Jeannette know.  HMSA sponsors the Hawaii distribution so we are able to offer it free to interested people and organizations in Hawai'i.


The Stanford Letter Project

Here is a great new resource that turns around the conversations on care at the end of life.
The Stanford Letter Project found that 99.99% of doctors found it difficult to talk with their patients about advance care planning.  The Project encourages patients to take the initiative and write a letter to their doctors about their wishes and values. 

On the website you can get a free template for the letter as well as watch a great You Tube video of older Filipino people in San Francisco talking about their letter writing process.  Please let Jeannette know your feedback if you use this resource as we would like to promote this widely in Hawaii.


Thank you Kokua Mau Members!

Thank you to everyone who renewed your membership or  joined Kōkua Mau!  Your financial support is crucial to helping us carry on and expand our activities. 

Did you forget or are you feeling guilty?  It is not too late to sign up for 2015.  You can join or renew your membership today - details below.  

We wanted to take this opportunity to thank our 2015 Organizational Members for their generous support!

Bristol Hospice
Islands Hospice
Hawaii Pacific Health
The Queen's Health System
United Healthcare Community Plan
The Cancer Center of Hawaii
Kaiser Permanente
St. Francis Healthcare Systems of Hawaii

Castle Medical Center
Church of the Crossroads
Executive Office On Aging
Ho'okele Care at Home
Hospice Hawaii
Hospice of Hilo
Hospice Maui  
Kaua'i Hospice 
North Hawaii Hospice
Pacific Health Ministry
Tower Hill Resources
University Health Alliance (UHA)
Wilson Care Group
8/18, 19 & 20 National ELNEC Train-the-Trainer Courses in Kona

This is a great opportunity for us in Hawaii to access this national training with some of the leaders in the field. It is ideal for people who would like to become the trainers for their organization.  There are 5 different courses as well as an international meeting the day before with participants from 20 Asian countries.

The organizers have agreed to give Kokua Mau participants a $50 discount so be sure to mention us when you sign up.

End-of-Life Nursing Education Consortium
August 18, 19 & 20, 2015
Sheraton Kona Resort & Spa Keauhou Bay
Kona, Hawaii

Pre-Conference to ELNEC Summit August 18, 2015
Asian Conference: Showcasing ELNEC's Efforts in Promoting Palliative Nursing Education and Practice. Asian partners in palliative care are invited to this conference. Learn about the tremendous growth of palliative care throughout Asia. For more information.

August 19-20, 2015
The ELNEC Summit provides ELNEC curricula train-the-trainer courses simultaneously. More Information
Kokua Mau Free Materials all together in our 'Toolkit'

Did you know that all Kokua Mau materials are together in our
These free materials are designed to be easy found in once place to be printed and shared. 

The new book by Dr. Angelo Volandes

Congratulations to Dr. Volandes!

The book, The Conversation: A Revolutionary Plan for End-of-life Care, by Angelo Volandes has been released by Bloomsbury Press.  The book is a part memoir and part guide about how American medicine fails patients with serious illness and offers a better approach to improve how Americans live as well as possible for as long as possible.  You can order the book on Amazon . 

Dr. Volandes is the driving force behind the ACP videos and many of you might have met him during his visits to Hawaii.

Best wishes,

Jeannette Koijane
Executive Director
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