2nd Kōkua Mau eNewsletter

There are so many cool events and interesting announcements that we added a second May newsletter. And remember that Mother's Day is a great time to record stories and remembrances from Mom.

How is POLST being used in long-term care in Hawaii?  Please join us for the June 25 Kokua Mau meeting to learn from Dr. Pamela Sebastian about her award-winning research on POLST usage in Hawaii.  She surveyed a number of facilities in Hawaii and has very interesting results to share. There is no May Kokua Mau monthly meeting. 
Wed. 5/20 Palliative Pupus

Please join us for Palliative Pupus - another lively and interactive, case-based interdisciplinary discussion from the cutting edge of hospice and palliative care.

This month, a family shares with us their hospice journey with their 10 year old daughter.

Wed. May 20
5:15 to 7:00 PM
The Queens Conference Center, Room 200
510 S. Beretania Street
Honolulu, HI 96813

There is validated parking for the first 15 people at $5/person or you can park for free in the municipal lot (see link below) after 4 PM. Or feed the meter across the street at the Department of Health, which now has a two hour maximum enforced 24 hours.
Advance Care Planning Speakers wanted!

People interested in speaking in the community
about Advance Care Planning. Kokua Mau is getting more and more requests for presentations from community groups and we would like to expand the number of speakers we can send out to meet face-to-face.

We will train you and give you materials but you should have a good understanding of the topic and be comfortable talking to groups. If you are interested in helping, let Jeannette know.


In this Issue and from Past Newsletters:
Thur. 6/11 Journey Together: Cancer Survivorship Conference 2015

'Finding your own Path'

The Hawaii Comprehensive Cancer Control Coalition partners conceived Journey Together, a cancer survivor-ship conference, to focus on issues important to cancer survivors and their caregivers. This year, keynote speakers will share their expertise on specific topics and attendees can meet, sup-port, and share hope with others like themselves, as well as learn about services offered by various community and cancer organizations.

Thursday, June 11, 2015
9:00 a.m. - 4:00 p.m.
8:00 am start: Registration/Resource Fair/Contonental Breakfast
Pomaikai Ballrooms, Dole Cannery
Iwilei, Honolulu

If you have any questions, please call Valerie Yoshida at (808) 692-7480 or email  


Fri. 7/10 Home- Based Palliative Care Services

HMSA Supportive Care & UHA Concurrent Care Programs in Hawaii. JABSOM Palliative Care Initiatives in Micronesia

Presenter: Ritabelle Fernandes, MD
Associate Professor, Dept. Geriatric Medicine
JABSOM, University of Hawai'i

July 10th, 2015 Friday
Hawaii Neuroscience Conference Room
Hawaii Pacific Neuroscience - Honolulu
2230 Liliha Street # 104 Sullivan Wing
Honolulu, HI 96817
(@ St Francis Liliha Campus)
This is part of the Honolulu Interdisciplinary Neuroscience Weekly Presentation & Discussion


The Stanford Letter Project

Here is a great new resource that turns around the conversations on care at the end of life.
The Stanford Letter Project found that 99.99% of doctors found it difficult to talk with their patients about advance care planning.  The Project encourages patients to take the initiative and write a letter to their doctors about their wishes and values. 

On the website you can get a free template for the letter as well as watch a great You Tube video of older Filipino people in San Francisco talking about their letter writing process.  Please let Jeannette know your feedback if you use this resource as we would like to promote this widely in Hawaii.


From past eNewsletters

Hospice News Network Available for Hawai'i!

Hospice News Network: A great opportunity to be better informed.

Hospice News Network, is a national e-newsletter that provides a summary of hospice, palliative and end-of-life care articles. The stories cover local, state and national issues and come from a variety of sources.

If you would be interested in getting this weekly newsletter, just let Jeannette know.  HMSA sponsors the Hawaii distribution so we are able to offer it free to interested people and organizations in Hawai'i.


Thur. 5/14 and 5/21 Eden at Home

Compassionate Caring for elders who live at home. The two session workshop focuses on changing perceptions of elders at home and in the community. It will provide practical strategies to improve the of life for elders and their care partners.

May 14 and 21 (two Thursdays)
9 am to 1 pm
Kailua United Methodist Church
1110 Kailua Rd, Kailua HI 96734

Workshop is limited to 14 participants.

To register by May 7 please email or call 263-0136 or 483-0762.

Registration fee is $10 to pay for part of the cost of the workshop manual. Please mail (check payable to 'Project Dana') to: Project Dana * 902 University Ave * Honolulu HI 96826. Please note place and date of your training on your check.

SUNDAY 5/24 3rd Death Cafe Honolulu

Sorry, the correct day for 5/24 is Sunday

You are invited to attend the 3rd Death Café Honolulu, a free event with tea, cake and conversation about death and dying.

Sunday, May 24
Chapel Lanai at O'ahu Cemetery
2162 Nuuanu Ave. Honolulu

We have a new venue in Honolulu! Special thanks to Na Mea Hawai'i for hosting our first two events.

Thank you Kokua Mau Members!

Thank you to everyone who renewed your membership or  joined Kōkua Mau!  Your financial support is crucial to helping us carry on and expand our activities. 

Did you forget or are you feeling guilty?  It is not too late to sign up for 2015.  You can join or renew your membership today - details below.  

We wanted to take this opportunity to thank our 2015 Organizational Members for their generous support!

Bristol Hospice
Islands Hospice
Hawaii Pacific Health
The Queen's Health System
United Healthcare Community Plan
The Cancer Center of Hawaii
Kaiser Permanente
St. Francis Healthcare Systems of Hawaii

Castle Medical Center
Church of the Crossroads
Executive Office On Aging
Ho'okele Care at Home
Hospice Maui  
Kaua'i Hospice 
North Hawaii Hospice
Pacific Health Ministry
Tower Hill Resources
University Health Alliance (UHA)
Wilson Care Group
Save the date: 7/21-23/15 Virtual Palliative Care Conference

Virtual Conference 2015: Clinical Advances in the Art and Science of Care.

The conference is designed to advance the provision of innovative, evidence-based, exceptional hospice and palliative care.

The American Academy of Hospice and Palliative Medicine (AAHPM), Hospice and Palliative Nurses Association (HPNA) and National Hospice and Palliative Care Organization (NHPCO) will host the  Virtual Conference.

July 21 - 23, 2015
Honolulu location TBA

As we did in the past we will meet at a central location and watch the live web-broadcast together. Details on when and where to follow.

8/18, 19 & 20 National ELNEC Train-the-Trainer Courses in Kona

This is a great opportunity for us in Hawaii to access this national training with some of the leaders in the field. It is ideal for people who would like to become the trainers for their organization.  There are 5 different courses as well as an international meeting the day before with participants from 20 Asian countries.

The organizers have agreed to give Kokua Mau participants a $50 discount so be sure to mention us when you sign up.

End-of-Life Nursing Education Consortium
August 18, 19 & 20, 2015
Sheraton Kona Resort & Spa Keauhou Bay
Kona, Hawaii

Pre-Conference to ELNEC Summit August 18, 2015
Asian Conference: Showcasing ELNEC's Efforts in Promoting Palliative Nursing Education and Practice. Asian partners in palliative care are invited to this conference. Learn about the tremendous growth of palliative care throughout Asia. For more information.

August 19-20, 2015
The ELNEC Summit provides ELNEC curricula train-the-trainer courses simultaneously. More Information
Road to Recovery Drivers Needed

Do you have time to help cancer patients get to and from appointments?  American Cancer Society's Road To Recovery Project needs drivers!  Please contact ACS directly at 808-595-7500 if you can help. 

Do you know of Family Caregiving Training Opportunities? 

Jackie Boland, AARP's Community Outreach Director, is asking for our network's input on available family caregiving trainings.  Please respond to her directly at jboland@aarp.org.

With the Kupuna Education Center course offerings on hold, she is wondering if you might be aware of where family caregivers could go for training? If you know of any organization offering trainings, she'd like to get that information. A recent call in reference to making safe transfers made it clear that this is a community need we may be hearing a lot more about until the Kupuna Ed Center is back up and functioning. Thank you in advance for your assistance.

"How do you want to die?" on PBS

The PBS NewsHour weekend edition featured
The Conversation Project on Saturday, March 28th, 2015.

The segment: "How do you want to die?" highlighted the growing national movement to normalize end-of-life care discussions, and the role that The Conversation Project
has played in making this change happen. You can view it streaming.

Kokua Mau Free Materials all together in our 'Toolkit'

Did you know that all Kokua Mau materials are together in our
These free materials are designed to be easy found in once place to be printed and shared. 

When Should Dying Patients Stop Treatment?

You can watch Dr. Atul Gawande's Interview on PBS' Frontline "Being Mortal" streaming on YouTube.

The new book by Dr. Angelo Volandes

Congratulations to Dr. Volandes!

The book, The Conversation: A Revolutionary Plan for End-of-life Care, by Angelo Volandes has been released by Bloomsbury Press.  The book is a part memoir and part guide about how American medicine fails patients with serious illness and offers a better approach to improve how Americans live as well as possible for as long as possible.  You can order the book on Amazon . 

Dr. Volandes is the driving force behind the ACP videos and many of you might have met him during his visits to Hawaii.

Best wishes,

Jeannette Koijane
Executive Director
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