Kōkua Mau Meeting
Thur. 4/30



The next  Kōkua Mau monthly meeting will be Thur. April 30 at St. Francis.

Monthly meetings are open to all. Please join us.

This month there will be lots of updates on ongoing projects and a chance for people to get involved.  Melissa Bojorquez (long time Kokua Mau member) will be also presenting about Care Synchronicity, a new service that provides people with chronic illness support managing their complex needs by providing education, avoiding unnecessary hospital visits, reconciling medications and providing coordination of services. 

Thursday, April 30, 2015

Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu

Join us for other local updates and please let Jeannette know if you have items for the agenda. 

Parking is validated and click here for a map and further details.  There will be real coffee and refreshments as well.

In this Issue and from Past Newsletters:
Save the date: 7/21-23/15 Virtual Palliative Care Conference

Virtual Conference 2015: Clinical Advances in the Art and Science of Care.

The conference is designed to advance the provision of innovative, evidence-based, exceptional hospice and palliative care.

The American Academy of Hospice and Palliative Medicine (AAHPM), Hospice and Palliative Nurses Association (HPNA) and National Hospice and Palliative Care Organization (NHPCO) will host the  Virtual Conference.

July 21 - 23, 2015
Honolulu location TBA

As we did in the past we will meet at a central location and watch the live web-broadcast together. Details on when and where to follow.

From past eNewsletters

6/11 Cancer Survivorship Conference

Please spread the word that the next Hawaii
Cancer Survivorship Conference will be held on June 11. Journey Together is a cancer survivorship conference that focuses on issues important to cancer survivors and their caregivers.

Break-out sessions, a resource fair and medical corner will also be part of this event organized by Cancer Coalition partners. Resource tables can be reserved by calling 692-7480.  Registration details coming soon. 

8/18, 19 & 20 National ELNEC Train-the-Trainer Courses in Kona

This is a great opportunity for us in Hawaii to access this national training with some of the leaders in the field. It is ideal for people who would like to become the trainers for their organization.  There are 5 different courses as well as an international meeting the day before with participants from 20 Asian countries.

The organizers have agreed to give Kokua Mau participants a $50 discount so be sure to mention us when you sign up.

End-of-Life Nursing Education Consortium
August 18, 19 & 20, 2015
Sheraton Kona Resort & Spa Keauhou Bay
Kona, Hawaii

Pre-Conference to ELNEC Summit August 18, 2015
Asian Conference: Showcasing ELNEC's Efforts in Promoting Palliative Nursing Education and Practice. Asian partners in palliative care are invited to this conference. Learn about the tremendous growth of palliative care throughout Asia. For more information.

August 19-20, 2015
The ELNEC Summit provides ELNEC curricula train-the-trainer courses simultaneously. More Information
Road to Recovery Drivers Needed

Do you have time to help cancer patients get to and from appointments?  American Cancer Society's Road To Recovery Project needs drivers!  Please contact ACS directly at 808-595-7500 if you can help. 

Do you know of Family Caregiving Training Opportunities? 

Jackie Boland, AARP's Community Outreach Director, is asking for our network's input on available family caregiving trainings.  Please respond to her directly at jboland@aarp.org.

With the Kupuna Education Center course offerings on hold, she is wondering if you might be aware of where family caregivers could go for training? If you know of any organization offering trainings, she'd like to get that information. A recent call in reference to making safe transfers made it clear that this is a community need we may be hearing a lot more about until the Kupuna Ed Center is back up and functioning. Thank you in advance for your assistance.

"How do you want to die?" on PBS

The PBS NewsHour weekend edition featured
The Conversation Project on Saturday, March 28th, 2015.

The segment: "How do you want to die?" highlighted the growing national movement to normalize end-of-life care discussions, and the role that The Conversation Project
has played in making this change happen. You can view it streaming.

Kokua Mau Free Materials all together in our 'Toolkit'

Did you know that all Kokua Mau materials are together in our
These free materials are designed to be easy found in once place to be printed and shared. 

When Should Dying Patients Stop Treatment?

You can watch Dr. Atul Gawande's Interview on PBS' Frontline "being Mortal" streaming on YouTube.

Why is it so hard for doctors to speak openly with their terminally ill patients about death as the end nears? Dr. Atul Gawande, Boston surgeon and author of the best selling book "Being Mortal" had a remarkably candid and intimate conversation with the widower of a deceased patient and apologizes for offering false hope in the end.

2015 Membership Drive

Please renew your Kōkua Mau Membership. Yes, membership is tax-deductible for 2015.  

Membership and donations are an essential part of keeping Kōkua Mau fiscally sustainable. Individual Membership starts at $40. We especially encourage organizational membership by community leaders that support our mission. Please contact Jeannette for details.
How do I join?
Please download our membership form and put it with a check in the good old postal mail.

Online: chose your membership level and click the Donate Now button on the right hand side of the webpage. Please put 'membership' in the 'Designation (Optional)' field, click 'add to giving cart' and follow the subsequent steps. We know, the free version of network for good does not look exciting but it is free. Thank you!
Benefits of Joining Kōkua Mau?

Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (We are not a state agency!) 

Expanding networking and education for professionals. 
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
  • Kōkua Mau e-newsletter providing updates on local and national events, resources and research
  • Kōkua Mau website is well visited and constantly updated
  • Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
  • Palliative Pupus - our cutting-edge, clinical case discussion
  • Palliative Care Salon - a chance to talk and reflect with colleagues
For over 15 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.
Please contact Jeannette with any questions.

The new book by Dr. Angelo Volandes

Congratulations to Dr. Volandes!

The book, The Conversation: A Revolutionary Plan for End-of-life Care, by Angelo Volandes has been released by Bloomsbury Press.  The book is a part memoir and part guide about how American medicine fails patients with serious illness and offers a better approach to improve how Americans live as well as possible for as long as possible.  You can order the book on Amazon . 

Dr. Volandes is the driving force behind the ACP videos and many of you might have met him during his visits to Hawaii.

Best wishes,

Jeannette Koijane
Executive Director
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