April Kōkua Mau eNewsletter & National Health Care Decisions Day
April
 2015


 Aloha Kokua Mau, 

Are you using the updated Kokua Mau Advance Directive

We'd like to hear your feedback about the updated form and the two new questions designed to elicit more discussion.  Please send comments to Jeannette.

After 10 years we have updated and revised the Advance Directive to make it more user friendly and accommodate the wishes of patients and their loved ones in more detail. Please use these free Advance Directives with clients, family and friends as a way to document your conversations about wishes for end-of-life care and appoint your health care power of attorney. 

Now a 3-page document, you can find the PDF file of the Advance Directive on our dedicated web page. All "old" two page Advance Directives are still valid, although we recommend you use only the new form and may consider updating an "older" form with the more detailed options available now.

Thank you to everyone who helped to make our POLST Training for Professionals a success.  The faculty was wonderful and participants were very pleased with the structure and content of the training. 

We'd like to thank our sponsors: 
  • Aloha Care
  • Gary and Akemi Simon
  • All Island Case Management Corporation. 
Thank you also to 15 Craigside for letting us use their beautiful space for the event.  In case you missed this training and are interested in other Advance Care Planning and POLST training for you or your staff, please contact Jeannette.

In this Issue and from Past Newsletters:
4/16 National Healthcare Decisions Day

April 16th is just a few weeks away. It's time for advance care planning advocates everywhere to start preparing for National Healthcare Decisions Day!

Event in Kaua'i:

A FREE Advance Care Planning Work Session: The Greatest Gift on Thur. April 16th from 10:00 a.m. to 12:00 p.m. or 2:00 p.m. to 4:00 p.m. in the Wilcox Memorial Hospital Conference Rooms for a work session facilitated by Dr. Amy Corliss and Advance Care Planning facilitators who will guide you through completing your Hawai'i Advance Health Care Directive.

Attendees and their health care power of attorney or loved one are encouraged to participate. Seating is limited. Call 245-1205 to register today!

If you have an event you would like us to share please let us know.

NHDD is a 50-state initiative to provide clear, consistent information on healthcare decision-making to both the public and health care providers through the widespread availability and dissemination of simple, free, and uniform tools to guide the advance care planning process.

4/30 Kokua Mau Monthly meeting

The next  Kōkua Mau monthly meeting will be Thur. April 30, this month back at St. Francis. Monthly meetings are open to all. Please join us.

Thursday, April 30, 2015

3pm-5pm
Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu

Join us for other local updates and please let Jeannette know if you have items for the agenda. 

Parking is validated and click here for a map and further details.  There will be real coffee and refreshments as well.

 

"How do you want to die?" on PBS

The PBS NewsHour weekend edition featured
The Conversation Project on Saturday, March 28th, 2015.

The segment: "How do you want to die?" highlighted the growing national movement to normalize end-of-life care discussions, and the role that The Conversation Project
has played in making this change happen. You can view it streaming.

Kokua Mau Free Materials all together in our 'Toolkit'

Did you know that all Kokua Mau materials are together in our
These free materials are designed to be easy found in once place to be printed and shared. 

4/10 & 11 Spirituality, Sustainability and Death

A workshop with Bodhi Be in Honolulu, Oahu

Fri. April 10: Intro Night: 7-9pm  $15

Sat. April 11: Workshop:  1-5pm $40 pre-register/$50 at the door
Pre-Register at Eventbrite
or Noble.Eternal@gmail.com
 
Workshop held at a private home: Waialae Iki Ridge (Kahala)
RSVP for Directions
Noble.Eternal@gmail.com or (808) 223-2001

More information and registration at Eventbright

 

8/18, 19 & 20 National ELNEC Train-the-Trainer Courses in Kona

This is a great opportunity for us in Hawaii to access this national training. It is ideal for people who would like to become the trainers for their organization.  There are 5 different courses as well as an international meeting the day before with participants from 20 Asian countries.

The organizers have agreed to give Kokua Mau participants a $50 discount so be sure to mention us when you sign up.

ELNEC SUMMIT
End-of-Life Nursing Education Consortium
August 18, 19 & 20, 2015
Sheraton Kona Resort & Spa Keauhou Bay
Kona, Hawaii

Pre-Conference to ELNEC Summit August 18, 2015
Asian Conference: Showcasing ELNEC's Efforts in Promoting Palliative Nursing Education and Practice. Asian partners in palliative care are invited to this conference. Learn about the tremendous growth of palliative care throughout Asia. For more information.

August 19-20, 2015
The ELNEC Summit provides ELNEC curricula train-the-trainer courses simultaneously. More Information
From past eNewsletters

When Should Dying Patients Stop Treatment?
You can watch Dr. Atul Gawande's Interview on PBS' Frontline "being Mortal" streaming on YouTube.

Why is it so hard for doctors to speak openly with their terminally ill patients about death as the end nears? Dr. Atul Gawande, Boston surgeon and author of the best selling book "Being Mortal" had a remarkably candid and intimate conversation with the widower of a deceased patient and apologizes for offering false hope in the end.

2015 Membership Drive

Please renew your Kōkua Mau Membership. Yes, membership is tax-deductible for 2015.  

Membership and donations are an essential part of keeping Kōkua Mau fiscally sustainable. Individual Membership starts at $40. We especially encourage organizational membership by community leaders that support our mission. Please contact Jeannette for details.
How do I join?
 
Please download our membership form and put it with a check in the good old postal mail.

Online: chose your membership level and click the Donate Now button on the right hand side of the webpage. Please put 'membership' in the 'Designation (Optional)' field, click 'add to giving cart' and follow the subsequent steps. We know, the free version of network for good does not look exciting but it is free. Thank you!
 
Benefits of Joining Kōkua Mau?

Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (We are not a state agency!) 

Expanding networking and education for professionals. 
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
  • Kōkua Mau e-newsletter providing updates on local and national events, resources and research
  • Kōkua Mau website is well visited and constantly updated
  • Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
  • Palliative Pupus - our cutting-edge, clinical case discussion
  • Palliative Care Salon - a chance to talk and reflect with colleagues
For over 15 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.
 
Please contact Jeannette with any questions.

Books and News
 
The new book by Dr. Angelo Volandes

Congratulations to Dr. Volandes!

The book, The Conversation: A Revolutionary Plan for End-of-life Care, by Angelo Volandes has been released by Bloomsbury Press.  The book is a part memoir and part guide about how American medicine fails patients with serious illness and offers a better approach to improve how Americans live as well as possible for as long as possible.  You can order the book on Amazon . 

Dr. Volandes is the driving force behind the ACP videos and many of you might have met him during his visits to Hawaii.

Best wishes,

Jeannette Koijane
Executive Director
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