March Kōkua Mau eNewsletter & updated Hawaii Advance Directive
March
 2015


 Aloha Kokua Mau, 

A big Thank You! to the active team that made the Updated Hawaii Advance Directive possible.

After 10 years we have updated and revised the Advance Directive to make it more user friendly and accommodate the wishes of patients and their loved ones in more detail. Please use these free Advance Directives with clients, family and friends as a way to document your conversations about wishes for end-of-life care and appoint your health care power of attorney. 

Now a 3-page document, you can find the PDF file of the Advance Directive on our dedicated web page. All "old" two page Advance Directives are still valid, although we recommend you use only the new form and may consider updating an "older" form with the more detailed options available now.

Next steps will be translating this new Advance Directive into 10 languages so we can help to expand access to those who are more comfortable in another language.  If you have foreign language skills and would like to help, please let Jeannette know. 

Thank you to everyone who has renewed their membership  or joined Kokua Mau for 2015.  We count on individuals and organizations to meet our budget and thank you for your support. If you haven't joined yet, please do so today!! Full details are below or on our website

In this Issue and from Past Newsletters:
Register now: Sat. 3/28 POLST Training

POLST Training for APRNs and Physicians.
Sat. March 28, 2015
12:30-4:30pm.
(Registration and lunch beginning at 11:30am)
15 Craigside, Honolulu

Kōkua Mau, Hawaii Hospice and Palliative Care Organization invites you to a 4 hour training for providers who are actually completing the POLST.
 
This interactive session will be a combination of lecture, video, case study and role play.  The faculty are experts from our Hawaii community, all with direct experience of discussing and completing POLST.
Sun. 3/8 Preparing for the Mystery

Preparing for the Mystery: Getting Up Close with Mortality. A special meeting with author Sara Davidson

Sunday, March 8, 2015
11:00 a.m.
Temple Emanu-El, 2550 Pali Hwy, Honolulu

Sara Davidson is a New York Times best-selling author and dynamic speaker who appears on shows such as Today and Good Morning America. Her book, "The December Project", is a moving account of the two years she spent meeting every Friday with Reb Zalman Schachter-Shalomi, the brilliant and colorful rabbi who founded Jewish Renewal. Details and map here.

 

Wed. 3/18 Palliative Pupus

Please join us for another dynamic, inter-disciplinary, case-based
Palliative Pupus discussion from the cutting edge of hospice and palliative care. 

Wed. March 18
5:15 to 7:00 PM
The Queens Conference Center (QCC) Room 200
510 S. Beretania Street
Honolulu, HI 96813

Please RSVP as soon as possible to Jeannette Koijane.  There is validated parking for the first 15 people who request it with their RSVP. Others can feed the meter machine e.g. across the street at the DOH (which now has a two hour maximum enforced 24 hours, according to the new sign).
These interesting palliative clinical case discussions are open to all.

 

Sat. 3/21 Death Cafe Honolulu

Join the "Death Cafe" for a free event with tea, cake and conversation about death and dying. Their objective is to increase awareness of death with a view to helping people make the most of their (finite) lives.

Saturday, March 21st
4:30-6:00pm
Nā Mea Hawai'i
1050 Ala Moana Blvd, Suite #1000, Honolulu

Please RSVP to  groundgivesway@gmail.com or on www.meetup.com/Honolulu-Death-Cafe-Meetup

Learn more at www.facebook.com/DeathCafeHonolulu &
www.DeathCafe.com

 

3/26 Kokua Mau Monthly meeting

The next  Kōkua Mau monthly meeting will be Thursday March. 29, this month back at St. Francis. 

Thursday, March 26, 2015
3pm-5pm
Conference Room 224
Weinberg Building
St. Francis Healthcare System of Hawai'i
2226 Liliha Street in Honolulu

Join us for other local updates and please let Jeannette know if you have items for the agenda. 

Parking is validated and click here for a map and further details.  There will be real coffee and refreshments as well.

 

Sat. 3/28 AARP HI Caregiver Conference

Caring for a loved one is a 24/7 job. Families could use a little help.

Sat. March 28
Japanese Cultural Center
8:30 am to Noon
Manoa Grand Ballroom 5th Fl
2454 S. Beretania Street, Honolulu
This is a FREE event

Parking is on your own.  The cost at the JCC is $5.  Alternative parking is in front of the Varsity Theater or at Church of the Crossroads - $4.

Register online or call toll free: 1-877-926-8300

Agenda:

7:30 a.m. Check-in Open
8:00 a.m. Resource Fair
8:30 a.m. Keynote: I Heart Caregivers presented by  Major General Tony Taguba (ret.), AARP Ambassador

Hear Major General Taguba's personal caregiver story, tips to make caregiving easier and more effective, and information about what AARP is doing to help family members assisting older adults. Share your challenges and questions. Learn about resources that can help.

10:00 a.m. Concurrent Session A (Select 1)
  • Options for Long-term Care, Presented by Hope Young
  • Share the Care: Family Conversations that Work, Presented by Tracey Wiltgen, Mediation Center of the Pacific
  • Attaining Balance While Caregiving, Presented by Dr. Sunny Massad
  • Getting Your Documents in Order, Presented by Kristin Lane Bryant, Attorney
11:05 a.m. Concurrent Session B (Select 1)
  • Protect Your Back! Strategies for Safe Transfers, Presented by Kevin Lockette, Physical Therapist
  • What is new in Palliative Care and Hospice and Who Pays, Presented by Dr. Ritabelle Fernandes, Geriatrician
  • Modifying Your Home for Aging in Place, Presented by Curt Kiriu, Certified Aging In Place Specialist
  • Ask a Case Manager, Panel: Martha Wacker, Judy Saketa, and Gary Powell*, Agnes Reyes* (*pending confirmation).
When Should Dying Patients Stop Treatment?
You can watch Dr. Atul Gawande's Interview on PBS' Frontline "being Mortal" streaming on YouTube.

Why is it so hard for doctors to speak openly with their terminally ill patients about death as the end nears? Dr. Atul Gawande, Boston surgeon and author of the best selling book "Being Mortal" had a remarkably candid and intimate conversation with the widower of a deceased patient and apologizes for offering false hope in the end.

From past eNewsletters

2015 Membership Drive

Please renew your Kōkua Mau Membership. Yes, membership is tax-deductible for 2015.  

Membership and donations are an essential part of keeping Kōkua Mau fiscally sustainable. Individual Membership starts at $40. We especially encourage organizational membership by community leaders that support our mission. Please contact Jeannette for details.
How do I join?
 
Please download our membership form and put it with a check in the good old postal mail.

Online: chose your membership level and click the Donate Now button on the right hand side of the webpage. Please put 'membership' in the 'Designation (Optional)' field, click 'add to giving cart' and follow the subsequent steps. We know, the free version of network for good does not look exciting but it is free. Thank you!
 
Benefits of Joining Kōkua Mau?

Kōkua Mau, as a local non-profit, community-benefit organization is fueled by the passion of dedicated volunteers with a lean budget and every penny spent on making our work possible. (We are not a state agency!) 

Expanding networking and education for professionals. 
Kōkua Mau continues to provide professionals an opportunity for education and networking through:
  • Kōkua Mau e-newsletter providing updates on local and national events, resources and research
  • Kōkua Mau website is well visited and constantly updated
  • Monthly Kokua Mau meetings, which usually include a speaker, local updates and networking opportunities
  • Palliative Pupus - our cutting-edge, clinical case discussion
  • Palliative Care Salon - a chance to talk and reflect with colleagues
For over 15 years, Kōkua Mau has been a voice for outstanding hospice and palliative care and services in Hawai'i, providing high-quality information, trainings and ever growing networking opportunities.
 
Please contact Jeannette with any questions.

Books and News
 
The new book by Dr. Angelo Volandes

Congratulations to Dr. Volandes!

The book, The Conversation: A Revolutionary Plan for End-of-life Care, by Angelo Volandes has been released by Bloomsbury Press.  The book is a part memoir and part guide about how American medicine fails patients with serious illness and offers a better approach to improve how Americans live as well as possible for as long as possible.  You can order the book on Amazon . 

Dr. Volandes is the driving force behind the ACP videos and many of you might have met him during his visits to Hawaii.

Best wishes,

Jeannette Koijane
Executive Director
Quick Links
Featured Article
Join Kokua Mau button
 
Join Kōkua Mau as a members now for 2015!

Membership is the backbone of Kōkua Mau's budget and helps us to be a financially sustainable organization. Just follow the steps outlined on our website.
Our Members

Visit Our Members
Join Our Mailing List