Kōkua Mau eNewsletter
November
 2014



Aloha Kōkua Mau, 

November is Hospice and Palliative Care month and a great chance to honor all who do this work in our community.  Your dedication to helping people facing serious illness and their loved ones live with dignity and love is truly remarkable.  Thank you for all the work you do.

There are several events coming up and I hope to see many of you - the Palliative Care Conference on November 11, Palliative Pupus on November 19 and the last Kōkua Mau meeting of the year on December 4 when Dr. Rae Seitz and Robert Eubanks from HMSA will be giving us an update on Supportive Care and the ACP Decisions videos. 

In this Issue and from Past Newsletters:
Wed. 11/19 Palliative Pupus

Please join us for another interactive interdisciplinary discussion from the cutting edge of hospice and palliative care.  The topic will be announced in the reminder.

Wed. November 19
5:15 to 7:00 PM
The Queens Conference Center (QCC) Room 200
510 S. Beretania Street, Honolulu, HI 96813

Please bring some pupus to share and invite your colleagues. This is a great chance for people who wonder what palliative and hospice care really looks like as we describe and discuss a real person and their journey.

Please note Palliative Pupus participants: There is FREE parking after 4 PM in the municipal lot on South Beretania, just Diamond Head of Queen's. You may have to look a bit, but free is hard to beat downtown. See our website for a map.

Thur. 12/4  Kōkua Mau Meeting - ACP videos

Kōkua Mau combines November and December meetings because of the holidays. Our last 2014 meeting will be
Thursday, December 4 from 3-5pm. 

Dr. Rae Seitz and Robert Eubanks will be giving updates from HMSA's supportive care program and the ACP Decisions videos project.

Parking is validated and click here for a map and further details.  There will be real coffee and refreshments as well.

"A new video campaign gives patients a voice on treatment options" by Susan Essoyan was a front page article in the Star Advertiser from Sept. 29.  This article outlines the ACP Decisions videos, which many facilities around the state are using to facilitate conversations on treatment issues.  You can read more about these short videos at acpdecisions.org and contact Robert Eubanks at HMSA if you are interested in getting the videos for your facility.  HMSA is paying for the license for facilities across the state so there is no cost to you. 

The article is available on-line (but you need to be a subscriber to get full access). Please contact us if you would like a PDF copy of the article.

Congratulations to Kōkua Mau members being recognized for their great work!!

Congratulations to Kōkua Mau members Michelle Cantillo, RN and Dawn Minaai, MD for being recognized by Hospice Hawai'i as its Healthcare Professionals of the Year for their advocacy of Advance Care Planning (ACP).    

 

Congratulations as well to Melissa Champlin, RN, CHPN, for being honored as a Hawaii Healthcare Hero by the Healthcare Association of Hawaii. Melissa is an enthusiastic Kōkua Mau member and works as the Patient Care Manager with Hospice Hawai`i-Lana`i. 

Updating our Advance Directive

Kōkua Mau has an easy to understand 2-side Advance Directive that is used by facilities around the state.

We are in the process of updating the form and will let you know when the new form is ready. The old form will still be valid.

Additionally, several agencies which use the form would like to have translations of the form as they comply with Medicare/Medicaid quality measures. If you are interested in translations of the advance directive form, please let Jeannette know.

Nov. 11, 2014 Annual Pain and Palliative Care Conference

See you tomorrow at Hawaii's premier Palliative Care conference: The Fine Art & Science of Pain & Palliative Care, Hawaii's own Queen's Medical Center Annual Pain and Palliative Care Conference.

Tue, November 11, 2014
Ko'olau Ballrooms & Conference Center
Kaneohe, Hawaii

Featured Topics
  • Cutting edge of palliative care research
  • Interventional pain management
  • Opioid safety: compassionate,
  • responsible prescribing
  • Novel palliative approaches
  • Rational palliative chemotherapy
  • Normalizing grief experiences
  • Rediscovering grief traditions

Featured Guest Faculty:

  • Jay R. Horton, PhD, ACHPN
  • Thomas J. Smith, MD, FACP, FASCO, FAAHPM

For a Conference Program and registration form see our website or contact: cme@queens.org or call (808) 691-7009.  

 

11/11 A Celebration of Life

A Celebration of Life Memorial. Remembering, Cherishing, Healing. For more information please call (808) 536-8012 or email: ckimhan@bristolhospice.com

Tuesday, November 11
10:00am - 11:30am
Ke'ehi Lagoon Memorial Park
2685 North Nimitz Highway, Honolulu, HI 9681

Fri. 11/14 Health Literacy and Improving Equality

Friday Nov. 14, 2014,
12:00-1:30pm
Queens Conference Center (map)

This talk by Tetine Sentell, PhD, Associate Professor at UH-Public Health, will discuss current definitions of health literacy; measurement options for health literacy, and current research and patient care projects related to this topic.

There is still time to register for this free training

It can be attended in person at QCC, remotely at various VCC sites on the neighbor islands (see attached VCC sites list), and via a Scopia webinar system (PDF flyer with details on their website).

All participants are requested to register - even for the video conference site and webinar attendees. This is important for tracking to the funders and for receiving the PPT slides.

Leveraging the New IOM Report

Web Conference Briefing: The Center to Advance Palliative Care (CAPC) hosted a very interesting and informative web conference on Oct. 28, with Diane E. Meier, MD, one of the nation's leaders in palliative care.   She discussed the Institute of Medicine's latest report in depth and presented the report in a practical and action-oriented way. The full presentation and slide deck used are currently available for free download. It is interesting to see how many of the IOM report's recommendations we are working on in Hawaii.  More about the IOM Report at the bottom of this newsletter.

From past eNewsletters

Plan ahead: National HealthCare Decisions Day

National HealthCare Decisions Day is 6 months away and an opportunity "to inspire, educate & empower the public & providers about the importance of advance care planning."

Now is the time to start planning for an event at your facility or organization. Visit their website for lots of good tools to get you started including press releases, posters, letters to stakeholders, etc.
http://www.nhdd.org/tools/

And let us know what you are doing so you can inspire others. 

 

Being Mortal: Medicine and What Matters in the End

In his bestselling books, Atul Gawande, a practicing surgeon, has fearlessly revealed the struggles of his profession. Now he examines its ultimate limitations and failures - in his own practices as well as others' - as life draws to a close. And he discovers how we can do better.

 

Hawaii Public Radio Interview

On Friday September 12, 2014 Hawaii Public Radio aired an interview with Jeannette Koijane on Kōkua Mau for their Helping Hands segment.  You can hear the 5 minute interview at: 

http://hpr2.org/post/helping-hand-kokua-mau


Resource: Dying in America- New IOM Report

The Institute of Medicine (IOM) has released an extensive, book-length report on the state of end-of-life care in the United States today, providing a number of recommendations for how to move the field forward in the years to come. The 507-page document, titled "Dying in America," was funded by a $1.5 million anonymous donation, and has been spurred by the "death panel" controversy surrounding end-of-life care that emerged during the debates surrounding the Affordable Care Act (ACA). The report concludes that the US medical system as it stands is ill prepared to provide the end-of-life care that Americans need, and that there exists a significant discrepancy between the care that individuals receive at the end of life and what they actually desire.

We have included links here to key portions of the report which show that Hawaii is on the right track for improving care at the end of life although we all have much work to do. 

Best wishes,

Jeannette Koijane
Executive Director
Quick Links
Featured Article
Join Kokua Mau button
 
Join Kōkua Mau as a members now for 2014!

Membership is the backbone of Kōkua Mau's budget and helps us to be a financially sustainable organization. Just follow the steps outlined on our website.
Our Members

Visit Our Members
Join Our Mailing List