I hope you had a wonderful Thanksgiving and your holiday season is a good one. As you spend time with friends and family, this can be an opportunity to talk about the important issues that hospice and palliative care addresses. We know talking about these issues is never easy, but the conversations are some of the most important you can have. Here are some resources to use:
Hope to see you on Thursday at the Kōkua Mau meeting. Count on interesting, lively discussion.
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|Advance Care Planning Materials Survey|
In an effort to better serve our community, our Advance Care Planning Committee continues to identify resource materials for people facing serious illness, their loved ones and professionals. We'd like your help in identifying good materials that you already use and gaps that we could fill, either by creating new materials or finding other resources. Thanks for your help in taking a few minutes to complete this survey to help us with our process.
|Thur 12/5 Kōkua Mau Meeting|
Please join us for our monthly Kōkua Mau Meeting. Because of the holiday season, we combine the November and December meetings so this will be the last one of the year. This month we will spend the first hour talking about the ACP Decisions videos and how you have been using them. We'd like to hear your stories!! If you have been contemplating how to start using the videos, this is a good chance to listen to people's stories and learn from others. (Not sure what these videos are - visit acpdecisions.org
to learn more before the meeting when all your questions will be answered.)
Additionally, Robert Eubanks and Rae Seitz from HMSA will be giving us updates on how the videos are rolling out around the state.
Thursday Dec. 53PM to 5PMRoom 224
Weinberg Building at St. Francis Healthcare System
2226 Liliha Street
If you would like to be on the agenda, please contact Jeannette
directly. For directions and parking information check our website
|Fri. Dec. 13 Palliative Care in the USAPI|
Jeannette Koijane, Kōkua Mau's Executive Director, will be presenting "Caring the Pacific Way", an overview of recent palliative care efforts in Micronesia and American Samoa.
Friday, Dec. 13
Queen's Conference Center
Please register for the presentation on-line.
Remote VTC/VCC sites access on the neighbor islands-site selection when you register. CEUs will be available for CSAC and general attendance certificate. Parking on your own (see our website for QMC parking tips).
- Describe the current situation in the USAPI with regards to the need for palliative care and palliative care training
- Describe components of a culturally and resource appropriate palliative care curriculum.
Jeannette has been involved in the Palliative Care Curriculum for the USAPI (US Affiliated Pacific Islands) since it inception. She has been assisting the jurisdictions to develop palliative care programs through a collaboration of Kōkua Mau with the UH Cancer Center and the Department for Family Medicine and Community Health, John A. Burns School of Medicine.
|Fri. Dec. 13: Dr. David Casarett Grand Rounds|
Dr. Casarett*, a nationally recognized Hospice and Palliative care research physician, will be in Hawaii next week and there are two opportunities to hear his talk: "The Future of Hospice & Palliative Care". Please visit our website for details and CE information for each event.
Friday, December 13, 2013
8:00 am - 9:00 am
The Queen's Conference Center
12:30 - 1:30 p.m.
Kuakini Medical Center HPM Auditorium
Please RSVP by Friday, December 6, for the Kuakini presentation with Keri Nitta at 523-8461 to ensure there will be seating, food, and materials to accommodate everyone.
*David J. Casarett, MD, MA. Associate Professor, Division of Geriatrics, Dept. of Medicine University of Pennsylvania School of Medicine.
|Kōkua Mau PBN Advertorial|
At the beginning of 2013, Kōkua Mau was invited to become a member of the Wellness Alliance Hawaii
, a division of HMAA. We are happy to be part of this Alliance comprised of health, wellness and safety-related organizations that are committed to helping achieve a happier, healthier Hawaii.
A Kōkua Mau advertorial about our work featured on page 3 of the November 1st (2013) issue of Pacific Business News
courtesy of HMAA. With the opening line: "Do you have a loved one who is elderly or has a serious Illness"
, the advertorial talked about the importance of having "the" conversation and explained POLST, Adavance Directives and other Kōkua Mau materials aimed at the public. To read a copy of the advertorial please visit our website and click on the PDF link.
|NTY: The Gift at an Ending|
The New York Times ran a wonderful story on Nov, 13 titled "The Gift at an Ending
" by Diane Melton. You may want to read it while it is still on-line for free.
From Previous Newsletters
- Abbreviated -
|Kōkua Mau Website Materials Update|
This month we have a few updated Kōkua Mau resources we just received from our partners and put on our website.
The Bereavement Network of Hawaii just updated its 14 page Bereavement Support list.
The brand new 2013 updated 'Services and Housing Options for Seniors on O'ahu' (pdf file 1MB) published by the Kōkua Kalihi Valley.
And just a reminder: Kōkua Mau is the official repository for POLST information in Hawaii. You can download POLST forms as well as the handouts for providers and consumers there.
|Dec. 3-5, 2013 Hawaii HCBS Conference |
Full details on this national meeting are on the website
|Death over Dinner - a new venue for talking story|
Would you be willing to host a small dinner party to talk with friends about death and dying? While the topic may seem morbid, many of us struggle for ways to engage with friends about important but difficult topics. What better place than a safe environment with friends? This seems like a great idea for Hawaii.
"Death over dinner
" is an interactive website that helps you create a dinner invitation to talk about death, with a menu of interactive options, videos and reading assignments. Visit their website
and find out more about it.
Here is a short synopsis from Death over Dinner: How we want to die represents the most important and costly conversation America isn't having. Death over dinner
has gathered dozens of medical and wellness leaders to cast an unflinching eye at end of life, and created an uplifting interactive adventure that transforms this seemingly difficult conversation into one of deep engagement, insight and empowerment.
Let us know if you try it and what your results are!!
|Hospice News Network Now Available for Hawai'i!|
Hospice News Network: A great opportunity to be better informed.
Hospice News Network, is a national e-newsletter that provides a summary of hospice, palliative and end-of-life care articles. The stories cover local, state and national issues and come from a variety of sources. A number of colleagues in other states subscribe and find it useful and interesting.
If you would be interested in getting this weekly newsletter, just let Jeannette know. HMSA has agreed to pay the cost so we are able to offer it to free for interested people and organizations in Hawaii.
|Kōkua Mau in the News!!|
Pacific Business News wrote an good article about Kōkua Mau and our Trailblazer award!! The article nicely outlines Kōkua Mau's mission and activities, encouraging people to talk ahead of time about end-of-life care wishes. Click here to read Jenna Blakely's whole article. This month they also ran an advertorial about Kokua Mau, sponsored by HMAA as part of their Wellness Coalition.
|See you soon!|
Jeannette Koijane, MPH
Join Kōkua Mau and help support our work!
Membership is the backbone of Kōkua Mau's budget and helps us to be a financially sustainable organization. Just follow the steps outlined on our website.