'Tis the Season for Giving! Help fund the work of the Jett Foundation.
Happy Holidays!
Greetings!
For the first time in 16 years, I can actually celebrate the passing of another year. Instead of seeing Jett's health decline, he is stable. And that is because of eteplirsen.
This is truly amazing. This holiday season, we are doing something we weren't sure we would ever do, and that is planning for Jett's future. But Jett is only one of many, and we must give this gift of planning for the future to all affected by Duchenne.
I need your help to do this, so please make a donation today. Together we can make sure that all affected families can plan for a healthy and happy future.
Sarepta's Advisory Committee is now officially scheduled for January 22, 2016 at FDA. Save the date and join Jett Foundation, along with the rest of the Duchenne community, to make our voices heard. We need you there by our side!
This is an amazing time for the Duchenne community. We have fought for so long and are finally seeing some progress, but we cannot let up now.
Again, thank you for your support and help.
Best wishes for a healthy, happy holiday season and a new year filled with hope and joy.
Did you know your Amazon purchases can help end Duchenne? Sign up for Amazon Smile, select Jett Foundation as your charity, and a percent of all your purchases will be donated to help end Duchenne.
Thanks to an anonymous donor, all donations for the rest of the year will be matched!
So, donate today and DOUBLE your impact!
Give the gift of camp
Jett Foundation funds Camp Promise, an overnight camp for kids and young adults with Duchenne and neuromuscular diseases. Your donation sends campers to camp for free. Check out the magic of camp here, a new photo exhibit from EJ Carr, our photographer at Camp Promise-Rockies.