There is hope where there was never hope before.
This week I ran into an old friend and I heard myself say, I think we have saved Jett's life.
And the more I think about it, I think we did. He is probably one of the sickest kids that started eteplirsen and he is doing great.
We remain disappointed that FDA has moved Sarepta's Advisory Committee until January 22, but are dedicated to continuing our work to make the Duchenne community voice heard and to make progress in drug development.
So thank you to all who support and donate to the Jett Foundation because we are achieving our goals and making the future better for all affected by Duchenne.
We need to continue and there is still much work to be done. We need more programs, more camp, more advocacy. We have great things on the radar screen for the remainder of 2015 and 2016 and we need your support and participation. In Boston? Join us Saturday night for a fabulous party!
Christine McSherry, Jett's Mom
Executive Director, Jett Foundation