AUGUST UPDATE

 

Cal Quitzau enjoys a swim at Camp Promise- East. 
Learn more about camp here.
 

Look at that smile! It's the smile of a happy camper.

When you give to the Jett Foundation (which we hope you do again soon and often!), you are sending kids to camp and giving them the gift of summer fun. 

Did you know that Camp Promise is FREE to campers? This summer we will fully fund three summer camps at Camp Promise in Denver, Philadelphia and Seattle. Your donation is making this happen. Thank you for giving those with Duchenne a fantastic summer camp experience from camp fires, to adaptive sports, to making new friends. This incredible opportunity happens because of your generosity and support. 

And your support is also fueling Jett Foundation work on many other levels. Please join us for one of our upcoming Educational Roundtables to learn more about Clinical Trials, stay tuned for the next steps as we advocate for those affected by Duchenne, and thank you for being involved. 

Best, 
christine signature
Christine McSherry, Jett's Mom
Executive Director, Jett Foundation
Want to learn about Clinical Trials?
Join one of our roundtable discussions and get your questions answered!
 
Currently, there are approximately 62 ongoing clinical trials for Duchenne listed on clinicaltrials.gov. Several pharmaceutical companies have therapeutics in the approval process with possible approvals for at least 3 drugs in 2016. It is an exciting time for Duchenne, but it can also be confusing for those who have to make important decisions for their loved ones.

The Jett Foundation is partnering with other Duchenne Alliance members as well as clinicians and other experts around the United States in a series of Regional Roundtable clinical trial discussions. These events will help to inform and create discussion around clinical trial options both locally and worldwide currently underway or recently completed. 

Saturday, August 22nd at UCLA in Los Angeles, CA
Saturday, August 29th, Boston, MA
Saturday, September 12th in Pittsburgh, PA
Other locations - coming soon. 

More locations to be determined. 
Learn more - email Jennmc@jettfoundation.org or click here. 

Thanks to our sponsors and participants for our Ohio Roundtable. It was a great success - check out the details on our facebook page.  
August Vacation Opportunity!
 Week in Florida - Up for Auction!
 
Haven't made your summer vacation plans- here is your chance! Fabulous 2 Bedroom Villa at the Marriott's Royal Palms in Orlando. The deluxe unit sleeps 6 for the week of August 22nd to 29th. Your own luxurious space, including a full kitchen, master suite with Jacuzzi, large living area and patio. Enjoy dazzling resort pools, fitness center and access to Joe Lee Championship golf course. Plus close proximity to all Orlando theme parks. Airfare not included. 
 
Bidding starts at $800 - email your bid to katie@jettfoundation.org
and she will update you on the auction progress. Auction closes on Monday at noon. 

Thanks to David Zukowski and InnSeasonResorts.
McNary Featured in Boston Globe Magazine
Sick kids, desperate parents and the fight for experimental drugs

 

Last week's Boston Globe Magazine featured Jett Foundation's Jenn McNary and her son's Austin and Max in an article detailing the quest for experimental drugs. 

 

 

Read the full article here. 

TRI FOR JETT RACEDAY! 
Many thanks to all who made the Tri for Jett a success! It was a beautiful day at the Duxbury-Marshfied triathlon. So far the team has raised $35,000 with checks still coming in! 

A huge thank you to Laura DeSisto for her tireless work and fantastic team leadership and to our lead team sponsor, the Goodale Company. Special acknowledgement to team sponsor, The Ink Spot for their support. Funds raised will make a difference in the lives of those with Duchenne. Many thanks to the athletes who put their muscles to use for those who can't. 

New England Patriots Training Camp
Thank you New England Patriots for hosting the Jett Foundation at Training Camp!

We are grateful for this opportunity for those with Duchenne and their families to enjoy an amazing day of football. Thank you to our wonderful volunteers who helped make this day successful. 



SUPPORT THE GALS FOR CAL!

Participate in the women-only 
Title 9 Hopkinton Triathlon 

JETTRIDE 2015

They did it!
50 Miles - 1 Day

Congratulations and thank you to this year's JettRiders who completed a 50 mile ride last Saturday. Enduring some tough weather (from blistering heat to thunderstorms!), this year's ride was in loving memory of 4 dearly missed Jett Foundation friends:  Quinlan J. Sullivan III, Thomas P. Coyne, Clari De La Cruz and John Dawson. 

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