PAVE's Pipeline
Fall Edition
September 2012 - December 2012, Vol. 2, Issue 6
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Save the date!
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Come Saturday, October 20, 2012 from 5:30 to 10:00pm for PAVE's soirée of the year, held at the Greater Tacoma Convention and Trade Center! With delicious food, wonderful music, and a wide array of live and silent auction items, this night promises to be as grand as The Big Apple itself! Learn more HERE!
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| Sensory-friendly Films for Families Affected by Autism | |
AMC is partnering up with the Autism Society to offer families the chance to watch a movie screening together. These special showings are a great chance for families who are often unable to attend screenings due to stimuli that might be too much for some family members with special needs. At these screenings lights will be turned up and volume will be turned down so that all the viewers are able to enjoy the feature. Guests are also invited to get up and move, sing and shout, and walk or dance with the movie.
Find out local showings and info here!
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Home Records and Files
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Some of us hear the word records and think about the large black vinyl records we used to play on a record player. Yes, the CDs of yesteryear. However, that is not what this is about, we will be talking about how to start, maintain and improve a system to keep our children's home file and records.
From the time we bring our children home, we already have a number of documents for them that we need to keep in a safe place yet easily accessible for most things we do with them.
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A Letter from PAVE's Executive Director
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Greetings!
An email all too familiar to the staff at PAVE arrived; a mom just learned her beloved child tested positive in-utero for possible disabilities. She shared her pain, grief, sorrow and joy swirling around her. Emotions often triggered when she least suspected it; seeing the kids standing on a street waiting for a bus, watching a TV show and seeing a pregnant actor rub her belly, or even hearing the news of a friend's new pregnancy. The journey has begun for this Mom and her family. We know it well here at PAVE.
"The knowledge and wisdom I have gained from working with PAVE has caused me and other families to reach for what is best for our children and to believe it is possible; our dreams are possible."
This quote sent from another parent gives us all hope. The key is that dreams require a team effort. This quarter is always unique for the Pipeline. September to December offers some significant dates; the start of a school year or the loss of not having a school year for one's loved one, holidays, and family gatherings and traditions. Add in our current economic times and there's a lot whirling around at this time of year. One constant is PAVE.
We are here to listen, to share informational resources, offer connections in your community, and most of all to share stories of hope. It's as easy as remembering 1-800-5-PARENT. You never know when that simple gift may be needed by someone in your midst. One thing we've learned, we're in it together and for the long haul. 1-800-5-PARENT, for parents and families, we stand committed.
Warm regards from all of us at PAVE to you and your family,
Sincerely,
Tracy Kahlo,
Executive Director

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Vaccinations; Have You Gotten Yours?
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Pertussis, also known as whooping cough, has reached epidemic proportions in the state of Washington. Whooping cough can affect anyone of all ages, but infants, expecting mothers and individuals who are not fully immunized from whooping cough are at higher risk of contracting this disease.
Although numbers have fallen greatly since last January the fastest growing number of cases are in the ages between 5 and 18 (55% of the 3,911 cases so far this year) with the highest numbers in the 10 to 13 age range. With school starting again the number could see a sharp increase if families aren't vigilant with making sure all family members have a booster.
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PAVE to Provide Assistive Technology Training
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If your child has a disability, they may benefit from Assistive Technology (AT) tools that play to their strengths and help them with any challenges they may have. One of the questions that parents and educators are asking - how do I get an iPad or other mobile device written into the IEP?
We are planning on creating a presentation that shows the impact that Assistive Technology has made on families. We are looking for families to interview - what technology they use, why they use it and how it is helping them in their daily life. If you are interested in helping us with this project, contact Kate or Sandy at the PAVE office at 1-800-572-7368.
Read More Here...
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Help Your Child Read with FREE Resources from Bookshare
|  What is Bookshare?
Bookshare is a nonprofit, online library of specialized eBooks that can be read by people who cannot access traditional print books. People with print disabilities like blindness, low vision, physical disabilities, and severe learning disabilities can download Bookshare books and read them by listening to words being read aloud, see and hear words being read at the same time, read books in large font sizes, read in braille and more. Watch this video of one student reading with Bookshare: http://youtu.be/UNprRAtLy6c |
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Youth, Families, and Professionals Work Together to Improve Services in Mental Health
|  Washington State Behavioral Health was recently awarded one of the state grants to plan for the creation of a statewide network for delivering services to children with serious emotional disturbances and other children with special needs.
This is based on a "system of care" (SOC) approach, better known to families as Wraparound Services. Wraparound (which derives from the National Wraparound Initiative) is a system of care planning and management concepts that involves a coordinated, community-based, family-driven and youth-guided system of providing services to children.
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Coping Strategies; Meeting Holiday Needs of Everyone in the Family
|  The holiday season is a time of laughter, joy, anticipation, and surprises. However, for families raising individuals with sensory and neurological disorders it can be a very stressful time of year.
Throw in a mix of typically developing children, who enjoy and can handle the added stimuli, and you have just described a parent dilemma. How do we as parents meet the needs of all family members?
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"HUB" -- A Family Support Group for Young Adults with High Functioning Autism Spectrum Disorder (ASD) as well as Intellectual and Developmental Disabilities.
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"HUB" Support Group will be geared towards connecting young adults, along with their families, to community opportunities, resources, and support systems.
Based on a study from 2007-2008 by the University at Virginia Commonwealth (www.pediatrics.org) within the next 10 years more than 500,000 children with autism and/or intellectual and developmental disabilities will reach adulthood. Experts say it's an issue policymakers urgently need to address.
There is, and will continue to be, a wave of young children who have been diagnosed with autism who are aging toward adulthood.Keeping this in mind, we are dedicated to helping young adults and their families as they transition into our community!
For more information contact
Susan Jackson sjackson@wapave.org or Sybille White swhite@wapave.org
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We're Glad You Asked!
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Question One:
At the end of last school year my son's annual IEP was due. The meeting was held in his classroom and I was sent notice that we would be discussing goals, objectives and services he would need. The only person missing was my son's speech therapist. The therapist did talk with me before the meeting and she also sent her report along with suggestions regarding her recommendations. Was it all right to excuse her from the IEP meeting?
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Comic: Youth Perspective - "The Journey of Willa" By: Alyssa McCormick
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Partnerships for Action, Voices for Empowerment
Administration - Tracy Kahlo, Heather Hebdon, Elma Rounds, Sandy Trujillo, Michael Vargas
360 Military Family Center - Jill McCormick
Community Inclusion Program - Michele Lehosky, Susan Jackson, Sarah Miller
Early Support for Infant and Toddler Program - Debbie Jackson
Family Resource Coordinators - Sybille White, Nan Nop
Family to Family Health and Information Center - Jill McCormick
Parent To Parent of Pierce County - Michele Lehosky, Susan Jackson
Parent Training and Information Program - Vicky McKinney, Vanessa Lewis,
Sherry Mashburn, Anita Partida, Jeanette Stonecipher, Jessica Kaluza, Pat Barkley
Person Centered Planning - Michele Lehosky
Response To Intervention Program - Sarah Hale
Specialized Training of Military Parents - Heather Hebdon, Adriana Martinez, Kate Mason, Valerie Patterson, Brianna Ybarra
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