PAVE's Pipeline
Summer Edition
June 2012 - September 2012, Vol. 2, Issue 5
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Go to a Park this Summer
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With its majestic mountains, beautiful lakes and rivers, and endless trails for walking and hiking, Washington State has so much to offer during the summer months.
Many city parks have great day camps and activities for the whole family. Most offer playgrounds, walking trials, swimming, and boating and picnic areas. All or most are wheelchair accessible and provide playground equipment that would be accessible to kids with disabilities. |
Save the date!
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A great evening is in store to support military and civilian families who have children with disabilities and/or special health care needs. All proceeds raised from this exciting evening will help PAVE provide support, advocacy, training, and informational resources to empower families and individuals with disabilities. Learn more HERE!
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Stay active and engaged all summer!
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When we set out to look for inexpensive fun summer activities, we had no idea how generous people were with their ideas. Here is a compilation of the frequently mentioned activities of low or no cost, including a fun list of ideas!
Read more here...
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DD Life Opportunities Foundation Seeking Members for Board of Directors
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If you have an interest in seeing people with developmental disabilities build assets and set aside resources for their futures, the Developmental Disabilities Life Opportunities Foundation (DDLOF) needs your help.
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Volunteer Appreciation Month
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Greetings!
What's your favorite summer memory? You may even be making new ones as we send out this issue of Pipeline. We're excited to hear what this time of year means to you and your family. Perhaps you've found a new family activity in your area that you'd love to share with others. We'd LOVE to hear from you! Send us your summertime stories, memories, tips for families and/or a new or favorite event/activity your family enjoys to pipeline@wapave.org
Summer also means the PAVE booth is out and about with our very resourceful staff! Maybe you have an event in your area perfect for the PAVE booth. Let us know at pipeline@wapave.org
Whatever this time of year means to you and your family, we are here planning next year's activities and are always just a quick phone call away! We'd love to hear from you at 1 (800) 5-PARENT.
Thank you!!!
Sincerely,
Tracy Kahlo,
Executive Director
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Tribute to an Unwitting Pioneer whose Life and Legacy Answers the Question:
"What are You Doing for Others?"
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 The advocacy efforts of an Iowa family to bring their child home and out of the hospital where she had lived for three years began a movement that has had a huge impact on Medicaid. The reform built through these efforts has changed a system many thought impenetrable.
Because of and her parents, Medicaid now allows a person with significant disabilities the opportunity to receive their needed services in the community instead of an institution. This unexpected pioneer helped reform Medicaid and allowed the creation of the "Katie Beckett Waivers". |
Attention Medicaid Recipients!
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Individuals receiving Medicaid (but not Medicaid/Medicare) are moving to a managed care system called Healthy Options. This shift in healthcare affects individuals receiving: 
- Medicaid under SSA (Social Security Association) provisions, receiving TANF (Temporary Assistance for Needy Families) and/or not eligible for cash assistance but still eligible for Medicaid.
- Children under the age of 18 who are eligible for Medicaid under expanded pediatric coverage. provisions of the SSA.
- Pregnant women eligible under expanded maternity coverage through SSA.
- Children who are blind and have a disability.
- Adults not eligible for Medicare.
- Children in foster care may enroll voluntarily.
Read more...
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Apps for Learning and Communication!
|  There is a special education section in iTunes that contains apps specifically around communication, emotional development, seeing and hearing, language development, literacy and learning, organization, and life skills. There are also apps out there that are super, but not categorized by Apple as a "Special Education" app, so don't limit your search to their list. To get there you need to enter the iTunes App Store on a computer, or directly from your iPad. On the right hand side under "quick links" click "All Categories" and choose "Education" from the drop down list. Select "Special Education" from the list. |
Families connect and gain knowledge at the
Infant and Early Childhood Conference |  This past May, the Washington State Infant and Early Childhood conference took place at the Greater Tacoma Convention Center. Each year we award "Cassie Johnston memorial scholarships" to parents and family members to enable them to attend the conference. This year, we provided 47 scholarships to family members from across the state, including 13 foster parents. Families gained information and knowledge that helped them with the challenges they face in raising a child with a developmental delay or disability. They also had the opportunity to meet other parents and family members and share experiences as well as resources they find helpful in their communities.
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Ideas for Smooth Transitions in Children's Lives
|  One of the things that people tend to avoid is change. However, coping with change is a skill. What's more, learning how to manage change is one of the most important skills we can teach our children. Changes or transitions can be positive experiences but they can disrupt what has been a pattern in a child's life and can therefore still be stressful. Change can be something as simple as a family member moving in or out of the home, going to a new school, changing schools, changing grades, a move to a new location, or for some of our military families, the deployment of a parent or loved one.
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Parent Engagement: Response to Intervention
|  Response to Intervention (RTI) is a process that has been implemented in school districts to assist children in reaching their greatest capabilities, prevent a "wait to fail" for students, and give schools a guide to follow in their efforts to assist struggling students. RTI is made up of four essential components: universal screening, progress monitoring, multi-level prevention system, and data-based decision making. The RTI process can be provided to schools in many different fashions. However, in order for RTI to be successful, parents, school administrators, and teachers need to work collaboratively together.
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We're Glad You Asked!
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My child has had a 504 plan for the past three years. He will go to high school next year and his counselor said it isn't necessary for him to have a re-evaluation before he starts. I am concerned because there have been changes recently with medications and directions from the doctor. If we have a re-evaluation, who should do it and when? |
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Partnerships for Action, Voices for Empowerment
Administration - Tracy Kahlo, Heather Hebdon, Elma Rounds, Sandy Trujillo, Michael Vargas
360 Military Family Center - Jill McCormick
Community Inclusion Program - Michele Lehosky, Susan Jackson, Sarah Miller
Early Support for Infant and Toddler Program - Debbie Jackson
Family Resource Coordinators - Sybille White, Nan Nop
Family to Family Health and Information Center - Jill McCormick
Parent To Parent of Pierce County - Michele Lehosky, Susan Jackson
Parent Training and Information Program - Vicky McKinney, Vanessa Lewis,
Sherry Mashburn, Anita Partida, Jeanette Stonecipher, Jessica Kaluza, Pat Barkley
Person Centered Planning - Michele Lehosky
Response To Intervention Program - Sarah Hale
Specialized Training of Military Parents - Heather Hebdon, Adriana Martinez, Kate Mason, Valerie Patterson, Brianna Ybarra
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