yada yada: October 2012
Support, Information and a Voice for the Type 1 Community  
Support, Information and a Voice for the Type 1 Community
In this issue
Have you had experience with health insurance and pumps?
HbA1c conversion
Jerry's insulin challenge
Getting diabetes after illness or trauma
Stopping the autoimmune attack
Meet-ups and events
Quick shots - Hot topics on our forums
Quick links
Join Our List
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Greetings!

 

Hi everyone and welcome to the October edition of Yada Yada - we've got a big issue for you this month.     

 

Are you planning to celebrate World Diabetes Day on November 14? We'll have a special edition of Yada announcing the winner of the Seed Award, and there are a lot of other things happening around the country to celebrate. We'd love to hear about anything you have planned. The International Diabetes Foundation has some ideas for activities to mark the day, as well as videos of flash mobs from WDD last year.

 

On November 12, we are running our second webinar, sponsored by the OneTouch Verio IQ meter, with ultra-marathon runner and type 1 diabetic Roger Hanney. We now have an online process to register, so it's easy to let us know you'll be there.


You can keep up to date throughout the month by following us on twitter @T1DN and liking our popular Facebook page.    

  Facebook icon  Twitter t icon     

Tell us about your experiences with pumps and health insurance   

Support, Information and a Voice for the Type 1 CommunityT1DN has received a lot of feedback both directly and through our Reality Check and Munted Pancreas forums that some type 1s are experiencing ongoing issues with their private health insurer (PHI) when applying for a new pump and/or getting their pump upgraded or replaced.


To try to improve this situation, we've developed a
short survey about insulin pumps and private health insurance and are seeking some direct examples of these issues. We plan to take this information to the Private Health Insurance Ombudsman to clarify the current policy in relation to insulin pumps. We also plan to use this information to create a guide to help prospective pumpers deal with PHIs.

If you've used, or looked into using, a pump, we'd love to have your input, even if you didn't have any problems with your PHI. You can access the survey
here and it should only take you 1-5 minutes to complete. Be quick as the survey closes on 4 November.    
*****************Sponsored Announcement*****************
Accu-Chek 1-time coding

  For more information go to www.accu-check.com.au

HbA1c conversion tool - check this out!    

If you've had your HbA1c measured recently, you may have noticed a second number reported alongside the familiar % reading. Confused? This is still the same test, but expressed in different units - millimoles per mole (mmol/mol) instead of percentage. The change is being made so that a standard measurement is used worldwide. It also means that there will be less confusion between blood glucose levels and HbA1c results. After July 2013, the new mmol/mol measurement will be the only number reported.

 

As an example, a HbA1c of 7% converts to 53 mmol/mol in the new system. There is a handy conversion tool at NPS MedicineWise that you may like to bookmark.

 

If you want to know more about HbA1c, what it measures, how it is tested and much more, check out the informative article on our website.  

*****************Sponsored Announcement*****************
Sweet talk award winners

  For more information go to www.sweettalkdiabetes.com

2012 Seed Award nominees  

Our annual T1DN Seed Award, proudly sponsored by Roche in 2012, recognises individuals and groups whose commitment and initiative have made a difference in the type 1 community. 

 

We are happy to announce that the finalists for this year's award are HypoActive, Rachel Lamb, Sheree Jane Rennie and Susanne Baxandall, advocacy coordinator at DA Vic. The winner will be profiled in a special edition of Yada Yada on World Diabetes Day, November 14.

Jerry's insulin challenge

We mentioned an inspiring T1 rock climber in last month's Yada, and now we've heard about another!

 

Eiger North Face
Eiger North Face (Philippe Volle)

Jerry Gore is a 51 year old T1 diabetic who has just completed his incredibly tough "insulin challenge" - climbing the three hardest alpine climbs in Europe (Mt Blanc in France, the Eiger North Face in Switzerland and Marmolada in Italy). Fewer than 20 climbers in the world have done all three routes - an amazing feat under ordinary circumstances let alone while managing T1D. It was all to raise money to support 10 young diabetics in Nepal, through Australian-based Insulin For Life. Despite his amazing achievement, Jerry is still short of his funding goal and would appreciate any support.

 

You can read the reports of his climbs and find out more about his challenge on his Facebook page.

 

Go Jerry! You rock!

*****************Sponsored Announcement*****************

  For more information go to http://www.myfreestyle.com.au/cathy

Getting diabetes after illness or trauma   

Everyone is curious about what causes T1D, and one theory that's often raised is whether illness or trauma could play a part. Recently, some Reality Check members have been having a fascinating discussion sharing their own diagnosis stories.

 

But are these just coincidences that we focus on while searching for an explanation or is there something to it? We wanted to know more and have done a little searching.

 

At the moment, there is no direct, conclusive evidence of anything causing the onset of type 1. No-one knows! Part of the reason for this is that it's hard to pinpoint the exact time the disease starts as the autoimmune attack can begin months before symptoms.

 

However, certain viruses are thought to be linked to T1, including some that are known to cause meningitis and pancreatitis and can infect beta cells in the pancreas. And there are other possibilities, including gut bacteria and vitamin D levels.

 

Whatever the cause, the prevalence of T1D is increasing, so it seems that whatever the triggers are, they are becoming more common too. Diet? Pollution? Viruses? What do you think?


If you have any more information, or a personal story to tell, jump onto the Reality Check thread and share them with us. If you're really interested in this and scientifically inclined, there is a very long, technical review in Physiological Reviews.

*****************Sponsored Announcement*****************
OneTouch Verio IQ

  For more information go to http://www.onetouch.com.au/

PatientView directory of health apps  

More people are using health apps to self-manage chronic diseases, including T1. But how do you track down the best apps from the multitude available?

   

PatientView logoEuropean group PatientView has produced a directory of health apps that allows you to find useful, reliable apps from among the sea of options. The pdf directory has information on more than 200 apps categorised based on the service they provide. The directory includes a summary of the app, its cost (often free) and reviews from users.


Apps that are relevant for T1D include carb counting, BGL and insulin dose tracking and graphing, and access to journal articles. There are plenty of apps listed in other areas that might be of interest including mental health, exercise and others.

*****************Sponsored Announcement*****************
Accu-Check mobile

  For more information go to www.accu-chek.com.au/mobile.    

Stopping the autoimmune attack on beta cells

Can a type 1s own beta cells recover/regenerate if they are protected from the body's autoimmune attack? The cells that normally have this protection duty are called T regulatory (or Treg) cells. These cells have been shown to be missing from the pancreas of mice with T1 diabetes.

 

In these mice, researchers restored normal levels of Treg cells to the pancreas and the mice produced insulin again and regained normal blood sugars. The method used cannot be directly transferred to humans, but it opens another avenue for a cure. We keep hoping that one day the case will be cracked and a cure will be found.


This research was reported by News Medical and published in Cellular and Molecular Immunology.

*****************Sponsored Announcement*****************
T1D Stars

  For more information go to http://www.t1dstars.com 

Meet-ups and events

T1DN webinar

Our second webinar will be held on 12 November, with Roger Hanney who will talk about his experiences as a professional ultra-marathon runner living with type 1. He is on his way to do a huge 250 km run in the Sahara Desert right now! The webinar is sponsored by the OneTouch Verio IQ meter (by Johnson & Johnson). You can register for the webinar online now through this link.

World Diabetes Day in Rockhampton
Rockhampton will celebrate World Diabetes Day with the 'Stanwell Electric Blue Fashion Show' on Friday 9 November at the Riverside Markets. This event features local bands, dance, wearable art competitions and markets. The Riverside Boardwalk, Customs House and boats on the river will be lit up with blue light. This Reality Check thread has more details.    

*****************Sponsored Announcement*****************

  For more information go to Roche pump therapy 

Interesting links 

Often when we are searching for content for Yada we come across links that aren't quite right for full articles, but seem too good to let go. Some of these may come through on our Twitter feed (@T1DN), but we've included some here we thought you might find of interest.

Quick shots
Hot topics on the Reality Check online forum include:
On Munted Pancreas, parents of kids with D are discussing:
Thanks for reading, and don't forget you can always send us your feedback and comments by replying to this email.  See you next time!

From everyone at  

The Type 1 Diabetes Network  

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