April 2013 Newsletter 

Lyme Talks

Information and

Support Gatherings

In Greenwich, CT

Healing Lyme Disease
Body, Mind, Spirit
Speaker: Katina Makris, CCH, CIH  Author of:
Out of the Woods

 

At the peak of her career, Classical Homeopath and health care columnist Katina Makris was stricken with a mysterious "flu". Only after five years of torment--two completely bedridden--and devastating blows to her professional and family life was Katina's illness finally diagnosed as Lyme Disease. But diagnosis was only the beginning of her journey toward healing.

Register Now for

Our 5k Walk/Run!

2013 Race
The second annual "Race Against Lyme" will be held Sunday, April 28 in beautiful Cove Island Park in Stamford, CT. Our inaugural event raised $30,000 for Lyme disease research, and with your support we hope to do even better in 2013! 

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In This Issue

- Gala Raises Over $1 Million

- Race Against Lyme, This Sunday April 28th

- Golf Event Committee Forming

- Grant Applications Being Reviewed

 

 

Message From the Executive Director

 

Thank you to all our Sponsors, Supporters and Volunteers who made the 2013 "Time for Lyme" Gala on April 6 such a HUGE SUCCESS! We are proud to report that the event raised over $1 million to fund research into better diagnostics, and a cure for Lyme and other tick-borne diseases.  

 

Nearly 550 guests attended the Gala held at the Hyatt Regency Greenwich. Honored for their work in research with the Lauren F. Brooks Hope Award were the collaborative team of Drs. Steven Schutzer, M.D., of the University of Medicine and Dentistry of New Jersey, and Mark Eshoo, Ph.D, director of new technology at Ibis Biosciences, a subsidiary of Abbott.

 

In addition to the Gala, Saturday morning LRA hosted its fourth annual closed-door Lyme Research Symposium for eminent members of the scientific community who are either current LRA grant recipients or members of LRA's newly-expanded Scientific Advisory Board. 

 

At the Gala Yolanda Foster, a Season 3 cast member of the "Real Housewives of Beverly Hills" was honored with the Star Light Award in recognition of her advocacy on behalf of Lyme sufferers. She delivered a moving acceptance speech in which she talked about the emotional and physical struggles that accompany misdiagnoses, debilitating treatments, and living with "chronic" Lyme.

 

 If you were unable to get to the Gala, you can listen to Yolanda's talk by logging on to our website's home page.  Also on the home page is a link to our new "About Lyme Research Alliance" video, which premiered at the Gala. And we have dozens of pictures taken at the event now on Pinterest, all accessible from the LRA home page and here: http://bit.ly/17StS5f.

 

 The Gala was co-chaired by Ally Hilfiger, Brett Kristoff, and Mark Hopwood. Craig Cogut, founder and managing partner of Pegasus Capital Advisors, L.P., and his wife, Deborah, an attorney, were corporate chairs of the event, and television personality Ira Joe Fisher served as emcee.          

 

 By the way, some of you have asked me what some of the top auction prizes went for. We raised $75,000 for a week at an all-inclusive stay at Tommy Hilfiger's home in Mustique, while two tickets to the Victoria's Secret Fashion Show and after-party were bought for $25,000. We also raffled off 250 tickets for a two-year lease on a 2013 Mercedes-Benz C250 Coupe, donated by the Pepe Auto Group's Mercedes-Benz White Plains.

 

Lyme Research Alliance is grateful to everyone who joined us to celebrate this extraordinary event in support of our urgent work. We are deeply appreciative of your incredible generosity.

 

 

Peter Wild

But Now, Our Race Against Lyme!

    

With the Gala behind us, we hope you'll come out this Sunday, April 28, to support our 2nd annual Race Against Lyme 5K Walk/Run. The event, timed to help kick off Connecticut's Lyme Disease Awareness Month, is designed to raise awareness and funds to help fight Lyme and other tick-borne diseases.

 

Open to all ages and abilities, the Race starts at beautiful Cove Island Park in Stamford, covers a flat 5K loop on local neighborhood roads, and ends back inside the park. This family event will also include a loop course for children inside the park and a special one-loop course for those coping with Lyme disease. The Race will be held rain or shine.

 

Registration will begin at 7:30 a.m. with the 5K run/walk kicking off inside the park at 9 a.m. Individuals can pre-register for $20 each ($25 day of event); families (up to six participants) can pre-register at a family rate of $65 ($70 on day of event).  

 

In addition to inviting friends, family and co-workers to join you on April 28 for an inspirational event, you can also encourage them and others to make a donation to help raise funds for Lyme research. When you set up a Fundraising Page, you'll get your own customized website where you can tell your personal story, upload a photo and set a fundraising goal. Here's an example from Chelsea Brown who has already exceeded her fundraising goal: http://www.active.com/donate/race2013. To set up your fundraising page, go to http://www.active.com/donate/race2013/ and click on Become a Fundraiser. Once your page is set up, simply email your personalized link to everyone you know and you'll get a email back every time someone donates. Need help? Email events@lymeresearchalliance.org and we will walk you through the steps.

 

Also, to make traveling to and from the race easier for those out of town, a free shuttle bus will depart from the Stamford train station at 7:55 a.m. and will return participants in time for the 11 a.m. New York local and express trains. Among those expected to attend are Dr. Brian Fallon, director of the Columbia University Medical Center Lyme and Tick-Borne Diseases Research Center and Senator Richard Blumenthal. Teams will be coming from as far afield as Massachusetts and Rhode Island, where the University of Rhode Island is sending a team of runners led by leading tick and Lyme disease prevention expert Dr. Tom Mather

 

"More than 200 runners and walkers participated in our inaugural Race Against Lyme," said Debbie Siciliano, LRA co-president, who ran as number 591 in last year's Race. "Not only was it a wonderful day, but we were able to raise awareness and funding that are so important to fighting Lyme and tick-borne diseases. We hope you will join us on April 28. Whether you plan on running or walking, or cheering familiy and friends from the sidelines, you'll be supporting our efforts to prevent, educate, and fund research efforts to eradicate Lyme."

 

For more information, go to www.LymeResearchAlliance.org/race.htm.

 

Golf Anyone?

We are gearing up for the October 10th LRA Golf Tournament to be held at the Stanwich Club, Greenwich. The committee is forming now and looking to recruit new enthusiasts. We would love to hear from you; please contact Shelley Terry or Peter Wild if you would like to take a leadership role in this year's event. Last year we raised $50,000 net at this event. Contact us at info@LymeResearchAlliance.org to hear more.

New Research Grants to be Announced 

The payoff for a successful gala and events program is LRA's ability to fund worthy researchers and innovative programs that are steadily pushing back the barriers against Lyme disease. Grant applications are currently being reviewed for the coming grant season and the first round of new grants will be announced in May.

 

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