In This Issue
BUSTED: Check out John Oliver and Media Matters' VIDEOS about ALEC
Announcing the New Prevention Advisory Board (PAB)!
ADAO Launches New State Leadership Team (SLT)!
PODCAST: ADAO Interview and Asbestos Legislative Update
World Health Organization "Chrysotile Asbestos Report" Combats Pro-Asbestos Russian Propaganda
Speaking at The National Council for Occupational Safety & Health (COSH) National Conference
Presented at the 2015 European Asbestos Forum (EAF) in Amsterdam
Exclusive Interview with Paolo Monico, Mesothelioma Victim and Director of "The Mother"
The Hill Op-Ed: "Americans face an irreversible rollback in chemical safety with S. 697"
Asbestos Nation Report Estimates Asbestos Kills 12,000-15,000 Americans a Year
Rotterdam Convention Guest Blog: "A Pyrrhic victory for the Russian asbestos industry" by Marc Hindry
The Hill: "Asbestos bill roils public health groups"
Community Members in the News: Heather & Cameron Von St. James
The So-Called FACT Act and the TSCA Modernization Act Discussion Draft Pass Out of Committee
Take a Stand Against Pro-Asbestos Bills in Congress
Janelle Bedel's Wonder Woman Day, June 6th
Sending a Message of Support for Health and Safety Week June 15 - 19
ADAO: Where Everyone Has a Voice and a Story to Share
Shared Stories: How Asbestos Changed Our Lives
"The Road to Recovery" - Steve's Story
"My Hope" - Candace's Story
"Faded Away" - Gary's Story
"The Search for Treatment" - Tamblea's Story
"Missing Him" - Bill's Story
"So Much Suffering" - Mimma's Story
"Robbed of His Life by Asbestos" - Christopher's Story
"Absolutely Devastated" - Marvin's Story
"Asbestos Kept my Husband from Living the Life He Deserved" - David's Story
"Someone Pulled the Emergency Brake!" - Sara's Story
Global Asbestos and Mesothelioma Events
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 2014 Year in Review


ADAO Leadership


2015 Conference Sponsors and Donors 


April 17 - 19, 2015 Annual Conference 


ADAO "Share Your Story Collection" 


2015 Conference "Meet the Speaker, Honoree, and ADAO Leadership"


ADAO SlideShare PowerPoints


INFOGRAPHIC: "Asbestos is Legal and Lethal in the USA"



2015 U.S. Surgeon General Statement


ADAO YouTube  

Global Calendar 


  Archived eNewsletters 


Archived Blogs  


President's Message 

ADAO is eager to share our June eNewsletter! This month will kick off a special "Summer of Sharing Makes Us Stronger" campaign dedicated to your voices, stories, and recognizing your efforts.


We lead with two must see and share videos from John Oliver and Media Matters about the American Legislative Exchange Council (ALEC) who influences legislation!  The blog names and shames ALEC leadership.


In keeping with ADAO's  Hear Asbestos. Think Prevention." we are thankful to the dedicated experts who will serve on our new Prevention Advisory Board.


The legislative climate has been particularly challenging of late, but ADAO has remained an unwavering advocate for victims' rights while Congress debates the TSCA reform legislation, Reducing Exposure to Asbestos Database (READ) Act, and Furthering Asbestos Claim Transparency (FACT) Act by providing information to key political allies, submitting statement letters, and weighing in on draft legislation (ADAO legislative position summary). Globally, we heard disappointing news from the Rotterdam Convention. Asbestos was once again blocked from inclusion on the Prior Informed Consent List by Kazakhstan, Kyrgyzstan, The Russian Federation, and Zimbabwe.


Despite some setbacks, we will continue to persevere to make change happen - with your help! Every voice matters and, to emphasize this, we are publishing a special collection of Share Your Stories this month. ADAO uses the stories submitted by courageous Mesothelioma Warriors to raise asbestos awareness in blogs and social media, Congressional Briefings, and educational conference presentations. We just launched a new State Leadership Team to better bring victims' voices to our legislative advocacy efforts. We also brought these stories to a global audience at the European Asbestos Forum on May 27. To date, we have collected nearly 150 individuals' stories from 7 countries and 40 U.S. states, and welcome you to Share Your Story today!


Keep an eye out for a special blog by ADAO Celebrity Co-Chair and Share Your Story contributor, Barbara McQueen, next week!


I want to thank all of you for taking a stand in your own way. Whether by signing a petition, sharing your story, or reposting information through social media, your voice matters. 


Together, change is possible.


Linda Reinstein, Social Networks



John Oliver Video
John Oliver Video

Media Matters Video
Media Matters Video

Announcing the New Prevention Advisory Board (PAB)! 


Lead by Co-Chairs Brent Kynoch (US) and Christine Winter (UK), the new PAB Board will serve as expert resources for questions regarding asbestos prevention and abatement from individuals, politicians, publications, government websites, or other social non-profits. Read more...

ADAO Launches New State Leadership Team (SLT)!


Fresh off the heels of last week's kick off conference call with Senator Barbara Boxer (D-CA), ADAO is pleased to announce the launch of its new State Leadership Team (SLT)! SLT members - one from each U.S. state - will represent asbestos victims from their state and across the nation by serving as a resource for the media, focal point for lawmakers, and distributor of asbestos awareness information. Currently, SLT members represent victims from 33 states, but ADAO would still like to find asbestos victims and/or family members from Alaska, Delaware, Kansas, Maine, Mississippi, Nebraska, Nevada, New Hampshire, North Dakota, Oklahoma, Rhode Island, South Carolina, South Dakota, Virginia, Washington, Wisconsin, and Wyoming. Stay tuned for more SLT information and member bios! Read more... 

Just last week, I had a fabulous opportunity to share our mesothelioma stories, the latest facts and stats, and major obstacles we face to ban asbestos and defend our civil rights with Green Diva Meg.


Click  here to listen to the podcast and share this blog with your network! Read more...

Since its inception, the Asbestos Disease Awareness Organization (ADAO), the largest independent asbestos victims' organization in the United States, has been dedicated to asbestos awareness and disease prevention through education, advocacy, and community support. As part of our education efforts, we would like to share the recently published, incredibly insightful 45-page World Health Organization (WHO) "Chrysotile Asbestos Report."  This report provides WHO's research and official opinion on the dangers of chrysotile in order to 
help decision-makers understand how to eliminate asbestos-related diseases. Read more... 


Speaking at The National Council for Occupational Safety & Health (COSH) National Conference


ADAO is pleased to be attending and speaking at the National Council for Occupational Safety and Health (COSH) National Conference on June 2-4, 2015 at the Maritime Institute in Baltimore, Maryland. This year, hundreds of participants from a range of industries - including unions, workers, advocacy groups, non-profits, support groups, and COSH organizations - will come together to support worker safety and collaborate through expert speakers, workshops, and networking. Read more... 

Presented at the 2015 European Asbestos Forum (EAF) in Amsterdam


Experts gathered from around the world at the EAF.  Dr. Richard Lemen delivered the conference keynote speech "High-risk occupations: the need for prevention,Tony Rich presented "Asbestos stripping in the USA," and I presented in the Plenary Session "Asbestos: Shattered Lives and Broken Dreams" and in a general session "Asbestos: The Human Cost of Inaction." Read more... 

Exclusive Interview with Paolo Monico, Mesothelioma Victim and Director of "The Mother" 


Paolo Monico is an award-winning Italian director based in Brooklyn, New York. His impressive resume includes directing 25 music videos for major Italian artists and 100+ commercials for clients such as Coca-Cola, MTV, Honda, and Playstation, and now his first short film, The Mother. Read more from the interview here...


Watch "The Mother" trailer here


On the eve of the House of Representatives' TSCA

 Modernization and FACT Act markups, ADAO was pleased to announce the publication of its op-ed, "Americans face an irreversible rollback in chemical safety with S. 697" in the Washington, D.C. publication The Hill!  The positive media coverage of S. 697 and other asbestos-related bills as "bipartisan" and "progress" has overshadowed the glaring flaws of this proposed bill.


A new analysis by EWG Action Fund concludes that up to 15,000 Americans die every year from asbestos-related diseases, significantly more than previous estimates. The findings indicate that 50 years after medical research definitively established that asbestos kills, the government still can't say for certain how many Americans die from asbestos exposure. EWG Action Fund's researchers analyzed death records from the Centers for Disease Control for 1999 to Read more...

Rotterdam Convention Guest Blog: "A Pyrrhic victory for the Russian asbestos industry" by Marc Hindry


The theme chosen for the Convention was promising "From Science to Action. For a better Future." Let us use scientific knowledge to protect populations from toxic product hazards. The World Health Organisation (WHO) recalled that all forms of asbestos are carcinogenic and there is no safe threshold. The International Labour Organisation (OIT) recalled that Read more...



The Hill: "Asbestos bill roils public health groups"


 For the first times, the asbestos victims' opposition about the FACT Act was quoted in a DC paper. Click here to read the full article. 

Community Members in the News: Heather & Cameron Von St. James 

No one knows more about asbestos issues than you, the community! You have had to live it, breathe it, think it, and deal with its consequences. ADAO applauds Heather and Cameron Von St. James for making their voices heard this past month. Read their articles below.


ADAO 2015: Asbestos Awareness at the Forefront by Heather Von St. James: "Over the past few years, I've been fortunate enough to attend the Asbestos Disease Awareness Organization's (ADAO) annual International Asbestos Awareness Conference. In 2010, ADAO Co-founder Linda Reinstein asked me to speak and share my story of my experience with asbestos and mesothelioma." Read more... 


2015 ADAO International Asbestos Awareness Conference Recap by Cameron Von St. James: "I always look forward to conferences, to me, they're like a family reunion. They're a reunion you look forward to. They're a reunion with the cool relatives you actually like to spend time with. My wife Heather, a mesothelioma cancer survivor, calls conferences cancer camp-- like summer camp, but without the canoeing and backpacking.Read more...


The So-Called FACT Act and the TSCA Modernization Act Discussion Draft  Pass Out of Committee 


On Thursday, May 14, 2015, the U.S. House of Representatives held two markups: one on the TSCA Modernization Act Discussion Draft and one on the Furthering Asbestos Claim Transparency (FACT) Act (H.R. 526). Both passed out of committee and headed to the floor for vote. For more information on ADAO's legislative positions on all seven bills, read our legislative overview here. Read more...
Join ADAO and Take a Stand Against Pro-Asbestos Bills in Congress

Two bills are moving through Congress with huge implications for asbestos victims and their families, both of which ADAO strongly opposes because they compromise public health.


The first is a bill backed by the chemical industry to reform the Toxic Substances Control Act of 1976, proposed by Sens. Tom Udall (D-NM) and David Vitter (R-LA). The bill is woefully inadequate and fails to even name asbestos, or ensure its expeditious review by EPA. The way this bill is written, there is no guarantee asbestos would ever be banned. 

Tell Congress to Reject the Chemical Industry's TSCA rollback bill S. 697


The other bill written by the U.S. Chamber of Commerce at the behest of the asbestos industry would throw up a series of legal roadblocks for victims seeking justice through compensation.  It would force victims to provide substantial personal medical and other information that would be available online for the world to see. It would also force the asbestos trusts to provide any information at any time to the defendant companies, depleting trust resources and further delaying claims to the victims. 

Tell Congress to Reject the so-called FACT Act (H.R. 526)



June 6th marks the 3rd annual Janelle Bedel Wonder Woman Day in Rushville, Indiana and our international community. In honor of Janelle, you can view a collection of more than 20 articles from the Rushville Republican, her Share Your Story, and a powerful video featuring Bennie Cameron and Carina Cameron in "Janelle Bedel's Mesothelioma and Ban Asbestos Journey." Janelle, your work will live on forever. Read more...

ADAO sends a message of support to Safety and Health Practitioner (SHP), our friends across the pond in the United Kingdom, as they celebrate Health and Safety Week from June 15 - 19, 2015. Health and Safety Week seeks to inspire excellence in occupational health and safety by sharing news, stories, and studies by experts in their fields. Read more...

ADAO: Where Everyone Has a Voice and a Story to Share


Whether ADAO is working on stronger asbestos legislation in Washington, D.C. or speaking at asbestos educational conferences around the world, our community goes with us. How? Our Share Your Story (SYS) collection provides a platform for Mesothelioma Warriors or family members to share how asbestos has affected them. These stories save lives by helping people understand how to prevent asbestos exposure, provide much-needed support to other shattered families dealing with asbestos disease and the heartbreak of losing loved ones, and assure other asbestos victims that they are not alone. Read more...

  Shared Stories Book Cover

ADAO Shared Stories: How Asbestos Changed Our Lives


In 2013, ADAO designed and published "Shared Stories: How Asbestos Changed Our Lives," a book comprised of a number of asbestos victims' Share Your Stories. The book was launched at our annual conference in Washington, DC, but you can view and share nearly 70 stories with a single click here!

"The Road to Recovery" - Steve's Story


"The Search for Treatment" - Tamblea's Story

"Missing Him" - Bill's Story

 "So Much Suffering" - Mimma's Story

"Robbed of His Life by Asbestos" - Christopher's Story

 "Absolutely Devastated" - Marvin's Story

"Asbestos Kept my Husband from Living the Life He Deserved" - David's Story

"Someone Pulled the Emergency Brake!" - Sara's Story


Asbestos Disease Awareness Organization 

Global Asbestos and Mesothelioma Events Calendar 

  • 31st International Congress on Occupational Health: May 31 - June 5, 2015 in Seoul, Korea 
  • Men's Health/Cancer Awareness Month: June
  • National COSH Conference: June 2 - 4, 2015 in Baltimore, Maryland
  • Janelle Bedel's Wonder Woman Day: June 6, 2015 in Rushville, IN
  • 28th Annual National Cancer Survivors Day: June 7, 2015
  • UK Oncology Forum: June 11 - 12, 2015 in Manchester, United Kingdom
  • Health and Safety Week: June 15 - 19, 2015 in the United Kingdom
  • IOSH 2015 Conference: June 16 - 17, 2015 in London, United Kingdom
  • European Economic and Social Committee: Freeing Europe safely from asbestos conference: June 25, 2015 in Brussels, Belgium
  • Mesothelioma Action Day:  July 3, 2015 in the United Kingdom 
  • British Lung Foundation 30th Anniversary Presentation: July 14, 2015 in the House of Commons, London, United Kingdom

  • 5th Annual World Lung Cancer Day: August 1, 2015
  • Balloons To Heaven: August 1, 2015 in Furness, United Kingdom
  • Meso Heroes: August 22, 2015, in Chicago, IL 
ADAO New Website
The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO is an independent global organization dedicated to preventing asbestos-related diseases through education, advocacy, and community. For more information, visit