January eNewsletter
In This Issue
President's Message
ADAO Applauds U.S. Senate for Passage of Tenth Annual Resolution Establishing "National Asbestos Awareness Week" from April 1-7, 2014
Announcing the First 2014 Sponsors
2014: Asbestos. One Word. One World. One Week.
OSHA Listens and Takes Action: New Asbestos Fact Sheet
Powerful Hazards Report: "Lab Rats: The Anatomy of Deadly Product Defense Campaigns" by Rory O'Neill
"Occupational Lung Cancer Symposium: Causes and Screening" by Desre Kramer and Priyanka Raj
The Ahmed Family: Bringing Asbestos Awareness to Pakistan
Honor Those You Love: 2014 Conference Program Family Tributes
2013 Mesothelioma Warrior Candle Lighting
"Handed a Death Sentence" - Randy's Story
World Cancer Day: "Stand Up To Cancer!"
JANUARY: ADAO received the Independent Asbestos Training Providers (IATP) Global Impact Award.
FEBRUARY: The "National Asbestos Awareness Week" U.S. Resolution was introduced.
MARCH: The 9th Annual ADAO Asbestos Awareness Conference was held in Washington, D.C.
APRIL: U.S. Surgeon General, Dr. Regina Benjamin, released a statement on the dangers of asbestos.
MAY: ADAO published the Share Your Story book, "Shared Stories: How Asbestos Changed Our Lives."
JUNE: ADAO was awarded a Silver Stevie Award in the Company of the Year - Non-Profit category.
JULY: ADAO testified at the U.S. Senate EPW hearing on Addressing Toxic Chemical Threats.
AUGUST: ADAO launched the 10th Annual International Asbestos Awareness Conference.
SEPTEMBER: ADAO testified at the U.S. House Subcommittee hearing on TSCA Reform.
OCTOBER: ADAO released the 2013 Asbestos Awareness Conference video collection.
NOVEMBER: ADAO brought the Voice of the Victims to the U.S. House Staff Briefing in opposition of the Furthering Asbestos Claim Transparency (FACT) Act of 2013.
DECEMBER: ADAO launched our Mobile iPhone App.
FEATURED VIDEO "Asia: Diagnosing and Treating Asbestos-Related Disease" by Dr. Arthur Frank
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2014 Conference Info


2014 Conference Sponsors and Donors


 ADAO Book:  "Shared Stories: How Asbestos Changed Our Lives" (2013)


ADAO "Share Your Story"


ADAO YouTube 


Global Calendar 


  Archived eNewsletters 


Archived Blogs  


 2013 Year in Review

President's Message  

Linda 2012


Happy New Year!  In this January newsletter, we are proud to share our 2013 Year In Review in pictures.  We look back at an exciting year that included testimony before Congress, international awards, a statement from the U.S. Surgeon General and much more.  ADAO has grown exponentially in 2013.  Special thanks to the many ADAO volunteers, interns, sponsors, and the brave mesothelioma patients and families for their continued support. Because of YOU, we had the best year ever for education, advocacy, and community.


ADAO is ready for 2014!  With more than 25,000 people in the ADAO network, we took our voices to the front lines to influence global policy, advocate for an asbestos ban, and promote research.  It is through our solidarity and collaboration that our voices and actions bring us closer to ending asbestos-caused diseases. 


Our 10th Annual ADAO International Asbestos Awareness Conference: Where Knowledge and Action Unite!, April 4-6, 2014, is shaping up to be one of our most exciting and powerful events.   Reserve your Marriott rooms now to lock in the low ADAO discounted rate. Spaces are limited! Would you like to honor loved ones who have lost their lives or are currently battling asbestos diseases? Consider publishing a Family Tribute page in the 2014 conference program.


Thank you to our ADAO family!  As we begin celebrating our 10th anniversary, it is because of you, your efforts, and your continued support that ADAO has grown to be much more than an organization focused solely on banning asbestos.  


Together, change is possible. ~  Linda 


Social Networks 

"Where Knowledge and Action Unite" 
10th Annual International Asbestos Awareness Conference 
April 4 - 6, 2014
Use our new ADAO Mobile App for all the Details

Registrations are booking quickly for the
Tenth Annual International Asbestos Awareness Conference, Where Knowledge and Action Unite, April 4 - 6, 2014 at the Crystal Gateway Marriott in Arlington, VA. Click here to register today! For all the conference details, use ADAO's new app, which also connects you to the latest news regarding treatments for asbestos-caused diseases, and ways to prevent asbestos exposure. The free app is easily available to all on iTunes under "ADAO Asbestos Information."


At the conference, over 30 renowned medical experts and asbestos victims from ten different countries will speak on the latest advancements in asbestos disease prevention, treatment for mesothelioma and other asbestos-caused diseases, as well as global ban asbestos advocacy. The conference will also include an Awards and Recognition Dinner and a Unity and Remembrance Brunch.


Our keynote speaker will be Ms. Susan Vento, widow of the late Congressman Bruce Vento, who passed away from mesothelioma in 2000.  Other 2014 ADAO Honorees include: Congressman Henry Waxman, Dr. David Egilman, Dr. Ken Takahashi, Congressman Bruce Vento (posthumously), The Association Nationale de Défense des Victimes de l'Amiante (ANDEVA), Bill Ravanesi, Janelle Bedel (posthumously), Heather Von St James and Lou Williams. Read More...

The Asbestos Disease Awareness Organization (ADAO) Applauds U.S. Senate for Passage of Tenth Annual Resolution Establishing "National Asbestos Awareness Week" from April 1 - 7, 2014


ADAO Commends Senator Max Baucus for his Tireless Efforts to Help Ensure Justice for Asbestos Victims and their Families 


On behalf of ADAO, I would like to thank Senator Max Baucus (D-MT), Senator Barbara Boxer (D-CA), Senator Richard Durbin (D-IL), Senator Johnny Isakson (R-GA), Senator Patty Murray (D-WA), Senator Harry Reid (D-NV), and Senator Jon Tester (D-MT) for their leadership and support for the passage Resolution 336. We are delighted by the rapid passage of this Resolution, so that we can again build a continuing legacy of hope that is documented at this same time each year. 


2014 "Asbestos Awareness Week" Resolution (PDF)  


ADAO Press Release 


ADAO is Pleased to Announce our First 

Leadership Sponsors and Donors for 2014!

Our heartfelt thanks to Platinum Sponsors Motley Rice LLC and Simmons Law Firm and other sponsors who have already come forward to support us in 2014. Without your generosity, the accomplishments listed in our 2013 Year in Review would not have been possible. ADAO has an opening for one additional Platinum Sponsor this year. Please contact Linda@adao.us to discuss limited 2014 ADAO Asbestos Awareness Conference Sponsorship Opportunities. We need your support to continue the high level of success we achieved last year. ADAO will announce our final list of 2014 Sponsors in March.


We express our sincere gratitude to the 2014 Asbestos Awareness Conference Platinum and Silver Sponsors, as well as countless individual donors and supporters, for their generosity and commitment to ADAO's work. Our sponsors and supporters make it possible for ADAO to bring the Voices of the Victims to Washington, D.C., gather with over 125 asbestos experts at our Asbestos Awareness Conference, and more. Your support enables ADAO to advance education, advocacy, and community, and, ultimately, make change possible.  



Platinum Sponsors


Motley Rice Logo  



Gold Sponsor


One Opening


Silver Sponsor


Early, Lucarelli, Sweeney & Strauss



Individual Diamond Level Donors


The Rahe Family

Tom O'Neil Memorial Donations from Family and Friends

The Trafton and Maude Crandall Foundation

The Von St. James Family

2014: Asbestos. One Word. One World. One Week.
The Asbestos Disease Awareness Organization (ADAO) is pleased to announce the 10th annual Global Asbestos Awareness Week (GAAW) from April 1 - 7, 2014 which gives countries seven days of global advocacy, education and community building. During GAAW, ADAO will feature guest blogs, patients' stories, and conclude with an asbestos victims' candlelight vigil as we raise awareness about the dangers of asbestos, prevention, and treatment.


GAAW is truly a collaborative effort involving asbestos victims' organizations and leading experts all working together to end the deadly legacy of asbestos through education and awareness to prevent exposure, policy to ban asbestos, and a cure for asbestos-related diseases. We sincerely hope that you will join us in collaboration and action during Global Asbestos Awareness Week.

OSHA Listens and Takes Action: New Asbestos Fact Sheet
This past July, as the Asbestos Disease Awareness Organization (ADAO) was in Washington, D.C. for our Senate staff briefing, I had the opportunity to meet with Dr. David Michaels, Assistant Secretary of Labor for the Occupational Safety and Health Administration (OSHA) to discuss asbestos hazards and workers safety, and the need for additional resources to educate and to protect the public from asbestos-related diseases.
ADAO encouraged OSHA to produce a Fact Sheet for asbestos hazards - and it's here!  The newly updated and extremely informative resource can be found on OSHA's publications page here! Read More... 
Powerful Hazards Report: "Lab Rats: The Anatomy of Deadly Product Defense Campaigns" by Rory O'Neill


There is no such thing as safe exposure to asbestos. The U.S. Department of Health and Human Services, the EPA, and the International Agency for Research on Cancer have all declared asbestos a known human carcinogen. So where does the science come from that allows the asbestos industry to continue?


In a Hazards magazine special online report, editor Rory O'Neill investigates the asbestos industry's go-to scientists and breaks down the industry's four-step strategy to give its deadly product a clean bill of health: 1. Buy some evidence, 2. Have a promotional tour, 3. Get your man on the inside, 4. Take the money and run. Read More...

"Occupational Lung Cancer Symposium: Causes and Screening" by Desre Kramer and Priyanka Raj

The Occupational Cancer Research Centre is hosting a symposium on occupational lung cancer on February 24, 2014, in Toronto. The symposium will focus on recent research on the burden and prevalence of major exposures linked to occupational lung cancer, such as asbestos and diesel engine exhaust.  Linda Reinstein will be the keynote speaker. We will explore emerging advances in lung cancer screening.  Earlier this year, numerous healthcare organizations in the United States commended the use of helical computerized tomography scanning (HCT) for the screening of lung cancer in eligible individuals at particular risk due to their age and smoking status.  We will consider the use of this screening in an occupational context, and examine logistical and ethical issues of targeting screening to exposed workers.  This symposium is open to policy-makers, researchers, and medical professionals.  For more information about the symposium and the Occupational Cancer Research Centre, visit us at OccupationalCancer.ca.  AGENDA
The Ahmed Family: Bringing Asbestos Awareness to Pakistan

From the Ahmed family's dining room table in Pakistan to our U.S. home office at the ADAO, our global "Ban Asbestos" family continues to grow stronger. ADAO is thrilled to support the Ahmeds' first Ban Asbestos Conference in Pakistan to be held on February 1, 2014 at the Marriott hotel in Karachi.  The list of Pakistani dignitaries and experts who will present the latest facts and stats is impressive. Lou Williams and I are honored to present via Skype at this important conference. Read More...
Honor Those You Love: 2014 Conference Program Family Tributes 


This year, consider publishing a Family Tribute page in the 2014 10th Annual Asbestos Awareness Conference program in honor of loved ones who have lost their lives or are currently battling asbestos disease. Your family's tribute page will not only serve to honor your loved ones but all donations will go to support ADAO's continued efforts to eliminate asbestos-caused disease. There are 5 tribute donation levels allowing your loved one to be featured in a beautiful full-page, 1/2 page, or 1/4 page tribute in the 2014 conference program. To view samples or for inspiration in designing your own Family Tribute Program page reference our 2013 Conference Program (starting on page 47 with Steve McQueen) by clicking here.

Please send your tribute page payment and the completed 2014 Payment Form to AAC@asbestosdiseaseawareness.org no later than February 15th, 2014. Read More...



Our sincere thanks to all who submitted names to the  2013 Mesothelioma Warrior Candle Lighting List.  On December 28, 2013, we lit candles in loving memory of Warriors we have lost and on January 4, 2014, we lit candles in honor and support of Warriors who continue to fight bravely.


We had over two hundred new names submitted, reaching a total of nearly eight hundred Mesothelioma Warriors to honor both in life and death. Many of these honored Warriors also participated in the "Share Your Story" collection on ADAO's website. It is these stories that inspire ADAO and the mesothelioma community to continue to work towards a global asbestos ban. Their inspirational stories can be read by clicking the hyperlink on their name. 


A special thank you to ACOR, Jill Vaughn, whose original candle lighting tradition still brings us hope and light year after year, and to Julie Burns, who graciously compiled the list of this year's warriors. Read More... 

Heather's 8th Annual Lungleavin Day Celebration!

Mesothelioma Warrior and longtime ADAO community member Heather Von St. James is turning tragedy into triumph with her Annual Lungleavin Day Celebration on February 1, 2014.


Eight years ago, when her daughter was only a few months old, Heather had a lung removed due to mesothelioma. Her fears were overwhelming. Would she live to see her child grow up? On the first anniversary of her surgery, she and her husband, Cameron, started Lungleavin Day, a day to let go of our fears and resolve to live life to the fullest. Read More...

"Handed a Death Sentence" - Randy's Story

We have all been touched by asbestos in individual ways, yet we are joined together by a firm community bond. As a testament to the strength of our global family, ADAO is highlighting the courageous stories of our members with the "Share Your Story" feature on our website.

This week, we would like to honor the story of Randy, as shared by his widow, Wendy, a beloved member of our ADAO family. Read More...
ADAO Guest Blog for Independent Asbestos Training Providers 


This month, I had the opportunity and honor to guest blog for the Independent Asbestos Training Providers (IATP) newsletter. As I reflect over 2013, I owe endless gratitude to IATP; together, our impact on asbestos education and advocacy has grown tremendously. Thank you IATP for your continued efforts in the UK, which help fuel our hope and our momentum. Read More...

World Cancer Day: "Stand Up To Cancer!"

World Cancer Day takes place every year on February 4 and represents an initiative under which the entire world can unite in the fight against the global cancer epidemic.  The day, which is coordinated by the International Union Against Cancer (UICC) with support from the World Health Organization (WHO), aims to help save millions of preventable deaths each year by raising awareness and education about cancer and pressing governments and individuals across the world to take action against the disease. As a melanoma survivor and mesothelioma widow, join me as I "Stand Up to Cancer." 

2013 ADAO Conference, Washington, DC (PSA)



Linda Reinstein Testimony at U.S. Senate EPW Hearing on Addressing Toxic Chemical Threats

Linda Reinstein Testimony at U.S. House Subcommittee Hearing on Examining Need for TSCA Reform

2013 ADAO AAC Dr. R. Lemen:

  DECEMBER: ADAO launched our Mobile iPhone App: "ADAO Asbestos Information."                     

"Asia: Diagnosing and Treating Asbestos-Related Disease" 
Video Presentation by Dr. Arthur Frank

To get an idea of the exceptional speakers you'll see at our upcoming conference, view this month's featured 2013 Asbestos Awareness Conference Video Presentation, "Asia: Diagnosing and Treating Asbestos-Related Disease" by Dr. Arthur Frank.                        
2013 ADAO AAC Dr. A. Frank:
ADAO New Website
The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO is an independent global organization dedicated to preventing asbestos-related diseases through education, advocacy, and community. For more information, visit www.asbestosdiseaseawareness.org