In This Issue
President's Message
"Where Knowledge and Action Unite!" 10th Annual International Asbestos Awareness Conference: April 4 - 6, 2014
How to Find Crucial Medical Information for Mesothelioma Victims
New Free ADAO Mobile Application
Mesothelioma Warriors' Flames of Remembrance
Mesothelioma Patient Raising Awareness with New Product Line
"Robbed of His Dignity" - Keith's Story
Help ADAO with a Year-End Donation
Mesothelioma Warrior Memorial Photo Collection
Asbestos Victims Speak Out in Outrage Against The FACT Act
ADAO Brings "Voices of the Victims" to Congress
December's Featured Video
Inspirational Quote of the Month
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 2013 Year in Review  

President's Message 

Linda 2012


The holidays are always a busy time for everyone, and here at ADAO it's no different! We are excited to introduce "ADAO Asbestos Information," our new free ADAO mobile app from Apple! Access to the latest asbestos information and resources for patients, families, workers, and homeowners, is now easier and faster than ever before.


Register today! ADAO has officially launched our 10th Annual ADAO International Asbestos Awareness Conference, "Where Knowledge and Action Unite." The event will be held on April 4 - 6, 2013 in Washington D.C. Over 30 renowned experts and asbestos victims will present on the latest advancements in disease prevention, global advocacy, and treatment for mesothelioma and other asbestos-related diseases.  


In November, ADAO continued our legislative efforts in Washington by representing the voice of the victims at the U.S. House staff briefing in opposition to "The Furthering Asbestos Claim Transparency (FACT) Act - H.R. 982." We are the only organization going to Washington to represent asbestos victims' rights and we won't stop until these victims are represented as they deserve. 


As we come to the end of the year, I want to give special thanks to the many ADAO volunteers, interns, brave mesothelioma patients and families for their continued support. To those who have shared their stories, served as conference presenters, 2013 Conference Sponsors, and members of the ADAO Leadership and Science Advisory Board we are eternally grateful. These are the individuals who fuel our work with contributions in dollars, hours, thought, and action. Sincerely, I hope that this holiday season is joyful and restful for you and your loved ones! 


In unity,  


Linda Social Networks 

"Where Knowledge and Action Unite" 10th Annual International Asbestos Awareness Conference: April 4 - 6, 2014
10th Annual International Asbestos Awareness Conference: April 4 - 6, 2014

ADAO is delighted to announce that registration is open for the upcoming Tenth Annual International Asbestos Awareness Conference, entitled Where Knowledge and Action Unite. This year, speaking on April 6 2014, our keynote speaker will be Ms. Sue Vento, widow of the late Congressman Bruce Vento, who passed away from mesothelioma in 2000.  Other 2014 ADAO Honorees include: Congressman Henry Waxman, Dr. David Egilman, Dr. Ken Takahashi, Congressman Bruce Vento (posthumously), The Association Nationale de Défense des Victimes de l'Amiante (ANDEVA), Bill Ravanesi, Janelle Bedel (posthumously), Heather Von St James and Lou Williams.


The conference will be held April 4 - 6, 2014, at the Crystal Gateway Marriott in Arlington, VA. Click here to register today! Over 30 renowned medical experts and asbestos victims from ten different countries will speak on the latest advancements in asbestos disease prevention, treatment for mesothelioma and other asbestos-caused diseases, as well as global ban asbestos advocacy. The conference will also include an Awards and Recognition Dinner and a Unity and Remembrance Brunch. "The 2014 ADAO conference is an event like no other. It builds on nine years of increasingly successful events for the unified asbestos disease awareness community," said Dr. Richard Lemen, retired U.S. Assistant Surgeon General and ADAO Science Advisory Board Co-Chair. "I am truly excited to be a part of this global conference." Read More...

How To Find a Doctor or Treatment Facility Specializing in Mesothelioma and Asbestos-Related Diseases

"Mesothelioma - can't pronounce it, can't cure it," was ADAO President Linda Reinstein's devastated, personal reaction when she learned of her husband's asbestos-caused disease. "It took me many weeks to even begin to understand the diagnosis my husband had received and find the very limited treatment options available to him," she adds.

Navigating the complex health care system can sometimes feel like an impossible maze of information- but it doesn't have to be this way. Over the years, Linda has compiled a comprehensive list of treatment centers specializing in mesothelioma and asbestos-related diseasesClick here for access to ADAO's complete blog that features her helpful treatment directory. The National Cancer Institute also features an excellent page to answer your questions on How To Find a Doctor or Treatment Facility If You Have Cancer and MARF has information about treatment and support (available in both English and Spanish). We want everyone to have easy access to this crucial information and have included it in our new mobile app. Just seconds after ADAO posted our new Medical Resource, Lisa commented on Facebook:  "This will be such a help to those who don't know what to do or where to go after receiving the crippling diagnosis of meso. I think most of us had never even heard the word mesothelioma prior to a loved one's diagnosis. This resource is a lifeline for both patients and their families. Well done, ADAO!"

New ADAO App: "ADAO Asbestos Information"
The new ADAO app connects users to the latest news regarding treatments for mesothelioma, a cancer caused only by asbestos, and ways to prevent asbestos exposure. The free app is easily available to all on iTunes under "ADAO Asbestos Information." Touch the icons to learn about ADAO's three initiatives - Education, Advocacy and Community - and "Connect With Us" to access social networks.

"Many of us can think back to the heartbreaking time when we first heard the news that a loved one had an asbestos-caused disease," expressed ADAO President and Co-Founder Linda Reinstein. "ADAO is committed to replacing that fear, loneliness and confusion with the knowledge that there are others who want to support you by connecting and sharing via the new mobile app."


An exclusive feature from the mobile app includes a direct dial to three government agencies: the Environmental Protection Agency, Occupational Safety and Health Administration, and the Consumer Product Safety Commission. These direct dials give people easy access to report an asbestos-related problem or request information.  READ MORE:


Mesothelioma Warriors' Flames of Remembrance, Hope and Courage Burn Brightly

Please join us this holiday season for our longstanding Mesothelioma Warrior Candle Lighting tradition. On December 28th we come together in loving memory of those we have lost and again on January 4th in love and support for those brave warriors still battling the disease. 

The deadline to submit names for the 2013 Mesothelioma Warrior list is December 20.  Read More...
Mesothelioma Patient is Raising Asbestos Awareness with the Launch of Homemade Soaps Biz

Ellen, longtime ADAO community member and mesothelioma patient, is taking asbestos and mesothelioma awareness to new heights with her upcoming company, Breathe Products. 
With the holidays just around the corner, a handcrafted soap from Breathe Products would be the perfect luxurious treat for yourself, or a thoughtful gift for your loved ones. Read More... 
"Robbed of His Dignity" - Keith's Story

We have all been touched by asbestos in individual ways, yet we are joined together by a firm community bond. As a testament to the strength of our global family, ADAO is highlighting the courageous stories of our members with the "Share Your Story" feature on our website.

This week, we would like to honor the story of Keith, as shared by his widow, Judith, a beloved member of our ADAO family. Read More...
Make a Year-End Donation to Help ADAO Continue Educating and Advocating to Prevent Asbestos Exposure
As this year comes to an end, we look back at ADAO's 2013 accomplishments with pride but also with tremendous gratitude towards our supporters who made year-end contributions that helped us exceed our goals. When we needed to testify in Washington, you made that possible. When 125 asbestos experts from around the world gathered for our conference, you made that possible too. Some of you gave in memory of a beloved Mesothelioma Warrior. Some made donations to ADAO as holiday gifts to honor friends and family. Read More... 

Asbestos Disease Awareness Organization Mesothelioma Warrior Memorial Photo Collection (Graphics)


Every day, more than 300 people around the world die from preventable asbestos-related diseases. Don't be fooled - asbestos mining, manufacturing, processing, and distribution still continues despite the many lives it has destroyed. In 2012, the USA imported more than 1,000 metric tons of asbestos and an estimated 2 million metric tons were consumed around the world. Read More...  

STORIFY: Asbestos Victims Outraged with the Passage of the So-Called FACT Act (HR 982)

What happened on November 13, 2013?  U.S. Congressman John Conyers, Jr. (D-MI) said it quite eloquently: The FACT Act allows "asbestos victims to be revictimized." Yet, those victims did not sit silently  -- their voices were heard.

The U.S. House of Representatives voted 221 to 199 to pass the FACT Act (H.R. 982). The FACT Act is a special interest bill that jeopardizes the ability of those harmed by asbestos poisoning to hold corporations accountable for exposing them to a known carcinogen. Read More...
ADAO Brings the "Voice of the Victims" to the House Staff Briefing in Opposition of the FACT Act

Sometime I feel like a broken record when I remind
Congressional Members that "Asbestos Victims Oppose H.R. 982. The FACT Act was written for the asbestos industry - NOT US!" 
Ellen Patton, mesothelioma patient, and I joined Michelle Schwartz from Alliance for Justice, Julia Duncan of American Association for Justice, and Judy Van Ness, a mesothelioma widow for the Asbestos Cancer Victims' Rights Campaign, at the briefing. Read More... 
US EPA: Asbestos Tragedy Libby Montana (2004)
Asbestos Tragedy Libby Montana 2004 USEPA
-Shared by Mark Catlin

- Shared by Jill Vaughn, inspirational mesothelioma patient 
ADAO New Website
The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO is an independent global organization dedicated to preventing asbestos-related diseases through education, advocacy, and community. For more information, visit