Catalyst Center Coverage
Roundup of news related to financing of care for children and youth with special health care needs
 August 20, 2014
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Children in the foster care system in Wyoming are prescribed psychotropic medications at four times the rate of other children enrolled in Medicaid who are not in foster care. A study by the medical officer for the Wyoming Medicaid program found that one to two percent of children in the state's foster care system were given 150% the recommended dose of psychotropic medications. He also found that some children were prescribed as many as five psychotropic medications at the same time. This article tells the story of a teenaged boy in the Wyoming foster care system. He had experienced abuse and neglect before being removed from his family home and placed with foster families on five occasions. Rather than provide services and supports, doctors prescribed medications for his depression, attention issues, anxiety, and post-traumatic stress disorder. His older sister, concerned about the long-term effects of the medications on his organ systems and his overall quality of life while on multiple psychotropic medications that made his "brain feel weird," was able to adopt her younger brother. She has taken him off the medications, created a daily schedule for him, got him a volunteer job, and signed him up for sports. He now stays awake in class and no longer has behavior problems.
Note: Learn about a new tool that addresses the issue of overprescription of psychotropic drugs, in the Resources section below.
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N1Premera and LifeWise will Include Children's in Coverage link2
By Carol M. Ostrom
The Seattle Times
August 17, 2014 

Health insurers used to control costs by denying coverage to individuals with pre-existing conditions or by limiting benefits. Since the passage of the Affordable Care Act (ACA), insurers can no longer use these strategies. In the era of health reform, some insurers try to limit costs by selecting narrow networks of providers. Several insurers did not include Seattle Children's hospital in its network of providers, saying the hospital was too expensive. This caused a problem for families raising children with complex needs who require specialty care at a pediatric tertiary care center. They either had to pay higher out-of-pocket costs for using an out-of-network provider, break the continuity of care and go to another in-network hospital, or appeal to the insurer to cover the services at the in-network rate. Seattle Children's accused the state insurance office of violating federal and state laws about network adequacy and access to care. The legal dispute has not yet been resolved, but even before the case is decided, two insurers that excluded Seattle Children's have added the hospital to their provider networks.   

 

N2Despite Laws, ABA Therapy Often Hard To Come By link2  

By Rachel Zamzow
Disability Scoop
August 12, 2014 

Pennsylvania and New Jersey are two of the 37 states plus the District of Columbia and U.S. Virgin Islands that have enacted autism insurance reform laws. Yet, as reported in this article, families in these states still have problems obtaining insurance coverage for autism services, such as applied behavioral analysis (ABA), for their children diagnosed with autism spectrum disorders. Often, insurance will cover ABA therapy, but once a child begins school, health insurers pass the responsibility for ABA to the school and the school passes the responsibility back to the insurers. This means children are not receiving the services they need to succeed in school and in life. With an estimated cost of $80,000 a year for ABA, families cannot afford to pay out of pocket. Additionally, as a New Jersey family discovered, their insurer did reimburse them for ABA, but delayed the claim. This left the family waiting for repayment of hundreds of dollars that they needed for other household expenses. Taking the issue to court does not resolve the problem of who pays for ABA. When a Pennsylvania judge ruled in favor of the family, the insurer appealed, and the superior court overturned the decision. Another issue is that an increasing number of families have self-funded health insurance policies. These policies are exempt from providing state-mandated insurance benefits. Lastly, even though many private health plans and Medicaid do provide autism services, generally the benefits are limited to individuals younger than 21. With the increasing prevalence of autism diagnoses, adults are going to need services their health insurance may not continue to provide.  

 

By Kate Willson
Willamette Week
August 13, 2014
Obtaining medically necessary services for children, especially for children with special health care needs, should not depend on parents' willingness to battle their health insurers or on a judge's decision. But, that's what it takes for Oregon families raising children diagnosed with autism spectrum disorders. Despite decisions by external review boards, the Oregon Insurance Division did not enforce mental health parity rules and insist insurers cover applied behavioral analysis (ABA) for children with autism. Insurers also denied coverage of ABA, claiming it was experimental, not medically necessary, and that their policies included developmental disabilities exclusions. Even though U.S. District Judge Michael Simon ruled that insurers violated federal and state mental health parity laws and had to provide ABA, problems persist for families whose insurance is self-funded. Up until this point, the insurer for the state's public employees has also not covered ABA. Presently, the company has not decided if it will change its policy in response to Judge Simon's ruling.
Note: In August 2013, Oregon passed an autism insurance reform bill that will mandate coverage of applied behavioral analysis (ABA) for children who start using ABA and other autism-related services before turning nine. However, it does not go into effect for public employees until 2015; it goes into effect for fully-insured health plans in 2016. This autism legislation also impacts the state's Medicaid program which may begin providing ABA as soon as October 1 of this year. 

 
By Sophia Duong
Say Ahhh! A Children's Health Policy Blog
August 7, 2014 
Eight ball displays Some Signs Point to Yes?Since 2013, primary care physicians have received increased reimbursements for the services they provide to their patients enrolled in Medicaid. This provision of the Affordable Care Act (ACA) was enacted to expand access to primary care services. Not surprisingly, it's a popular provision; unfortunately, it comes with an expiration date. While not all "signs point to yes," there are signs of support for extending the "rate bump." This blog, from the Georgetown University Health Policy Institute's Center for Children and Families provides an overview of three mechanisms for extending the rate increase. The Murray-Brown plan would not only extend the rate increase for primary care physicians, but also for "obstetricians/gynecologists, nurse-midwives, nurse practitioners, and physician assistants." The CHIP Extension Act of 2014, proposed by Representatives Pallone and Waxman would extend the rate increase through 2019 and also include additional categories of providers. Some states, including states that chose not to expand Medicaid for adults, are using their own funds to extend the rate increase for primary care.        

  

By Maanvi Singh
Shots: Health News from National Public Radio
August 15, 2014 
Since September 2010, a provision of the Affordable Care Act (ACA) allows parents to keep their young adult children on their health insurance until they turn 26. This blog, based on the study "An ACA Provision Increased Treatment for Young Adults with Possible Mental Illnesses Relative to Comparison Group" investigated the association between this ACA provision and an increase in the number of young adults with mental health needs who received services. Between 2010 and 2012, there was only a 2% increase in the number of young adults with mental health needs who were receiving care and no change in the number of young adults receiving substance-abuse services. More notably, there was a 12.4% decrease in the number of uninsured visits and a 12.9% increase in the number of paid visits for mental health care. This blog concludes with an interview with Brendan Saloner, who led the study. He notes that primary care providers are an important point of contact for recognizing mental health problems and providing referrals. However, barriers to getting care remain, such as stigma and inadequate networks of providers. 

By Jay Hancock
Shots: Health News from National Public Radio
August 13, 2014 
In the era of health reform, "skinny" products denote more than foods with few calories. In an effort to control health care costs, more large employers are offering "skinny" health plans alongside at least one plan that meets the Affordable Care Act (ACA) requirements. Employees, looking to reduce spending on health insurance premiums, enroll in the skinny plans. Up front, skinny plans seem win-win. Employers fulfill the employer-mandate to offer coverage, and the employees fulfill the individual mandate to have minimum essential coverage, which includes employer-sponsored coverage. But these types of health plans got their name for a reason: they provide limited benefits. If an employee or a covered family member gets sick, has an accident, or has special health care needs, the out-of-pocket costs could be financially devastating, as the catastrophic limits established by the ACA only apply to covered services. And, employees looking for more comprehensive health benefits would not be able to purchase subsidized health insurance through the marketplace because the employer offers at least one ACA-compliant plan. Employers are also offering more high-deductible plans. Again, employees with a family member with special health care needs will have to pay thousands of dollars out of pocket before the insurance begins to pay medical care costs.
 
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RRResources
  
Center for Health Care Strategies
July 2014 
There is increasing concern that children and youth with behavioral needs who are enrolled in Medicaid, and in particular, children in the foster care system are prescribed psychotropic medications inappropriately. This technical assistance tool from the Center for Health Care Strategies summarizes the prior authorization policies used in 14 states that were designed to alert Medicaid agencies to possible overprescribing of psychotropic medications and to change the prescribing habits of Medicaid providers, especially for children in foster care.     

  

By Ellen Albritton, Margo Edmunds, Veronica Thomas, Dana Petersen, Grace Ferry, Cindy Brach, and Linda Bergofsky
Agency for Healthcare Research and Quality
July 2014 
Georgia, Idaho, and Massachusetts, three of the 18 states involved in the 10 Children's Health Insurance Program Reauthorization Act (CHIPRA) quality demonstration grants, worked on ways to engage stakeholders in efforts to improve the quality of children's health care. Based on the initiatives in these three states, this guide provides a five-step approach to engaging stakeholders and provides links to additional resources.

  

News From Our Partners 
 
Do you need reports and studies about the Medicaid Early and Periodic Screening, Diagnostic and Treatment (EPSDT) program, statistics about child welfare and maternal and child health programs, legislative and program data, or just want to get better acquainted with Title V? The History Collection at the Maternal and Child Health (MCH) Library at Georgetown University is a fabulous, newly updated resource where you can find all this information and more. If you're a visual learner, you can learn about prior MCH public awareness campaigns and other events by taking a "tour" of Historical MCH posters. 
 
Out with the old, in with the new - name that is. The organization formerly known as the National Initiative for Children's Healthcare Quality is now the National Institute for Children's Health Quality (NICHQ). Its mission remains the same: to improve the health of children. Visit the redesigned NICHQ website and learn more about its mission and projects.  
 
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Events & Announcements

Date: August 26, 2014
Time: 1:00 to 2:00 pm ET
This webinar, hosted by Pathways to Positive Futures, will explore the complex needs of youth with mental health conditions in transition to adult systems of care. The presenters will discuss barriers, such as a lack of standard eligibility criteria across service systems. They will also share strategies for  improving service integration and for bridging gaps in services. Register for the Bridging Service Gaps: System Integration Strategies for Service Providers Working with Young Adults with Mental Health Issues webinar
 
Date: September 2, 2014
Time: 12:00 noon to 1:00 pm ET 
The New England Genetics Collaborative (NECG) is hosting this webinar to introduce its policy brief "New England Children with Genetic Disorders and Health Reform: Information and Recommendations for State Policymakers."  Meg Comeau, chair of the NEGC Health Care Access & Financing work group and Co-Principal Investigator for the Catalyst Center will discuss insurance gaps and barriers for children with genetic disorders, opportunities within the ACA for improving coverage and benefits, survey results about families' experiences, policy recommendations for closing gaps, resources, and more. Register for the Children with Genetic Disorders and Health Care Reform Information & Recommendations for Policymakers webinar.

Date: September 16, 2014
Time: 1:30 pm to 2:30 pm ET 
This webinar, hosted by the National Institute for Children's Health Quality (NICHQ) is an opportunity to learn tips and strategies for engaging leadership in quality improvement work. Register for the Engaging Leadership in Quality Improvement Work webinar.
 
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If you have suggestions for news items related to coverage and financing of care for CYSHCN please email Beth Dworetzky Catalyst Center Coverage editor and Catalyst Center Project Director by 12 noon on Friday.
The Catalyst Center is a national center dedicated to working with states and stakeholder groups on improving health care insurance and financing for Children and Youth with Special Health Care Needs (CYSHCN). For more information, please visit us at www.catalystctr.org or contact Meg Comeau, Co-Principal Investigator, at mcomeau@bu.edu.

The Catalyst Center is funded under cooperative agreement #U41MC13618 from the Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services. Kathleen Watters, MA, MCHB/HRSA Project Officer. The contents of Catalyst Center Coverage are solely the responsibility of the authors and do not necessarily represent the views of the funding agencies or the U.S. government.