Florida Gulf Coast Chapter

 

Hillsborough Update 

December 2013

In This Issue
Support Groups
Holidays
Thank You!
Number of Gene Variants Linked to Alzheimer's Disease Doubles
The Genetics of Alzheimer's
Help Identify Risk Genes
Care for the Caregiver: How Heavy is This Glass of Water?
Early Stage Programs
Calendar
All programs are free to attend unless otherwise specified.

November 26th, Never Too Old Tuesday; Antiques and Geeks, MOSI, 4801 E Fowler Ave, Tampa, 10:00 a.m.- 2:00 p.m., Contact Patricia Robison for more information 813-987-6320.

 

December 6th Outreach: Memory Screenings on the Memory Mobile at Plant City Fun Fest & Jamboree, Strawberry Festival Grounds, Plant City; 10:00 a.m. - 3:00 p.m.

 

December 11, 8:00 a.m. to 4:00 p.m. Caregiver Seminars: Understanding Dementia Care with Teepa Snow, (for family and professional caregivers). Registration & resource tables open 8-9:00 a.m. & 12-1:00 p.m. 

Free lunch (12-1:00 p.m.).

  • Seminar 1 (9:00 a.m. - 12:00 p.m.): Helping Throughout the Journey of Dementia: Understanding progression and how to provide the right care and support at the right time for best interactions and outcomes.
  • Seminar 2 (1:00 - 4:00 p.m.) Providing Service and Support Throughout the Progression of Dementia: Learn how to modify communication and interaction skills, control the environment, and support and guide others for better outcomes and care for people living with dementia.

St John the Devine Episcopal Church, 1015 Del Webb Blvd East, Sun City Center.

To register, call 813-677-1400 or visit

www.seniorhelpers.com/UDC-Seminar-Series

 

December 12, 8:00 a.m. to 5:00 p.m. Caregiver Seminars: Understanding Dementia Care with Teepa Snow, (for family and professional caregivers). Registration & resource tables open 8-9:00 a.m. & 12-1:00 p.m. Wrap up and additional time to learn about community resources- 4-5:00 p.m. Free lunch (12-1:00 p.m.).

  • Seminar 1 (9:00 a.m. - 12:00 p.m.): Helping Throughout the Journey of Dementia: Understanding progression and how to provide the right care and support at the right time for best interactions and outcomes.
  • Seminar 2 (1:00 - 4:00 p.m.) Providing Service and Support Throughout the Progression of Dementia: Learn how to modify communication and interaction skills, control the environment, and support and guide others for better outcomes and care for people living with dementia.

Highland Park Church of the Nazarene, Families Ministries Building, 4730 Lakeland Highlands Road, Lakeland. Registration required. Family caregivers sign up hereProfessionals sign up here. CEUS for professionals. FREE respite, pre-registration required. Please call 863-686-7333

with any questions.

 

December 16th Memory Care Workshop; Goal setting, James A. Haley, VA Hospital, 13000 Bruce B Downs Blvd, Trailer 82, Tampa, 12:30-2:00 p.m., Contact Cindy Clements-Miller for information, 813-972-2000, Ex 7178.

 

December 10th, Educational Presentation. Mind and Body Connection, at Wimmauma Senior Center, 5615 North Street,12:00 p.m.- 1:00 p.m. Presentation will be in Spanish with English translation available,.

 

December 18th, Memory Screenings (Spanish/English), at Wimmauma Senior Center, 5615 North Street, 10:30 a.m. - 2:30 p.m.

 

December 23rd Memory Care Workshop; Overview of Dementia, James A. Haley, VA Hospital, 13000 Bruce B Downs Blvd, Trailer 82, Tampa, 12:30-2 p.m., Contact Cindy Clements-Miller for information, 813-972-2000, Ex 7178.

 

January 23rd Outreach: Memory Screenings on the Memory Mobile at Florida State Fairgrounds. Lifestyles after 50 Fun Fest, Tampa; 10:00 a.m. - 3:00 p.m.

Support Groups

Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

  

Mild Cognitive Impairment Group
USF Alzheimer's Center
4001 East Fletcher Ave. Tampa
1st Floor Conference Room
Every 4th Thursday @ 2:00 p.m.
Facilitator: Nancy Teten (813) 974-4355

 

Support Group for Spouses
*Arden Courts of Tampa

14950 Casey Rd, Tampa 33624

2nd Wednesday @ 12:00 noon

Facilitator: Jamie Magrill (813) 963-6100

 

APOLLO BEACH

Harbor Point Executive Suite

435 Apollo Beach Blvd., 33572

1st Monday @ 5:30 p.m.

Facilitator: Heather Comfort, (813) 230-9494


BRANDON
*Superior Residences of Brandon
1819 Providence Ridge Boulevard, 33511
3rd Monday @ 7:00 p.m. or

2nd Wednesday @ 2:00 p.m.
Facilitators: Charlotte Howard (813) 681-1986
Nell Bieser, (813) 625-0846

Dementia Support Group
Campo Family YMCA
3414 Culbreath Road, Valrico, 33596
Last Friday of every month @ 1:30 p.m.
Facilitator: Jill Andrew, Superior Residences of
Brandon (813) 657-8587

Jandrew@SuperiorALF.com


LITHIA
Life Church at FishHawk
6420 Lithia Pinecrest Road, Lithia, 33547
1st Monday @ 7:00 p.m.
Facilitator: Eddie Broom (813) 681-6503

PLANT CITY
First Baptist Church
503 North Palmer Street, Plant City
2nd Tues. @ 2:00 p.m.
Facilitator: Stefanie Thompson (863) 292-9210

SUN CITY CENTER
*Courtyards at Sun City Center Assisted Living
255 Courtyards Boulevard, 33573
4th Wednesday @ 1:30 p.m.
Facilitator: Candise Brown (813) 634-4497

 

Freedom Plaza

1010 American Eagle Blvd, 33573

2nd Thursday @ 9:00 a.m.

Facilitator: Heather Comfort, (813) 230-9494

*Sun Towers
101 Trinity Lakes Drive, 33573
3rd Tuesday @ 2:30 p.m.
Facilitator: Amy Brand Engle, (813) 246-4120

TAMPA
Hyde Park United Methodist Church
500 W. Platt Street
Knox Hall room 150
2nd Tuesday @ Noon
Facilitator: Mimi Buderus (813) 476-2628

 

Aston Gardens Westchase
11741 Lake Aston Court. Tampa 33626
3rd Thursday @ 5:30 p.m.
Facilitator: Arthur Mosley (813) 343- 0272

Brighton Gardens of Tampa
16702 North Dale Mabry Highway, 33618
Last Thursday @ 6:00 p.m.
Facilitator: Laura Pinard, (813) 908-2333

Memorial Hospital
2901 W Swann Avenue, Tampa, 33606
3rd Tuesday @ 3:30 p.m.
Facilitator: Tally Nelson, (813) 251-6333

Tally.Nelson@Brookdaleliving.com


The South Tampa Family YMCA
4411 S. Himes Avenue, 33611
Last Tuesday @ 12:00 p.m.
Facilitator: Yvette Wilmath (813) 839-0210
Yvette.wilmath@tampaymca.org

Hispanic Support Group
1810 West Clifton Street, 33603
First Thursday @ 7:00 - 8:30 p.m.
Facilitator: Madeline Rodriguez, (813) 871-3652

USF Alzheimer's Center
4001 E. Fletcher Ave.
First Floor Conference Room
1st Thursday of the month @ 2:00 p.m.
Facilitator: Eileen Poiley, (813) 974-4355
Free Parking

Lakeshore Villas
16001 Lakeshore Villa Drive
3rd Wednesday of the month @ 2:00 p.m.
Facilitator: Kim Schaub, (813) 684-1296

 

THONOTOSASSA

Stone Ledge Manor
12006 McIntosh Road
3rd Monday at 6:00 p.m.
Facilitator: Stormie Thayer, (813) 571-4117

 

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations.  
Holidays
 The holidays are a time when family and friends come together and share memories, laughs and good cheer. But for families living with Alzheimer's, the holidays can also be a difficult time. Caregiving responsibilities layered on top of keeping up with holiday traditions can take its toll on the caregiver and the person with dementia.
 
With some planning and adjusted expectations,  celebrations can be filled with joy and magical moments to cherish forever.    To learn more on this topic go here.
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Thank You!
Lori Sims, Vice President Development
Alzheimer's Association- Florida Gulf Coast Chapter

Thank you to all Walkers, Families, Caregivers, Advocates and Friends who joined this year's Walk to End Alzheimer's!

Each of the 11 Walks was an immensely bonding experience that brought together thousands of people who raised funds for the Alzheimer's Association. We, at the Florida Gulf Coast Chapter, recognize that each gift represents a real person, with a unique story of hope, inspiration, and dedication.

We are most appreciative of those who shared their stories during the Promise Garden ceremony. Thanks to the community Walk chairs and the committees for their unwavering commitment.

Please visit our website, www.alz.org/flgulfcoast and click on Walk to End Alzheimer's and Walker News
to see the results of each Walk, along with special photos of those who participated. Also, for more in depth photographic coverage, visit our Facebook page
Number of Gene Variants Linked to Alzheimer's Disease Doubles
gene Scientists have discovered eleven new genes that may be tied to the late-onset form of Alzheimer's disease, a new study shows. Eleven gene variants had previously been linked to late-onset Alzheimer's, including the APOE-e4 gene that appeared to have the strongest impact on risk.

 

The study, a meta-analysis, International Genomics of Alzheimer's Project, finding these results, was published online by Nature Genetics. 
  
The International Genomics of Alzheimer's Project (IGAP) is a collaboration formed to discover and map the genes that contribute to Alzheimer's. The formation of IGAP in 2011 was supported by the Alzheimer's Association and the Fondation Plan Alzheimer.

 

This collaborative effort, spanning universities from both Europe and the United States, combines the knowledge, staff, and resources of four groups that conduct research on Alzheimer's disease genetics.

 

They identified as many new Alzheimer's-related genes in this one study as have been found in the last 15 years combined. The findings expand the scope of our understanding of Alzheimer's to new areas, including the immune system, where a genetic overlap was identified with other neurodegenerative diseases such as multiple sclerosis and Parkinson's disease.  This is extremely important work in taking our ability to detect and treat Alzheimer's disease to the next level. Identification of genes that contribute to Alzheimer's risk and influence the progression of disease may:

  • Help lead us to the cause of the disease.
  • Identify proteins and other new targets for drug development.
  • Provide genetic methods for determining which people are at greatest risk for Alzheimer's when preventative measures become available.

More details on the research findings

  • Pooling resources through IGAP, the collaborative team collected 74,076 patients and controls from 15 countries.
  • The researchers found genes that confirmed known biological pathways of Alzheimer's disease, including the role of the amyloid (SORL1, CASS4) and tau (CASS4, FERMT2).
  • Additional genes related to cell migration (PTK2B), lipid transport, and endocytosis (SORL1) were also confirmed.
  • Newly discovered genes involved in the immune response and inflammation (HLA-DRB5/DRB1, INPP5D, MEF2C).
  • New hypotheses emerged related to hippocampal synaptic function (MEF2C, PTK2B), the cytoskeleton and axonal transport (CELF1, NME8, CASS4), as well as myeloid and microglial cell functions (INPP5D).
  • The researchers say that one of the more significant new genetic associations was found in the HLA-DRB5 - DRB1 region, which plays a role in the immune system and inflammatory response. This region has also been associated with multiple sclerosis and Parkinson's disease, suggesting that the diseases where abnormal proteins accumulate in the brain may involve a common mechanism.

Learn more

The Genetics of Alzheimer's

The Genetics of Alzheimer's, 2010

Help Identify Risk Genes
In 2003, the Alzheimer's Association partnered with the National Institute on Aging to begin recruiting participants for the National Alzheimer's Disease Genetics Study, a federal initiative to collect and bank blood samples from families with several members who developed Alzheimer's disease late in life. The goal is to identify additional Alzheimer's risk genes. The study continues to seek participants.
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

Caregiver Jewels is a column featuring tips from family and professional caregivers throughout our 17 county service area. These "golden nuggets" represent caregiving strategies and tricks of the trade.

For the column to be a success we need your input! It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth! Send your tip to reesee@alzflgulf.org or contact your

local office. 

 

December Tip

How Heavy is This Glass of Water?

 

A Young lady confidently walked around the room while leading and explaining stress management to an audience with a raised glass of water. Everyone knew she was going to ask the ultimate question, "half empty or half full?"

 

She fooled them all ... "How heavy is this glass of water?" she inquired with a smile.

 

Answers called out ranged from 8 oz. to 20 oz.

glass of water_Photo courtesy photos-public-domain.com
Photo courtesy photos-public-domain.com

 

She replied, "The absolute weight doesn't matter. It depends on how long I hold it. If I hold it for a minute, that's not a problem. If I hold it for an hour, I'll have an ache in my right arm. If I hold it for a day, you'll have to call an ambulance. In each case it's the same weight, but the longer I hold it, the heavier it becomes." She continued, "and that's the way it is with stress. If we carry our burdens all of the time, sooner or later, as the burden feels increasingly heavy, we won't be able to carry on."

 

As with the glass of water, you have to put it down for a while and rest before holding it again. When we're refreshed, we can carry on with the burden - holding stress longer and better for each time we've practiced.

 

So, as early in the evening as you can, put all your burdens down. Don't carry them through the evening and into the night... Pick them up tomorrow.

 

(Jill Andrew, Alzheimer's Association support group facilitator at Superior Residence, heard this story during a training. The author is unknown.)

  

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment. 

Early Stage Programs
BASE with AA logo If you or someone you care about is in the early stages of Alzheimer's disease or a related dementia please call our office. We have resources to help!  
One program, BASE (beginning Alzheimer's support and education) offers a place to learn and gain support from peers and professionals.
If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

 

Kim Schaub, Program Specialist
Email:
schaubk@alzflgulf.org
Phone: (813) 684-1296
Fax: (813) 685-7213
309 North Parsons Avenue
Brandon, FL 33510

Nancy Parente, Bilingual & Multi-Cultural Outreach Program Specialist
Email:
parenten@alzflgulf.org
Phone: (727) 578-2558
Fax: (727) 578-2286

 

Alzheimer's Association Florida Gulf Coast Chapter
www.alz.org/flgulfcoast

These Programs Partially Underwritten Through the Support of

WCFAAA

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900