Florida Gulf Coast Chapter

 

Lee Update 

December 2013

In This Issue
Support Groups
Care for the Caregiver
Early Stage Programs
Thank You!
Number of Gene Variants Linked to Alzheimer's Disease Doubles
The Genetics of Alzheimer's
Help Identify Risk Genes
Care for the Caregiver: How Heavy is This Glass of Water?
Calendar
All programs are free to attend unless otherwise specified.  RSVP appreciated but not required;

239-405-7008 or reesee@alzflgulf.org

 

December 2, Monday, Memory Mobile Stop at Good Shepard United Methodist Church, 2951 Trail Dairy Circle, North Fort Myers. 10:00a.m. - 4:00p.m.

Come get a free and confidential memory screening, or just ask questions about Alzheimer's disease or a related dementia. Appointments are not required but suggested to minimize wait times. Sponsored by the Alzheimer's Association - Florida Gulf Coast Chapter, the Florida State Department of Elder Affairs, and Senior Choices of Southwest Florida, Inc.

 

December 3, Tuesday, Memory Mobile Stop at Beacon of Hope, United Way, 5465 Pine Island Road, N.W., Bookeelia. 10:00a.m. - 4:00p.m.

Come get a free and confidential memory screening, or just ask questions about Alzheimer's disease or a related dementia. Appointments are not required but suggested to minimize wait times. Sponsored by the Alzheimer's Association - Florida Gulf Coast Chapter, the Florida State Department of Elder Affairs, and Senior Choices of Southwest Florida, Inc.

 

December 4, Wednesday, Holiday Visits and Travel Tips at Clare Bridge of Fort Myers,13565 American Colony Blvd., Fort Myers. 11:00 a.m. to 12:30 p.m.

The holidays are often especially difficult and isolating for Alzheimer's caregivers - but who made that rule? This presentation will provide tips on celebrating the holidays with your loved one with Alzheimer's and their family, adjusting expectations to prevent disappointment, and adapting gift giving and travel safety.

 

December 4, Wednesday, The Traveling Teapot, Tips to Reducing Caregiver Stress at Emeritus at the Lakes, 7460 Lake Breeze Drive, Fort Myers. 6:00 p.m. to 7:00 p.m.

In this relaxed, interactive program you wil learn tips on managing the demands and stress of being a caregiver and why it is so important to do so!

 

December 5, Thursday, HBO Series Momentum in Science Part 1at Clare Bridge of Cape Coral, 911 Santa Barbara Blvd. Cape Coral. 5:30 p.m. to 7:00 p.m.

This two part series reveals some of the most cutting-edge research advances. Learn what scientists have discovered about the healthy body and brain connection. What do the scientists know about Alzheimer's disease and where the research is taking us. A light meal is provided - RSVP to Meg Wright 239-573-5108

 

Upcoming in 2014

 

Coming in January "Living with Alzheimer's", education series for caregivers addressing essential topics a such as challenges in communication and behavior, personal care and planning for the future. Call 239-405-7008 or email reesee@alzflgulf.org for location and times.

 

January 13, Monday, Beginning Alzheimer's Support and Education (BASE) at First Church of the Nazarene, 13545 American Colony Blvd., Fort Myers. 1:00 p.m. to 3:00 p.m. Will meet Mondays for 8 weeks. (No meeting February 17).

BASE is an educational and support program for persons with a diagnosis of dementia in the early stages and their care partner. The 8 week program will delve into such topics as the disease process, day to day living, positive communication, stress management, medication and research, legal issues and long term care planning. PREREGISTRATION IS REQUIRED, contact Emily Reese 239-405-7008 or reesee@alzflgulf.org.

 

January 28, Tuesday, Memory Mobile Stop at Lakes Regional Library, 15290 Bass Road, Fort Myers. 10:00a.m. - 4:00p.m.

Come get a free and confidential memory screening, or just ask questions about Alzheimer's disease or a related dementia. Appointments are not required but suggested to minimize wait times. Sponsored by the Alzheimer's Association - Florida Gulf Coast Chapter, the Florida State Department of Elder Affairs, and Senior Choices of Southwest Florida, Inc.

 

January 29, Wednesday, Memory Mobile Stop at North Fort Myers Community Center, 2021 North Tamiami Trail, North Fort Myers 9:00 a.m. to 1:00 p.m.

Come get a free and confidential memory screening, or just ask questions about Alzheimer's disease or a related dementia. Appointments are not required but suggested to minimize wait times. Sponsored by the Alzheimer's Association - Florida Gulf Coast Chapter, the Florida State Department of Elder Affairs, and Senior Choices of Southwest Florida, Inc.

 

February 28, 8:00 a.m. to 4:30 p.m., Updates on Dementia Conference: Renowned Speakers. Essential knowledge at Hodges University, Naples, FL.
Support Groups

Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

  

CAPE CORAL

Christ Lutheran Church

2911 Del Prado Blvd. (33904)

2nd Wednesday at 11:00 a.m.

Emily Reese, 239-405-7008

 

FORT MYERS

Clare Bridge of Fort Myers*

13565 American Colony Boulevard (33919)

2nd Wednesday @ 6:00 p.m.

Claudia Jennings, 239-823-5455

 

Westminster Presbyterian Church

9065 Ligon Ct. (33908)

1st and 3rd Wednesday @ 2:00 p.m.

Emily Reese (239) 405-7008

 

First Church of the Nazarene

13545 American Colony Blvd. (33912)

2nd Monday at 10:00 a.m.

Beyond BASE (Early stage group for care partner and person with dementia.

You must preregister by contacting Emily Reese 239-405-7008)

 

BONITA SPRINGS

Millennium House of Southwest Florida*

8951 Bonita Beach Road, Suite 297 (34135)

1st Wednesday @ 5:00 p.m.

Catherine Cruikshank (239) 405-7008

 

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations.  
Care for the Caregiver
Caregivers may find that with so many responsibilities self-care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.
  
Early Stage Programs
BASE with AA logo If you or someone you care about is in the early stages of Alzheimer's disease or a related dementia please call our office. We have resources to help!  
  
One program, BASE (beginning Alzheimer's support and education) offers a place to learn and gain support from peers and professionals. This program is starting in January. Call today to learn more.
Quick Links
  
Like us on Facebook
Thank You!
Lori Sims, Vice President Development
Alzheimer's Association- Florida Gulf Coast Chapter

Thank you to all Walkers, Families, Caregivers, Advocates and Friends who joined this year's Walk to End Alzheimer's!

Each of the 11 Walks was an immensely bonding experience that brought together thousands of people who raised funds for the Alzheimer's Association. We, at the Florida Gulf Coast Chapter, recognize that each gift represents a real person, with a unique story of hope, inspiration, and dedication.

We are most appreciative of those who shared their stories during the Promise Garden ceremony. Thanks to the community Walk chairs and the committees for their unwavering commitment.

Please visit our website, www.alz.org/flgulfcoast and click on Walk to End Alzheimer's and Walker News
to see the results of each Walk, along with special photos of those who participated. Also, for more in depth photographic coverage, visit our Facebook page
Number of Gene Variants Linked to Alzheimer's Disease Doubles
gene Scientists have discovered eleven new genes that may be tied to the late-onset form of Alzheimer's disease, a new study shows. Eleven gene variants had previously been linked to late-onset Alzheimer's, including the APOE-e4 gene that appeared to have the strongest impact on risk.

 

The study, a meta-analysis, International Genomics of Alzheimer's Project, finding these results, was published online by Nature Genetics. 
  
The International Genomics of Alzheimer's Project (IGAP) is a collaboration formed to discover and map the genes that contribute to Alzheimer's. The formation of IGAP in 2011 was supported by the Alzheimer's Association and the Fondation Plan Alzheimer.

 

This collaborative effort, spanning universities from both Europe and the United States, combines the knowledge, staff, and resources of four groups that conduct research on Alzheimer's disease genetics.

 

They identified as many new Alzheimer's-related genes in this one study as have been found in the last 15 years combined. The findings expand the scope of our understanding of Alzheimer's to new areas, including the immune system, where a genetic overlap was identified with other neurodegenerative diseases such as multiple sclerosis and Parkinson's disease.  This is extremely important work in taking our ability to detect and treat Alzheimer's disease to the next level. Identification of genes that contribute to Alzheimer's risk and influence the progression of disease may:

  • Help lead us to the cause of the disease.
  • Identify proteins and other new targets for drug development.
  • Provide genetic methods for determining which people are at greatest risk for Alzheimer's when preventative measures become available.

More details on the research findings

  • Pooling resources through IGAP, the collaborative team collected 74,076 patients and controls from 15 countries.
  • The researchers found genes that confirmed known biological pathways of Alzheimer's disease, including the role of the amyloid (SORL1, CASS4) and tau (CASS4, FERMT2).
  • Additional genes related to cell migration (PTK2B), lipid transport, and endocytosis (SORL1) were also confirmed.
  • Newly discovered genes involved in the immune response and inflammation (HLA-DRB5/DRB1, INPP5D, MEF2C).
  • New hypotheses emerged related to hippocampal synaptic function (MEF2C, PTK2B), the cytoskeleton and axonal transport (CELF1, NME8, CASS4), as well as myeloid and microglial cell functions (INPP5D).
  • The researchers say that one of the more significant new genetic associations was found in the HLA-DRB5 - DRB1 region, which plays a role in the immune system and inflammatory response. This region has also been associated with multiple sclerosis and Parkinson's disease, suggesting that the diseases where abnormal proteins accumulate in the brain may involve a common mechanism.

Learn more

The Genetics of Alzheimer's

The Genetics of Alzheimer's, 2010

Help Identify Risk Genes
In 2003, the Alzheimer's Association partnered with the National Institute on Aging to begin recruiting participants for the National Alzheimer's Disease Genetics Study, a federal initiative to collect and bank blood samples from families with several members who developed Alzheimer's disease late in life. The goal is to identify additional Alzheimer's risk genes. The study continues to seek participants.
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

Caregiver Jewels is a column featuring tips from family and professional caregivers throughout our 17 county service area. These "golden nuggets" represent caregiving strategies and tricks of the trade.

For the column to be a success we need your input! It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth! Send your tip to reesee@alzflgulf.org or contact your

local office. 

 

December Tip

How Heavy is This Glass of Water?

 

A Young lady confidently walked around the room while leading and explaining stress management to an audience with a raised glass of water. Everyone knew she was going to ask the ultimate question, "half empty or half full?"

 

She fooled them all ... "How heavy is this glass of water?" she inquired with a smile.

 

Answers called out ranged from 8 oz. to 20 oz.

glass of water_Photo courtesy photos-public-domain.com
Photo courtesy photos-public-domain.com

 

She replied, "The absolute weight doesn't matter. It depends on how long I hold it. If I hold it for a minute, that's not a problem. If I hold it for an hour, I'll have an ache in my right arm. If I hold it for a day, you'll have to call an ambulance. In each case it's the same weight, but the longer I hold it, the heavier it becomes." She continued, "and that's the way it is with stress. If we carry our burdens all of the time, sooner or later, as the burden feels increasingly heavy, we won't be able to carry on."

 

As with the glass of water, you have to put it down for a while and rest before holding it again. When we're refreshed, we can carry on with the burden - holding stress longer and better for each time we've practiced.

 

So, as early in the evening as you can, put all your burdens down. Don't carry them through the evening and into the night... Pick them up tomorrow.

 

(Jill Andrew, Alzheimer's Association support group facilitator at Superior Residence, heard this story during a training. The author is unknown.)

  

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment. 

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,
  

Emily Reese, Program Specialist

Catherine Cruikshank, Director of Education
 

Lee-Collier Office

Alzheimer's Association, FGCC

9220 Bonita Beach Road, Suite 223

Bonita Springs, Florida, 34135

Telephone: (239) 405-7008

Facsimile: (239) 405-7038

Email: reesee@alzflgulf.orgcruikshankc@alzflgulf.org

Website: www.alz.org/flgulfcoast

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900