Florida Gulf Coast Chapter

 

Collier Update 

November 2013

In This Issue
Strategic Research
Support Groups
Calendar for the Cause
Walk to End Alzheimer's
Personalize Walk Day
National Alzheimer's Disease Awareness Month
Aggression, Anxiety or Agitation
Caregiver Jewels: An Ounce of Prevention is Worth a Pound of Cure!
Needed Volunteers
Early Stage Programs
Calendar
All programs are free to attend unless otherwise specified.
  
October 19, Saturday,
The Walk to End Alzheimer's at Cambier Park, Naples. Registration begins at 9:00 a.m., Walk begins at 10:00 a.m. For information please contact Katie Hood at (727) 578-2558 or register online at

This 2 mile walk around downtown Naples is to raise funds and awareness for Alzheimer's disease and related dementias.

 

October 22, Tuesday, Documentary and Discussion Series: HBO's The Alzheimer's Project- The Memory Loss Tapes at  Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m.- 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535. Class size is limited to 20 participants.

View seven people on their journey with Alzheimer's disease. Learn about the different emotional challenges that caregivers must face.  

A complimentary lunch will be served.

 

October 29, Tuesday, Documentary and Discussion Series: HBO's The Alzheimer's Project- Caregivers at Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m.- 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535. Class size is limited to 20 participants.

View five families on their journey with Alzheimer's disease. Learn about the different emotional challenges that caregivers must face. A complimentary lunch will be served. 

 

November 14, Thursday, Holiday Visits and Travel Tips at Juniper Village of Naples, 1155 Encore Way, Naples. 10:00 a.m. to 11:30 a.m.

The holidays are often especially difficult and isolating for Alzheimer's caregivers - but who made that rule? This presentation will provide tips on celebrating the holidays with your loved one with Alzheimer's and their family, adjusting expectations to prevent disappointment, and adapting gift giving and travel safety.

 

November 19, Tuesday, Holiday Visits and Travel Tips at Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m. to 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535. Class size is limited to 20 participants.

The holidays are often especially difficult and isolating for Alzheimer's caregivers - but who made that rule? This presentation will provide tips on celebrating the holidays with your loved one with Alzheimer's and their family, adjusting expectations to prevent disappointment, and adapting gift giving and travel safety.

 

November 20, Wednesday, Documentary and Discussion Series: HBO's The Alzheimer's Project- Caregivers at the Aristocrat Assisted Living Residence, Naples, 10949 Parnu Street, 2:30 p.m.to 4:00 p.m. Open to the Public/Please RSVP to David (239) 592-5501.

View five families on their journey with Alzheimer's disease. Learn about the different emotional challenges that caregivers must face. Refreshments will be served. 

 

November 26, Tuesday, Death: Loss, Grief, and Recovery at Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m. to 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535. Class size is limited to 20 participants.

Caregiving for someone with dementia can take a toll on caregivers. Whether you are the spouse or the child, you might have certain expectations of how you will move forward after your loved one passes. This educational program is designed to offer various grief processes for your consideration. A complimentary lunch will be served. 

 

December 3, Tuesday, Senior Day at Walgreens, Naples, 13520 Tamiami Trail North (Wiggins Pass), 10:00 a.m. to 3:00 p.m.

Meet and greet with various agencies and receive free information about common and serious health issues.

 

December 4, Wednesday, Memory Mobile Stop at Walgreens, Naples, 13520 Tamiami Trail North (Wiggins Pass), 10:00 a.m. to 3:00 p.m.  RSVP to Catherine (239) 405-7008.

Come get a free and confidential memory screening, or just ask questions about Alzheimer's disease or a related dementia. Appointments are not required but suggested to minimize wait times. Sponsored by the Alzheimer's Association - Florida Gulf Coast Chapter, the Florida State Department of Elder Affairs, and Senior Choices of Southwest Florida, Inc.

 

December 4, Thursday, Memory Mobile Stop at Walgreens, Naples, 8900 Tamiami Trail North (Vanderbilt Beach Road), 10:00 a.m. to 3:00 p.m.  RSVP to Catherine (239) 405-7008.

Come get a free and confidential memory screening, or just ask questions about Alzheimer's disease or a related dementia. Appointments are not required but suggested to minimize wait times. Sponsored by the Alzheimer's Association - Florida Gulf Coast Chapter, the Florida State Department of Elder Affairs, and Senior Choices of Southwest Florida, Inc.

 

December 10, Tuesday, Humbug Versus Hoopla  at Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m. to 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535. Class size is limited to 20 participants.

The holidays are often especially difficult and isolating for Alzheimer's caregivers. This presentation will provide tips on celebrating the holidays with your loved one with Alzheimer's and their family, adjusting expectations, and celebrating the moment. A complimentary lunch will be served. 

 

December 10, Tuesday, Open Forum- Bring Your Questions and Get Some Answers at Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m. to 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535. Class size is limited to 20 participants.

The format of this program is directed by the questions that the audience asks. Curious about anything dementia related? Bring your questions. Laugh, cry, giggle, and learn as a group. No question is too small. A complimentary lunch will be served. 

 

Professional Series:

Each workshop is 1-1/2 to 2 hours in length from 5:30 - 7:30 P.M. Class size is limited to 20 participants. A complimentary dinner will be served. Homewood Residence of Naples, Naples, 770 Goodlette Road. Open to the Public/Please RSVP to Michele (239) 430-3535.

 

October 22, Documentary and Discussion Series: HBO's The Alzheimer's Project- The Memory Loss Tapes, view seven people on their journey with Alzheimer's disease, Full 2 hours. Free 2 CEU's for Nurse Practitioner's, RN's, LPN's, and CNA's.

 

November 19, Death: Loss, Grief, and Recovery. Caregiving for someone with dementia can take a toll on caregivers. Whether you are the spouse or the child, you might have certain expectations of how you will move forward after your loved one passes. This educational program is designed to offer various grief processes for your consideration. Free 1.5 CEU's for Nurse Practitioner's, RN's, LPN's, and CNA's. 

Strategic Research

In 2013 the Alzheimer's Association made investments totaling approximately $14.8 million in more than 75 scientific investigations, a $2.6 million increase from 2012's investments.
  
Since 1982, the Alzheimer's Association has invested over $315 million in more than 2,200 scientific investigations. As of August 2013, more than 350 of these investigations are on-going in 22 countries.
  
A leader in Alzheimer's disease research, the Alzheimer's Association has launched four New Strategic Research Initiatives this year to advance emerging issues and establish partnerships around the globe, including the:
  • Hippocampal Label Expansion Project to standardize and validate measures of changes in brain volume;
  • Whole Genome Sequencing of ADNI (WGS-ADNI) participants to obtain the full genome sequencing of more than 800 people, the largest ever undertaken in a single disease;
  • Computerized Cognitive Composite for Clinical Trials project to develop tools for early diagnosis; and
  • Robert Katzman, MD, Clinical Research Training Fellowship in Alzheimer's Research, a collaboration with the American Brain Foundation/American Academy of Neurology to support training for physicians in Alzheimer's disease-related medicine.

Additionally, the Alzheimer's Association continues to provide support for ongoing Strategic Research Initiatives that are advancing the overall field and growing global collaborations to address Alzheimer's, including the:

  • Alzheimer's Disease Neuroimaging Initiative (ADNI-2) to monitor and assess biological changes associated with Alzheimer's disease, including imaging, cerebrospinal fluid, genetics, and many other measures (started October 2011)
  • Alzheimer's Association Multi-Center Program Grant Awards (MCPG) to enable four scientists to work collaboratively on a common project (started January 2012); and
  • Dominantly Inherited Alzheimer's Network Trials Unit (DIAN-TU) to test therapeutics on individuals with familial Alzheimer's disease (started February 2012).

Learn more.

Support Groups

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day.  Join the Alzheimer's Association online community.

 

Naples
Vanderbilt Presbyterian Church
1225 Piper Boulevard, (239) 405-7008
Last Wednesday of the month at 10:00 a.m.
Facilitator: Catherine Cruikshank

North Naples United Methodist Church
6000 Goodlette Road, (239) 405-7008
Last Wednesday of the month at 1:30 p.m.
Facilitator: Catherine Cruikshank

Marco Island*
Saint Mark's Episcopal Church
1101 North Collier Boulevard, (239) 394-8097
Fourth Monday of the month at 10:30 a.m.
Facilitator: Shirley Woolaway
This meeting has break out sessions for both the caregiver and the person with memory loss.

Bonita Springs*
Millennium House of Southwest Florida
8951 Bonita Beach Road, Suite 297
(239) 405-7008
First Wednesday of the month at 5:00 p.m.
Facilitator: Catherine Cruikshank

 

*Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for  reservations to Cindi (239) 992-5513.

Calendar for the Cause
A third party fundraiser, coordinated by seniors living in a retirement community in Lake Wales, Florida, is supporting both Alzheimer's and Parkinson's diseases through the sales of "Seniors At Play Calendar 2014".  For information please visit:  www.seniorsatplaycalendar.com.
Quick Links
  
Like us on Facebook
Walk to End Alzheimer's
Click on a link below for the walk near you. If you will be out of town, you can still participate as a virtual walker.   
Tiffany Kane, Special Events Coordinator, shows support for those affected with dementia as she showcased her grandma, Edna Mae Kane,  Tiffany's legal guardian. In 2000, Grandma Kane was diagnosed with Alzheimer's and soon after Tiffany became her caregiver. Grandma Kane passed away in 2007.
Personalize Walk Day
Stefanie Thompson, Senior Program Specialist
  
The Walk to End Alzheimer's is a busy day packed full of excitement. This year's event is complete with a new t-shirt design that allows for personalizing.  Honor your loved one's memory while sharing with others who you support by pinning a their photograph. on your Walk t-shirt.  If you plan on pinning your image, consider using a copy of your treasured photograph.
Walk t-shirts are free for those that raise $100 and are available at registration. 
National Alzheimer's Disease Awareness Month
November is National Alzheimer's Disease Awareness Month and National Family Caregivers Month.

The Alzheimer's Association- Florida Gulf Coast Chapter would like to thank all those who strive to make the lives of people with Alzheimer's disease or a related dementia better. 
  
Thank you to those who love, care, and give help to their family members and loved ones. Thank you to professional caregivers and health care providers who spend their work week dedicated to assisting those in need. Finally, thank you to people who have dementia, from you we are reminded of patience, compassion, and strength.
Aggression, Anxiety & Agitation
Stefanie Thompson, Senior Program Specialist,

Information adapted from Alzheimer's Association Behaviors Brochure and alz.org

 

Alzheimer's disease and related dementias is a disease of the brain which means it can cause a person to act in different and unpredictable ways. Some individuals with dementia become aggressive or anxious. Others repeat certain questions or gestures. Remember that these reactions can lead to misunderstanding, frustration and tension, particularly between the person with dementia and the caregiver. It is important to understand that the person is not acting that way on purpose.

 

What is Aggression? Aggressive behaviors may be verbal (shouting, name-calling) or physical (hitting, pushing). These behaviors can occur suddenly, with no apparent reason, or can result from a frustrating situation. Whatever the case, it is important to try to understand what is causing the person to become angry or upset.

 

How to respond. Try to identify the immediate cause. Think about what happened right before the reaction that may have triggered the behavior. Focus on feelings, not facts. Rather than focusing on specific details, consider their person's emotions. Look for feelings behind the words. Don't get upset. Be positive and reassuring. Speak slowly in a soft tone. Limit distractions. Examine the person's surroundings, and adapt them to avoid other similar situations. Try a relaxing activity. Use music, massage or exercise to help soothe the person. Shift the focus to another activity. The immediate situation or activity may have unintentionally caused the aggressive response. Try something different.

 

What is Anxiety and Agitation? Anxiety is a normal reaction to stress and can actually be beneficial in some situations. Anxiety can become excessive and therefore negatively affect a person's day-to-day living.  According to MedlinePlus, "agitation is an unpleasant state of extreme arousal. An agitated person may feel stirred up, excited, tense, confused, or irritable" (2012).

 

A person with dementia may feel anxious and/or agitated. He or she may become restless and need to move around or pace. Or, the person may become upset in certain places or focused on specific details such as if they get stuck in a past memory.

 

How to respond. Listen with empathy. Find out what may be causing the anxiety, and try to understand. Provide reassurance. Reinforce positive thoughts by making positive comments. Use calming phrases (e.g., You are safe; I am here; I love you).  Involve the person in activities. Try using art, music, or other activities to help the person relax. Modify the environment. Decrease noise and distractions, or move to another place. Find outlets for energy. The person may be looking for something to do. Take a walk, or go for a car ride.

 

Possible causes. The chief cause of behavioral symptoms is the progressive deterioration of brain cells. However, medication, environmental influences and some medical conditions can also cause symptoms or make them worse. For example, behavioral symptoms can sometimes be traced to an underlying medical condition. Anyone experiencing behavioral symptoms should receive a thorough medical evaluation, especially when symptoms appear suddenly. Examples of treatable conditions that can trigger behavioral symptoms include infections of the ear, sinuses, urinary or respiratory tracts, depression, constipation, and uncorrected problems with hearing or vision.
  

Notable. The treatment of agitation depends on a careful diagnosis, determining the possible causes and the types of agitated behavior the person is experiencing. With proper treatment and intervention, symptoms of agitation can be reduced. There are two distinct types of treatments for agitation: behavioral interventions and prescription medications. Behavioral treatments should be tried first. In general, steps to managing agitation include (1) identifying the behavior (2) understanding its cause and (3) knowing how to respond. For pharmaceutical interventions, consult a geriatric psychiatrist or similar specialist who treats dementia related behaviors.

 

Learn more.

Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC
  
Caregiver Jewels is a column featuring tips from family and professional caregivers throughout our 17 county service area. These "golden nuggets" represent caregiving strategies and tricks of the trade.


For the column to be a success we need your input! It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth! Send your tip to reesee@alzflgulf.org or contact your local office.

 

November Tip

An Ounce of Prevention is Worth a Pound of Cure!


"An ounce of prevention is worth a pound of cure," is a vintage saying that holds so much worth when it comes to potential financial or identity phone scams.  These scams can be devastating for those that fail to recognize the deceitfulness of the caller.


A caregiver shared that she became concerned that her husband, who has early stage Alzheimer's disease and stays home alone while she works, may be susceptible to telemarketing calls and telephone scammers. Her idea was to simply turn the ringer off when she was out of the home. Her husband has a cell phone and is still able to make outgoing calls on the house phone.


Alzheimer's disease affects areas of the brain that control judgment and decision making. This, coupled with the fact that telemarketers and phone scammers are very good at what they do, can lead to a disastrous interaction.


Keeping informed of current scams and taking steps to protect you and your loved one have never been so important. Financial scams targeting seniors have become so prevalent that they are now considered "the crime of the 21st century." - National Council on Aging: Read more: Top 10 Scams Targeting Seniors.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Needed Volunteers
We need a select few to join our volunteer based support group team as facilitators.
  
The Alzheimer's Association support group is open gatherings of people with common problems, needs and interests who come together to share their feelings, thoughts and experiences in a combined effort to better cope with and manage the shared problems of dementia in a safe environment. The goal of the group is to provide emotional, social and/or educational support to group members.
  
Support groups are run by trained volunteers who have the following qualifications:
  • Experience with dementia as a family member or health care professional preferred.
  • Ability to be empathic and separate personal needs from group needs.
  • Strong listening skills and effective communication skills.
  • Ability to redirect and facilitate discussion as well as fulfill the duties and responsibilities as described in the Facilitator Agreement.
  • Ability to create and maintain a safe environment where participants' thoughts and feelings are valued and group members are treated with fairness, equity and respect.
  • Commitment to promote the mission and services of the Association and willingness to act as an extension of the Association and to put other responsibilities and obligations aside when acting in this role.
Responsibilities include but are not limited to:
  • Follow expectations and recommendations of the Support Group Facilitator Manual, including participation in initial & ongoing training, record keeping, and regular meetings with Association staff.
  • Arrange for speakers/presenters for the group as needed.
  • Encourage participants to provide assistance and emotional support to one another.
  • Present pertinent Association materials and information to group members.
  • Inform the Alzheimer's Association in advance of any changes in group facilitators, time or location of group meetings.
Time commitment: For a support group that meets for 2 hours per month a commitment of 4 hours per month for a year is expected.  

If you would like to volunteer, please contact our office.
Early Stage Programs
Are you or your loved recently diagnosed?  Are you in the early stages of Alzheimer's disease or a related dementia?  If so, you may qualify for BASE.
  
For more information contact our office.

BASE with AA logo

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

 

 

Catherine Cruikshank, Director of Education 

Emily Reese, Program Specialist

 

Lee-Collier Office

Alzheimer's Association Florida Gulf Coast Chapter

9220 Bonita Beach Road, Suite 223

Bonita Springs, FL 34135

Telephone: (239) 405-7008

Facsimile: (239) 405-7038

Email: cruikshankc@alzflgulf.org

           reesee@alzflgulf.org

Website: www.alz.org/flgulfcoast

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900