Florida Gulf Coast Chapter

 

Collier County Update 

October 2013

In This Issue
Find a Walk Near You
Support Groups
Why I Walk to End Alzheimer's
Lessons from Super Seniors
Caregiver Jewels: More Than Exercise
Caregivers Take Note- Music as Therapy
Staying Engaged
Calendar
All programs are free to attend unless otherwise specified.

 

September 19, The Basic's of Alzheimer's Disease and Related Dementias. Understand the differences between Alzheimer's and related dementias. Learn the common causes of memory loss, including Alzheimer's disease; the stages of Alzheimer's, the importance of a good medical examination and what we know about prevention and treatment. The Aristocrat, 10949 Parnu Street, Naples, 2:30 p.m. -4:00 p.m. Open to the Public/Please RSVP to David (239) 592-5501.

 

September 19, Caregiver Stress and Guilt - When to Get More help at Home or Consider Placement. Aston Gardens, Naples, 4800 Aston Gardens Way, 6 pm- 7:30 pm. Open to the Public/Please RSVP to Amanda Barton (239) 254-6387.

September 24, Documentary and Discussion Series: HBO's The Alzheimer's Project- Momentum In Science Part 2, Learn about the history and current research on Alzheimer's disease. A complimentary lunch will be served. Each workshop is 2 hours in length from 11:00 - 1:00. Class size is limited to 20 participants. Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m.- 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535.

September 26, Death: Loss, Greif, and recovery. Review the many approaches to processing and healing both before and after loosing a loved one (with an emphasis on dementia related care giving). Aston Gardens, Naples, 4800 Aston Gardens Way, 6 pm- 7:30 pm. Open to the Public/Please RSVP to Amanda Barton (239) 254-6387.

October 2, The Basic's of Alzheimer's Disease and Related Dementias. Understand the differences between Alzheimer's and related dementias. Learn the common causes of memory loss, including Alzheimer's disease; the stages of Alzheimer's, the importance of a good medical examination and what we know about prevention and treatment. Naples Regional Library, 650 Central Avenue, Naples, 2:00 p.m. - 4 p.m. Open to the Public/Please RSVP to The Librarian at (239) 657-2882.

October 19, The Walk To End Alzheimer's. This two mile walk around downtown Naples is designed to help raise awareness for Alzheimer's disease and related dementias. Cambier Park, 755 8th Ave S, Naples. Registration begins at 9:00am, Walk begins at 10:00am. For information please contact Katie Hood at (727) 578-2558, or register online at act.alz.org/Naples

October 22, Documentary and Discussion Series: HBO's The Alzheimer's Project- The Memory Loss Tapes, view seven people on their journey with Alzheimer's disease. A complimentary lunch will be served. Each workshop is 2 hours in length from 11:00 - 1:00. Class size is limited to 20 participants. Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m.- 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535.

October 24, Understanding How People With Dementia Interpret and react to Our Behaviors. Learn how our non-verbal messages and the surroundings that we are in can affect the messages that we are sending to person with memory loss. The Aristocrat, 10949 Parnu Street, Naples, 2:30 p.m. -4:00 p.m. Open to the Public/Please RSVP to David (239) 592-5501.

October 29, Documentary and Discussion Series: HBO's The Alzheimer's Project- Caregivers, view five families on their journey with Alzheimer's disease. Learn about the different emotional challenges that caregivers must face. A complimentary lunch will be served. Each workshop is 2 hours in length from 11:00 - 1:00. Class size is limited to 20 participants. Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m.- 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535.

November 19, Holiday Visits and Travel Tips. Consider how to travel more safely with your loved one with memory problems, or alternatively- what to do if you have family/friends coming to visit. Learn about: event expectations, setting boundaries, timing versus schedules, and managing children's behaviors. A complimentary lunch will be served. Each workshop is 2 hours in length from 11:00 - 1:00. Class size is limited to 20 participants. Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m.- 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535.

November 20, Documentary and Discussion Series: HBO's The Alzheimer's Project- Caregivers, view five families on their journey with Alzheimer's disease. Learn about the different emotional challenges that caregivers must face. The Aristocrat, 10949 Parnu Street, Naples, 2:30 p.m. -4:00 p.m. Open to the Public/Please RSVP to David (239) 592-5501.

November 26, Death: Loss, Grief, and Recovery. Caregiving for someone with dementia can take a toll on caregivers. Whether you are the spouse or the child, you might have certain expectations of how you will move forward after your loved one passes. This educational program is designed to offer various grief processes for your consideration. A complimentary lunch will be served. Each workshop is 2 hours in length from 11:00 - 1:00. Class size is limited to 20 participants. Homewood Residence of Naples, Naples, 770 Goodlette Road, 11:00 a.m.- 1:00 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535.

Professional Series:

Each workshop is 1-1/2 to 2 hours in length from 5:30 - 7:30 P.M. Class size is limited to 20 participants. A complimentary dinner will be served. Homewood Residence of Naples, Naples, 770 Goodlette Road, 10 am- 12 pm. Open to the Public/Please RSVP to Michele (239) 430-3535.

October 22, Documentary and Discussion Series: HBO's The Alzheimer's Project- The Memory Loss Tapes, view seven people on their journey with Alzheimer's disease, Full 2 hours. Free 2 CEU's for Nurse Practitioner's, RN's, LPN's, and CNA's.

November 19, Death: Loss, Grief, and Recovery. Caregiving for someone with dementia can take a toll on caregivers. Whether you are the spouse or the child, you might have certain expectations of how you will move forward after your loved one passes. This educational program is designed to offer various grief processes for your consideration. Free 1.5 CEU's for Nurse Practitioner's, RN's, LPN's, and CNA's.

Find a Walk Near You
  
Click on the link below for the walk near you.  If you will be out of town, you can still participate as a virtual walker.
  

JOIN US! Click on the links below to find a walk near you.

null

Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

 

Naples

Vanderbilt Presbyterian Church

1225 Piper Boulevard, (239) 405-7008

Last Wednesday of the month at 10:00 a.m.

Facilitator: Catherine Cruikshank

 

North Naples United Methodist Church   

6000 Goodlette Road, (239) 405-7008
Last Wednesday of the month at 1:30 p.m.

Facilitator: Catherine Cruikshank

 

Marco Island*

Saint Mark's Episcopal Church

1101 North Collier Boulevard, (239) 394-8097

Fourth Monday of the month at 10:30 a.m.

Facilitator: Shirley Woolaway

This meeting has break out sessions for both the caregiver and the person with memory loss.

 

Bonita Springs*

Millennium House of Southwest Florida

8951 Bonita Beach Road, Suite 297

(239) 405-7008

First Wednesday of the month at 5:00 p.m.

Facilitator: Catherine Cruikshank

 

*Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations to Cindi (239) 992-5513

Quick Links
  
Like us on Facebook
Why I Walk to End Alzheimer's
08-30-2013 17:08:36 p.m.
Karen Garner, Blogger, blog.alz.org
  

Good question. I don't do it for me. I walk because I have a husband who has younger-onset Alzheimer's disease. I walk because my husband's brother passed away from younger-onset Alzheimer's disease. I walk because their Mom passed away from younger-onset Alzheimer's disease -and possibly their Grandmother and [...]... Read moreĽ

Lessons from Super Seniors
Trish Watson, Estates at Carpenters
  
Pushing boundaries, ignoring stereotypes, and blazing new trails are the attributes of Super Seniors. Older adults who choose to discard the automatic, negative associations toward being old are aging in extraordinary ways. 
null
Bob Smith of Lakeland tandem jump's.
Super Seniors live their lives with the motto "What's age got to do with it?"

The mindset you hold towards aging has a tremendous influence on how well you will age. Studies show that genetics have only a 30% influence on the length of our lives; the remaining 70% depends on whether you have the right attitude, stay active and continue doing the things you love, and remain open to trying new things.

If people believe that their later years can be a time of good health and vitality, and they are willing to incorporate the lifestyle behaviors that will make it happen, the results can be amazing.  Several residents of the Estates at Carpenters possess this Super Senior mentality, among them are Bob Smith, Peggy Peppers, and Bunny MacMunn.

Bob Smith participated in a tandem parachute jump with Bob Crossman from Skydive Deland.  Bob just wanted to try something new and exciting.  Age wasn't part of his decision.

Peggy Peppers didn't see why her age should stop her from going zip lining in the foothills of the Missouri Ozarks.

Bunny MacMunn is teaching Gentle Yoga to her fellow Estates residents.  She isn't short of students either.  Residents who were starting to have trouble with balance and flexibility couldn't wait to give Bunny's classes a try, even though some of them were never health-conscious or even involved in physical activities when they were younger. The difference is that they don't let that stop them.

Super Seniors have four key elements in their lives.
  • They are optimistic and have a positive attitude.
  • They are engaged and feel a passion for life, and retain, discover, or develop a sense of purpose.
  • The third element is being active and mobile.  They move, function, and maintain independence by exercising and staying active.
  • The final element is being adaptable when it comes to loss.  Super Seniors are resilient. They deal with and adapt to the difficulties of life by dealing with a loss or problem and then letting it go.
Life is what you make of it. Negative beliefs about aging will prevent you from experiencing growing older as a positive thing. Instead of waking up in the morning, and asking themselves "How much longer do I have left to live?" these Super Seniors ask themselves "What can I do to make the best of today?" 
_________
  
Much thanks goes to the Estates at Carpenters, a 2013 15,000 Leaps Sponsor for the Walk to End Alzheimer's. Click on the above links to learn more.
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC
  
Caregiver Jewels is a column featuring tips from family and professional caregivers throughout our 17 county service area. These "golden nuggets" represent caregiving strategies and tricks of the trade.

For the column to be a success we need your input! It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth! Send your tip to reesee@alzflgulf.org or contact your local office.

October Tip
More than Exercise 
  
A caregiver shared how much she enjoys using an audio cassette (which she had copied to CD) titled "Walk to the Beat" as an exercise activity for her and her husband. She and her husband listen to the CD while they walk about in the comfort of their air-conditioned home.
  
Benefits for the caregiver
  • Enjoyable activity to share with the person with dementia.
  • Exercise is excellent for caregiver stress reduction, promoting caregiver brain health and is overall beneficial to physical health.
  • May reduce the risk of depression.

Benefits for the person with dementia

  • Enjoyable activity to share with their loved one.
  • Exercise may improve balance and reduce falls.
  • Adequate exercise during the day can promote more restful sleep at night.
  • Music can help stimulate motor coordination.
The audio cassette she uses is no longer produced but there are other exercise audio C.D.'s available.  Try searching for music at the Alzheimer's Store (http://www.alzstore.com)  or simply use music that you already have. Good choices are music with an upbeat rhythm that the person with dementia enjoys. Note that this would be a great project for a grandchild to "burn" a CD for grandparents to use.
  
Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.
Caregivers Take Note - Music as Therapy
02-24-2024 17:08:36 PM
Sherri Snelling, Blogger, blog.alz.org
  
When Glen Campbell took the stage at the Grammy Awards and accepted his Lifetime Achievement Award, he did so as one of the more than 5 million Americans diagnosed with Alzheimer's disease.  What is inspiring about the 75-year-old Campbell's Grammy night appearance is that he has not retired from his love of making music despite his recent diagnosis.  In fact, he is starting his Farewell Tour and is cutting a new album.
Glen Campbell Interview 2011: Discusses Battle With Alzheimer's Disease, Final Tour and New Album
Glen Campbell Interview 2011: Discusses Battle With Alzheimer's Disease, Final Tour and New Album

Is music one of the keys to a longer, happier life - despite your health issues? [...]  Click here to read more.  

Staying Engaged
Stefanie Thompson, director early stage programs
  

A person in the early stages of dementia may withdraw from activities he or she previously enjoyed. Caregivers can help their loved one stay engaged by offering support and helping to encourage slight adjustments (e.g., choosing smaller social groups over larger groups, or choosing to paint abstractly verses realistically).   

 

As dementia, such as Alzheimer's, progresses, other adjustments may be necessary. If your loved one is beyond the early stages of dementia try using some of the following tips to help keep them engaged.

  • Keep the person's skills and abilities in mind. A person with dementia may be able to play simple songs learned on the piano years ago. Bring these types of skills into daily activities.
  • Pay special attention to what the person enjoys. Take note when the person seems happy, anxious, distracted or irritable. Some people enjoy watching sports, while others may be frightened by the pace or noise.
  • Consider if the person begins activities without directionDoes he or she set the table before dinner or sweep the kitchen floor mid-morning? If so, you may wish to plan these activities as part of the daily routine.
  • Be aware of physical problems. Does he or she get tired quickly or have difficulty seeing, hearing or performing simple movements?
  • Focus on enjoyment, not achievement.  Find activities that build on remaining skills and talents. A professional artist might become frustrated over the declining quality of work, but an amateur might enjoy a new opportunity for self expression. For activity ideas join ALZConnected, our message boards and online support community. Every day, caregivers like you share new ideas and encourage one another.
  • Encourage involvement in daily life.  Activities that help the individual feel like a valued part of the household - like setting the table - can provide a sense of success and accomplishment.
  • Relate to past work life. A former office worker might enjoy activities that involve organizing, like putting coins in a holder or making a to-do list. A farmer or gardener may take pleasure in working in the yard.
  • Look for favoritesThe person who always enjoyed drinking coffee and reading the newspaper may still find these activities enjoyable, even if he or she is not able to completely understand what the newspaper says.
  • Consider time of dayCaregivers may find they have more success with certain activities at specific times of day, such as bathing and dressing in the morning.
  • Adjust activities to disease stages. As the disease progresses, you may want to introduce more repetitive tasks. Be prepared for the person to eventually take a less active role in activities.
If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,
 

Catherine Cruikshank, Director of Education 

Emily Reese, Program Specialist

 

Lee-Collier Office

Alzheimer's Association Florida Gulf Coast Chapter

9220 Bonita Beach Road, Suite 223

Bonita Springs, FL 34135

Telephone: (239) 405-7008

Facsimile: (239) 405-7038

Email: cruikshankc@alzflgulf.org

           reesee@alzflgulf.org

Website: www.alz.org/flgulfcoast

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization © 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900