Florida Gulf Coast Chapter

 

Pinellas Update 

August 2013

In This Issue
Support Groups
BASE Program
National Alzheimer's Plan Update
Care for the Caregiver: Stress
New Early Stage e-News Brief
Caregiver Jewels: Using Memory Aids
Nominate a 'Hero'
Calendar
All programs are free to attend unless otherwise specified.

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*August 13th Caregiver Education: Are You Prepared? Disaster Planning for Caregivers at Arden Courts of Seminole, 9300 Antilles Drive, Seminole. 1:00 p.m. - 3:00 p.m. Please RSVP to 727-517-7800. 
 
*August 13th Caregiver Education: Activities for Alzheimer's & Dementia at Inn at Freedom Square, 10801 Johnson Boulevard, Seminole. 3:00 p.m. - 4:30 p.m. Please RSVP to Sherdette 727-398-0363. 
 
*August 15th Early Stage Social Engagement: Memory Cafe of Pinellas at Maria's Adult Day Care, 7821 Seminole Boulevard, Seminole. Memory Cafe is a casual meeting place to provide fellowship and socialization for persons diagnosed with early to middle Alzheimer's or other related dementias and their care partners. Registration is required. For more information, contact AJ or Peg 72-578-2558.
 
*September 10th Educational Presentation: Normal Age-related Memory Loss vs. Warning Signs of Alzheimer's at Inn at Freedom Square, 10801 Johnson Boulevard, Seminole. 3:00 p.m. - 4:30 p.m. Please RSVP to Sherdette 727-398-0363. 
 
*September 25th Caregiver Education: Caregiving Tips & Resources at Emeritus at Beckett Lake, 2155 Montclair Road, Clearwater; 2:00 p.m. - 3:30 p.m. For more information, 727-578-2558.
 
*October 19th Walk to End Alzheimer's at Bright House Field, 601 North Old Coachman Road, Clearwater. Events begin at 9:00 a.m. Register online now. For more information, contact Rachel Farinas 727-578-2558 or farinasr@alzflgulf.org

 

Indicates programs presented by the Alzheimer's Association- Florida Gulf Coast Chapter.
Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1-800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

EARLY STAGE SUPPORT GROUPS - for persons early-on in the disease and their caregivers 

  

Madonna Ptak Center for
Alzheimer's and Memory Loss
430 Morton Plant Street
1St Floor Conference Room
1st and 3rd Mondays @ 1:00 pm
Celisa Bonner, 727-298-6384  

 

CLEARWATER

Emeritus at Clearwater

2750 Drew Street

Last Tuesday of month at 6:00 pm

Adrian Williams, 727-799-2177

 

Madonna Ptak Center for Alzheimer's

And Memory Loss

430 Morton Plant Street

1St Floor Conference Room

2nd and 4th Monday @ 10:00 am

Celisa Bonner, 727-298-6384

 

Sunset Point Care & Rehab Center

1980 Sunset Point Road

First Thursday of month @ 3:00 pm

Divina Balorio, 727-443-1588

 
CLEARWATER
Inn on the Pond
2010 Greenbriar Blvd.
Last Thursday of month at 6:00 pm
Sheri Derry, 727-735-6200

DUNEDIN
Dunedin Senior Center
330 Douglas Avenue
Wednesdays @ 10:00 am
Peg Macaluso, 727-578-2558

*Emeritus at Dunedin
880 Patricia Avenue
Last Tuesday of month at 6:00 pm
LaDonna Hylton, 727-734-4696  
Harmony Home Health
13787 S. Belcher Rd, Ste. 220
Tuesdays at 2:00 pm
Linda Burhans, 727-723-7532

*Heron House
2050 East Bay Drive
3rd Thursday @ 6:30 pm
AJ Cipperly, 727-578-2558

*Pinecrest Place
1150 8th Avenue Southwest
2nd Thursday @ 3:00 pm
AJ Cipperly, 727-578-2558

Regal Palms (Palms of Largo)
300 Lake Avenue Northeast
2nd Tuesday @ 6:00 pm
June Sharp/Tammy Dunlap, 727-437-1371

PALM HARBOR
*Arden Courts of Palm Harbor
2895 Tampa Road
3rd Monday @ 6:00 pm
Debbie Langrock, 727-771-1600
Alzheimer's & Lewy Body Dementia Group

*Harbor Chase
2960 Tampa Road
August 13th @ 5:30 pm (quarterly meetings)
Linda Pinke, 727-781-8686

Palm Harbor Senior Center
1500 16th Street
Mondays @ 9:30 am
Pat Salatin, 727-937-8105

PALM HARBOR/TARPON SPRINGS
Lasting Legacy
38511 U.S. Highway 19 North
Mondays @ 10:00 am
Angela Poirier, 813-416-1365
 
PINELLAS PARK
Grand Villa At Pinellas Park
8980 49th Street N.
Last Tuesday at 6:00 pm
Ashlie Johnson, 727-546-4053

SEMINOLE
Inn at Freedom Square
10801 Johnson Boulevard
3rd Floor Activity Room
1ST Wednesday @ 1:30 pm
Megan White, 727-398-0185

SAINT PETERSBURG
Brentwood Senior Living Community
6280 Central Avenue - A Bldg.
2nd Wednesday @ 6:00 pm
Bill Patrick, 727-536-9900

Fountains at Boca Ciega
1255 Pasadena Avenue South
4th Wednesday @ 10:00 am
Barbara Beveridge, 727-381-5411

Ivy Ridge
7179 40th Avenue North
2nd Tuesday @ 6:30 pm
4th Thursday @ 6:30 pm
Maureen Rulison, 727-527-5488

Menorah Manor
255 59th Street North
1st Thursday @ 3:30 pm
Gwen Kaldenberg, 727-345-2775, x. 3750

Pasadena Community Methodist Church
227 70th Street South
Tuesdays @ 5:30 pm
Wednesdays @ 9:30 am
Barbara Posey, 727-381-2499, x. 214

TARPON SPRINGS
Allegro Senior Living
1755 East Lake Road
3rd Thursday of month @ 11 a.m.
Maryanne Fisher, 727-943-8878 

  

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

BASE Program

 

Are you or someone you care about experiencing early stage dementia? If so, you may qualify to participate in BASE.  

 

Beginning Alzheimer's Support and Education (BASE) is a comprehensive program for individuals

with MCI or early stage Alzheimer's disease or a related dementia and their care partner.

 

BASE consists of nine weekly sessions; each two-hour session is dedicated to both education and support- with a primary emphasis on education.

 

Topics include: Basics of Dementia; Positive Communication; Living Day to Day; Skill-building; Feelings/Emotional Well Being; Medications and Current Research; Planning for the Future; and Creativity & Cognition.

 

Preregistration is required to participate in this program. Please contact our office for more information.

Quick Links
  
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National AD Plan Update
The National Alzheimer's Plan, first released in May 2012, has a primary goal of preventing and effectively treating Alzheimer's Disease by 2025. In June 2013, the Department of Health and Human Services released an update to the Plan that reviews progresses made during the past year and an updated timeline to achieve the primary goal.

The National Plan to Address Alzheimer's Disease: 2013 Update also includes: 
  • Creation of milestones to help achieve the goal of prevention and effective treatment; 
  • Development of a curriculum on Alzheimer's Disease for primary care physicians so that providers have necessary skills to provide high-quality dementia care;
  • Convening an expert panel on advanced dementia to address unique needs of late stage patients; and
  • Expanding public outreach efforts to increase awareness of the disease and link caregivers to available resources.
For the full update, click here.
Care for the Caregiver
Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.   
 

Address the Stress: The Sleep Factor

Joel Carrier, volunteer AAFGCC, family caregiver

  
Still waiting for that Elusive Good Night's Sleep? 
Unless you're willing to make a few changes in your 
daily routine, keep dreaming. 

Sleep deprivation is nothing to yawn at. According to 
the National Institute of Health, more than 40 million Americans suffer from chronic, long-term sleep 
disorders, and an additional 20 million report 
occasional sleeping problems. This doesn't even begin to reflect the number of folks for whom sleep is challenged due to additional factors like stress and 
anxiety.
  
Caregivers for those living with Alzheimer's and related dementias may find the dilemma of sleep deprivation even more perplexing: to reduce stress, you need more sleep; to sleep better, you need to reduce stress.
  
Go figure.
  
Time to bust a few myths:
  
* You cannot make up for lost sleep. Just like lost 
time, lost sleep is one commodity we can't replenish. 
In fact, sleeping in or longer a couple days a week can upset your body's internal clock, making a good 
night's rest even more elusive for those of us who are already sleep-challenged. 
  
* You will not learn to need less sleep. You can fool 
yourself into believing you can get by on less sleep: 
Truth is we can. But this isn't the same as training our bodies to need less sleep. We're born with a set sleep needs; ignoring this can lead to serious consequences, like poor job performance (remember: paid or unpaid, caregiving is our job), increased risks of accidents and a host of health issues too numerous to list here.
  
* Your sleep problems will not go away on their own. Whether due to sleep disorders or stresses related to care giving, sleep deprivation needs to be hit head-on if you want to get back to your fully functioning self.  Forget about being tired: Lack of sleep makes us irritable, less patient, more easily agitated and can jeopardize and impair our judgment. Not a good recipe when it comes to caring for those who depend on us.
  
Admittedly, as caregivers our own sleep challenges 
may stem from sleep issues our loved ones are having. Which is why it's important to address the sleep issues of all involved: wandering or confusing days with nights does not make for sound sleep for anyone. If this is the case, talk to your loved one's doctor. He or she may be able to make suggestions to address your loved ones sleep, including better sleep hygiene, environmental changes, behavior modification techniques or medications.
  
None of this addresses the bigger, all-consuming issue of time, though. Sometimes, there is just not enough - and sleep is almost always the first thing to go. Unfortunately, there are no easy fixes for this other than self-discipline.
  
So the next time you're tempted to forgo sleep in lieu of folding laundry, running the vacuum, worrying about tomorrow's meal plan, checking your bank account online and shopping for groceries at midnight, remember this: Everything we do or don't do to take care of ourselves directly impacts our abilities to care for our loved ones.
  
For more information on sleep disorders, sleep deprivation and suggestions for improving quality of sleep speak to your health care professional.  You may also want to gain more information by visiting the following websites:
New Early Stage e-News Brief
Are you a person with a diagnosis of mild cognitive impairment or Alzheimer's disease or a related dementia? If so, you may be interested in our online news brief that has event reminders, tips and feature stories pertaining to your needs.
  
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC
  
August Tip
Using Memory Aids
  
A caregiver shared that his wife used a daily dairy quite successfully for a period of time. She kept the diary by the phone so she could note telephone calls, appointments and general reminders and tasks. 
 
We all use memory aids from time to time but for someone with early memory loss, using aids can 
be essential to maintaining independence longer. 
Labels, lists, notebooks and sticky notes can help a 
person cope with their memory loss.
 
Other memory aid ideas: 
  • Label drawers to help your loved one find things.
  • Keep important numbers by the phone. 
  • Post reminders to lock doors or shut windows.
  • Have step-by-step instructions on how to work appliances (such as the computer), or complete routine tasks (such as fixing your hair, applying make-up or brushing teeth).

____________

 

About this column: Caregiver Jewels is a column featuring tips from family and professional caregivers throughout our 17 county service area. These "golden nuggets" represent caregiving strategies and tricks of the trade.


For the column to be a success we need your input! It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth by sending your tip to reesee@alzflgulf.org or contact your local office.

  

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Nominate a 'Hero'

Nominate a 'Hero' who could win $50,000 award for the Alzheimer's Association.

 

The Tampa Bay Lightning Foundation is looking for Community Hero nominations, and we need your help.

 

If you know of someone to nominate as a Community Hero, the Alzheimer's Association would like to know. With your help, we can submit one nomination on behalf of the Alzheimer's Association who, if selected, earns $50,000 for their sponsoring charity.

 

The Hero must live in one of the following seven Florida counties: Hernando, Hillsborough, Manatee, Pasco, Pinellas, Polk, or Sarasota.

 

The Foundation is looking for "everyday heroes" who do extraordinary things, such as:

  • Overcame personal tragedies or challenges (inspired others).
  • Became a catalyst to helping others with similar challenges (gone above and beyond).
  • Made personal financial sacrifices to make a difference (selflessness).
  • Started small grass roots effort which grew in scope over time (significant community impact).

The key word is "everyday hero." The Foundation is not focused on people who are already well-known and have been acknowledged for their efforts. The application asks for specific examples.

 

For more information, visit the Lightning website: http://lightning.nhl.com/club/page.htm?id=69658

 

If you have a nomination to suggest, please contact Lori Sims, VP of Development, Alzheimer's Association, Florida Gulf Coast Chapter, at simsl@alzflgulf.org or call 941-365-8883.

 

The first nomination cycle runs through August 16, 2013. There will be two additional deadlines throughout the season. We can submit only one name this season.  

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

 

Peggy Macaluso
Program Specialist & Director of Client Advocacy
macalusop@alzflgulf.org

AJ Cipperly, Program Specialist
cipperlya@alzflgulf.org

Alzheimer's Assocation Florida Gulf Coast Chapter
14010 Roosevelt Boulevard Suite 709
Clearwater, FL 33762
Phone: (727) 578-2558
Fascimile: (727) 578-2286 

 

Alzheimer's Association Florida Gulf Coast Chapter 

 

 

 Thank you! 

 

2013 Walk to End Alzheimer's 5,000 Steps Sponsorships.

 

Arden Courts Almost Family Big Ivy Ridge

   MetLife      Parrot Heads      
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900