Florida Gulf Coast Chapter

 

Hernando, Citrus & Sumter Update 

August 2013

In This Issue
New Early Stage e-News Brief
Support Groups
Nominate a 'Hero'
National Alzheimer's Plan Update
What is the Walk to End Alzheimer's?
Care for the Caregiver: Stress
Caregiver Jewels: Using Memory Aids
Calendar
All programs are free to attend unless otherwise specified.

 

August 4th Movie Screening: Angel's Perch at Beacon Stadium Cinemas, 12961 Cortez Boulevard, Brooksville. 5:30 p.m. Angel's Perch
examines the delicate relationship between past and present, memory and loss. For tickets and details, click here.

 

August 12th Outreach: Memory Screenings at HPH Hospice, 3545 North Lecanto Highway, Beverly Hills; 10:00 a.m. - 4:00 p.m. Call 352-527-4600 for reservations.

 

August 14th Caregiver Education: Communication at HPH Hospice, 12260 Cortez Boulevard, Brooksville; 2:00 p.m. - 3:30 p.m. Call 352-597-1882 for reservations. 

 

August 21st Caregiver Training: Difficult Behaviors at HPH Hospice, 12260 Cortez Boulevard, Brooksville, 2:00 p.m. - 3:30 p.m. Call 352-597-1882 for reservations.

 

August 22nd Education Presentation: Ten Warning Signs of Alzheimer's Disease at HPH Hospice, 3545 North Lecanto Highway, Beverly Hills. 2:00 p.m. - 3:30 p.m. Call 352-527-4600 for reservations.

 

August 27th Caregiver Training: Visiting The Doctor at HPH Hospice, 12260 Cortez Boulevard, Brooksville. 2:00 p.m. - 3:30 p.m. Call 352-597-1882 for reservations.

 

October 12th Walk to End Alzheimer's at Anderson Snow Park, 1192 Anderson Snow Road, Spring Hill. Events begin at 9:00 a.m. 

Register online now.

For more information, contact Rachel Farinas 727-578-2558 or farinasr@alzflgulf.org

New Early Stage e-News Brief
Are you a person with a diagnosis of mild cognitive impairment or Alzheimer's disease or a related dementia? If so, you may be interested in our online news brief that has event reminders, tips and feature stories pertaining to your needs.
Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1-800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

  

BROOKSVILLE
Main Library/Lykes Memorial
238 Howell Avenue
Brooksville, FL 34601
1st Friday of each month at 2:30 p.m.
Jerry Fisher (352) 688-4537

Oak Hill Hospital-Senior Partners
11361 Cortez Blvd
Brooksville, FL 34613
1st Thursdays of each month at 2:30 p.m.
Jerry Fisher (352) 688-4537

SPRING HILL
*The Residence at Timber Pines
3140 Forest Road
Spring Hill, FL 34606
3rd Monday of each month at 2:00 p.m.
Diane Koenig (352) 683-9009
*The Residence of Timber Pines (352) 683-9009

INVERNESS
Our Lady of Fatima Catholic Church
550 US Hwy 41 South
Inverness, FL 34450
1st Tuesday of each month at 11:00 a.m.
Sue Piatek (352) 527-4600

HOMOSASSA
*First United Methodist Church
8831 W. Bradshaw St.
Homosassa, FL 34448
Second Monday of each month at 1:00 p.m.
Sue Piatek (352) 527-4600
*First United Methodist Church (352) 628-4083

CRYSTAL RIVER
*Crystal River Health & Rehabilitation
136 Northeast 12th Avenue
Crystal River, FL 34429
3rd Saturday of each month at 2:00 p.m.
Christina DiPiazza (352) 795-5044
*Crystal River Health & Rehab Center (352) 795-5044

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

Nominate a 'Hero'

Nominate a 'Hero' who could win $50,000 award for the Alzheimer's Association.

 

The Tampa Bay Lightning Foundation is looking for Community Hero nominations, and we need your help.

 

If you know of someone to nominate as a Community Hero, the Alzheimer's Association would like to know. With your help, we can submit one nomination on behalf of the Alzheimer's Association who, if selected, earns $50,000 for their sponsoring charity.

 

The Hero must live in one of the following seven Florida counties: Hernando, Hillsborough, Manatee, Pasco, Pinellas, Polk, or Sarasota.

 

The Foundation is looking for "everyday heroes" who do extraordinary things, such as:

  • Overcame personal tragedies or challenges (inspired others).
  • Became a catalyst to helping others with similar challenges (gone above and beyond).
  • Made personal financial sacrifices to make a difference (selflessness).
  • Started small grass roots effort which grew in scope over time (significant community impact).

The key word is "everyday hero." The Foundation is not focused on people who are already well-known and have been acknowledged for their efforts. The application asks for specific examples.

 

For more information, visit the Lightning website.

 

If you have a nomination to suggest, please contact Lori Sims, VP of Development, Alzheimer's Association, Florida Gulf Coast Chapter, at simsl@alzflgulf.org or call 941-365-8883.

 

The first nomination cycle runs through August 16, 2013. There will be two additional deadlines throughout the season. We can submit only one name this season.  

Quick Links
  
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National AD Plan Update
The National Alzheimer's Plan, first released in May 2012, has a primary goal of preventing and effectively treating Alzheimer's Disease by 2025. In June 2013, the Department of Health and Human Services released an update to the Plan that reviews progresses made during the past year and an updated timeline to achieve the primary goal.

The National Plan to Address Alzheimer's Disease: 2013 Update also includes: 
  • Creation of milestones to help achieve the goal of prevention and effective treatment; 
  • Development of a curriculum on Alzheimer's Disease for primary care physicians so that providers have necessary skills to provide high-quality dementia care;
  • Convening an expert panel on advanced dementia to address unique needs of late stage patients; and
  • Expanding public outreach efforts to increase awareness of the disease and link caregivers to available resources.
For the full update, click here.
Walk to End Alzheimer's
What is the Walk to End Alzheimer's?
What is the Walk to End Alzheimer's?
  
Care for the Caregiver
Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.   
 

Address the Stress: The Sleep Factor

Joel Carrier, volunteer AAFGCC, family caregiver

  
Still waiting for that Elusive Good Night's Sleep? 
Unless you're willing to make a few changes in your 
daily routine, keep dreaming. 

Sleep deprivation is nothing to yawn at. According to 
the National Institute of Health, more than 40 million Americans suffer from chronic, long-term sleep 
disorders, and an additional 20 million report 
occasional sleeping problems. This doesn't even begin to reflect the number of folks for whom sleep is challenged due to additional factors like stress and 
anxiety.
  
Caregivers for those living with Alzheimer's and related dementias may find the dilemma of sleep deprivation even more perplexing: to reduce stress, you need more sleep; to sleep better, you need to reduce stress.
  
Go figure.
  
Time to bust a few myths:
  
* You cannot make up for lost sleep. Just like lost 
time, lost sleep is one commodity we can't replenish. 
In fact, sleeping in or longer a couple days a week can upset your body's internal clock, making a good 
night's rest even more elusive for those of us who are already sleep-challenged. 
  
* You will not learn to need less sleep. You can fool 
yourself into believing you can get by on less sleep: 
Truth is we can. But this isn't the same as training our bodies to need less sleep. We're born with a set sleep needs; ignoring this can lead to serious consequences, like poor job performance (remember: paid or unpaid, caregiving is our job), increased risks of accidents and a host of health issues too numerous to list here.
  
* Your sleep problems will not go away on their own. Whether due to sleep disorders or stresses related to care giving, sleep deprivation needs to be hit head-on if you want to get back to your fully functioning self.  Forget about being tired: Lack of sleep makes us irritable, less patient, more easily agitated and can jeopardize and impair our judgment. Not a good recipe when it comes to caring for those who depend on us.
  
Admittedly, as caregivers our own sleep challenges 
may stem from sleep issues our loved ones are having. Which is why it's important to address the sleep issues of all involved: wandering or confusing days with nights does not make for sound sleep for anyone. If this is the case, talk to your loved one's doctor. He or she may be able to make suggestions to address your loved ones sleep, including better sleep hygiene, environmental changes, behavior modification techniques or medications.
  
None of this addresses the bigger, all-consuming issue of time, though. Sometimes, there is just not enough - and sleep is almost always the first thing to go. Unfortunately, there are no easy fixes for this other than self-discipline.
  
So the next time you're tempted to forgo sleep in lieu of folding laundry, running the vacuum, worrying about tomorrow's meal plan, checking your bank account online and shopping for groceries at midnight, remember this: Everything we do or don't do to take care of ourselves directly impacts our abilities to care for our loved ones.
  
For more information on sleep disorders, sleep deprivation and suggestions for improving quality of sleep speak to your health care professional.  You may also want to gain more information by visiting the following websites:
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC
  
August Tip
Using Memory Aids
  
A caregiver shared that his wife used a daily dairy quite successfully for a period of time. She kept the diary by the phone so she could note telephone calls, appointments and general reminders and tasks. 
 
We all use memory aids from time to time but for someone with early memory loss, using aids can 
be essential to maintaining independence longer. 
Labels, lists, notebooks and sticky notes can help a 
person cope with their memory loss.
 
Other memory aid ideas: 
  • Label drawers to help your loved one find things.
  • Keep important numbers by the phone. 
  • Post reminders to lock doors or shut windows.
  • Have step-by-step instructions on how to work appliances (such as the computer), or complete routine tasks (such as fixing your hair, applying make-up or brushing teeth).

____________

 

About this column: Caregiver Jewels is a column featuring tips from family and professional caregivers throughout our 17 county service area. These "golden nuggets" represent caregiving strategies and tricks of the trade.


For the column to be a success we need your input! It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth by sending your tip to reesee@alzflgulf.org or contact your local office.

  

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

 

Jerry Fisher, Program Specialist
Alzheimer's Association - Florida Gulf Coast Chapter

Spring Hill Office
4108 Lamson Avenue
Spring Hill, FL 34608

Email: fisherj@alzflgulf.org
Office: (352) 688-4537
Facsimile:(352) 688-2291 

 

Alzheimer's Association Florida Gulf Coast Chapter 

 

 

 Thank you! 

 

2013 Walk to End Alzheimer's 5,000 Steps Sponsorships.

 

Arden CourtsAlmost Family Big Ivy Ridge

   MetLife      Parrot Heads      
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900