Florida Gulf Coast Chapter

 

Collier Update 

August 2013

In This Issue
BASE Program
Support Groups
National Alzheimer's Plan Update
What is the Walk to End Alzheimer's
Care for the Caregiver: Stress
Caregiver Jewels: Using Memory Aids
New Early Stage e-News Brief
Calendar
All programs are free to attend unless otherwise specified.

 

August 20th Caregiver Education: Caregiver Guilt and Stress: Managing Your Behavior- Not Theirs at Homewood Residence of Naples, 770 Goodlette Road, Naples.11:00 a.m.- 1:00 p.m. Know your emotional and physical limits. Understand why caregiver reactions can affect outcomes in an unsafe way. Learn how to prioritize your "to do" list and reduce your stress. Learn when to get more help in the home or consider placement. Class size is limited to 20 participants. Please RSVP to Michele (239) 430-3535.

 

August 21st Caregiver Education: Smile- We Can See You: Caregivers As Part of the Environment at Juniper Village, 1155 Encore Way, Naples. 10:30 a.m. -12:00 p.m. Please RSVP to Murinda (239) 598-1368.

  

August 27th Caregiver Education: 

Care Options and Transitions: Home Care to Nursing Homes at Homewood Residence of Naples, 770 Goodlette Road, Naples; 11:00 a.m.- 

1:00 p.m. Important Information for decision making and how to know when help is needed. Learn how to ease the transition for the person with Dementia.  A complimentary lunch will be served. Class size is limited to 20 participants. Please RSVP to Michele (239) 430-3535.

 

September 5th Educational Presentation: The Basic's of Alzheimer's Disease and Related Dementias at Aston Gardens, 4800 Aston Gardens Way, Naples; 6:00 p.m.- 7:30 p.m. Understand the differences between Alzheimer's and related dementias. Learn the common causes of memory loss, including Alzheimer's disease, the stages of Alzheimer's, the importance of a good medical examination and what we know about prevention and treatment. Please RSVP to Amanda Barton (239) 254-6387.

 

September 10th Educational Presentation: The Basic's of Alzheimer's Disease and Related Dementias at Headquarters Library, 2385 Orange Blossom Road, Naples; 2:00 p.m.- 4:00 p.m. 

Understand the differences between Alzheimer's and related dementias. Learn the common causes of memory loss, including Alzheimer's disease, the stages of Alzheimer's, the importance of a good medical examination and what we know about prevention and treatment. 

Please RSVP (239) 593-0334.

 

September 12th Caregiver Education:

Understanding How People With Dementia Interpret and React to Our Behaviors at Aston Gardens, 4800 Aston Gardens Way, Naples. 6:00 p.m. - 7:30 p.m. Learn how our non-verbal messages and our environment can affect the messages that we are sending to person with memory loss. Please RSVP to Amanda Barton (239) 254-6387.

 

September 17th Educational Presentation: 

Documentary and Discussion Series: HBO's The Alzheimer's Project- Momentum In Science Part 1 at Homewood Residence of Naples, 770 Goodlette Road, Naples. 11:00 a.m.- 1:00 p.m. Learn about the history and current research on Alzheimer's disease. A complimentary lunch will be served. Class size is limited to 20 participants. Please RSVP to Michele (239) 430-3535.

 

September 17th Caregiver Education: 

Understanding How People With Dementia Interpret and React to Our Behaviors at 

Headquarters Library, 2385 Orange Blossom Road, Naples. 2:00 p.m. - 4:00 p.m. Learn how our non-verbal messages and the environment can affect the messages that we are sending to the person with memory loss. 

Please RSVP (239) 593-0334.

 

September 19th Caregiver Education: Caregiver Stress and Guilt - When to Get More Help at Home or Consider Placement at Aston Gardens, 4800 Aston Gardens Way, Naples. 6:00 p.m. - 7:30 p.m. Please RSVP to Amanda Barton (239) 254-6387.

 

September 24th Educational Presentation: Documentary and Discussion Series: HBO's The Alzheimer's Project- Momentum In Science, Part 2 at Homewood Residence of Naples, 770 Goodlette Road, Naples. 11:00 a.m.- 1:00 p.m. Learn about the history and current research on Alzheimer's disease. A complimentary lunch will be served. Class size is limited to 20 participants.  Please RSVP to Michele (239) 430-3535.

 

September 26th Caregiver Education: Death: Loss, Grief and Recovery at Aston Gardens, 4800 Aston Gardens Way, Naples. 6:00 p.m. - 

7:30 p.m. Review the many approaches to processing and healing both before and after losing a loved one (with an emphasis on dementia related caregiving). Please RSVP to Amanda Barton (239) 254-6387.

BASE Program

Are you or someone you care about experiencing early stage dementia? If so, you may qualify to participate in BASE.  

 

Beginning Alzheimer's Support and Education (BASE) is a comprehensive program for individuals with MCI or early stage Alzheimer's disease or a related dementia and their care partner.

 

BASE consists of nine weekly sessions; each two-hour session is dedicated to both education and support- with a primary emphasis on education.

 

Topics include: Basics of Dementia; Positive Communication; Living Day to Day; Skill-building; Feelings/Emotional Well Being; Medications and Current Research; Planning for the Future; and Creativity & Cognition.

 

Preregistration is required to participate in this program. Please contact our office for more information.

 

BASE Program is starting September 9!

 

Classes will meet Mondays, 2:00 p.m. to 4:00 p.m., from September 9, to November 4, 2013 at First Church of the Nazarene, 13454 American Colony Blvd., Fort Myers. 33912.

Support Groups

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1-800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

Naples
Vanderbilt Presbyterian Church
1225 Piper Boulevard, (239) 405-7008
Last Wednesday of the month at 10:00 a.m.
Facilitator: Catherine Cruikshank

North Naples United Methodist Church
6000 Goodlette Road, (239) 405-7008
Last Wednesday of the month at 1:30 p.m.
Facilitator: Catherine Cruikshank

Marco Island
Saint Mark's Episcopal Church*
1101 North Collier Boulevard, (239) 394-8097
Fourth Monday of the month at 10:30 a.m.
Facilitator: Shirley Woolaway
This meeting has break out sessions for both the caregiver and the person with memory loss.

Bonita Springs
Millennium House of Southwest Florida*
8951 Bonita Beach Road, Suite 297

(239) 405-7008

First Wednesday of the month at 5:00 p.m.
Facilitator: Catherine Cruikshank

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

Quick Links
  
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National AD Plan Update
The National Alzheimer's Plan, first released in May 2012, has a primary goal of preventing and effectively treating Alzheimer's Disease by 2025. In June 2013, the Department of Health and Human Services released an update to the Plan that reviews progresses made during the past year and an updated timeline to achieve the primary goal.

The National Plan to Address Alzheimer's Disease: 2013 Update also includes: 
  • Creation of milestones to help achieve the goal of prevention and effective treatment; 
  • Development of a curriculum on Alzheimer's Disease for primary care physicians so that providers have necessary skills to provide high-quality dementia care;
  • Convening an expert panel on advanced dementia to address unique needs of late stage patients; and
  • Expanding public outreach efforts to increase awareness of the disease and link caregivers to available resources.
For the full update, click here.
Walk to End Alzheimer's
What is the Walk to End Alzheimer's
What is the Walk to End Alzheimer's?
Care for the Caregiver
Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.   
 

Address the Stress: The Sleep Factor

Joel Carrier, volunteer AAFGCC, family caregiver

  
Still waiting for that Elusive Good Night's Sleep? 
Unless you're willing to make a few changes in your 
daily routine, keep dreaming. 

Sleep deprivation is nothing to yawn at. According to 
the National Institute of Health, more than 40 million Americans suffer from chronic, long-term sleep 
disorders, and an additional 20 million report 
occasional sleeping problems. This doesn't even begin to reflect the number of folks for whom sleep is challenged due to additional factors like stress and 
anxiety.
  
Caregivers for those living with Alzheimer's and related dementias may find the dilemma of sleep deprivation even more perplexing: to reduce stress, you need more sleep; to sleep better, you need to reduce stress.
  
Go figure.
  
Time to bust a few myths:
  
* You cannot make up for lost sleep. Just like lost 
time, lost sleep is one commodity we can't replenish. 
In fact, sleeping in or longer a couple days a week can upset your body's internal clock, making a good 
night's rest even more elusive for those of us who are already sleep-challenged. 
  
* You will not learn to need less sleep. You can fool 
yourself into believing you can get by on less sleep: 
Truth is we can. But this isn't the same as training our bodies to need less sleep. We're born with a set sleep needs; ignoring this can lead to serious consequences, like poor job performance (remember: paid or unpaid, caregiving is our job), increased risks of accidents and a host of health issues too numerous to list here.
  
* Your sleep problems will not go away on their own. Whether due to sleep disorders or stresses related to care giving, sleep deprivation needs to be hit head-on if you want to get back to your fully functioning self.  Forget about being tired: Lack of sleep makes us irritable, less patient, more easily agitated and can jeopardize and impair our judgment. Not a good recipe when it comes to caring for those who depend on us.
  
Admittedly, as caregivers our own sleep challenges 
may stem from sleep issues our loved ones are having. Which is why it's important to address the sleep issues of all involved: wandering or confusing days with nights does not make for sound sleep for anyone. If this is the case, talk to your loved one's doctor. He or she may be able to make suggestions to address your loved ones sleep, including better sleep hygiene, environmental changes, behavior modification techniques or medications.
  
None of this addresses the bigger, all-consuming issue of time, though. Sometimes, there is just not enough - and sleep is almost always the first thing to go. Unfortunately, there are no easy fixes for this other than self-discipline.
  
So the next time you're tempted to forgo sleep in lieu of folding laundry, running the vacuum, worrying about tomorrow's meal plan, checking your bank account online and shopping for groceries at midnight, remember this: Everything we do or don't do to take care of ourselves directly impacts our abilities to care for our loved ones.
  
For more information on sleep disorders, sleep deprivation and suggestions for improving quality of sleep speak to your health care professional.  You may also want to gain more information by visiting the following websites:
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC
  
August Tip
Using Memory Aids
  
A caregiver shared that his wife used a daily dairy quite successfully for a period of time. She kept the diary by the phone so she could note telephone calls, appointments and general reminders and tasks. 
 
We all use memory aids from time to time but for someone with early memory loss, using aids can 
be essential to maintaining independence longer. 
Labels, lists, notebooks and sticky notes can help a 
person cope with their memory loss.
 
Other memory aid ideas: 
  • Label drawers to help your loved one find things.
  • Keep important numbers by the phone. 
  • Post reminders to lock doors or shut windows.
  • Have step-by-step instructions on how to work appliances (such as the computer), or complete routine tasks (such as fixing your hair, applying make-up or brushing teeth).

____________

 

About this column: Caregiver Jewels is a column featuring tips from family and professional caregivers throughout our 17 county service area. These "golden nuggets" represent caregiving strategies and tricks of the trade.


For the column to be a success we need your input! It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth by sending your tip to reesee@alzflgulf.org or contact your local office.

  

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

New Early Stage e-News Brief
Are you a person with a diagnosis of mild cognitive impairment or Alzheimer's disease or a related dementia? If so, you may be interested in our online news brief that has event reminders, tips and feature stories pertaining to your needs.
If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

 

Catherine Cruikshank, Director of Education 

Emily Reese, Program Specialist

 

Lee-Collier Office

Alzheimer's Association Florida Gulf Coast Chapter
9220 Bonita Beach Road, Suite 223
Bonita Springs, FL 34135
Telephone: (239) 405-7008
Facsimile: (239) 405-7038
           reesee@alzflgulf.org

 

 

 Thank you! 

 

2013 Walk to End Alzheimer's 5,000 Steps Sponsorships.

 

Arden Courts Almost Family Big Ivy Ridge

   MetLife      Parrot Heads      
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900