Florida Gulf Coast Chapter

 

Hillsborough Update 

May 2013

In This Issue
Support Groups
Early Stage Program
Genes and Alzheimer's
Care for the Caregiver: Caregiver Burnout
Caregiver Jewels: Travel Tips for Early Stage
Purple Ribbon Task Force Survey
Calendar
All programs are free to attend unless otherwise specified.
 
May

 

 *May 1st Educational Presentation: Basics of Alzheimer's & Brain Health at Brandon Regional Library, 619 Vonderburg Drive, Brandon. 2:00 p.m. - 3:30 p.m. For more information, contact Joan 813-987-6216.

*May 11th Health Fair: Spanish/English Memory Screenings at "Be Beautiful Inside & Out" at McFarland Park, 1720 North McDill, Tampa. 12:00 p.m. - 3:00 p.m. For more information, please call 813-919-9053.


*May 14th Caregiver Education: The Art & Heart Of Caregiving Forum at The Bridges, 11202 Dewhurst Drive, Brandon. 6:30 p.m. - 8:00 p.m. For more information, contact Janet Noah 813-412-8916.

 

May 16th Caregiver Education: Successful Activities of Daily Living at Hyde Park United Methodist Church, 414 Magnolia Avenue, Tampa. 2:00 p.m. - 3:30 p.m. Please RSVP to Kathy Martin 813-251-6333 or kgeppmartin@brookdaleliving.com.

 

*May 16th Health Fair: Spanish/English Memory Screenings at Wimauma Senior Center Open House, Wimauma Senior Center, 5615 North Street, Wimauma. 10:00 a.m. - 3:00 p.m. For more information, please call 613-671-7672.

 

*May 18th Health Fair: Spanish/English Memory Screenings at Tabernaculo De Dios, 13302 Lynn Road, Tampa. 9:00 a.m. - 2:00 p.m. For more information, call 800-272-3900.

 

*May 21st Health Fair: Spanish/English Memory Screenings at the Fourth Annual Senior Health Fair at Town N Country Senior Center, 7606 Paula Drive, Tampa. 9:00 a.m. - 12:00 p.m. For more information, call 800-272-3900.

 

*May 22nd Educational Presentation: Basics of Alzheimer's at Barksdale Senior Center, 1801 North Lincoln Avenue, Tampa. 11:00 a.m. - 12:00 p.m. For more information and to sign up, please call Merry Beth 813-348-1180.

 

June

 

*June 19th Caregiver Education: Safety in the Home at Barksdale Senior Center, 1801 North Lincoln Avenue, Tampa. 11:00 a.m. - 12:00 p.m. For more information and to sign up, please call Merry Beth 813-348-1180. 

 

June 20th Caregiver Education: Current Therapies & Medicines for Alzheimer's Disease at Hyde Park United Methodist Church, 414 Magnolia Avenue, Tampa. 2:00 p.m. - 3:30 p.m. Please RSVP to Kathy Martin 813-251-6333 or kgeppmartin@brookdaleliving.com.

 

*June 27th Health Fair: Memory Screenings on Memory Mobile at Lifestyles After 50 Fun Fest & Jamboree, Strawberry Festival Grounds, Plant City. 9:00 a.m. - 2:00 p.m. For more information, call 813-653-1988. 

 

 

* Indicates programs presented by the Alzheimer's Association- Florida Gulf Coast Chapter. 

Support Groups

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

Mild Cognitive Impairment Group
USF Alzheimer's Center
4001 East Fletcher Ave. Tampa
1st Floor Conference Room
Every 4th Thursday @ 2:00 p.m.
Facilitator: Nancy Teten (813) 974-4355

BRANDON
*Superior Residences of Brandon
1819 Providence Ridge Boulevard, 33511
3rd Monday @ 7:00 p.m. or 2nd Wednesday @ 2:00 p.m.
Facilitators: Charlotte Howard (813) 681-1986
Nell Bieser, (813) 625-0846

Dementia Support Group
Campo Family YMCA
3414 Culbreath Road, Valrico, 33596
Last Friday of every month @ 1:30
Facilitator: Jill Andrew, Superior Residences of
Brandon Memory Care (813)657-8587

LITHIA
Life Church at FishHawk
6420 Lithia Pinecrest Road, Lithia, 33547
1st Monday @ 7:00 p.m.
Facilitator: Eddie Broom (813) 681-6503

PLANT CITY
First Baptist Church
503 North Palmer Street, Plant City
2nd Tues. @ 2:00 p.m. 
Facilitators:Bill Barr and
Stefanie Thompson (863) 292-9210

SUN CITY CENTER
*Courtyards at Sun City Center Assisted Living
255 Courtyards Boulevard, 33573
4th Wednesday @ 1:30 p.m.
Facilitator: Candise Brown (813) 634-4497

*Sun Towers
101 Trinity Lakes Drive
3rd Tuesday @ 2:30 p.m.
Facilitator: Amy Brand, (813) 246-4120

Homewood Residence
3910 Galen Court, 33573
1st and 3rd Thursday @ 10:00 a.m.
Facilitator: Bev Hurley (813) 633-4340 bhurley@brookdaleliving.com

TAMPA
Hyde Park United Methodist Church
500 W. Platt Street
Knox Hall room 150
2nd Tuesday @ Noon
Facilitator: Mimi Buderus (813) 476-2628

Aston Gardens Westchase
11741 Lake Aston Court. Tampa 33626
3rd Thursday @ 5:30 p.m.
Facilitator: Arthur Mosley (813) 343- 0272

Brighton Gardens of Tampa
16702 North Dale Mabry Highway, 33618
Last Thursday @ 6:00 p.m.
Facilitator: Laura Pinard, (813) 908-2333

*Emeritus at North Dale
3401 West Bearss Ave, 33618
2nd Wednesday @ 11:30 a.m.
Facilitator: Louise Gray, (813) 961-1044
Please call facility to arrange respite care

*Horizon Bay Memory Care by the Bay
2301 West Palm Avenue, Tampa, 33606
4th Tuesday @ 6:00 p.m.
Facilitators: MiMi Buderus, (813) 476-2628 and Tally Nelson (813) 251-6333

The South Tampa Family YMCA
4411 S. Himes Avenue, 33611
Last Tuesday @ 12:00 p.m.
Facilitator: Yvette Wilmath (813) 839-0210
Yvette.wilmath@tampaymca.org

Hispanic Support Group
1810 West Clifton Street, 33603
First Thursday @ 7:00 - 8:30 p.m.
Facilitator: Madeline Rodriguez, (813) 871-3652

USF Alzheimer's Center
4001 E. Fletcher Ave.
First Floor Conference Room
1st Thursday of the month @ 2:00 p.m.
Facilitator: Eileen Poiley, (813) 974-4355
Free Parking

THONOTOSASSA
Stone Ledge Manor
12006 McIntosh Road
3rd Monday at 6:00 p.m.
Facilitators: Stormie Thayer & Cierra Henderson,
(813) 571-4117
 
* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations.
Early Stage Program
The Alzheimer's Association has early stage dementia programs.

  

Are you or someone you know experiencing early stage dementia?  If so, they may qualify to participate in one of our early stage programs. 

  

For more information contact your local office. 

Quick Links
   
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Genes and Alzheimer's

The 23 human chromosome pairs contain all of the 30,000 genes that code the biological blueprint for a human being.  

 

There are two categories of genes that influence whether a person develops a disease: (1) risk genes and (2) deterministic genes. Researchers have identified Alzheimer's genes in both categories.

 

Risk genes increase the likelihood of developing a disease, but do not guarantee it will happen. Researchers have found several genes that increase the risk of Alzheimer's. APOE-e4 is the first risk gene identified, and remains the gene with strongest impact on risk. APOE-e4 is one of three common forms of the APOE gene; the others are APOE-e2 and APOE-e3. 

 

Deterministic genes directly cause a disease, guaranteeing that anyone who inherits one will develop a disorder. Scientists have found rare genes that cause Alzheimer's in only a few hundred extended families worldwide. These genes, which are estimated to account for less than 5 percent of Alzheimer's cases, cause familial early-onset forms in which symptoms usually develop between a person's early 40s and mid-50s.
 

The Genetics of Alzheimer's
The Genetics of Alzheimer's
  
Learn more:
(approx. 14 min.)

Overview: Is Alzheimer's inherited? In this digital video John Hardy, Ph.D., of the National Institute on Aging, explains how genes cause disease, the difference between deterministic and risk genes, and which genes of each type are implicated in early-onset and late-onset Alzheimer's.

Care for the Caregiver

Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.

  
Caregiver Burnout

Joel Carrier, Guest Columnist

Family Caregiver

Volunteer, AAFGCC 

  

Caregiver burnout. Google it: it's a real condition, at least according to WebMD, AARP, the American Heart Association and numerous other organizations and websites. Even Dr. Oz says so.

 

The signs are numerous, the symptoms similar to those for anxiety and depression. And if you're feeling the stress, you're not alone.

  

Whether you're a daughter or son, parent or spouse, sibling, or even a friend, if you're reading this, chances are you're one of more than 15.4 million Americans providing care to someone living with Alzheimer's disease. This means that you are partly responsible for providing 17.5 billion hours of unpaid care valued at $216 billion, according to the Alzheimer's Association 2013 Facts and Figures report.

 

That's a big responsibility.

 

I get it: Caring for someone with Alzheimer's disease can be overwhelming at best and, if you're like many other caregivers, tending to yourself is last on your ever-growing to do list.

 

But take a moment to think through what would happen to the person for whom you're caring for if you're suddenly not there. What value do you place on your role as caregiver?

 

A lot, obviously, or you probably wouldn't still be reading. 

 

Click here to read the full column including tips 

Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

May Tip
Travel Tip for Early-Stage Alzheimer's

  

A caregiver in planning for a cruise with their loved one went to a local hospital and asked for a couple of plastic patient wristbands. (Every hospital may not be as accommodating). She then wrote her husband's name on the band, cruise ship name and cabin number.

 

The husband wore the waterproof wristband throughout the cruise, which provided him an easy memory cue if needed but also a layer of safety for shore excursions if he became separated from group.

 

This tip could also be applied to travel tours (name of Travel Company and cell phone number) and airline travel (airline name, flight number and gate).

 

People with mild memory loss can enjoy travel but careful planning is essential and often a travel companion is recommended. For people with more advanced memory loss, travel may no longer be wise. The change in routine, crowds, noisy situations can trigger agitation and disorientation (even in familiar places).

 

Planning carefully can help ensure a pleasant travel experience for someone with mild memory loss.

  1. Keep it simple! Avoid itineraries where you're in a different place every night. Try to book a direct flight.
  2. Don't try to fit too many activities in one day and schedule rest periods.
  3. Write down travel plans, i.e., flight details, airline phone numbers, hotel addresses and phone numbers, confirmation numbers, etc., and include a list of emergency contact numbers. Provide a copy of this list to family and friends and keep a copy with you.

For more travel tips please click here.

______________ 

 

About this column

 

Caregiver Jewels is a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.

 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Purple Ribbon Task Force 

The Purple Ribbon Task Force was created by the Florida State Legislature and approved by the Governor to create a comprehensive state plan to address the growing public health impact of Alzheimer's disease and identify ways to meet the needs of individuals with Alzheimer's disease and related dementias and their caregivers. 

  

The task force, of which the Alzheimer's Association - Florida Gulf Coast Chapter is apart of, created five surveys. Each of the five surveys is tailored to the experiences of a specific group of individuals, including 1) people with Alzheimer's disease or related dementias; 2) family caregivers; 3) family and friends; 4) healthcare providers and paid caregivers; and 5) policy, legal, education and other professionals.

 

To take a survey or get more information, go to 
Purple Ribbon Task Force Surveys.  

(http://elderaffairs.state.fl.us/doea/purple_ribbon_survey.php

 

For additional information about the surveys, please contact Dr. Darlene Heinrich at 850-414-2111 (heinrichd@elderaffairs.org). 


The surveys will be available online through

May 3, 2013.

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,
  

Stephanie McGovern, Program Specialist
Email: mcgoverns@alzflgulf.org
Phone: (813) 684-1296
Fax: (813) 685-7213
309 North Parsons Avenue
Brandon, FL 33510

AJ Cipperly, Program Specialist
Alzheimer's Association Florida Gulf Coast Chapter
Email: cipperlya@alzflgulf.org
Phone: (727) 578-2558
Fax: (727) 578-2286
14010 Roosevelt Boulevard Suite 709
Clearwater, FL 33762

Nancy Parente, Bilingual & Multi-Cultural Outreach Program Specialist
Email: parenten@alzflgulf.org
Phone: (727) 578-2558
Fax: (727) 578-2286  

Alzheimer's Association Florida Gulf Coast Chapter

www.alz.org/flgulfcoast

 

  

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900