Florida Gulf Coast Chapter

 

Sarasota County Update 

May 2013

In This Issue
Support Groups
Early Stage Program
Genes and Alzheimer's
Care for the Caregiver: Caregiver Burnout
Caregiver Jewels: Travel Tips for Early Stage
Purple Ribbon Task Force Survey
Calendar
All programs are free to attend unless otherwise specified.

 

May 2, Caregiver Training, Basics of Alzheimer's Disease. Comfort Keepers, 3667 Webber Street, Sarasota, 10:00 a.m. - 12:00 p.m.
 
May 3, Caregiver Training, Basics of Alzheimer's Disease. Senior Friendship Center, 1820 Brother Geenen Way, Sarasota, 10:00 a.m. - 12:00 p.m.

 

May 7, Caregiver Training, Techniques to Handling Challenging Behaviors, Jewish Family and Children's Service, 2688 Fruitville Road, Sarasota, 9:30 a.m. - 10:30 a.m.
 
May 11, Memory Mobile, Florida Blue Health Fair. Florida Blue Center, 285 North Cattleman Road, Sarasota, 10:00 a.m. - 3:00 p.m.

 

May 14, Caregiver Training, Activities to Encourage Engagment, Jewish Family and Children's Service, 2688 Fruitville Road, Sarasota, 9:30 a.m. - 10:30 a.m.
 
May 14, Caregiver Training, Basics of Alzheimer's Disease. Windsor of Venice, 1600 Center Road, Venice, 2:00 p.m. - 4:00 p.m.
 
May 16, Memory Mobile, Health Fair, 1000 Aston Gardens Drive, Venice, 11:00 a.m. - 3:00 p.m.
 
May 22, Caregiver Training, Basics of Alzheimer's Disease, Senior Friendship Center of Venice, 2350 Scenic Drive, Venice, 10:00 a.m. - 11:00 a.m.
 
May 22, Memory Mobile, Senior Friendship Center of Venice, 2350 Scenic Drive, Venice 11:30 a.m. - 3:30 p.m.

 

May 29, Memory Mobile, Florida Blue Health Fair. Florida Blue Center, 285 North Cattleman Road, Sarasota, 10:00 a.m. - 3:00 p.m.

 

Upcoming in June 
 
June 6, Caregiver Training, Basics of Alzheimer's Disease. Comfort Keepers, 3667 Webber Street, Sarasota, 10:00 a.m. - 12:00 p.m.
 
June 7, Caregiver Training, Basics of Alzheimer's Disease. Senior Friendship Center, 1820 Brother Geenen Way, Sarasota, 10:00 a.m. - 12:00 p.m.


* Indicates programs presented by the Alzheimer's Association- Florida Gulf Coast Chapter. 

Support Groups

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.


 

Arden Courts
5509 Swift Road, (34231)
1st Wednesday @ 5:30 p.m.
Erin Killian, 941-925-3900
Nikki Rodney, 941-925-3900


Clare Bridge
8450 McIntosh Road (34238)
2nd Tuesday @ 4:00 p.m.
Jerri Andree, 941-928-4753


Senior Friendship Center
Caregiver Resource Center
1820 Brother Geenan Way (34236)
Every Thursday @ 10:00 a.m.
Paula Falk, 941-556-3268


SMH Memory Disorder Clinic
Senior Friendship Center For Healthy Aging
Dwyer Bldg., 1st Floor
1888 Brother Geenen Way (34236)
3rd Thursday @ 9:30 a.m.
Kathleen Houseweart, 941-917-7197
(Dual support group for Mild Cognitive
Impairment & Early Stage patients & families)


Heron Club at Prestancia
3749 Sarasota Square Boulevard (34238)
3rd Thursday @ 5:30 p.m.
Rosa Juarez, 941-955-7575


Heron House
3221 Fruitville Road (34237)
3rd Thursday @ 5:30 p.m.
Dawn Fletcher, 941-955-7575


Palmer Ranch Healthcare
5111 Palmer Ranch Parkway (34238)
3rd Wednesday at 10:00 a.m.
Susan Garbett, 941-358-1209


Springwood Nursing and Rehab
4602 Northgate Court
3rd Tuesday @ 4:00 p.m.
Amy Paine, 941-355-2913


Pines of Sarasota
1501 N. Orange Ave.
3rd Thursday @ 2:00 p.m.
Ann Modercin, 941-365-0250


Emeritus of Colonial Park Club
4730 Bee Ridge Road (34233)
1st Tuesday @ 6:00 p.m.
Maggie DiFranco & Julie Schechter,
941-378-4414

 

Cabot Reserve on the Green

4450 8th Street (34232)

1st Friday @ 2:30 p.m.

Renee Downton, 941-342-0844


VENICE


Aston Gardens @ Pelican Point
9000 Ibis Way (34292)
1st Wednesday @ 3:00 p.m.
Pat Quigley, 941-484-9494


Pinebrook Nursing Center
1240 Pinebrook Road (34285)
3rd Monday @ 2:30 p.m.
(Family social and support group)
Connie Gens, 941-488-6733


Senior Friendship Center/Venice
2350 Scenic Drive (34293)
Every Tuesday @ 2:00 p.m.
Phyllis Balliett, 941-584-0050


Christ United Methodist Church
1475 Center Road (34292)
Second Wednesday @ 1:00 p.m.
Janet Harrod, 404-641-2276


Windsor of Venice
1600 Center Road (34292)
Second Saturday @ 10:00 a.m.
Mamet Allen, 941-806-8085
 
Trinity Presbyterian Church
4365 State Road (34285)
Third Friday @ 1:00 p.m.
Jo Stephens, 941-475-7053


ENGLEWOOD


Emeritus at River Oaks
925 South River Road (34223)
3rd Wednesday @ 10:00 a.m.
Sherri Blanchard, 941-474-8600


Elsie Quirk Library
100 W. Dearborn St.
Last Wednesday @ 6:30 p.m.
Phyllis Balliett, 941-584-0050


* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations.

Early Stage Program
The Alzheimer's Association has early stage dementia programs.

  

Are you or someone you know experiencing early stage dementia?  If so, they may qualify to participate in one of our early stage programs. 

  

For more information contact your local office. 

Quick Links
   
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Genes and Alzheimer's

The 23 human chromosome pairs contain all of the 30,000 genes that code the biological blueprint for a human being.  

 

There are two categories of genes that influence whether a person develops a disease: (1) risk genes and (2) deterministic genes. Researchers have identified Alzheimer's genes in both categories.

 

Risk genes increase the likelihood of developing a disease, but do not guarantee it will happen. Researchers have found several genes that increase the risk of Alzheimer's. APOE-e4 is the first risk gene identified, and remains the gene with strongest impact on risk. APOE-e4 is one of three common forms of the APOE gene; the others are APOE-e2 and APOE-e3. 

 

Deterministic genes directly cause a disease, guaranteeing that anyone who inherits one will develop a disorder. Scientists have found rare genes that cause Alzheimer's in only a few hundred extended families worldwide. These genes, which are estimated to account for less than 5 percent of Alzheimer's cases, cause familial early-onset forms in which symptoms usually develop between a person's early 40s and mid-50s.
 

The Genetics of Alzheimer's
The Genetics of Alzheimer's
  
Learn more:
(approx. 14 min.)

Overview: Is Alzheimer's inherited? In this digital video John Hardy, Ph.D., of the National Institute on Aging, explains how genes cause disease, the difference between deterministic and risk genes, and which genes of each type are implicated in early-onset and late-onset Alzheimer's.

Care for the Caregiver

Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.

  
Caregiver Burnout

Joel Carrier, Guest Columnist

Family Caregiver

Volunteer, AAFGCC 

  

Caregiver burnout. Google it: it's a real condition, at least according to WebMD, AARP, the American Heart Association and numerous other organizations and websites. Even Dr. Oz says so.

 

The signs are numerous, the symptoms similar to those for anxiety and depression. And if you're feeling the stress, you're not alone.

  

Whether you're a daughter or son, parent or spouse, sibling, or even a friend, if you're reading this, chances are you're one of more than 15.4 million Americans providing care to someone living with Alzheimer's disease. This means that you are partly responsible for providing 17.5 billion hours of unpaid care valued at $216 billion, according to the Alzheimer's Association 2013 Facts and Figures report.

 

That's a big responsibility.

 

I get it: Caring for someone with Alzheimer's disease can be overwhelming at best and, if you're like many other caregivers, tending to yourself is last on your ever-growing to do list.

 

But take a moment to think through what would happen to the person for whom you're caring for if you're suddenly not there. What value do you place on your role as caregiver?

 

A lot, obviously, or you probably wouldn't still be reading. 

 

Click here to read the full column including tips 

Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

May Tip
Travel Tip for Early-Stage Alzheimer's

  

A caregiver in planning for a cruise with their loved one went to a local hospital and asked for a couple of plastic patient wristbands. (Every hospital may not be as accommodating). She then wrote her husband's name on the band, cruise ship name and cabin number.

 

The husband wore the waterproof wristband throughout the cruise, which provided him an easy memory cue if needed but also a layer of safety for shore excursions if he became separated from group.

 

This tip could also be applied to travel tours (name of Travel Company and cell phone number) and airline travel (airline name, flight number and gate).

 

People with mild memory loss can enjoy travel but careful planning is essential and often a travel companion is recommended. For people with more advanced memory loss, travel may no longer be wise. The change in routine, crowds, noisy situations can trigger agitation and disorientation (even in familiar places).

 

Planning carefully can help ensure a pleasant travel experience for someone with mild memory loss.

  1. Keep it simple! Avoid itineraries where you're in a different place every night. Try to book a direct flight.
  2. Don't try to fit too many activities in one day and schedule rest periods.
  3. Write down travel plans, i.e., flight details, airline phone numbers, hotel addresses and phone numbers, confirmation numbers, etc., and include a list of emergency contact numbers. Provide a copy of this list to family and friends and keep a copy with you.

For more travel tips please click here.

______________ 

 

About this column

 

Caregiver Jewels is a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.

 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Purple Ribbon Task Force 

The Purple Ribbon Task Force was created by the Florida State Legislature and approved by the Governor to create a comprehensive state plan to address the growing public health impact of Alzheimer's disease and identify ways to meet the needs of individuals with Alzheimer's disease and related dementias and their caregivers. 

  

The task force, of which the Alzheimer's Association - Florida Gulf Coast Chapter is apart of, created five surveys. Each of the five surveys is tailored to the experiences of a specific group of individuals, including 1) people with Alzheimer's disease or related dementias; 2) family caregivers; 3) family and friends; 4) healthcare providers and paid caregivers; and 5) policy, legal, education and other professionals.

 

To take a survey or get more information, go to 
Purple Ribbon Task Force Surveys.  

(http://elderaffairs.state.fl.us/doea/purple_ribbon_survey.php

 

For additional information about the surveys, please contact Dr. Darlene Heinrich at 850-414-2111 (heinrichd@elderaffairs.org). 


The surveys will be available online through

May 3, 2013.

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,
  

 

Katie Scott

Program Specialist 

Alzheimer's Association Florida Gulf Coast Chapter
3227-A Fruitville Road Suite 1

Sarasota, Florida 34237

scottk@alzflgulf.org

Office: 941-365-8883

Fax: 941-365-8885

www.alz.org/flgulfcoast

Thank you!  
 Sarasota County  
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900