Florida Gulf Coast Chapter

 

Polk County Update 

May 2013

In This Issue
Support Groups
Genes and Alzheimer's
Care for the Caregiver: Caregiver Burnout
Caregiver Jewels: Travel Tips for Early Stage
Purple Ribbon Task Force Survey
Are You On BASE
Join a Walk Team
Calendar
All programs are free to attend unless otherwise specified.

  

* May 2 Caregiver Education: Basic's of Alzheimer's at  the Alzheimer's Association,

1000 American Superior Blvd, Winter Haven.

1:00 a.m. - 2:00 p.m. Contact (863) 292-9210 for RSVP.

 

* May 6 Memory Mobile at Denison Middle School, 400 Avenue A, S.E., Winter Haven, FL.  Call 863-292-9210 to schedule a free memory screening.

 

* May 7 Memory Mobile at Polk County School District Office, 1915 South Floral Ave., Bartow, FL. Call 863-292-9210 to schedule a free memory screening. 

 

* May 7 Social Group: Coffee Club (social club for caregivers and people with late early to mid- stage dementia) at Highland Park Church, Family Ministry Bldg. Cafe, 4730 Lakeland Highlands Rd., Lakeland, 10:30 a.m. For more information contact Stefanie Thompson (863) 292-9210 / thompsons@alzflgulf.org.

 

* May 7 Walk To End Alzheimer's: team (Home Instead Senior Care Fighting Tulips)

Fundraising Event featuring: Polk County's Most Wanted at HomeInstead Senior Care's Open House, 810 E. Main Street Lakeland, FL. 4:00 p.m. - 6:00 p.m. Be the first to throw a pie for the cause! Click below for more information or call (863) 937-1500. 

   

 

* May 16 Caregiver EducationCommunications With Alzheimer's at Alzheimer's Association, 

1000 American Superior Blvd, Winter Haven.

1:00 p.m. - 2:00 p.m. Contact (863) 292-9210 for RSVP.

 

* Indicates programs presented by the Alzheimer's Association- Florida Gulf Coast Chapter. 

Support Groups

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

Early Stage and Care Partner Groups

 

Lakeland

 

Beyond BASE Early Stage

The Estates at Carpenters
1001 Carpenters Way, Lakeland, (863) 858-3847

1st Friday @ 1:30 p.m.
Early Stage Transition: Brady Beatty

Facilitators: Stefanie Thompson and Lori Garrard

Register call (863) 292-9210

 

Winter Haven / Lake Wales

 

Beyond BASE Early Stage

Lake Ashton- Contact Chris Wilcox (863) 292-9210

 

Social Groups

 

Lakeland

 

Coffee Club (social club for caregivers and people with late early to mid- stage dementia)

Highland Park Church, Family Ministry Bldg.,

Cafe, 4730 Lakeland Highlands Rd, Lakeland

(863) 647-3518

1st Tuesday at 10:30 a.m.
For more information contact Stefanie Thompson

(863) 292-9210 / thompsons@alzflgulf.org

 

Caregiver Support Groups

 

Auburndale

 

Good Shepherd Hospice

105 Arneson Avenue, Auburndale (863) 297-1880

3rd Friday, 10:00 a.m. Facilitator: Cindy Clouse

 

Davenport / Haines City
Heart of Florida Regional Medical Center
Cafeteria Conference Room

40100 US Hwy 27 North
1st Thursday at 10:00 a.m.

Facilitator: Stacie Cleveland

 

Lake Wales

 
Water's Edge of Lake Wales
10 Grove Avenue West, Lake Wales
3rd Thursday @ 10:30 a.m.
Facilitator: Suzanne Lull (863) 206-0470
 

Lake Wales Public Library
290 Cypress Gardens Lane, Lake Wales
4th Monday @ 1:00 p.m.
Facilitator: Suzanne Lull, (863) 206-0470

Lakeland

 
Hawthorne Inn -Lakeland* (Lunch Provided)
6150 Lakeland Highlands Road, (863) 644-6414
1st Thursday @ 1:00 p.m.

Facilitators: Diane Wilson and Michelle Sharpe  

 

Savannah Cottage* (Lunch Provided)
605 Carpenter's Way, Lakeland, (863) 815-9411
1st Friday @ 12:00 p.m

Facilitator: Mary Jo Williams
 

Valencia Hills Health & Rehab (Lunch Provided)
1350 Sleepy Hill Rd, Lakeland.
One Wednesday a month @ 12:00 p.m. and
One Saturday a month @ 1:00 p.m.

Please call support group facilitator, Rich Quinn at

(863) 858-4402 x352 for scheduled dates 

 

Southland Suites* (Lunch Provided)

4250 Lakeland Highlands Rd., Lakeland,

(863) 701-7820

2nd Tuesday @ 1:00 p.m.

Facilitators: Donna Schoenenberger and Jo Lewis

 

Emeritus at Lakeland
2111 Lakeland Hills Blvd., Lakeland, (863) 688-1126
2nd Wed. @ 2:00 p.m., Facilitator: Pam Flanders

 

Cypress Lakes (Starting May 20, 2013)
10000 US 98 North, Lakeland, (863) 859-2136
3rd Monday @ 10:00 a.m.

Facilitator: Alyss Ervolina 

To attend RSVP to Gwen Snook for gate pass.

  

Lithia

 

Life Church at FishHawk

6420 Lithia Pinecrest Rd., Lithia

1st Monday @ 7:00 p.m.

Facilitator: Eddie Broom (813) 681-6503

 

Plant City

 

Plant City First Baptist Church
503 North Palmer Street, Plant City

2nd Tues. @ 2:00 p.m., Facilitators: Bill Barr and

Stefanie Thompson (863) 292-9210
  

Poinciana

 

Baltic Room
385 Village Drive at Solivita, Poinciana

4th Thursday @ 10:00 a.m.

Facilitator: Nancy Callahan, (863) 496-1136

Thonotosassa

 

Stone Ledge Mano

12006 McIntosh Road, Thonotosassa

(813) 571-4117 

3rd Monday at 6:00 p.m.

Co-facilitators: Stormie Thayer 

 

Winter Haven

  

Winter Haven Florida Blue

385 Cypress Gardens Blvd., Winter Haven

2nd Monday @ 3:00 p.m.  Snacks provided. 

Facilitator: Chris Wilcox, (863) 292-9210

  

Brookdale Senior Living- Sterling House
6110 Cypress Gardens Blvd. (863) 318-8055

3rd Monday @ 3:00 p.m.

Facilitator: Chris Wilcox, (863) 292-9210 

 

Hawthorne Inn of Winter Haven (Lunch Provided)

625 Overlook Drive, Winter Haven (863) 324-2212
3rd Wed. @ 11:30 a.m.

Chris Wilcox, (863) 292-9210


* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations.

Quick Links
   
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Genes and Alzheimer's

The 23 human chromosome pairs contain all of the 30,000 genes that code the biological blueprint for a human being.  

 

There are two categories of genes that influence whether a person develops a disease: (1) risk genes and (2) deterministic genes. Researchers have identified Alzheimer's genes in both categories.

 

Risk genes increase the likelihood of developing a disease, but do not guarantee it will happen. Researchers have found several genes that increase the risk of Alzheimer's. APOE-e4 is the first risk gene identified, and remains the gene with strongest impact on risk. APOE-e4 is one of three common forms of the APOE gene; the others are APOE-e2 and APOE-e3. 

 

Deterministic genes directly cause a disease, guaranteeing that anyone who inherits one will develop a disorder. Scientists have found rare genes that cause Alzheimer's in only a few hundred extended families worldwide. These genes, which are estimated to account for less than 5 percent of Alzheimer's cases, cause familial early-onset forms in which symptoms usually develop between a person's early 40s and mid-50s.
 

The Genetics of Alzheimer's
The Genetics of Alzheimer's
Learn more:
(approx. 14 min.)

Overview: Is Alzheimer's inherited? In this digital video John Hardy, Ph.D., of the National Institute on Aging, explains how genes cause disease, the difference between deterministic and risk genes, and which genes of each type are implicated in early-onset and late-onset Alzheimer's.

Care for the Caregiver

Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.

  
Caregiver Burnout

Joel Carrier, Guest Columnist

Family Caregiver

Volunteer, AAFGCC 

  

Caregiver burnout. Google it: it's a real condition, at least according to WebMD, AARP, the American Heart Association and numerous other organizations and websites. Even Dr. Oz says so.

 

The signs are numerous, the symptoms similar to those for anxiety and depression. And if you're feeling the stress, you're not alone.

  

Whether you're a daughter or son, parent or spouse, sibling, or even a friend, if you're reading this, chances are you're one of more than 15.4 million Americans providing care to someone living with Alzheimer's disease. This means that you are partly responsible for providing 17.5 billion hours of unpaid care valued at $216 billion, according to the Alzheimer's Association 2013 Facts and Figures report.

 

That's a big responsibility.

 

I get it: Caring for someone with Alzheimer's disease can be overwhelming at best and, if you're like many other caregivers, tending to yourself is last on your ever-growing to do list.

 

But take a moment to think through what would happen to the person for whom you're caring for if you're suddenly not there. What value do you place on your role as caregiver?

 

A lot, obviously, or you probably wouldn't still be reading. 

 

Click here to read the full column including tips 

Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

May Tip
Travel Tip for Early-Stage Alzheimer's

  

A caregiver in planning for a cruise with their loved one went to a local hospital and asked for a couple of plastic patient wristbands. (Every hospital may not be as accommodating). She then wrote her husband's name on the band, cruise ship name and cabin number.

 

The husband wore the waterproof wristband throughout the cruise, which provided him an easy memory cue if needed but also a layer of safety for shore excursions if he became separated from group.

 

This tip could also be applied to travel tours (name of Travel Company and cell phone number) and airline travel (airline name, flight number and gate).

 

People with mild memory loss can enjoy travel but careful planning is essential and often a travel companion is recommended. For people with more advanced memory loss, travel may no longer be wise. The change in routine, crowds, noisy situations can trigger agitation and disorientation (even in familiar places).

 

Planning carefully can help ensure a pleasant travel experience for someone with mild memory loss.

  1. Keep it simple! Avoid itineraries where you're in a different place every night. Try to book a direct flight.
  2. Don't try to fit too many activities in one day and schedule rest periods.
  3. Write down travel plans, i.e., flight details, airline phone numbers, hotel addresses and phone numbers, confirmation numbers, etc., and include a list of emergency contact numbers. Provide a copy of this list to family and friends and keep a copy with you.

For more travel tips please click here.

______________ 

 

About this column

 

Caregiver Jewels is a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.

 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Purple Ribbon Task Force 

The Purple Ribbon Task Force was created by the Florida State Legislature and approved by the Governor to create a comprehensive state plan to address the growing public health impact of Alzheimer's disease and identify ways to meet the needs of individuals with Alzheimer's disease and related dementias and their caregivers. 

  

The task force, of which the Alzheimer's Association - Florida Gulf Coast Chapter is apart of, created five surveys. Each of the five surveys is tailored to the experiences of a specific group of individuals, including 1) people with Alzheimer's disease or related dementias; 2) family caregivers; 3) family and friends; 4) healthcare providers and paid caregivers; and 5) policy, legal, education and other professionals.

 

To take a survey or get more information, go to 
Purple Ribbon Task Force Surveys.  

(http://elderaffairs.state.fl.us/doea/purple_ribbon_survey.php

 

For additional information about the surveys, please contact Dr. Darlene Heinrich at 850-414-2111 (heinrichd@elderaffairs.org). 


The surveys will be available online through

May 3, 2013.

Are You On BASE

Are you or someone you know experiencing early stage dementia?  If so, they may qualify to participate in one of our early stage programs. 

 

The Beginning Alzheimer's Support And Education (BASE) program is starting soon.  Become engaged; call today!

 

Call Stefanie Thompson or Chris Wilcox at 863-292-9210 or email thompsons@alzflgulf.org.

Join a Walk Team

Form a Walk to End Alzheimer's team, or join the Alzheimer's Association - Polk County Team.

 

FM Walk

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,
  

Stefanie Thompson and Chris Wilcox

Program Specialists

Alzheimer's Association Florida Gulf Coast Chapter
Polk County Office

1000 American Superior Blvd.

Winter Haven, FL 33880

Email: thompsons@alzflgulf.org / wilcoxc@alzflgulf.org

Office: (863) 292-9210

Facsimile:(863) 292-9603

www.alz.org/flgulfocoast

Thank You!
 
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900