Florida Gulf Coast Chapter

 

Manatee County Update 

April 2013

In This Issue
Early Stage Program
Support Groups
Florida's Long-Term Care Managed Care Program
New Alzheimer's Disease Facts and Figures Released
Make a Committment to End Alzheimer's
Caregiver Jewels: Respite Care
Research & Caregiver's Role
Calendar
All programs are free to attend unless otherwise specified.

 

April 2nd Caregiver Education Navigating Life's Changes the Introduction at H2U Cortez, 6670 Cortez Road West, Bradenton. 1:00 p.m. - 3:00 p.m.

April 3rd Caregiver Education The ABC's of Alzheimer's Disease, Emeritus at College Park, 5612 26th Street West, Bradenton. 10:00 a.m-12:00 p.m.    

April 4th Caregiver Education Medication Safety for Seniors, Freedom Village, 6410 21st Avenue West, Bradenton. Please RSVP for lunch at 941-798-8200. 11:30 a.m.- 1:30 p.m.

April 5th Caregiver Education How the Veteran's Administration Can Assist the Caregiver. Westminster Shores, 1700 3rd Avenue West, Bradenton. 1:30 p.m.-3:30 p.m.

April 9th Caregiver Education Navigating Life Changes Organizing Documents and Financials Part 1, H2U Cortez, 6670 Cortez Road West, Bradenton. 1:00 p.m. -3:00 p.m.

April 10th Caregiver Education How Case Management Services Can Assist the Caregiver. Windsor Reflections, 8230 Nature's Way, Lakewood Ranch. 10:00 a.m.- 12:00 p.m.

April 12th Caregiver Education The ABC's of Alzheimer's, Windsor Reflections, 8230 Nature's Way, Lakewood Ranch. 10:00 a.m.-12:00 p.m.

April 16th Caregiver Education Navigating Life Changes Organizing Documents and Financials Part 2: Practical Money Tips. H2U Cortez Road West. Bradenton 1:00 p.m.- 3:00 p.m.

April 18th Caregiver Education Alzheimer's Overview What Caregivers Need to Know. Braden River Care Center, 2010 Manatee Avenue West, Bradenton. 2:00 p.m.- 4:00 p.m.

April 23rd Caregiver Education Navigating Life Changes Transportation Options, H2U Cortez 6670 Cortez Road, Bradenton. 1:00 p.m. -3:00 p.m.

April 24th Caregiver Education Caregiver Stress, Island Branch Library 5701 Marina Drive. Holmes Beach.2:00 p.m.-4:00 p.m.

April 25th Caregiver Education Art Therapy and How it reduces Caregiver Stress. Summerfield Assisted Residence, 3409 26th Street West, Bradenton. 10:00 a.m.-12:00 p.m.

April 26th Memory Screens South Branch Library, 6051 26th Street West, Bradenton. 1:00 p.m.-3:00 p.m.

April 30th Caregiver Education Navigating Life Changes Let the Computer be Your Friend. H2U Cortez, 6670 Cortez Road West, Bradenton. 1:00 p.m.-3:00 p.m.

Coming in May

May 1st Caregiver Education The ABC's of Alzheimer's Disease.Emeritus at College Park, 5612 26th Street west, Bradenton. 10:00 a.m.-12:00 p.m.  

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

Early Stage Program

The Alzheimer's Association has early stage dementia programs.

  

Are you or someone you know experiencing early stage dementia?  If so, they may qualify to participate in one of our early stage programs. 

  

For more information contact your local office.
Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

 

Anna Maria Island

Island Branch Library
5701 Marina Drive, Holmes Beach
2nd Friday of each month at 2:00 p.m.
Facilitator: Sue Fox (941) 365-8883

Bradenton

Clare Bridge Bradenton
6101 Pointe West Boulevard
4th Tuesday of each month at 2:30 p.m.
Facilitator: Deborah Luther
Clare Bridge phone (941) 795-5533


Summerfield Assisted Living
3409 26th Street West
3rd Wednesday of each month at 12:00 p.m.
Facilitator: Pam Green (941) 751-7200
Free lunch with RSVP


Windsor Oaks
2614 43rd Street West
4th Thursday of each month at 10:00 a.m.
Facilitators: Linda Delaberti/ Lulu Meyer
(941) 798-9701

 

Freedom Village
6410 21st Avenue

The Inn and Health Center 3rd floor dining room
3rd Thursday of each month at 2:30 p.m.
Facilitators: Erika Gibson (941) 798-8200


The Bridge of Bradenton
4000 75th Street West
3rd Wednesday of each month at 12:30 p.m.
Facilitator: Jen Cassidy (941) 795-5533


Lakewood Ranch

Windsor Reflections
8230 Nature's Way
2nd Wednesday of each month at 11:00 a.m.
Lunch provided with RSVP
Facilitator: Julie Gartside (941) 957-1400


Ellenton

H2U of Blake Medical Center
7042 US Hwy 301 North
3rd Friday of each month

Facilitators: Sue Fox (941) 365-8883


* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

Florida's Long-Term Care Managed Care Program
The National Senior Citizens Law Center released a Special Report entitled Summary of Florida's Long Term Care Managed Care Program which summarizes important aspects of Florida's long-term care managed care program. The Centers for Medicare and Medicaid Services approved Florida's proposal to provide Medicaid long-term services and supports  through managed care in February.  
The special report can be downloaded free from the NSCLC website (NSCLC.org) or directly through this link.
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New Alzheimer's Disease Facts and Figures Released
The 2013 Alzheimer's Disease Facts and Figures is now available. The report, released every year covers quick facts about Alzheimer's disease, prevalence, mortality, impact on caregivers, cost to the nation and specific facts related to each state (e.g. Florida).  In addition, this year's report covers long-distance caregiving. 
Alzheimer's Disease Facts and Figures 2013
Alzheimer's Disease Facts and Figures 2013

 

Some report highlights: 

  • Alzheimer's disease is the 6th leading cause of death in the United States overall and the 5th leading cause of death for those aged 65 and older.
  • It is the only cause of death among the top 10 in America without a way to prevent it, cure it or even slow its progression.
  • Deaths from Alzheimer's increased 68 percent between 2000 and 2010, while deaths from other major diseases, including the number one cause of death (heart disease), decreased.
  • While ambiguity about the underlying cause of death can make it difficult to determine how many people die from Alzheimer's, there are no survivors. If you do not die from Alzheimer's disease, you die with it. One in every three seniors dies with Alzheimer's or another dementia.

  • In 2013, an estimated 450,000 people in the United States will die with Alzheimer's.

  • In 2012, Caregivers provided over 17 billion hours of unpaid care valued at more than $216 billion.
  • Nearly 15 percent of caregivers for people with Alzheimer's or another dementia are long-distance caregivers. 

  • Out-of-pocket expenses for long-distance caregivers are nearly twice as much as local caregivers.
  • In 2013, Alzheimer's will cost the nation $203 billion. This number is expected to rise to $1.2 trillion by 2050. 

Make a Commitment to End Alzheimer's
Join the 2013 Walk To End Alzheimer's. Walk to End Alzheimer's unites the entire community - family, friends, co-workers, social and religious groups and more --- in a display of combined strength and dedication in the fight against this devastating disease. While there is no fee to register, each participant is expected to fundraise in order to contribute to the cause and raise awareness. The Alzheimer's Association provides free, easy-to-use tools and staff support to help each participant reach their fundraising goal.
  
Your local Walks:
  
Bradenton - Oct.5th  Act.alz.org/Bradenton

Sarasota - Oct. 12th  Act.alz.org/Sarasota


When you participate in Walk, your fundraising dollars fuel mission-related initiatives of care, support and research. In addition, your actions, both through fundraising and participating in the event, help to change the level of Alzheimer's awareness in your community. At a Walk event, you can learn more about Alzheimer's disease and the support programs and services offered by your local chapter. You will also have unique opportunities to get involved with the cause through advocacy initiatives and clinical trial enrollment. These experiences, in addition to other on-site opportunities, help each participant connect to their reason for walking.

  
Join a Walk Committee
Another way to get involved is my joining a Walk Committee. These local meetings are once a month and help organize and facilitate Walk day events. If you are interested contact Nicole Melnick at (941) 365-8883 or by email melnickn@alzflgulf.org.
Caregiver Jewels

Emily Reese, Program Specialist, AAFGCC

Welcome to Caregiver Jewels, a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.

 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

April Tip

Respite Care

 

Everyone needs a break

 

"My husband who has Alzheimer's disease was reluctant to go to adult day care (thankfully, it is called The Senior Friendship Center!) because in his view, he didn't need to be there. I explained to him that going to the Friendship Center is his "job" because some of the folks are not as fortunate as him and that by making friends and reaching out, he is helping those less fortunate. This strategy works every time! Now he is happy to go!" 

 

Caregiving is demanding; it is normal to need a break. Respite care provides caregivers a temporary rest from caregiving, while the person with Alzheimer's disease or a related dementia continues to receive care in a safe environment.

 

Taking that first step and initiating services can, at times, be challenging for the caregiver and the care recipient. The tip above was a creative response that maintained the care recipients dignity and self-esteem, key goals in any interaction with a person with Alzheimer's disease or a related dementia.  

Respite care can provide the caregiver with:

  • A chance to spend time with other friends and family, or to just relax
  • Time to take care of errands such as shopping, exercising, getting a haircut or going to the doctor
  • Comfort and peace of mind knowing that the person with dementia is spending time with another  caring individual

Respite care services can give the person with dementia an opportunity to:

  • Interact with others having similar experiences
  • Spend time in a safe, supportive environment
  • Participate in activities designed to match personal abilities and need

For more information on Adult Day Centers click here and on other types of respite services click here.

 

For respite services available in your community contact your local program specialist. 

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment. 
Research & Caregiver's Role

Researchers at the University of Missouri-St. Louis areinterested in learning about the experiences of women who currently have an older relative with Alzheimer's disease or other dementia. We are looking for women ages thirty to sixty- five years who have a parent living with dementia and are also parents themselves ("sandwich generation" caregivers). The study involves answering questions about the caregiving role and other health related questions. The survey will take approximately thirty minutes to complete and is done ONLINE. Participants who complete the survey will be eligible to win a $100 gift card. For more information e-mail caregiverpsychology@umsl.edu and to take the survey go to Caregiver Health.

 

Trial Match

For information about other types of studies  visit Trial Match. Alzheimer's Association TrialMatch® is a free, easy-to-use clinical studies matching service that connects individuals with Alzheimer's, caregivers, healthy volunteers and physicians with current studies.

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,
  

Sue Fox, M.A. 

Program Specialist 

Alzheimer's Association Florida Gulf Coast Chapter 

Sarasota/Manatee Office

3277A Building 1 suite A, Sarasota, Florida 34237

Email: foxs@alzflgulf.org

Office: 941.365.8883   

Facsimile: 941.365.8885

www.alz.org/flgulfcoast

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization © 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900