Florida Gulf Coast Chapter

 

Collier County Update 

February 2013

In This Issue
Support Groups
Early Stage Program
Planning Ahead
NIA Announces Funding of New AD Research Studies
Behavior: a Form of Communication
Care for the Caregiver: Seasonal Flu
Caregiver Jewels: Communication Tip
Calendar
All programs are free to attend unless otherwise specified.
  

February 14, Memory Mobile: Free and confidential Memory Screenings and/or get questions answered, Golden Gate Library, 2432 Lucerne Road, 10 a.m. - 4 p.m. Appointments suggested but not required. RSVP to Catherine (239) 405-7008.

 

February 15, Memory Mobile: Free and confidential Memory Screenings and/or get questions answered, Wesley United Methodist Church, 350 South Barfield Drive 10 a.m. - 4 p.m. Appointments suggested but not required. RSVP to Catherine (239) 405-7008.

 

February 21, Memory Mobile: Free and confidential Memory Screenings and/or get questions answered, Barrington Terrace, 5175 East Tamiami Trail, 10 a.m. - 4 p.m. Appointments suggested but not required. RSVP to Catherine (239) 405-7008.

 

February 22, Memory Mobile: Free and confidential Memory Screenings and/or get questions answered, Vanderbilt Presbyterian Church, 1225 Piper Boulevard, 10 a.m. - 4 p.m. Appointments suggested but not required. RSVP to Catherine (239) 405-7008.

 

March 6, Healthfair. Bentley Village, 704 Village Circle, Naples, 9:00 a.m. - 1:00 p.m. Open to the Public, for information call Tracy Reinhart at (239) 431-2022.

 

March 7, The Basic's of Alzheimer's Disease and Related Dementias. Understand the differences between Alzheimer's and related dementias. Learn the common causes of memory loss, including Alzheimer's disease; the stages of Alzheimer's, the importance of a good medical examination and what we know about prevention and treatment. Homewood Residence of Naples, Naples, 770 Goodlette Road, 10 a.m. - 12 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535.

 

March 11, Memory Mobile: Free and confidential Memory Screenings and/or get questions answered, South Regional Library, Naples, 8065 Lely Cultural Parkway, 10 a.m. - 4 p.m. Appointments suggested but not required. RSVP to Catherine (239) 405-7008.

 

March 12, Memory Mobile: Free and confidential Memory Screenings and/or get questions answered, Headquartes Library, Naples, 2385 Orange Blossom Drive, 10 a.m. - 4 p.m. Appointments suggested but not required. RSVP to Catherine (239) 405-7008.

 

March 13, Memory Mobile: Free and confidential Memory Screenings and/or get questions answered, Marco Island Library, 210 Heathwood Drive, 10 a.m. - 4 p.m. Appointments suggested but not required. RSVP to Catherine (239) 405-7008.

 

March 14, The Basic's of Alzheimer's Disease and Related Dementias. Understand the differences between Alzheimer's and related dementias. Learn the common causes of memory loss, including Alzheimer's disease; the stages of Alzheimer's, the importance of a good medical examination and what we know about prevention and treatment. Golden Gate Library, 2432 Lucerne Road, 2 p.m. - 4 p.m. RSVP to Catherine (239) 405-7008

 

March 21, Healthy Aging: The Body & Brain Connection, learn how diet and exercise promotes brain health as well as physical health. Homewood Residence of Naples, Naples, 770 Goodlette Road, 10 a.m. - 12 p.m. Open to the Public/Please RSVP to Michele (239) 430-3535.

 

March 26, Activities for People with Alzheimer's Disease and Related Disorders. Juniper Village, 1155 Encore Way, Naples, 11 a.m. - 1 p.m. Open to the Public/Please RSVP to Murinda (239) 598-1368.

 

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

  

Naples

Vanderbilt Presbyterian Church

1225 Piper Boulevard, (239) 405-7008

Last Wednesday of the month at 10:00 a.m.

Facilitator: Catherine Cruikshank

 

North Naples United Methodist Church   

6000 Goodlette Road, (239) 405-7008
Last Wednesday of the month at 1:30 p.m.

Facilitator: Catherine Cruikshank

  

Marco Island*

Saint Mark's Episcopal Church

1101 North Collier Boulevard, (239) 394-8097

Last Monday of the month at 10:30 a.m.

Facilitator; Shirley Woolaway

This meeting has break out sessions for both the caregiver and the person with memory loss.

 

Bonita Springs*

Millenium House of Southwest Florida

8951 Bonita Beach Road, Suite 297, (239) 405-7008

First Wednesday of the month at 5:00 p.m.

Facilitator: Catherine Cruikshank

 

*Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations to Cindi (239) 992-5513


* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations.  

Early Stage Program
The Alzheimer's Association has early stage dementia programs.

  

Are you or someone you know experiencing early stage dementia?  If so, they may qualify to participate in one of our early stage programs. 

  

For more information contact your local office. 

Planning Ahead
Putting financial and legal plans in place now allows the person with dementia to express wishes for future care and decisions. It also allows time to work through the complex issues involved in long-term care.

Legal planning should include:

  • Making plans for health care and long-term care
  • Making plans for finances and property
  • Naming another person to make decisions on behalf of the person with dementia

Legal Documents

Legal documents help ensure that the wishes of the person with dementia are followed as the disease progresses and make it possible for others to make decisions on behalf of the person when he or she no longer can.

For more information about planning and legal documents visit Planning Ahead
Quick Links
  
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NIA Announces Funding of New Alzheimer's Research Studies
The National Institute on Aging (NIA) has announced the funding of four Alzheimer's therapy-related research studies investigating a variety of techniques, including a clinical trial of an anti-amyloid drug in people with pre-symptomatic Alzheimer's, an exercise intervention in MCI and a drug for reducing agitation.

The trials will be conducted by the Alzheimer's Disease Cooperative Study, a national consortium of academic medical centers and clinics established by the National Institutes of Health to collaborate on the development of Alzheimer's treatments and diagnostic tools.
 
The funding for these projects comes from the regular NIA budget, not from increased 2013 funds due to the National Plan to Address Alzheimer's Disease.
 
"The four research studies announced by the NIH are significant steps in the fight to better treat and eventually prevent Alzheimer's disease. However, because of the chronic underfunding of Alzheimer's research, there are many more equally valid and necessary investigations that are not happening," said William Thies, Ph.D., Alzheimer's Association senior scientist in residence.
 
"The Alzheimer's Association believes that if we are to more quickly unravel the important questions about Alzheimer's disease cause, risk, treatment and prevention, we must make a greater commitment to research. The first-ever U.S. National Plan to Address Alzheimer's Disease was unveiled in May 2012, and now this plan must be effectively implemented. An additional $100 million has been recommended for 2013 for Alzheimer's research, and now must be confirmed," Thies said.
  
For more information visit NIA or visit AA Research Center.  
Behavior: a Form of Communication
Adapted from the Alzheimer's Association Behavior Brochure

 

Alzheimer's disease and related dementias (ADRD) can cause a person to act in different and unpredictable ways. Some individuals with ADRD become anxious or aggressive. Others repeat certain questions or gestures. Many misinterpret what they hear.

 

These types of reactions can lead to misunderstanding, frustration and tension, particularly between the person with dementia and the caregiver. It is important to understand that the person is not acting that way on purpose. Individuals with ADRD are not mad at you but rather are trying to convey a message.

 

Behavior may be related to:

  • Physical discomfort: illnesses or medication
  • Overstimulation: Loud noises or a busy environment
  • Unfamiliar surroundings: New places or the inability to recognize home
  • Complicated tasks: Difficulty with activities or chores
  • Frustrating interactions: Inability to communicate effectively

Three-Step Approach

Use this three-step approach to help identify common behaviors and their causes:

 

Identify and examine the behavior

  • What was the behavior? Is it harmful to the individual or others?
  • What happened just before the behavior occurred? Did something trigger it?
  • What happened immediately after the behavior occurred? How did you react?
  • Consult a physician to identify any causes related to medications or illness.

Explore potential solutions

  • What are the needs of the person with dementia? Are they being met?
  • Can adapting the surroundings comfort the person?
  • How can you change your reaction or your approach to the behavior? Are you responding in a calm and supportive way?

Try different responses

  • Did your new response help?
  • Do you need to explore other potential causes and solutions? If so, what can you do differently?

For more information visit the Caregiver Center.

Care for the Caregiver
Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.
  
Seasonal Flu
According to the the Centers for Disease Control and Prevention (CDC) the flu is high this season.  For this reason, they recommend influenza vaccination for people who have not yet been vaccinated this season and antiviral treatment as early as possible for people who get sick and are at high risk of flu complications. In addition, the CDC recommends taking everyday preventive actions to stop the spread of germs.
  • Try to avoid close contact with sick people.
  • If you are sick with flu-like illness, CDC recommends that you stay home for at least 24 hours after your fever is gone except to get medical care or for other necessities. (Your fever should be gone without the use of a fever-reducing medicine.)
  • While sick, limit contact with others as much as possible to keep from infecting them.
    Cover your nose and mouth with a tissue when you cough or sneeze. Throw the tissue in the trash after you use it.
  • Wash your hands often with soap and water. If soap and water are not available, use an alcohol-based hand rub.
  • Avoid touching your eyes, nose and mouth. Germs spread this way.
  • Clean and disinfect surfaces and objects that may be contaminated with germs like the flu. 
  • Learn more at Take 3 Steps

For more information visit the Key Facts About Influenza.    

Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

Welcome to Caregiver Jewels, a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.
 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

February Tip

Communication Tip

From a family caregiver in the Florida Gulf Coast Chapter region. 

 

"My husband is having trouble hearing so when I start to talk to him I ask him to look at me.....he has had lip reading training and can read lips very well....that seems to keep him from yelling at me...."What did you say?"

 

The above tip highlights the importance of accommodating for hearing or vision impairments of the person being cared for. Dementia affects a person's ability to speak and understand language; deficits in hearing and vision can compound difficulties with understanding. The caregiver can help by:

  1. Encourage the person to wear their hearing aid and/or glasses (be sure batteries are working and glasses are clean!)
  2. Approach the person from the front.
  3. Make eye contact
  4. Speak slowly and clearly

For more communication tips click here.

 

Correction: January's tip was submitted by a caregiver in Polk County

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

 

Catherine Cruikshank, Director of Education
Emily Reese, Program Specialist

Collier - Lee Office

 

Alzheimer's Association, FGCC
9220 Bonita Beach Road, Suite 223
Bonita Springs, Florida, 34135
Telephone: (239) 405-7008
Facsimile: (239) 405-7038

 

Website: www.alz.org/flgulfcoast

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900
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