Florida Gulf Coast Chapter

 

Sarasota County Update 

February 2013

In This Issue
Support Groups
Planning Ahead
NIA Announces Funding of New AD Research Studies
Behavior: a Form of Communication
Care for the Caregiver: Seasonal Flu
Caregiver Jewels: Communication Tip
Calendar
All programs are free to attend unless otherwise specified.

  

February 1, Caregiver Training, Basics of Alzheimer's Disease. Senior Friendship Center, 1820 Brother Geenen Way, Sarasota, 10:00 a.m. - 12:00 p.m. 

 

February 8, Memory Mobile/Health Fair, Harbor Isles, 506 Amberjack Drive, North Port, 10:00 a.m. - 1:00 p.m.

 

February 12, Caregiver Training, Challenging Behaviors. Windsor of Venice, 1600 Center Road, Venice, 2:00 p.m. - 4:00 p.m. 

 

February 15, Caregiver Training, Tidewell of Venice, 220 Wexford Boulevard, Venice, 2:00 p.m. - 4:00 p.m. 

 

February 28, Caregiver Training "Think About it Venice", Christ United Methodist Church, 1475 Center Road, Venice, 9:00 a.m. - 3:00 p.m. 

 

 

Upcoming in March 

 

March 1, Caregiver Training, Basics of Alzheimer's Disease. Senior Friendship Center, 1820 Brother Geenen Way, Sarasota 10:00 a.m. - 12:00 p.m.

 

March 7, Caregiver Training, Basics of Alzheimer's Disease. Comfort Keeper, 3667 Webber Street, Sarasota 10:00 a.m. - 12:00 p.m. 

Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

SARASOTA


Arden Courts
5509 Swift Road, (34231)
1ST Wednesday @ 5:30 p.m.
Erin Killian   941-365-8883
Nikki Rodney  941-925-3900


Clare Bridge
8450 McIntosh Road (34238)
2nd Tuesday @ 4:00 p.m.
Jerri Andree  941-928-4753


Senior Friendship Center
Caregiver Resource Center
1820 Brother Geenan Way (34236)
Every Thursday @ 10:00 a.m.
Paula Falk  941-556-3268


SMH Memory Disorder Clinic
Senior Friendship Center For Healthy Aging
Dwyer Bldg., 1st Floor
1888 Brother Geenen Way (34236)
3rd Thursday @ 9:30 a.m.
Kathleen Houseweart   941-917-7197
(Dual support group for Mild Cognitive
Impairment & Early Stage patients & families)


Heron Club at Prestancia
3749 Sarasota Square Boulevard (34238)
3rd Thursday @ 5:30 p.m.

Rosa Juarez 941-955-7575

 

Heron House

3221 Fruitville Road (34237)

3rd Thursday @ 5:30 p.m.

Dawn Fletcher 941-955-7575


Palmer Ranch Healthcare
5111 Palmer Ranch Parkway (34238)
3rd Wednesday at 10:00 a.m.
Susan Garbett   941-358-1209


Springwood Nursing and Rehab
4602 Northgate Court
3rd Tuesday @ 4:00 p.m.
Amy Paine  941-355-2913


Pines of Sarasota
1501 N. Orange Ave.
3rd Tuesday @ 2:00 p.m.
Ann Modercin  941-365-0250


Emeritus of Colonial Park Club
4730 Bee Ridge Road  (34233)
1st Tuesday @ 6:00 p.m.
Maggie DiFranco & Julie Schechter
941-378-4414


Horizon Bay
730 South Osprey Avenue  (34236)
3rd Wednesday @ 3:00 p.m.
Jerri Andree   941-928-4753


VENICE


Aston Gardens @ Pelican Point
9000 Ibis Way  (34292)
4th Wednesday @ 3:00 p.m.
Pat Quigley    941-484-9494


Pinebrook Nursing Center
1240 Pinebrook Road (34285)
3rd Monday @ 2:30 p.m.
(Family social and support group)
Connie Gens   941-488-6733


Senior Friendship Center/Venice
2350 Scenic Drive (34293)
Every Tuesday @ 2:00 p.m.
Phyllis Balliett     941-584-0050


Christ United Methodist Church
1475 Center Road (34292)
Second Tuesday @ 1:00 p.m.
Janet Harrod      404-641-2276


ENGLEWOOD


Emeritus at River Oaks
925 South River Road (34223)
3rd Wednesday @ 10:00 a.m.
Sherri Blanchard   941-474-8600


Elsie Quirk Library
100 W. Dearborn St.
Last Wednesday @ 6:30 p.m.
Phyllis Balliett, 941-584-0050 



* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

 

Planning Ahead
Putting financial and legal plans in place now allows the person with dementia to express wishes for future care and decisions. It also allows time to work through the complex issues involved in long-term care.

Legal planning should include:

  • Making plans for health care and long-term care
  • Making plans for finances and property
  • Naming another person to make decisions on behalf of the person with dementia

Legal Documents

Legal documents help ensure that the wishes of the person with dementia are followed as the disease progresses and make it possible for others to make decisions on behalf of the person when he or she no longer can.

For more information about planning and legal documents visit Planning Ahead
Quick Links
  
Like us on Facebook
NIA Announces Funding of New Alzheimer's Research Studies
The National Institute on Aging (NIA) has announced the funding of four Alzheimer's therapy-related research studies investigating a variety of techniques, including a clinical trial of an anti-amyloid drug in people with pre-symptomatic Alzheimer's, an exercise intervention in MCI and a drug for reducing agitation.

The trials will be conducted by the Alzheimer's Disease Cooperative Study, a national consortium of academic medical centers and clinics established by the National Institutes of Health to collaborate on the development of Alzheimer's treatments and diagnostic tools.
 
The funding for these projects comes from the regular NIA budget, not from increased 2013 funds due to the National Plan to Address Alzheimer's Disease.
 
"The four research studies announced by the NIH are significant steps in the fight to better treat and eventually prevent Alzheimer's disease. However, because of the chronic underfunding of Alzheimer's research, there are many more equally valid and necessary investigations that are not happening," said William Thies, Ph.D., Alzheimer's Association senior scientist in residence.
 
"The Alzheimer's Association believes that if we are to more quickly unravel the important questions about Alzheimer's disease cause, risk, treatment and prevention, we must make a greater commitment to research. The first-ever U.S. National Plan to Address Alzheimer's Disease was unveiled in May 2012, and now this plan must be effectively implemented. An additional $100 million has been recommended for 2013 for Alzheimer's research, and now must be confirmed," Thies said.
  
For more information visit NIA or visit AA Research Center.  
Behavior: a Form of Communication
Adapted from the Alzheimer's Association Behavior Brochure

 

Alzheimer's disease and related dementias (ADRD) can cause a person to act in different and unpredictable ways. Some individuals with ADRD become anxious or aggressive. Others repeat certain questions or gestures. Many misinterpret what they hear.

 

These types of reactions can lead to misunderstanding, frustration and tension, particularly between the person with dementia and the caregiver. It is important to understand that the person is not acting that way on purpose. Individuals with ADRD are not mad at you but rather are trying to convey a message.

 

Behavior may be related to:

  • Physical discomfort: illnesses or medication
  • Overstimulation: Loud noises or a busy environment
  • Unfamiliar surroundings: New places or the inability to recognize home
  • Complicated tasks: Difficulty with activities or chores
  • Frustrating interactions: Inability to communicate effectively

Three-Step Approach

Use this three-step approach to help identify common behaviors and their causes:

 

Identify and examine the behavior

  • What was the behavior? Is it harmful to the individual or others?
  • What happened just before the behavior occurred? Did something trigger it?
  • What happened immediately after the behavior occurred? How did you react?
  • Consult a physician to identify any causes related to medications or illness.

Explore potential solutions

  • What are the needs of the person with dementia? Are they being met?
  • Can adapting the surroundings comfort the person?
  • How can you change your reaction or your approach to the behavior? Are you responding in a calm and supportive way?

Try different responses

  • Did your new response help?
  • Do you need to explore other potential causes and solutions? If so, what can you do differently?

For more information visit the Caregiver Center.

Care for the Caregiver
Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.
  
Seasonal Flu
According to the the Centers for Disease Control and Prevention (CDC) the flu is high this season.  For this reason, they recommend influenza vaccination for people who have not yet been vaccinated this season and antiviral treatment as early as possible for people who get sick and are at high risk of flu complications. In addition, the CDC recommends taking everyday preventive actions to stop the spread of germs.
  • Try to avoid close contact with sick people.
  • If you are sick with flu-like illness, CDC recommends that you stay home for at least 24 hours after your fever is gone except to get medical care or for other necessities. (Your fever should be gone without the use of a fever-reducing medicine.)
  • While sick, limit contact with others as much as possible to keep from infecting them.
    Cover your nose and mouth with a tissue when you cough or sneeze. Throw the tissue in the trash after you use it.
  • Wash your hands often with soap and water. If soap and water are not available, use an alcohol-based hand rub.
  • Avoid touching your eyes, nose and mouth. Germs spread this way.
  • Clean and disinfect surfaces and objects that may be contaminated with germs like the flu. 
  • Learn more at Take 3 Steps

For more information visit the Key Facts About Influenza.    

Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

Welcome to Caregiver Jewels, a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.
 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

February Tip

Communication Tip

From a family caregiver in the Florida Gulf Coast Chapter region. 

 

"My husband is having trouble hearing so when I start to talk to him I ask him to look at me.....he has had lip reading training and can read lips very well....that seems to keep him from yelling at me...."What did you say?"

 

The above tip highlights the importance of accommodating for hearing or vision impairments of the person being cared for. Dementia affects a person's ability to speak and understand language; deficits in hearing and vision can compound difficulties with understanding. The caregiver can help by:

  1. Encourage the person to wear their hearing aid and/or glasses (be sure batteries are working and glasses are clean!)
  2. Approach the person from the front.
  3. Make eye contact
  4. Speak slowly and clearly

For more communication tips click here.

 

Correction: January's tip was submitted by a caregiver in Polk County

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

 

Katie Scott

Program Specialist 

Alzheimer's Association Florida Gulf Coast Chapter
3277-A Fruitville Road Sarasota, Florida 34237

Email: scottk@alzflgulf.org

Office: 941-365-8883

Fax: 941-365-8885

www.alz.org/flgulfcoast

Thank you!
Sarasota County
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900
___________________________________________________________________________________