Florida Gulf Coast Chapter

 

Hillsborough Update 

January 2013

In This Issue
Support Groups
Challenges of Caregiving
Walk to End Alzheimer's
Care for the Caregiver: Stress
Caregiver Jewels: Ensuring Good Nutrition
Calendar
All programs are free to attend unless otherwise specified.

 

*January 4th, Educational Presentation: The Basics of Alzheimer's at Congregation New Life, 8716 Garden Road, Tampa. 7:00 p.m. - 8:00 p.m. This is a Spanish/English presentation. For more information, call 800-272-3900.

 

*January 12th, Outreach: Health Fair with Spanish/English Memory Screenings at Knollwood Manor, 6801 Diana Court, Tampa. 9:00 a.m. - 2:00 p.m. For more information, contact Bill Simmons at (813) 503-1973.

 

January 19th, Outreach: Black Heritage Festival at Curtis Hixon Park, 600 North Ashley Drive, Tampa. 10:00 a.m. - 5:00 p.m. For more information, contact Pat Turner at (813) 914-7946.

 

*January 20th, Outreach: Black Heritage Festival with Memory Screenings at Curtis Hixon Park, 600 North Ashely Drive, Tampa. 10:00 a.m. - 5:00 p.m. For more information, contact Pat Turner at (813) 914-7946.

 

January 23rd, Outreach: Lifestyles After 50 Fun Fest at Florida State Fairgrounds, 4800 Highway 301 North, Tampa. 10:00 a.m. - 3:00 p.m. For more information, call (813) 653- 1988.

 

January 24th, Caregiver Training: You've Got the Diagnosis, Now What? at Hyde Park United Methodist Church, 500 West Platt Street, Tampa. 2:00 p.m. - 3:30 p.m. For more information and to RSVP, call Tally Nelson at (813) 251-6333. 

 

*January 29th, Caregiver Training: Alzheimer's Basic Course for Caregivers at South Tampa YMCA, 4411 South Himes Avenue, Tampa. 12:00 - 1:30 p.m. For more information, call 800-272-3900.  

 

February 

 

February 26th, Outreach: Lifestyles After 50 Fun Fest and Backwoods Walk at MOSI, 4801 East Fowler Avenue, Tampa. *Free Memory screenings on the Memory Mobile. 8:30 a.m. - 1:00 p.m. For more information, call (813) 653-1988. 

 

Indicates programs presented by the Alzheimer's Assocation- Florida Gulf Coast Chapter.
Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

Mild Cognitive Impairment Group
USF Alzheimer's Center
4001 East Fletcher Ave. Tampa
1st Floor Conference Room
Every 4th Thursday @ 2:00 p.m.
Facilitator: Nancy Teten (813) 974-4355

BRANDON
*Superior Residences of Brandon
1819 Providence Ridge Boulevard, 33511
3rd Monday @ 7:00 pm or 2nd Wednesday @ 2:00pm
Facilitators: Charlotte Howard (813) 681-1986
Nell Bieser, (813) 625-0846

LITHIA
Life Church at FishHawk
6420 Lithia Pinecrest Road, Lithia, 33547
1st Monday @ 7:00 p.m.
Facilitator: Eddie Broom (813) 681-6503

PLANT CITY
First Baptist Church
503 North Palmer Street, Plant City
2nd Tues. @ 2:00 p.m. Facilitators: Bill Barr and Stefanie Thompson (863) 292-9210

RIVERVIEW
The Bridges
11202 Dewhurst Drive
2nd Tuesday @ 2:00 p.m.
Facilitator: Nell Bieser, (813) 625-0846

SUN CITY CENTER
*Courtyards at Sun City Center Assisted Living
255 Courtyards Boulevard, 33573
4th Wednesday @ 1:30 p.m.
Facilitator: Candise Brown (813) 634-4497

*Sun Towers
101 Trinity Lakes Drive
3rd Tuesday @ 2:30 p.m.
Facilitator: Amy Brand, (813) 246-4120

Homewood Residence
3910 Galen Court, 33573
1st and 3rd Thursday @ 10:00 a.m.
Facilitator: Bev Hurley (813) 633-4340 bhurley@brookdaleliving.com

TAMPA
Hyde Park United Methodist Church
500 W. Platt Street
Knox Hall room 150
2nd Tuesday @ Noon
Facilitator: Mimi Buderus (813) 476-2628

Aston Gardens Westchase
11741 Lake Aston Court. Tampa 33626
3rd Thursday @ 5:30 p.m.
Facilitator: Arthur Mosley (813) 343 0272

Brighton Gardens of Tampa
16702 North Dale Mabry Highway, 33618
Last Thursday @ 6:00 p.m.
Facilitator: Laura Pinard, (813) 908-2333

*Emeritus at North Dale
3401 West Bearss Ave, 33618
2nd Wednesday @ 11:30 a.m.
Facilitator: Louise Gray, (813) 961-1044
Please call facility to arrange respite care

*Horizon Bay Memory Care by the Bay
2301 West Palm Avenue, Tampa, 33606
4th Tuesday @ 6:00 p.m.
Facilitator: Tally Nelson, (813) 251-6333

The South Tampa Family YMCA
4411 S. Himes Avenue, 33611
Last Tuesday @ 12:00 p.m.
Facilitator: Yvette Wilmath (813) 839-0210
yvette.wilmath@tampaymca.org


Hispanic Support Group
1810 West Clifton Street, 33603
First Thursday @ 7:00 - 8:30 p.m.
Facilitator: Madeline Rodriguez, (813) 871-3652

USF Alzheimer's Center
4001 E. Fletcher Ave.
First Floor Conference Room
1st Thursday of the month @ 2:00 p.m.
Facilitator: Eileen Poiley, (813) 974-4355
Free Parking

THONOTOSASSA
Stone Ledge Manor
12006 McIntosh Road
3rd Monday at 6:00 p.m.
Facilitators: Stormie Thayer & Cierra Henderson,
(813) 571-4117

* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

Challenges of Caregiving
A segment on the challenges of caregiving, particularly for the sandwich generation, aired on December 11, 2012 on NBC Nightly News. The story featured Alzheimer's Association advocate Troy Prater from Delaware Valley and Maria Carrillo, Association vice president of medical and scientific relations. Prater is a single father of 13-year-old triplets and is the primary caregiver for his mother living with Alzheimer's.
   
In this video link Mr. Prater states, 'I take better care of everyone else than I do myself'.  He is an example ofone of a growing number of caregivers providing care to two generations.

In this video link, Dr. Carrillo, describes the difficulties the disease poses not only to those who suffer from it, but to caregivers.
Quick Links
  
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Walk to End Alzheimer's
Raises $676,128 in the Florida Gulf Coast Region

The Alzheimer's Association Walk to End Alzheimer's is the largest fundraiser dedicated to Alzheimer's disease care, support
and research programs.

During the 2012 Walk season, more than 5690 residents from the Florida Gulf Coast region joined the Alzheimer's Association's Walk to End Alzheimer's and united in a movement to reclaim the future for millions.

Walk to End AD 2012

Participants raised more than $676,128 to fund Alzheimer's care, support and research programs.

"I was inspired by residents of the Florida Gulf Coast uniting in the fight against Alzheimer's disease at Walk to End Alzheimer's," said Gloria Smith, President & CEO, Florida Gulf Coast chapter, Alzheimer's Association.  "With funds raised, the Alzheimer's Association will be able to provide much needed care and support to people affected by the disease as well as fund critically needed Alzheimer's research."
  
For more information visit our Walk page
Care for the Caregiver
Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.
  
Stress
According to the American Psychological Association (APA), stress tends to promote unhealthy choices. "Those of us who are stressed are more likely to report hypertension, anxiety or depression and obesity. Women especially report they feel the effects of stress on their physical health. Given the number of health complications related to stress, it is fair to say stress certainly is a health problem in America" (2012, para. 1).
  
Learn more about stress through the APA's Stress Smarts quiz.
  
For more information about how stress affects caregivers view the ten warning signs of caregiver stress brochure or take the caregiver stress check.
  
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

Welcome to Caregiver Jewels, a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.
 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

January Tip
Ensuring good nutrition

  

A family caregiver from Hillsborough County submitted the following nugget:

My husband is more interested in eating if his meal is in a divided plate. Small portions can be put in each section, and he can manage feeding himself quite well that way. Sometimes I'll add another small bowl with raw veggies or fruit segments. He eats more fruit and vegetables if they're cut up and in their individual pretty bowl.

Maintaining good nutrition in someone with Alzheimer's disease or a related dementia can be challenging. Possible causes of a poor appetite:
  • Not recognizing food. The person may no longer recognize the foods you put on his or her plate.
  • Poor fitting dentures. Eating may be painful, but the person may not be able to tell you this. Make sure dentures fit and visit the dentist regularly.
  • Medications. New medications or a dosage change may affect appetite. If you notice a change, call the doctor.
  • Not enough exercise. Lack of physical activity will decrease appetite. Encourage simple exercise, such as going for a walk, gardening or washing dishes.  
  • Decreased sense of smell and taste. The person with dementia may not eat because food may not smell or taste as good as it once did.  

   
 

For more information about how to support good nutrition visit this link.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Resolving Family Conflicts
Dealing with Alzheimer's can bring out many strong emotions. As the disease progresses, caregiving issues can often ignite or magnify family conflicts. Here are some strategies that may help families cope with the situation together.

Listen to each family member with respect.
Coping with a progressive illness, such as Alzheimer's, can be stressful - and not everyone reacts in the same way. Family members may have different opinions. Some relatives may deny what is happening; a long-distance relative may be resented for living far away; or there may be disagreement about financial and care decisions, especially at the end-of-life. These issues are complex and require ongoing discussions. Give everyone an opportunity to share their opinion and avoid blaming or attacking each other, as this will only cause more hurt.

Discuss caregiving responsibilities.
Talk through caregiving roles and responsibilities. Make a list of tasks and include how much time, money and effort may be involved to complete them. Divide tasks according to the family member's preferences and abilities. Some family members may be hands-on caregivers, responding immediately to issues and organizing resources. Others may be more comfortable with being told to complete specific tasks. Our online Care Team Calendar can help you coordinate.

Continue to talk.
Keep the lines of communication open. Schedule regular meetings or conference calls to keep everyone involved up-to-date. Discuss how things are working, reassess the needs of the person with Alzheimer's, and decide if any changes in responsibilities are needed. Plan for anticipated changes as the disease progresses.

Cope with changes and loss together.
As Alzheimer's progresses and cognitive abilities change, it is normal to experience feelings of loss. Caregivers and family members may want to seek support from others who are dealing with similar situations. Support groups are available. Find an Alzheimer's Association support group in your area or join our online message boards.

Seek outside help.

If tensions and disagreements are ongoing, you may want to seek help from a trusted third party, such as a spiritual leader, mediator or counselor. Sometimes, an outside perspective can help everyone take a step back and work through the difficult issues. The Alzheimer's Association Helpline (1.800.272.3900) is staffed with care consultants who can help any time - day or night. 
If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,
 

Stephanie McGovern, Program Specialist
Phone: 813.684.1296 Fax: 813.685.7213
mcgoverns@alzflgulf.org

AJ Cipperly, Program Specialist
Phone: 727.259.2312 Fax: 727.578.2286
cipperlya@alzflgulf.org  

 
Alzheimer's Association Florida Gulf Coast Chapter
www.alz.org/flgulfcoast
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900
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