Florida Gulf Coast Chapter

 

CharlotteDeSoto Update 

January 2013

In This Issue
Support Groups
Challenges of Caregiving
Walk to End Alzheimer's
Care for the Caregiver: Stress
Caregiver Jewels: Ensuring Good Nutrition
Resolving Family Conflicts
Calendar
All programs are free to attend unless otherwise specified.
  
January 15, Caregiver Training, Basics of Alzheimer's Disease. Gulf View Encore Park, 10205 Burnt Store Road, Punta Gorda, 11:15 a.m. - 1:15 p.m.
  
January 15, Caregiver Training, Better Communication. Punta Gorda Library, 424 West henry Street, Punta Gorda, 2:00 p.m. - 4:00 p.m.
  
January 22, Caregiver training, Challenging Behaviors. Gulf View Encore Park, 10205 Burnt Store Road, Punta Gorda, 11:15 a.m. - 1:15 p.m.
  
January 29, Caregiver training, Better Communication, Gulf View Encore Park, 10205 Burnt Store Road, Punta Gorda, 11:15 a.m. - 1:15 p.m. 
  
Upcoming in February
  
February 19, Caregiver Training, Family Issues and Caregiver Stress. Punta Gorda Library, 424 West Henry Street, Punta Gorda, 2:00 p.m. - 4:00 p.m.  
  
Indicates programs presented by the Alzheimer's Association- Florida Gulf Coast Chapter.
Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

PORT CHARLOTTE 


*Royal Palm Retirement Center  
2500 Aaron Street (33952)   
4th Tuesday @ 10:00 a.m.   
Erin Killian, 941-235-7470      


South Port Square (Harbor Terrace) 
23033 Westchester Blvd.   
3rd Tuesday @ 3:00 p.m. 
Marlene Bernard, 941-625-1220       


Saint Maximilian Kolbe Catholic Church
1441 Spear Street (33948)
4th Thursday @ 2:30 p.m.
Judy Jahn, 941-286-0584
Irma Nin, 941-504-2621


Port Charlotte Methodist Church
18400 Quesada Avenue (33952)
3rd Thursday @ 3:00 p.m.
Terri Jackman, 941-276-4307
Bea Ramirez, 941-624-4448


Charlotte Harbor Healthcare
4000 Kings Highway
3rd Thursday @4:00 p.m.
Elaine DeHof, 941-255-5855

 

PUNTA GORDA       

Life Care Center     
450 Shreve Street (33950)    
3rd Monday @ 3:00 p.m.    
Kelly Christie, 941- 639-8771

 

Punta Gorda Isles Civic Association
2001 Shreve Street (33950)
2nd Tuesday @ 3:00 p.m.
Terri Jackman, 941-276-4307
Bea Ramirez, 941-624-4448

 

ARCADIA

 

Arcadia Oaks
1013 Gibson St. (34266)
4th Monday @ 11:00 a.m.
2nd Saturday @ 10:00 a.m.
Evelyn Donato, 863-993-9760 


* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

 

Challenges of Caregiving
A segment on the challenges of caregiving, particularly for the sandwich generation, aired on December 11, 2012 on NBC Nightly News. The story featured Alzheimer's Association advocate Troy Prater from Delaware Valley and Maria Carrillo, Association vice president of medical and scientific relations. Prater is a single father of 13-year-old triplets and is the primary caregiver for his mother living with Alzheimer's.
   
In this video link Mr. Prater states, 'I take better care of everyone else than I do myself'.  He is an example of one of a growing number of caregivers providing care to two generations.

In this video link, Dr. Carrillo, describes the difficulties the disease poses not only to those who suffer from it, but to caregivers.
Quick Links
  
Like us on Facebook
Walk to End Alzheimer's
Raises $676,128 in the Florida Gulf Coast Region

The Alzheimer's Association Walk to End Alzheimer's is the largest fundraiser dedicated to Alzheimer's disease care, support
and research programs.

During the 2012 Walk season, more than 5690 residents from the Florida Gulf Coast region joined the Alzheimer's Association's Walk to End Alzheimer's and united in a movement to reclaim the future for millions.

Walk to End AD 2012

Participants raised more than $676,128 to fund Alzheimer's care, support and research programs.

"I was inspired by residents of the Florida Gulf Coast uniting in the fight against Alzheimer's disease at Walk to End Alzheimer's," said Gloria Smith, President & CEO, Florida Gulf Coast chapter, Alzheimer's Association.  "With funds raised, the Alzheimer's Association will be able to provide much needed care and support to people affected by the disease as well as fund critically needed Alzheimer's research."
  
For more information visit our Walk page
Care for the Caregiver
Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.
  
Stress
According to the American Psychological Association (APA), stress tends to promote unhealthy choices. "Those of us who are stressed are more likely to report hypertension, anxiety or depression and obesity. Women especially report they feel the effects of stress on their physical health. Given the number of health complications related to stress, it is fair to say stress certainly is a health problem in America" (2012, para. 1).
  
Learn more about stress through the APA's Stress Smarts quiz.
  
For more information about how stress affects caregivers view the ten warning signs of caregiver stress brochure or take the caregiver stress check.
  
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

Welcome to Caregiver Jewels, a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.
 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

January Tip
Ensuring good nutrition
  
A family caregiver from Hillsborough County submitted the following nugget:

My husband is more interested in eating if his meal is in a divided plate. Small portions can be put in each section, and he can manage feeding himself quite well that way. Sometimes I'll add another small bowl with raw veggies or fruit segments. He eats more fruit and vegetables if they're cut up and in their individual pretty bowl.

Maintaining good nutrition in someone with Alzheimer's disease or a related dementia can be challenging. Possible causes of a poor appetite:
  • Not recognizing food. The person may no longer recognize the foods you put on his or her plate.
  • Poor fitting dentures. Eating may be painful, but the person may not be able to tell you this. Make sure dentures fit and visit the dentist regularly.
  • Medications. New medications or a dosage change may affect appetite. If you notice a change, call the doctor.
  • Not enough exercise. Lack of physical activity will decrease appetite. Encourage simple exercise, such as going for a walk, gardening or washing dishes.  
  • Decreased sense of smell and taste. The person with dementia may not eat because food may not smell or taste as good as it once did.  

For more information about how to support good nutrition visit this link.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Resolving Family Conflicts
Dealing with Alzheimer's can bring out many strong emotions. As the disease progresses, caregiving issues can often ignite or magnify family conflicts. Select this link for strategies that can help families cope with the situation together. 
If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

  

Erin Killian

Program Specialist 

Alzheimer's Association Florida Gulf Coast Chapter
Charlotte County office Located at:
4075 Tamiami Trail
Port Charlotte, FL 33952
Telephone: 941-235-7470   Facsimile: 941-235-7473
Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900