Florida Gulf Coast Chapter

 

Lee Update 

January 2013

In This Issue
Support Groups
Walk to End Alzheimer's
Care for the Caregiver: Stress
Caregiver Jewels: Ensuring Good Nutrition
Resolving Family Conflicts
Challenges of Caregiving
Calendar
All programs are free to attend unless otherwise specified.
Registration for programs is appreciated. Contact Emily Reese at 239-405-7008 or reesee@alzflgulf.org

 

January 3, Thursday, Caregiver Education: Care Transitions and Options at Clare Bridge of Cape Coral, 911 Santa Barbara Blvd., Cape Coral. 10:00 a.m. to 11:30 a.m.
Home Care to Nursing Homes, important information for decision making.  How to know when help is needed. Tips for easing the transition for the person with dementia and potential sources of financial assistance.

 

January 11, Friday, Outreach: Memory Mobile Stop at Boca Grande Health Clinic, 320 Park Ave., Boca Grande. 10:00 a.m. to 4:00 p.m.
Free Memory Screenings and Educational Information will be available. Memory Screening appointments are not necessary but recommended, contact 941-964-0490 to schedule.

 

January 14, Monday, Caregiver Education: Lost Your Keys?  at Senior Friendship Center, 5272 Summerlin Commons Way, Suite 604, Fort Myers. 10:00 a.m. to 11:30 a.m.
Learn what is normal age related memory changes and when you should have concern. Understand the different types of dementia and the importance of a good diagnosis and what is currently know about maintain good brain health.

 

January 17, Thursday, Caregiver Education: HBO Series Momentum in Science Part 1 at Clare Bridge of Fort Myers, 13565 American Colony Blvd., Fort Myers. 10:00 a.m. to 12:00 p.m.
This two part series reveals some of the most cutting-edge research advances. Learn what scientists have discovered about the healthy body and brain connection. What do the scientists know about Alzheimer's disease and where the research is taking us.

 

January 28, Monday, Caregiver Education: Responding to Communication Changes at Senior Friendship Center, 5272 Summerlin Commons Way, Suite 604, Fort Myers.
Addresses the challenges faced by people living with Alzheimer's disease or dementia and family caregivers, and tips and techniques to make communication the least frustrating as possible for everyone.


January 29, Tuesday, Outreach: Memory Mobile Stop at Share Club North, 5170 Orange Grove Blvd., North Fort Myers. 10:00 a.m. to 4:00 p.m.
Free Memory Screenings and Educational Information will be available. Memory Screening appointments are not necessary but recommended, contact Emily Reese at 239-405-7008 or reesee@alzflgulf.org to schedule.
 

January 30, Wednesday, Outreach: Memory Mobile Stop at Beacon of Hope, 5465 Pine Island Rd., Bokeelia. 10:00 a.m. to 4:00 p.m.
Free Memory Screenings and Educational Information will be available. Memory Screening appointments are not necessary but recommended, contact Emily Reese at 239-405-7008 or reesee@alzflgulf.org to schedule.


February 4, Monday, Caregiver Education: Understanding and Addressing Challenging Behaviors at Senior Friendship Center, 5272 Summerlin Commons Way, Suite 604, Fort Myers. 10:00 a.m. to 11:30 a.m.
Learn to recognize common environmental and emotional "triggers" that can lead someone with memory loss to behave differently than before and to behave in ways that can be characterized as challenging. Caregivers will be provided tips on ways to respond to challenging behaviors through the progression of Alzheimer's disease.

 

February 7, Thursday, Caregiver Education: Caregiver Tips from the Traveling Teapot at Clare Bridge of Cape Coral, 911 Santa Barbara Blvd., Cape Coral. 10:00 a.m. to 11:30 a.m.
Learn tips on managing the demands and stress of being a caregiver and why it is so important to do so!

 

February 7, Thursday, Caregiver Education: Caregiver Tips from the Traveling Teapot at Emeritus at the Lakes, 7460 Lake Breeze Dr., Fort Myers. 3:00p.m. to 4:30p.m. 
Learn tips on managing the demands and stress of being a caregiver and why it is so important to do so!

 

February 11, Monday, Outreach: Memory Mobile Stop at Bank of the Islands, 1699 Periwinkle Way, Sanibel. 10:00 a.m. to 4:00 p.m.
Free Memory Screenings and Educational Information will be available. Memory Screening appointments are not necessary but recommended, contact Emily Reese at 239-405-7008 or reesee@alzflgulf.org to schedule.

 

February 12, Tuesday, Outreach: Memory Mobile Stop at Presbyterian Homes, 1301 Woodward Ct., Lehigh Acres. 10:00 a.m. to 3:00 p.m.
Free Memory Screenings and Educational Information will be available. Memory Screening appointments are not necessary but recommended, contact Emily Reese at 239-405-7008 or reesee@alzflgulf.org to schedule.

 

February 13, Wednesday, Outreach: Memory Mobile Stop at Faith United Methodist Church, 15690 McGregor Blvd., Fort Myers 10:00 a.m. to 4:00 p.m.
Free Memory Screenings and Educational Information will be available. Memory Screening appointments are not necessary but recommended, contact Emily Reese at 239-405-7008 or reesee@alzflgulf.org to schedule.

 

February 18, Monday, Caregiver Education: Care Transitions and Options at Senior Friendship Center, 5272 Summerlin Commons Way, Suite 604, Fort Myers. 10:00 a.m. to 11:30 a.m.
Home Care to Nursing Homes, important information for decision making.  How to know when help is needed. Tips on easing the transition for the person with  dementia  and potential sources of financial assistance will be discussed.
 
 

February 21, Thursday, Caregiver Education: HBO Series Momentum in Science Part 2 at Clare Bridge of Fort Myers, 13565 American Colony Blvd., Fort Myers. 10:00 a.m. to 12:00 p.m.
This two part series reveals some of the most cutting-edge research advances. Learn what scientists have discovered about the healthy body and brain connection. What do the scientists know about Alzheimer's disease and where the research is taking us.

Support Groups

 

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions or for respite care information so you can attend a group, call your local office or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

CAPE CORAL
Christ Lutheran Church
2911 Del Prado Blvd.
2nd Wednesday at 11:00 a.m.
Emily Reese, 239-405-7008

FORT MYERS
Clare Bridge of Fort Myers*
13565 American Colony Boulevard (33919)
2nd Wednesday @ 6:00 p.m.
Claudia Jennings, 239-823-5455

Westminster Presbyterian Church
9065 Ligon Ct.
1st Wednesday @ 2:00 p.m.
Emily Reese (239) 405-7008

BONITA SPRINGS
Millennium House of Southwest Florida*
8951 Bonita Beach Road, Suite 297 (34135)
1st Wednesday @ 5:00 p.m.
Catherine Cruikshank (239) 405-7008 
 


* Indicates Free Respite is provided by the support group host during the support group meeting. Please call in advance for reservations. 

Quick Links
  
Like us on Facebook
Walk to End Alzheimer's
Raises $676,128 in the Florida Gulf Coast Region

The Alzheimer's Association Walk to End Alzheimer's is the largest fundraiser dedicated to Alzheimer's disease care, support
and research programs.

During the 2012 Walk season, more than 5690 residents from the Florida Gulf Coast region joined the Alzheimer's Association's Walk to End Alzheimer's and united in a movement to reclaim the future for millions.

Walk to End AD 2012

Participants raised more than $676,128 to fund Alzheimer's care, support and research programs.

"I was inspired by residents of the Florida Gulf Coast uniting in the fight against Alzheimer's disease at Walk to End Alzheimer's," said Gloria Smith, President & CEO, Florida Gulf Coast chapter, Alzheimer's Association.  "With funds raised, the Alzheimer's Association will be able to provide much needed care and support to people affected by the disease as well as fund critically needed Alzheimer's research."
  
For more information visit our Walk page
Care for the Caregiver
Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one. Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.
  
Stress
According to the American Psychological Association (APA), stress tends to promote unhealthy choices. "Those of us who are stressed are more likely to report hypertension, anxiety or depression and obesity. Women especially report they feel the effects of stress on their physical health. Given the number of health complications related to stress, it is fair to say stress certainly is a health problem in America" (2012, para. 1).
  
Learn more about stress through the APA's Stress Smarts quiz.
  
For more information about how stress affects caregivers view the ten warning signs of caregiver stress brochure or take the caregiver stress check.
  
Caregiver Jewels
Emily Reese, Program Specialist, AAFGCC

Welcome to Caregiver Jewels, a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade.
 
For the column to be a success we need your input!
It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!
Send your tip to reesee@alzflgulf.org or contact your local office.

January Tip
Ensuring good nutrition
  
A family caregiver from Hillsborough County submitted the following nugget:

My husband is more interested in eating if his meal is in a divided plate. Small portions can be put in each section, and he can manage feeding himself quite well that way. Sometimes I'll add another small bowl with raw veggies or fruit segments. He eats more fruit and vegetables if they're cut up and in their individual pretty bowl.

Maintaining good nutrition in someone with Alzheimer's disease or a related dementia can be challenging. Possible causes of a poor appetite:
  • Not recognizing food. The person may no longer recognize the foods you put on his or her plate.
  • Poor fitting dentures. Eating may be painful, but the person may not be able to tell you this. Make sure dentures fit and visit the dentist regularly.
  • Medications. New medications or a dosage change may affect appetite. If you notice a change, call the doctor.
  • Not enough exercise. Lack of physical activity will decrease appetite. Encourage simple exercise, such as going for a walk, gardening or washing dishes.  
  • Decreased sense of smell and taste. The person with dementia may not eat because food may not smell or taste as good as it once did.  

For more information about how to support good nutrition visit this link.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Resolving Family Conflicts
Dealing with Alzheimer's can bring out many strong emotions. As the disease progresses, caregiving issues can often ignite or magnify family conflicts. Here are some strategies that may help families cope with the situation together. 
  
         Listen to each family member with respect.
Coping with a progressive illness, such as Alzheimer's, can be stressful - and not everyone reacts in the same way. Family members may have different opinions. Some relatives may deny what is happening; a long-distance relative may be resented for living far away; or there may be disagreement about financial and care decisions, especially at the end-of-life. These issues are complex and require ongoing discussions. Give everyone an opportunity to share their opinion and avoid blaming or attacking each other, as this will only cause more hurt.
         Discuss caregiving responsibilities.
Talk through caregiving roles and responsibilities. Make a list of tasks and include how much time, money and effort may be involved to complete them. Divide tasks according to the family member's preferences and abilities. Some family members may be hands-on caregivers, responding immediately to issues and organizing resources. Others may be more comfortable with being told to complete specific tasks. Our online Care Team Calendar can help you coordinate.
         Continue to talk.
Keep the lines of communication open. Schedule regular meetings or conference calls to keep everyone involved up-to-date. Discuss how things are working, reassess the needs of the person with Alzheimer's, and decide if any changes in responsibilities are needed. Plan for anticipated changes as the disease progresses.
         Cope with changes and loss together.
As Alzheimer's progresses and cognitive abilities change, it is normal to experience feelings of loss. Caregivers and family members may want to seek support from others who are dealing with similar situations.  Support groups are available.  Find an Alzheimer's Association support group in your area or join our online message boards.
         Seek outside help.
If tensions and disagreements are ongoing, you may want to seek help from a trusted third party, such as a spiritual leader, mediator or counselor. Sometimes, an outside perspective can help everyone take a step back and work through the difficult issues. The Alzheimer's Association Helpline (1.800.272.3900) is staffed with care consultants who can help any time - day or night. 
Challenges of Caregiving
A segment on the challenges of caregiving, particularly for the sandwich generation, aired on December 11, 2012 on NBC Nightly News. The story featured Alzheimer's Association advocate Troy Prater from Delaware Valley and Maria Carrillo, Association vice president of medical and scientific relations. Prater is a single father of 13-year-old triplets and is the primary caregiver for his mother living with Alzheimer's.
   
In this video link Mr. Prater states, 'I take better care of everyone else than I do myself'.  He is an example ofone of a growing number of caregivers providing care to two generations.

In this video link, Dr. Carrillo, describes the difficulties the disease poses not only to those who suffer from it, but to caregivers.
If you have questions, concerns or just wish to talk to someone please feel free to contact us. 

Sincerely,

Emily Reese, Program Specialist
Catherine Cruikshank, Director of Education
Lee - Collier Office

Alzheimer's Association, FGCC
9220 Bonita Beach Road, Suite 223
Bonita Springs, Florida, 34135
Telephone: (239) 405-7008
Facsimile: (239) 405-7038

Email: reesee@alzflgulf.org, cruikshankc@alzflgulf.org 

Website: www.alz.org/flgulfcoast

 

  

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900
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