Florida Gulf Coast Chapter

Pinellas Update 

December 2012

In This Issue
Support Groups
Access to Rehab
Spotlighting Alzheimer's
Care for the Caregiver: Diabetes
Caregiver Jewels: Redirection
Holidays

Calendar

All programs are free to attend unless otherwise specified.
 
December 4th, Caregiver Training: Caring Through the Holidays at The Inn at Freedom Square, 10801 Johnson Boulevard, Seminole. 12:00 p.m. - 2:00 p.m. To RSVP, please call 727-398-0363.

 

December 12th, Advocacy: Pinellas County Legislative Delegation Meeting at the University of South Florida, St. Petersburg Campus, 200 6th Avenue South, St. Petersburg. 9:00 a.m. - 12:00 p.m. For more information, call 727-575-2558.

 

December 12th, Caregiver Training: Dealing with End Stage Dementia at Wright's Health Care and Rehabilitation Center, 11300 110th Avenue North, Seminole. 3:30 p.m. - 4:30 p.m. For more information, call 727-391-9986.

 

January 4th, Outreach: Health Fair with Memory Screenings at Jim West Prostate Cancer Foundation Mini Health, Nutrition and Fitness Expo at Gulfport Casino, 5500 Shore Boulevard South, Gulfport. 12:00 p.m. - 6:30 p.m. For more information, call 727-578-2558.

 

January 18th, Outreach: Health Fair with Memory Screenings at The Hampton at Clearwater, 1099 McMullen Booth Road, Clearwater. 10:00 a.m. - 2:00 p.m. For more information, call 727-578-2558.

 

January 25th, Outreach: Health Fair with Memory Screenings at Hale Senior Center Senior Awareness Fair at Hale Senior Center, 330 Douglas Avenue, Dunedin. 10:00 a.m. - 1:00 p.m. For more information, call 727-578.2558.

 

January 29th, Outreach: Health Fair with Memory Screenings at Point Brittany Health and Wellness Fair at Point Brittany, 5055 Brittany Drive South, St. Petersburg. 10:00 a.m. - 12:00 p.m. For more information, call 727-578-2558.

Support Groups

Alzheimer's Association-Florida Gulf Coast Chapter affiliated support groups are for family members, caregivers, and others interested in learning more about Alzheimer's disease. Meetings are open to everyone and free of charge. Support group facilitators have received training as required by Chapter and National Alzheimer's Association standards. For program information and to verify meeting dates, times, and locations, please use the telephone contacts listed below. For other questions, call our Pinellas Office at 727-578-2558 or 1- 800-272-3900.

 

Message Boards: The Alzheimer's Association message boards and chat rooms are your online communication forum. Our message boards have over 9,000 registered members from around the United States, and many more people who simply browse the stories and information that is offered 24 hours a day. Join the Alzheimer's Association online community.

 

EARLY STAGE SUPPORT GROUP - for persons early-on in the disease and their caregivers

Madonna Ptak Center for
Alzheimer's and Memory Loss
430 Morton Plant Street
1St Floor Conference Room
1st and 3rd Mondays @ 1:00 pm
Celisa Bonner, 727-298-6384


CLEARWATER
Freedom Inn at Countryside
3260 N. McMullen Booth Road
4th Thursday of month @ 4:00 pm
Stacy Geier, 727-210-1414

Madonna Ptak Center for Alzheimer's
And Memory Loss
430 Morton Plant Street
1St Floor Conference Room
2nd and 4th Monday @ 10:00 am
Celisa Bonner, 727-298-6384

Sunset Point Care & Rehab Center
1980 Sunset Point Road
First Thursday of month @ 3:00 pm
Divina Balorio, 727-443-1588

  

DUNEDIN
Dunedin Senior Center
330 Douglas Avenue
Wednesdays @ 10:00 am
Peg Macaluso, 727-578-2558

*Emeritus at Dunedin
880 Patricia Avenue
Last Tuesday of month at 6:00 pm
LaDonna Hylton, 727-734-4696

LARGO
*Arden Courts of Largo
300 Highland Avenue Northeast
4th Thursday @ 6:00 pm
Celisa Bonner , 727-559-8400

  

*Pinecrest Place
1150 8th Avenue Southwest
2nd Thursday @ 3:00 pm
AJ Cipperly, 727-578-2558

Regal Palms (Palms of Largo)
300 Lake Avenue Northeast
2nd Tuesday @ 6:00 pm
June Sharp/Tammy Dunlap, 727-437-1371

PINELLAS PARK
Bayside Terrace
9381 U.S. Highway 19 North
Tuesdays @ 1:30 pm
Jim Yanacheck, 727-576-1234

PALM HARBOR
*Arden Courts of Palm Harbor
2895 Tampa Road
3rd Monday @ 6:00 pm
Debbie Langrock, 727-771-1600
Alzheimer's & Lewy Body Dementia Group

*Harbor Chase
2960 Tampa Road
2nd Monday @ 5:30 pm
Linda Pinke, 727-781-8686

Palm Harbor Senior Center
1500 16th Street
Mondays @ 9:30 am
Pat Salatin, 727-937-8105

SEMINOLE
Inn at Freedom Square
10801 Johnson Boulevard
3rd Floor Activity Room
Wednesdays @ 1:30 pm
Megan White, 727-398-0185

  

SAINT PETERSBURG
Fountains at Boca Ciega
1255 Pasadena Avenue South
2nd and 4th Wednesdays @ 10:00 am
Catoura East, 727-812-3930

Menorah Manor
255 59th Street North
1st Thursday @ 3:30 pm
Gwen Kaldenberg, 727-345-2775, x. 3750

Pasadena Community Methodist Church
227 70th Street South
Tuesdays @ 5:30 pm
Wednesdays @ 9:30 am
Barbara Posey, 727-381-2499, x. 214  

 

An * indicates that Free Day Care is provided by the support group host facility or a partner during the support group meeting.  Please call in advance for reservations. 

Access to Rehab Services
National Alzheimer's Association

As one of the plaintiffs in the federal class action lawsuit Jimmo v. Sebelius, which challenged the Medicare Improvement Standard, the Alzheimer's Association applauds the recently announced proposed settlement. Under the settlement agreement, Medicare will pay for rehabilitative services, such as physical, speech and occupational therapy, if they maintain an individual's current condition or prevent or slow further deterioration and require the skills of a professional.
Quick Links

 

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Spotlighting Alzheimer's
Former Miss Universe Alicia Machando as Celebrity Contestant on Univision's Dance Competition
 

Today, more than 5 million Americans are living with

Alzheimer's disease and while whites make up the great majority of the individuals with the disease, available research suggests that Hispanics are one and one-half times more likely than whites to develop Alzheimer's and other dementias.  

Photo by A. Mateo/Univision.com

"The Alzheimer's Association is committed to increasing awareness about Alzheimer's and other dementias among all Americans," said Gloria Smith, Alzheimer's Association Florida Gulf Coast Chapter Executive Director/President. "But given the disproportionate impact of Alzheimer's on the Hispanic community, we believe it especially important to elevate concern in this community and we applaud Alicia Machado in her effort to shine a light on the disease." 

 

The Alzheimer's Association was chosen as the charity of choice by former Miss Universe, Alicia Machado, who competed in this season of Univision's reality show/dance competition "¡Mira Quién Baila! 3 (Look Who's Dancing).
 

The former Miss Universe and telenovela star joined nine other celebrities and 10 professional dancers as they competed on one of Univision's highest rated reality-competition shows, "¡Mira Quién Baila!" The program which aired Sunday evenings at 8pm ET/PT and 7pm CT chronicled the celebrity contestants' journey from workouts to rehearsals to dance performances. Winners were determined through a strict elimination process. Alicia Machado made it to the finals placing third.  

 

The need for education, information and supportive services for families living with Alzheimer's and other dementias in diverse communities is paramount. The Association has an expansive portfolio of tools, information and culturally and linguistically appropriate resources in Spanish and English for families affected by Alzheimer's and other dementias at every stage of the disease.

Care for the Caregiver
Stefanie Thompson, Sr. Prog. Specialist, AAFGCC

 

Caregivers may find that with so many responsibilities self care is placed as a lesser priority than care of a loved one.  Yet, staying physically and emotionally strong is key to healthier caregiving. To this end, this column is dedicated to health promotion and personal care for the caregiver.

 

Diabetes, Are You At Risk?
National Institute of Health

 

If you have wondered or possibly been told that you are at risk for developing diabetes or that you have prediabetes, you should know that diabetes prevention is proven, possible, and powerful. Studies show that people at high risk for diabetes can prevent or delay the onset of the disease by losing 5 to 7 percent of their weight, if they are overweight-that's 10 to 14 pounds for a 200-pound person. Two keys to success:

  • Get at least 30 minutes of moderate-intensity physical activity five days a week.
  • Eat a variety of foods that are low in fat and reduce the number of calories you eat per day.

In other words, you don't have to knock yourself out to prevent diabetes. The key is: small steps that lead to big rewards. Learn more about your risk for developing type 2 diabetes and the small steps you can take to delay or prevent the disease and live a long, healthy life: Diabetes Is Preventable.

Caregiver Jewels
Emily Reese, Program. Specialist, AAFGCC

 

Welcome to Caregiver Jewels, a column featuring caregiving tips by family and professional caregivers throughout our 17 county service area.  These "golden nuggets" represent caregiving strategies and tricks of the trade. 

 

For the column to be a success we need your input!

It may be a "golden nugget" you say to get your loved one to attend a program or an activity to redirect their attention. Whether your tip is a diamond, emerald or ruby - all are valuable! So, please share the wealth!

 

Send your tip to reesee@alzflgulf.org or contact your local office.

 

December Tip

Redirection:  the Simple Way

 

Redirection is a tool or technique used to solve a behavioral problem. Redirecting an individual may delay or prevent outbursts and inappropriate behaviors.  Gentle distractions with food, drink or activity can be effective.  

 

A family caregiver from Collier County submitted the following nugget:  

 

My sweet husband loves M&Ms. It's amazing that he doesn't know where he sleeps; he doesn't know where the bathroom is, and doesn't even really know what to do with the toilet or the bed. But he hasn't forgotten where we keep the M&Ms. If he's getting agitated or wanting to wander, we can put some M&Ms in a bowl and show it to him, and he'll almost always get distracted and focus on his treat. 

 

The above illustrates how small and simple a solution can be. It reminds to not overlook the obvious and to keep redirection person centered.   

 

Remember redirection should be offered in a reassuring tone. Never focus your redirection on reprimand or by saying "no" or "don't do that".  The most important thing to remember is that each person is unique. Activities and conversations that successfully redirect one person may not work with someone else.

 

Note: The information in this column is for informational purposes only and is not a substitute for professional or medical advice, diagnosis or treatment.

Holidays 
The holidays are a time when family and friends often come together. For families living with Alzheimer's and other dementias, the holidays can be challenging. With some planning and adjusted expectations, celebrations can still be happy, memorable occasions.

 

It is not uncommon for a loved one with a dementia to become overstimulated, agitated, or confused. 
Holiday festivities often create changes in the environment and daily routine. It is important to keep your regular routine. Trying to maintain a pleasant, meaningful and calm holiday while caring for your loved one can lead to feelings of anxiety, loneliness, and frustration.


Hints for coping with the holidays:
  1. Keep your regular routine. It is important for you and your family member with dementia.
  2. Try to maintain a positive attitude. Keep in mind that the holidays are also a time for memories and reflection as well as a time for joy.
  3. Give yourself permission to say no to obligation or invitation.
  4. Give yourself permission to ask for and say yes to offers of assistance from family, friends, and neighbors.
  5. Encourage friends and family to visit, but keep the number of visitors at a time to a minimum.
  6. Prepare activities or tasks to divert your loved one's attention to prevent them from becoming overstimulated or agitated.
  7. Accept invitations and enjoy the chance to be with friends and family, even if your loved one cannot attend. 
  8. Talk of past good times - special memories.
  9. Plan a smaller gathering.
  10. Celebrate earlier in the day.
  11. Reduce post-holiday stress. Arrange for respite care so you can enjoy a movie or lunch with a friend

The holidays can be stressful. Stress can be minimized with adjusted perspectives and expectations.  Read more about the holidays and dementia. 

If you have questions, concerns or just wish to talk to someone please feel free to contact us.  Our 24-hour HELPLINE number is 1-800-272-3900.

Sincerely,

 

Peggy Macaluso, Director of Advocacy & Program Specialist

AJ Cipperly, Program Specialist

Alzheimer's Association Florida Gulf Coast Chapter  

14010 Roosevelt Boulevard, Suite 709

Clearwater, FL 33762

Telephone: 727.578.2558 Facsimile: 727.578.2286

Email: macalusop@alzflgulf.org

          cipperlya@alzflgulf.org

Website: www.alz.org/flgulfcoast

Alzheimer's Association - Florida Gulf Coast Chapter
Chapter Headquarters, 14010 Roosevelt Blvd., Suite 709, Clearwater, FL 33762 Telephone: 727.578.2558

National Headquarters-Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601

Alzheimer's Association is a not-for-profit  501(c)(3) organization © 2010 Alzheimer's Association. All rights reserved. 

24/7 Helpline: 1.800.272.3900