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Upcoming Events
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Every Thursday
Saturday, May 18th from 1 - 4:00 PM:
Thursday, May 23rd
from 6:30-8 PM (PDT):
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| Member Spotlight | | |
Nancy Boicourt - May 2013
This last week I had the pleasure of interviewing one of our members, Nancy Boicourt. Nancy has been a member of the group since its inception three and a half years ago. During that time I have seen her almost completely disabled, and more recently I see her thriving. That is what caused me to want to interview her.
I want to preface this interview with letting you know that we discussed a lot about God, Jesus, and the power of Faith. If this is a subject that you are uncomfortable with, you might want to stop reading now. I will say that I suffered religious abuse in the past and have done a lot in the last couple of years to heal from that. This conversation with Nancy aided that healing process for me.
Nancy wanted to be very clear that this is her path to healing, and she does not expect that it is everyone's path; and she absolutely doesn't want to push her ideas on anyone else. However, her message is one of such miracles and hope that I felt it was worth sharing.
A little background...
Nancy will be 44 years old on June 1st. She is married to a wonderfully supportive man and has two daughters - one still living at home (in high school) and one who is married and lives in Idaho with children of her own. Nancy lives in Hillsboro, Oregon.
It was about 16 years ago, right after the birth of her youngest daughter, that Nancy first became ill with fibromyalgia. It was the birth that triggered the fibro for her. While she was never diagnosed with ME/CFS, it was strongly suspected that she also had that condition.
About 7 years ago, Nancy was able bodied, but having lots of symptoms of fibromyalgia although it hadn't been diagnosed yet. Working as an interior designer and artist, Nancy was painting murals on her church walls. As she worked with the paints and chemicals, she became more and more ill with ever- increasing pain levels. She now understands that it was MCS (multiple chemical sensitivities) that were causing her body to react to the chemicals in the paint.
Shortly after this, her dad died, which sent her into a deep depression and grieving that further eroded her health. This is when the fibromyalgia was finally diagnosed.
A further assault on her physical condition was when a drunk driver hit the car she and her husband were traveling in. This caused Nancy's condition to seriously worsen for the next two years.
She began to see a naturopath and, just as she was finally feeling a bit better, she was the passenger in a car that was again in an accident, seriously sending her health south once more.
At her worst, about a year ago, Nancy was on 26 medications! She had collected so many diagnoses that they literally filled an 8.5 x 11-inch paper, and she was doing very poorly.
It was about this time that another diagnosis was added to her growing list: narcolepsy. Nancy spoke about how she was driving home from a visit with her naturopath in Portland and repeatedly fell asleep behind the wheel on the Sunset Highway. At this point, she was only able to stay awake a total of about four hours a day. Those four hours were spent mostly in bed.
Continue Reading...
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We Are Seeking Volunteers...
The Fibromyalgia-ME/CFS Support Center, Inc. is needing volunteers to help with these positions:
- E-Newsletter Assistant Editor
- Facebook Group Moderator
- Fundraising Coordinator
- Social Event Coordinator
- Monthly Walk Coordinator
- Chat Night Host
- Virtual Assistant
Click here for a PDF with additional information.
In order for our community to remain viable and continue to offer the services, events, and information that benefit you, we need help.
If you know someone who might be interested in volunteering, please forward the attached information to them. They need not have fibromyalgia or ME/CFS to volunteer!
Thank you for your careful consideration of how you might help support your community.
It is with all of us working together that we are going to have the biggest impact on each other's lives and health.
Warmly, Tamara
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The Thriving Fibromite
MAY 2013 |
Greetings! Welcome to our new members. We're glad you're here!
Don't forget that our meeting will be at our new location this month! Now that the Frida Center is closed, we have moved to Valley Community Presbyterian Church near Jesuit High School in Hillsdale. More information can be found below.
Our meeting on the 18th is our 2nd Annual Retreat for the Soul. This year's theme is "Designing a Life You Love." The main talk will be by Kimberli Freilinger, Ms. Oregon Plus America 2013. She lives with mitochondrial disease, which shares a lot of the same symptoms as Fibro and ME/CFS.
The webinar on the 23rd of this month addresses "How To Have Healthy Relationships When Chronically Ill." Please join us for this important topic.
PS... Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and to him/her. |
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New Meeting Location Beginning in April
As you know, the Frida Center is now closed. That means that we will now be meeting in a new location.
We will meet at Valley Community Presbyterian Church beginning in April. The meeting room is free. AND, there is a built-in sectional that goes around most of the room. Comfortable seating anyone?
There is also a kitchenette attached to the room.
Valley Community Presbyterian Church
Fireside Room
8060 SW Brentwood
Portland, Oregon 97225
Map and Directions
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2nd Annual Retreat for the Soul ...Designing a Life You Love
Saturday, May 18th 1-4:00 PM
Join us as we celebrate Fibromyalgia-ME/CFS Awareness by honoring our body and soul at our second annual "Retreat for the Soul."
Our goal is that you leave this retreat inspired in body, mind and soul - with just a bit more emotional and physical energy to get through your days.
The agenda is as follows, with two short breaks at 2:00 PM and 3:00 PM. Come for all or part of the event.
1:00-1:15 PM: Introduction & Welcome
1:15-2:00 PM: Gentle Yoga & Core Strengthening, with Leslie Ellis, HeartSong Yoga & Wellness Center: All postures will be able to be done seated.
Attendees are eligible to receive a free yoga discovery session with Leslie after the event. The 30-45 minute discovery session includes: visiting the HeartSong studio, talking with Leslie about your needs in supporting your physical being, discussing how yoga might be beneficial and what the studio has to offer. Leslie ends each session with a short meditation and/or relaxation exercise.2:15-3:00 PM: The Dream Dinners Concept, with Jim McConnell, Dream Dinners Tualatin: A brief explanation of how Dream Dinners can help you save time and energy. Jim will have Chicken Paella for us to try. A green salad and beverages will also be provided.
3:15-4:00 PM: Designing a Life You Love, with Kimberli Freilinger, Mrs. Oregon Plus America 2013: Kimberli lives with mitochondrial disease, an illness with many of the same symptoms as Fibromyalgia and ME/CFS. She will speak to us on "Designing a life you love; Inspiring people with chronic illnesses to live life to the fullest."
Refreshments will be provided. Dress comfortably and bring anything that would make you feel more comfortable - pillow, blanket, favorite beverage. Also, if you have a yoga mat and want to bring it, that is great.This is going to be the event of the year. Hope you can make it!Date: Saturday, May 18th
Time: 1:00 - 4:00 PM
Location: Valley Presbyterian Community Church
Questions? Tamara Staples (503) 476-9520
Tami Stackelhouse (971) 832-9322,
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Webinar: How To Have Healthy Relationships When Chronically Ill
Thursday, May 24th 6:30-8 PM 
Living with chronic pain impacts every aspect of one's life, including relationships.
In this webinar, psychotherapist and fellow-pain sufferer, Deborah Barrett, PhD, LCSW will discuss challenges that affect individuals with chronic pain as well as how it affects the people in their life.
She will also suggest strategies to support each other and strive for relationships that are balanced, sustainable, and nourished.
Note from the Author
I came to the topic of this book through my own struggles with pain. I developed severe pain, fairly suddenly, in my late 20s, after having enjoyed many years unencumbered by any health problems beyond an occasional cold or minor injury. Once my pain began, however, it seemed relentless. Even after I was diagnosed and tried various treatments, the pain persisted. The pain seemed to worsen out of the blue, which made my life unpredictable and frightening. But every so often I would experience a short reprieve.
At that time, I was completing my doctorate in sociology at Stanford University. After months of terrible frustration over my unexplained ups and downs, I decided to apply my social science skills to uncover the reasons for these variations. By recording how I felt and whatever activities varied that day, I detected patterns and could test which ones made me better or worse. This approach turned my experience around. I improved enough to finish my Ph.D. and launch my career as a sociologist. At the same time, I began writing self-help articles for people with chronic pain. I found this work and the response I received to be satisfying. In my mid-30s, with a growing family, I decided to return to school for training in clinical social work so that I could work more directly with people who were suffering. My work as a psychotherapist has added to my thinking about ways to improve life with pain-and beyond pain.
Paintracking is the book I wish someone had handed me when I found myself in mysterious, debilitating pain. It draws from my professional experience and transformation as well as the empathy that comes from life in the pain trenches. I hope that its lessons, culled from medical, psychotherapeutic, and social scientific approaches, along with a dose of "hard knocks," will facilitate your own healing journey.
To Register for the Webinar (and receive call in/log in details via email, click here.
To read "How Webinars Work," click here.
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April Recordings Now Posted...
Webinar: Neuroplasticity: How It Can Hurt, How It Can Help
Our April webinar featured Jill Fancher, PhD, author of "Managing Your Pain" and chronic pain patient, herself.
Neuroplasticity: (from neural - pertaining to the nerves and/or brain and plastic - moldable or changeable in structure), also known as brain plasticity, refers to changes in neural pathways and synapses which are due to changes in behavior, environment and neural processes, as well as changes resulting from bodily injury.[1] Neuroplasticity has replaced the formerly-held position that the brain is a physiologically static organ, and explores how - and in which ways - the brain changes throughout life. ~ from Wikipedia
The brain and body changes in response to stimulation from sources inside and outside of the body. Persistent pain signals are one form of stimulation that change the body and the brain. Our brains are wired to detect pain signals as a threat and shift all of our attention to these signals. The longer we have these pain signals the more ramped up the system becomes due to normal neuroplastic changes. This results in chronic pain that steals vitality, mental energy, and worsens exhaustion.
But there is HOPE! Neuroplasticity is, by its very definition, continuously changing the nervous system. There are ways that you can use this to your advantage by making neuroplastic changes that can give back what was stolen, and decrease the intensity, agony, and impact of pain.
To listen to audio recording, click here.
Video: TMJ and Making Dental Visits and Cleaning Appointments Easier and Less Stressful with Dr. David Streiff, DMD Everyone dreads visiting the dentist. However, with Fibromyalgia and ME/CFS, dental visits can bring on an entirely new level of fear. Join us in April as we talk to Dr. David Streiff, DMD, about how to make a dental visit (or cleaning appointment) easier and less stressful. Many of us also deal with TMJ issues. Dr. Streiff will also address these issues and ways that you can better manage this painful condition.
To view video recording, click here. Join our private web group here...
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 Join our Private Web Group
The Fibromyalgia-ME/CFS Support Center, Inc. (formerly The Portland Area Fibromyalgia - ME/CFS Group) provides a support system and social network for those dealing with fibromyalgia, chronic fatigue syndrome and other chronic illness and pain conditions. Our primary purpose is to encourage each other in thriving despite our illnesses.
By joining our private community, you'll have access to:
- Videos of our monthly group meetings featuring knowledgable speakers on various aspects of coping with and healing from chronic illness.
- Audio recordings of our monthly webinars featuring authors, doctors, naturopaths and other experts on fibromyalgia and ME/CFS from around the country.
- A compassionate online community where we share our stories and offer one another support.
- A library of articles on fibromyalgia and ME/CFS.
There are no membership dues and it is free to join. We hope that you will find exactly what you need in our group and look forward to meeting you!
Join the Fibromyalgia-ME/CFS Support Center, Inc....
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Thanks for reading our May 2013 issue! We'd love your feedback on what you thought.
It would really help us if you would:
- Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and to him/her.
- Join our private web community.
To thriving, not just surviving,
Tamara Staples Tami Stackelhouse tamara@fibrocfssupportcenter.org tami@myrestoredhealth.com (503) 476-9520 (971) 832-9322
Co-Founder, President Co-Founder, Vice President Fibromyalgia-ME/CFS Support Center, Inc. |
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