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Upcoming Events
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Thursday, April 11th from 1-3:00 PM:
Every Thursday
Every Tuesday
from Noon-1 PM:
Saturday, April 20th from 1 - 4:00 PM:
Wednesday, April 24th
from 6:30-8 PM (PDT):
Neuroplasticity; how it hurts, how it can help with Pain Psychologist, Jill Fancher; Webinar (details to be emailed when available)
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We Are Seeking Volunteers...
The Fibromyalgia-ME/CFS Support Center, Inc. is needing volunteers to help with these positions:
- E-Newsletter Assistant Editor
- Facebook Group Moderator
- Fundraising Coordinator
- Social Event Coordinator
- Monthly Walk Coordinator
- Chat Night Host
- Virtual Assistant
Click here for a PDF with additional information.
In order for our community to remain viable and continue to offer the services, events, and information that benefit you, we need help.
If you know someone who might be interested in volunteering, please forward the attached information to them. They need not have fibromyalgia or ME/CFS to volunteer!
Thank you for your careful consideration of how you might help support your community.
It is with all of us working together that we are going to have the biggest impact on each other's lives and health.
Warmly,
Tamara
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The Thriving Fibromite
APRIL 2013 |
Greetings!
Welcome to our new members who found us at the Portland Women's Expo. We're glad you're here!
Don't forget that our meeting will be at our new location this month! Now that the Frida Center is closed, we have moved to Valley Community Presbyterian Church near Jesuit High School in Hillsdale. More information can be found below.
At our meeting on the 20th, Dr. David Streiff, from Alder Dental Group, will speak on TMJ Disorders and how to make your dental visit more comfortable and less stressful.
PS... Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and to him/her. |
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New Meeting Location Beginning in April
As you know, the Frida Center is now closed. That means that we will now be meeting in a new location.
We will meet at Valley Community Presbyterian Church beginning in April. The meeting room is free. AND, there is a built-in sectional that goes around most of the room. Comfortable seating anyone?
There is also a kitchenette attached to the room.
Valley Community Presbyterian Church
Fireside Room
8060 SW Brentwood
Portland, Oregon 97225
Map and Directions
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 TMJ Disorder and How to Make Your Dental Visit Less Stressful 
Saturday, April 20th 1-4:00 PM
Come hear Dr. David Streiff, from Alder Dental Group, discuss TMJ Disorder, plus how to make your dental visit more comfortable and less stressful.
Temporomandibular joint disorder, TMJD (in the medical literature TMD), or TMJ syndrome, is an umbrella term covering acute or chronic pain, especially in the jaw muscles and/or inflammation of the temporomandibular joint (jaw joint).
Many people with fibromyalgia and chronic pain also suffer from jaw pain and recurring headaches, which can be a symptom of TMJD.
Meeting format:
- 1-2:15 PM - enjoy social time with fellow members
- 2:15-4 PM - announcements and guest speaker
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Webinar: Neuroplasticity; how it hurts, how it can help with Pain Psychologist, Jill Fancher
Wednesday, April 24th 6:30-8 PM
We will send out a notification when the details of this meeting have been firmed up and registration is open.
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Social Events in April
Walk in the Park
Saturday, April 27th 12-1PM 
Let's welcome Spring and get back to our monthly walks. Come join us for a walk in George Rogers Park in Lake Oswego.
George Rogers Park is Lake Oswego's first community park and one of its most diverse. Situated on the Willamette River, the park is the site of significant Native American activity over 10,000 years ago, as well as the center of Lake Oswego's industrial iron history. The park is 26 acres and contains athletic fields, tennis courts, children's playground, picnicing, riverfront access, walking trails, and a large natural area. Of particular interest to history buffs is the "Iron Furnace", which is listed on the National Historic register and one of the few reminders of Lake Oswego's industrial past. One of the best views of the Willamette River can be found near the furnace in the lower park.
George Rogers Park
611 S. State Street
Lake Oswego, OR
Social Get-Together: Gustav's Thursday, April 11th 1-3:00 PM
Come join us for some fun social time at Gustav's Restaurant in Tigard!
They have a gluten-free menu. You are welcome to order a cup of tea or a full meal. Their prices are quite reasonable, the service is wonderful and we gather in a large, private corner booth.
The restaurant is located at 10350 SW Greenburg Road, Tigard.
To RSVP on Facebook, click here.
To RSVP on Ning, click here.
Lisa Stanley's "Walking Warriors"
Tuesdays, 12-1:00 PM 
Lisa Stanley has started a walking group for our community. Please feel free to join her, Scooby and the other warriors any Tuesday at noon at the Hillsboro Library on Brookwood. There is a walking path around a couple of duck ponds.
They walk for no longer than an hour and there are benches along the asphalt walkways for rest breaks.
Lisa says, "If someone needs to sit...just mention needing a break and we all take that time to sit and talk and rest."
Several of the members have brought their dogs on the walks. Just be sure that they are leashed and that you clean up after them.
How to find Lisa and Scooby:
There is a little sitting area just off to the left of the library as you pull in. It is by the handicap parking spaces near the walkway. Lisa will always be there with Scooby. She says to look for a "quite happy white baby boy trying not to wag his tail into outer space."
To Read More, click here.
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March Recordings
Health Insurance, Medicare, & YOU!  Our March meeting was all about health insurance.
Jennifer Allain discussed health insurance-- as it relates to you! She described how major medical insurance companies view fibromyalgia in underwriting, alternative options to major medical insurance, and how the new Health Insurance Exchange may affect you. She also gave a presentation on Medicare.
Due to restrictions Medicare places on Ms. Allain, we were unable to videotape this meeting. We are working on meeting notes for those of you who were unable to attend.
Jennifer has also offered to meet with anyone who was unable to attend one-on-one. You can set up an appointment by calling Jennifer at (503) 307-4811 or sending her an email. Join our private web group here...
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 Join our Private Web Group
The Fibromyalgia-ME/CFS Support Center, Inc. (formerly The Portland Area Fibromyalgia - ME/CFS Group) provides a support system and social network for those dealing with fibromyalgia, chronic fatigue syndrome and other chronic illness and pain conditions. Our primary purpose is to encourage each other in thriving despite our illnesses.
By joining our private community, you'll have access to:
- Videos of our monthly group meetings featuring knowledgable speakers on various aspects of coping with and healing from chronic illness.
- Audio recordings of our monthly webinars featuring authors, doctors, naturopaths and other experts on fibromyalgia and ME/CFS from around the country.
- A compassionate online community where we share our stories and offer one another support.
- A library of articles on fibromyalgia and ME/CFS.
There are no membership dues and it is free to join. We hope that you will find exactly what you need in our group and look forward to meeting you!
Join the Fibromyalgia-ME/CFS Support Center, Inc....
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Thanks for reading our April 2013 issue! We'd love your feedback on what you thought.
It would really help us if you would:
- Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and to him/her.
- Join our private web community.
To thriving, not just surviving,
 
Tamara Staples Tami Stackelhouse
tamara@fibrocfssupportcenter.org tami@myrestoredhealth.com
(503) 476-9520 (971) 832-9322
Co-Founder, President Co-Founder, Vice President
Fibromyalgia-ME/CFS Support Center, Inc. |
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