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TECHNOLOGY IMPROVEMENTS
New Website Means Better Mobility, Response to Visitors' Most Common Needs
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If you haven't seen it yet, check out www.preeclampsia.org. And try it on your smart phone, tablet or any other mobile device and let us know what you think.
We hope you find the user experience friendly and that you're able to access more of our content, more easily.
The Community Forum is the same. Your login and password should be the same. And in the next few weeks, we'll also be unveiling the new Spanish portal to much of our most popular content "en espanol."
You can order patient education materials or awareness merchandise in our Store - what used to be called Marketplace. Check out some of our newest materials including the flying-off-the-shelves illustrated tear pad, in English and in Spanish.
No doubt there will be a few hiccups in website version 3.0, despite months of development and testing. We ask for your patience as well as your constructive feedback. Please email webmaster@preeclampsia.org with specific concerns or technical difficulties you may encounter.
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PATIENT SUPPORT AND EDUCATION
Inaugural Patient Advisory Council to Improve Diverse Patient Representation
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Advisory Council seeking applications from committed preeclampsia patients
The Preeclampsia Foundation announced today the creation of the Patient Advisory Council ("Council"). The council will serve as an advisory resource to the organization's Board of Directors and staff, furthering the Foundation's position as a patient-centered, patient-driven, patient advocacy organization.
The council's mission will be to collaborate and advise on policy, program development and design, service and research initiatives as requested by the board or staff. The Council will also ensure that the needs of a diverse patient population of families affected by preeclampsia, eclampsia, HELLP syndrome and other hypertensive disorders of pregnancy are being adequately met by the Foundation.
"The patient voice and experience are and always have been integral to the mission of the Preeclampsia Foundation," said Executive Director Eleni Tsigas. "The creation of the Patient Advisory Council is a more formal strategy to ensure diversity in voices and experiences as we evolve the strategic planning and development of the Foundation."
The Council currently consists of three inaugural members. Learn more about them and the Patient Advisory Council, including how you can apply for this role here.
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AWARENESS & ADVOCACY
Preeclampsia Awareness Month Includes Educational Activities, New Videos, Events and Promise Walks in 38 Cities
Take the Preeclampsia Pledge
Know the Symptoms. Spread the Word.
May is national Preeclampsia Awareness Month, as designated by the U.S. Department of Health and Human Services. To build awareness of preeclampsia, a life-threatening disorder of pregnancy and the postpartum period, the Preeclampsia Foundation is launching a month-long education campaign using the theme: Take the Preeclampsia Pledge - Know the Symptoms. Spread the Word. In addition, thousands of families in 38 cities will be participating in The Promise Walk for Preeclampsia.
"A key message throughout all our activities is that every pregnant woman should receive detailed information about preeclampsia and its symptoms," said the Foundation's Executive
Director Eleni Tsigas. "Expectant mothers who know what to be aware of play a vital role as the 'first responder' to preeclampsia symptoms. Our research has shown it can literally be a matter of life and death for many mothers and babies."
Promise Walks in the 38 participating cities are family-style events. "You will see a lot of babies in strollers, guest speakers, appearances by media personalities, raffles, health screenings, children's activities, and memorial events," said the Foundation's Director of Community Relations Laney Poye. Visit http://www.promisewalk.org to register or support a Promise Walk, including signing up for a Virtual Walk if there's not one near you.
National sponsors for the 2014 Promise Walk for Preeclampsia™ are BabyCenter, Happy Family Organic Superfoods, MultiVu/PR Newswire, and PerkinElmer Labs.
Details about other #PreAM events and new content that you can use to educate your friends, family and followers can be found here.
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RESEARCH ROUNDUP
Sometimes Old News is New News: Baby Aspirin for Preeclampsia Prevention?
"For women at high risk for preeclampsia, available evidence indicates modest effects but important benefits of daily low-dose aspirin for prevention of the condition and consequent illness."
 A systematic review conducted by the U.S. Preventive Services Task Force (USPSTF) for the Agency for Healthcare Research and Quality (AHRQ) and published today in Annals of Internal Medicine found that low dose aspirin beginning as early as the second trimester of pregnancy may prevent negative health outcomes. Taking low dose aspirin was found to show no harm to the mother or baby, although understanding of long-term effects is still limited. The Task Force's purpose was to review the evidence for benefits and harms of low-dose aspirin for preventing morbidity and mortality from preeclampsia.
Eleni Tsigas, Executive Director of the Preeclampsia Foundation, responded to this draft recommendation, "The best available evidence suggests that women at highest risk for preeclampsia should consider taking daily low-dose aspirin beginning late in the first trimester (by 13 weeks). Taking aspirin does not guarantee prevention of preeclampsia, but it is one more thing that women can do with relative safety to reduce their risk."
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NEWS FROM HEADQUARTERS
Foundation Expands Board of Directors, Reflecting Growing Influence and Impact
The Preeclampsia Foundation announced the recent addition of five new board members representing diverse professional expertise, as well as personal experience with preeclampsia. The all-volunteer Board of Directors provides oversight, governance and strategic direction for the Preeclampsia Foundation.
It is the Board's responsibility is to ensure the Foundation's mission is being executed as effectively as possible while ensuring fiscal responsibility and transparency, all within the duties of care, loyalty and obedience to which every not-for-profit board of directors is beholden.
"I'm confident the expertise we recently added to the Board will be a tremendous advantage for the future of the Foundation," said Katie Rielly-Gauvin, Chairman of the Board of Directors.
A lawyer, communicator, biotech entrepreneur, physician, and educator will contribute their professional expertise of the Board of Directors.
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NEWS FROM HEADQUARTERS
A Fond Farewell to a Colleague and Friend
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"Since October of 2010, I have had the pleasure of working with hundreds of kind, sincere, hard-working individuals... volunteers, vendors, colleagues... and I have been blessed to have forged many genuine friendships along the way. But now it is time for me to slow down a bit, let my body work on healing itself, and sadly say goodbye to my role of Director of Operations at PF. ((Hugs)) to all."
~ Angela Little
It is with a heavy heart that we announce the departure of Angela Little from our home office staff. She has been on partial medical leave of absence for a few months, but her recovery has not gone as she had hoped and she will not be able to return to work.
Angela came to us in 2010, shortly after we moved our operations to Brevard County, Florida, and literally built our infrastructure from the ground up. Her relentless passion for top quality work, gold standard business practices, and efficiency have allowed us to be effective, saved us money, and earned us the accolades of the leading charity watchdog organizations. Nobody has been more driven to see every gift to the Preeclampsia Foundation maximized for our mission. And she herself has been part of that mission. As a former nurse, she also had the skills and compassion to spend hours on our Hotline, educating and supporting hundreds of survivors or their family members.
And of course, we wish Angela a speedy return to the fullness of health so that she may enjoy her family, her friends, and all the things that bring her personal joy.
It will be nearly impossible to replace a woman who not only shouldered an enormous amount of responsibility, but also cared deeply about the work we do. However, we are executing a replacement strategy now, beginning with the addition this week of Kerrie Smith, a part-time Accounting Manager who will assume the financial duties of the organization.
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Chicago, IL
April 26-30, 2014
Minneapolis, MN
April 26, 2014
Toronto, CAN
May 14-18, 2014
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Research Funding Available NOW!
The deadline for this year's Vision Grant applications is May 16, 2014. These $25,000 research grants are intended to fund novel ideas for preeclampsia research that will advance patient care. Details and applications available here.
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#PreAM Events
Coming Soon!
Add these events to your calendar for Preeclampsia Awareness Month, spread the word and join the discussions! www.preeclampsia.org/PreAM Follow #PreAM14 for all Twitter activity.
Preeclampsia Awareness Month Kick-Off Twitter Party Wednesday, April 30, 9 to 10 pm ET
Week 1 Focus: Preeclampsia Awareness Survey Twitter Chat Thursday, May 8, 1 to 2 pm ET
Week 2 Focus: Know the Symptoms of Preeclampsia Google+ Hangout Wednesday, May 14, 1 pm ET
#WellnessWed Chat Wednesday, May 14, 2 to 3 pm ET
Week 3 Focus: Preeclampsia and Long-term Heart Health Twitter Chat Thursday, May 22, 1 to 2 pm ET
Week 4 Focus: How Can Preeclampsia Affect My Baby? Twitter Chat Thursday, May 29, 1 to 2 pm ET
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Improving Healthcare Practices Depends on Evidence

The evidence to support changes in healthcare practices is derived from data. To move this research forward, the Preeclampsia Foundation launched The Preeclampsia Registry on September 9, 2013. To date over 600 people have enrolled in the registry and begun entering their pregnancy history and other data in response to easy-to-use online questionnaires.
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2014 Volunteer Hours
Our volunteers have reported a total of
1,663
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