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March 2013
Dearest Proud Parents,

 

I am so excited about the many events coming up in March!. I hope you will take a minute to read through this email and learn about each one.  Here's what's going on: 

 

Saturday, March 9th, 10:00 AM: "The Little Engine That Could." Free Concert and Piano Workshop for Children with Special Needs taught by Daniela Clapp who advocates for teaching piano to children with Down syndrome.  Click here for more info: Piano Workshop Flyer  

 

Little Engine

 

 

Thursday, March 13- Spanish Parent Meeting (see bottom of this email for more information) 

  Spanish chapter 2

 

Saturday, March 16th- Glow Run  

 

  If you went last year you know how much fun it was and this year it's going to be even bigger and better. Don't worry, you don't have to be a runner to enjoy this fun family event that benefits Sharing Down Syndrome Arizona, it also includes a 1 mile Walk, 5K and 10K. Click this link to get more information or to register.  

Glow 2   

 

 

Thursday, March 21st -Party in the Park on World Down Syndrome Day 

 

It's free, but you must register. Click here for more information about and to register for Party in the Park. 

  Party in the park

 

 

Saturday, March 23rd- Special Day for Special Kids at McCormick Stillman Railroad Park in Scottsdale

 

Go ride the trains and have a great time. No need to register, just show up.  This is sponsored by the Scottsdale Rotary Club.  

 

train

 

 

Saturday, March 30th- Annual Easter Egg Hunt at Rockin' R Ranch

 

Easter Bunny Come hunt for Easter Eggs and get your picture taken with the Easter Bunny! There will be food, crafts, music and more.  It's free, but you must register.  Click here to get more information or to register:

Annual Easter Egg Hunt   

 

 

 

How I love my job working with dear families who have loved ones with Down syndrome. But there is one aspect of my job that is so very difficult, and that is when we lose one of our precious ones.

 

My heart is broken for Jessica and Phillip Jones whose angel baby Morgan Samantha passed away on February 22nd. She was only 3 years old. Her parents asked me to tell you how thankful they are for all of you who came to her funeral and/or sent encouraging notes of love.

 

 

I would also like to express my sincere gratitude to three people who made this family's whole experience so much easier.  I would like to tell Ethan Larsen (Kamber's Kaskets)  thank you from the bottom of my heart for making the beautiful casket for her. I am thankful to Roy Crandall who did the beautiful upholstery in the casket and thank you to Christian Timothy, owner of Falconer Funeral Home who provided all the services they needed.    

I also wish to tell all the staff at Phoenix Children's Hospital and all those who work at Ryan House thank you for truly being angels among us. This journey has been so very difficult, but the help of wonderful people like these has helped us get through this very sad time.


If I had to say my feelings for this sweet angel baby it would be simply, 

Morgan  

 

"So little. So loved."

 

With all my love,

Gina Johnson (aka David's Mom) 

 
Rebeca Lopez
Volunteer Spotlight

My name is Rebeca Lopez and I am the owner of Milestone Pediatrics where we provide pediatric habilitation and respite services for families who have children with special needs.  I am also the Spanish Chapter leader for Sharing Down Syndrome Arizona. I was working as a Developmental Specialist (DSI) for DDD when I was introduced to the parent support groups. I immediately fell in love with the babies, as well as the great services that Sharing Down Syndrome provides!

 

Last Summer, I was asked by Gina Johnson and Jennifer O'Connell to be a part of their great team, as the Spanish Chapter Leader for the Latino Community. I couldn't say no! Being a part of the Latino Community as a DSI, made me aware of the increasing need for these services. I continue to serve the Hispanic Community through Milestone Pediatrics and Sharing Down Syndrome Arizona. I feel very proud and honored to be a part of the Sharing Down Syndrome Family!

 

Please join us at our next meeting on Wednesday, March 13th, 2013 with special guest speaker Immigration Lawyer Jose Bracamonte! 

 

Mr. Bracamonte will answer questions like:  

 

  • How I can become a citizen if my child has a special needs?   
  • Can I get help?
  • Questions about citizenship

(Each case is different so please bring general questions.)

Wednesday, March 13

6 pm- 9 pm

(Please be on time.)

 

2501 W. Dunlap Avenue

Phoenix, AZ 85021

 

Please call Rebeca to let her know that you will be there.  You MUST reserve your space. 

 

480-322-1928 

 

  Spanish Chapter

 Daniela Clapp
Renowned Piano Teacher Presenting on Piano Lessons as Therapy for Children with Down Syndrome

The Arizona State Music Teachers Association (ASMTA) is holding their annual state convention at the Pointe Hilton Squaw Peak in Phoenix from May 31, 2012, through June 2, 2012. http://www.asmta.org/conferences.php  

 

 

This year the ASMTA is starring some big presenters, among them is the renowned Piano Teacher Daniela Clapp, who will introduce a whole new era in piano teaching, on Saturday June 2nd. from 2:45-3:45pm.

 

Daniela teaches children with Down syndrome how to play piano and how to use the piano as a new form of therapy. This has shown to be an effective way to help kids with Down Syndrome and advocate for them. Daniela Clapp is presenting her teaching methods to all music teachers at the Arizona State Music Teachers Association Conference 2012.

 

For more information and to see the conference schedule go to: http://www.asmta.org/conferences.php

or contact Daniela directly at info@danielaclapp.com.

   

 

 
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