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Williams Syndrome Awareness
2014 Convention Update
Heart to Heart
WS Registry
Awareness Events
There are many WS awareness events happening all across the country.

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March/April 2014
Williams Syndrome Awareness is now in 5th year, and momentum continues to grow!
 
In 2010 when we first initiated "Williams Syndrome Awareness Week", we hoped for 20 - 25 "modest" walks that would help bring heightened awareness for Williams syndrome, and increase our ability to provide scholarships for camps and conventions. In that first year, there were more than 30 walks, and we received more media attention in 1 week than we had received in all the previous years. It was amazing. And in the years since, the momentum for awareness has...

2014 Convention Update    
 

Miracle Flights for Kids will provide air travel for individuals with WS attending the convention, and one (possibly 2) parents, as long as the child participates in one of the research studies conducted at the convention.

 

Miracle Flights for KidsŪ is the nation's leading nonprofit health and welfare flight organization. Since 1985, Miracle Flights has fulfilled its mission of helping families overcome financial obstacles by flying their seriously ill children to receive proper medical care and to get second opinions. Beginning in 2014 Miracle Flights has started a new program to help families "in need" take advantage of the educational opportunities provided by...

Heart to Heart - Spring 2014 Issue

Have you received your Spring issue of Heart to Heart?  

 

Our special issue on Funding and Models for "Living Outside the Family Home" is now in the mail.

If you are a paid member, and it does not arrive by May 15th, please let us know.

All members received it via email in late April.

 

 

The Williams Syndrome Registry

Families & Researchers Working Together to Advance Understanding of Williams syndrome

The Williams Syndrome Registry has been updated and upgraded to capture more of the information we need to help researchers. Owned by the WSA, the Registry is an internet tool designed to promote research on WS by...