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In This Issue
Heart to Heart 2014
WSA Webcasts
Able Act
Helpful Resources
2014 Camp Programs
Did You Know?
Want to host an event for Awareness Month?

Learn more about how you can help promote awareness this May on our site here.


Have questions about hosting an event?  Contact:


Jennifer O'Byrne at  

or call 800-806-1871.

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January/February 2014
Heart to Heart 2014
The first issue of Heart to Heart 2014 will be published next month. This issue will be devoted to Housing/Assisted Living resources, and the National Convention.

The WSA received a grant to help bring information on all aspects of independent living options - from federal & state funding, to established community opportunities and successful templates for those who will endeavor to create something where nothing exists for their son or daughter. Researching the options in every state is

WSA Webcasts   
Have you had an opportunity to join us for one of our periodic webcasts? Through collaborations with members of the WSA Professional Advisory Board and others who have an expertise in Williams syndrome, the WSA provides 60-90 minute webcasts on a variety of important topics. The webcasts include power point presentations by the expert(s) followed by...

ABLE Act May Finally Get to the "Floor" for a Congressional Vote this Spring

After more than 7 years, Congress is (finally) getting very close to passing the ABLE Act. The Achieving a Better Life Experience (ABLE) Act is modeled after the 529 plan, and will enable individuals with disabilities to open a special account at any financial institution and save up to $100,000 for housing, education, healthcare etc. without risking their Social Security and Medicaid. Interest earned on savings within the accounts...


Helpful Resources from the WSA    

Successfully Applying for SSI for Young Adults with WS        
A collection of general and WS specific information on the process

Guardianship and Alternatives to Guardianship
Produced by Fletcher Tilton Attorneys at Law for the WSA

Futures Planning for Families Supporting Adults with Life-long Disabilities; Special Needs Trusts & Estate Planning

Fletcher Tilton, Secure Planning Strategies
A workbook to help guide you through the pre-planning process of setting up Trusts and Estate plans

2014 Camp Programs

Applications for all 2014 camp programs are now being accepted, and space is filling up fast. Download an application online here, or call 800-806-1871 to have one mailed out to you today. 



Did You Know?

A return date AFTER Sunday, July 7 from the National Convention can result in reductions to airfare of $200-400. If you are planning to spend an extra day or two vacationing in California, be sure to plan those days at the end of your stay to facilitate the best possible airfare.


We provide up to $50,000 in scholarships to help families attend the National Convention.  You can learn more about the Convention, the sessions and programs that will be offered, and scholarships to attend on our website here.