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2011 Membership Campaign
Become a member today! | |
 The more members we have, the greater our impact! With YOUR membership, the Alpha-1 Community has greater leverage with legislative officials when addressing the specific needs of Alphas.
As part of our 2011 Membership Campaign, if you join or renew today, your name will be automatically included in a drawing for one of these prizes:
- A "DeVilbiss iGo Oxygen Concentrator" graciously donated by Oxygen Concentrator 02 in cojunction with Advanced Aeromedical. This concentrator has 3 liters, it is lightweight, portable, and is approved for air travel
- Scholarship to the Annual National Conference
- Scholarship to an Education Day
Click here to become a member today and learn about the benefits. To waive your membership fee or mail your application, click here. |
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An Education Day in America's heartland
Indianapolis is the place to be on October 15, 2011
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 Fall just became more interesting in Indianapolis. In addition to the city's Circle Centre Mall and urban parks, one can enjoy a very informative Alpha-1 Education day!
This Education Day is part of a six-series of programs throughout the country co-hosted with the Alpha-1 Foundation. They are also an opportunity to get access to current Alpha-1 medical information and resources. Please click here to register and view the program. To register by phone, please contact the Alpha-1 Association at 800-521-3025, Ext 18. There is one more Education Day remaining this year. Click here to see if we are coming to a town near you.
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Alpha-1 Awareness and Testing
Testing resources and more... |
 The Alpha-1 Awareness and testing web-portal contains information about who should be tested for Alpha-1, potential genetic issues surrounding Alpha-1 testing, the Alpha-1 Genetic Counseling Program, Alpha-1 testing resources and more.
Click here to view |
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Upcoming Support Group Telecall
Step Cell Research and what it means for our children |
 You are invited you to participate on the Alpha-1 Families Virtual Support Group Telecall taking place Tuesday, October 11, 2011 at 9:00 PM ET.
TOPIC: The Promise of Stem Cell Research & What it Means for our Children
SPEAKER:Darrell N. Kotton, M.D., Associate Professor of Medicine and Pathology, Director, Center for Regenerative Medicine, Boston University School of Medicine
To register for the group or if you have any questions, please contact Alexis Artiles by email at aartiles@alpha1.org with "Alpha-1 Families Virtual Support Group" in the Subject and include your full name and contact information in the body of the email, or call (800) 521-3025 ext.18. |
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Help Protect Access to Care
Opposing cuts to important coverage |
 In an effort to control costs, leaders in Washington will be restructuring the way that the Federal Government manages Medicare. This may lead to Medicare cuts that would affect individuals with rare diseases. Take Action Today! |
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A Timeline for Health Care Reform Rollout
Some changes have already begun... some not yet |
 The Affordable Care Act puts in place comprehensive health insurance reforms that will roll out over four years and beyond, with most changes taking place by 2014. Others have already begun. Some changes include a 50% discount for name-brand drugs in the Medicare "donut hole," expanded coverage for young adults and Pre-Existing Condition Insurance Plans. Click here for the virtual timeline to learn about what's changing and when.
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Confidential Communications Network
Free notification of therapy withdrawals |
 The Plasma Protein Therapeutics Association (PPTA) has developed a Patient Notification System (PNS) a free, confidential, 24-hour communication system that provides information on plasma related product withdrawals and recalls. To learn more about it, click here. If you would like to participate in this network, register online at: www.patientnotificationsystem.org or by calling 1-888-UPDATE-U.
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We gratefully recognize the following as our 2011 Core sponsors |  |
This E-News is a publication of the Alpha-1 Association
Website: www.alpha1.org
The mission of the Alpha-1 Association is to identify individuals affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research.
Patient Information Hotline: (800) 245-6809
Genetic Counseling Center: (800)-785-3177
Request a Peer Guide: (800) 245-6809
Click here to view a directory of the association staff |
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| Team Alpha-1 | |
Marlene Erven, Executive Director of the Alpha-1 Association bicycled 160 miles with "Team Alpha-1" to support Alpha-1 research in the name of Ed Brailey, past chair of the Alpha-1 Association during the Alpha-1 Foundation's "Escape to the Cape" Bike Race.
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Alpha-1 Awareness Month Webinar
