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An Education Day in the heart of New York State!
Syracuse is the place to be on September 17, 2011 |
 Summer just got more social in Syracuse. In addition to endless summer festivals, fantastic golf courses and scenic upland forests, there will also be a very informative Alpha-1 Education day!
This Education Day is part of a six-series of programs throughout the country co-hosted with the Alpha-1 Foundation. They are also an opportunity to get access to current Alpha-1 medical information and resources. Please click here to register and view the program. To register by phone, please contact the Alpha-1 Association at 800-521-3025, Ext 18. There are two other Education Days remaining this year. Click here to see if we are coming to a town near you. |
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Upcoming Support Group Meetings
An opportunity to connect with the larger Alpha-1 Community |
Below are dates and the cities of the upcoming support group meetings for August and September. These groups are committed to improving the quality of life of individuals and their families affected by Alpha-1 and to extending the mission of the Alpha-1 Association. Click here for more information and for a calendar of support group events.
-Aug. 25- Wheelersburg, OH
-Aug. 27- Tulsa, OK
-August 31- Timely Topics and Caregiver Telecall at 9pm ET.
TOPIC: Nutrition
-Sept. 17- Syracuse, NY and Rockford, Illinois
-Sept.22- Tucson, Arizona |
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A Quality Care Finder
Helping those on Medicare find the care they need |
 Medicare beneficiaries now have choices when it comes to the quality of their providers. A Quality Care Finder has been designed to help beneficiaries and their caregivers find better health care options.
Read more... |
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Portland Education Day Presentations Available
Learn the latest from a variety of doctors |
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Summer Recess Visits
A greater understanding of COPD and Alpha-1 in your district... |
 This year the U.S. COPD Coalition is hosting a series of Summer Recess District Visits to recruit new members for the Congressional COPD Caucus and recognize all the hard work and dedication of current Caucus members. From this effort, your representative will gain a better understanding of the impact of COPD and Alpha-1 throughout their district. This is a great opportunity to have your voice heard and ensure your representatives are working for you. To get involved please contact Aimee Bulthuis at (866)731-2673 Ext. 459.
If you cannot participate in person, visit the Alpha-1 Action Center, an online advocacy web-portal that allows you to contact your representative. Also, click here to learn how to be an effective advocate this summer. |
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Our helpline just for you- ALL YEAR!
Information on the Genetics of Alpha-1 and more... |
 The Alpha-1 Association's Genetic Counseling Program (1-800-785-3177) offers free phone-based confidential information and resources to Alphas, family members and medical professionals on the genetics of Alpha-1 and provides information on testing options.
Our Patient Information Hotline (1-800-245-6809) provides support to newly diagnosed Alphas, Alphas seeking basic information on Alpha-1, or help such as requesting a peer connection, physician referral, requests for literature, etc.
These free telephone-based resources are available to you Monday - Friday from 9:00am - 5:00pm ET.
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We gratefully recognize the following as our 2011 Core sponsors |
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This E-News is a publication of the Alpha-1 Association
Website: www.alpha1.org
The mission of the Alpha-1 Association is to identify individuals affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research.
Patient Information Hotline: (800) 245-6809
Genetic Counseling Center: (800)-785-3177
Request a Peer Guide: (800) 245-6809
Click here to view a directory of the association staff |
By: Sherrie Evenson, MS, ACSM-RCEP/CET, Registered Clinical Exercise Physiologist 
