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| Featured Article No. 1:
What it Means to be Human
By Jennifer Miller |
As most of you know, Bioethics International (BEI) empowers clinicians, scientists and policy makers to act responsibly by providing a bioethical framework to guide their decision-making. The framework centers on the human person, the human person as both a patient and a member of humanity. Because BEI deals with the allocations, decisions and technologies that directly affect the health and life of the individual person and humanity as a whole, it it is of importance to see what/who society considers a member of humanity and a person.
The Terasem movement hosted a 'human rights day" to promote the inclusion into personhood those that (a) are of computerized substrate, (b) have been revived from biostasis, or (c) whose DNA varies significantly from human DNA.
Whereas the Terasem movement is advocating an expanded concept of the person to include computer hybrids, others are advocating limitations. An Alden March Bioethicist proposes excluding human embryos from personhood status because their inclusion "would cause a lot of problems." The Institute for Science, Law and Technology agrees with limiting the scope of personhood to exclude human embryos, fearing "You could have people policing women's behavior during pregnancy to be sure they don't smoke or drink or do anything that could possibly harm the fetus."
A recent article in the Medical Journal of Australia portrays the human person as a "potent source of greenhouse gas emissions," and proposes instituting a "baby levy" or baby tax to pay for the purchase and maintenance of the trees needed to offset the child's contributive pollution.
I have yet to see a mother or father pick up a baby and proclaim: "such a cute little polluter but we should have kicked in a few extra pennies for a computerized substrate." Then again I am still relatively young so there is still time.
To say that there is a lack of consensus as to what constitutes a human person is an understatement.
Bioethics International © link to article | |
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Featured Article No. 2:
Objection of Conscience
By Jennifer Miller |
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'Objection of conscience' was a hot bioethics topic in 2007 and I predict it will remain in the spotlight through 2008.
Objection of conscience in medicine pertains to a clinician's ability to freely analyze a situation and freely act in accordance with his/her ethical assessment. Consequently, objection of conscience overlaps with the bioethical concept 'clinician autonomy', a topic that Bioethics International travels the continent discussing with clinicians, hospitals, medical associations and others.
Should clinicians, pharmacists, patients, and hospitals retain the freedom to object to medical interventions that violate their consciences, such as the dispensing of emergency contraception or the administration of a life saving blood transfusion? Below are objection of conscience/ clinician autonomy cases occurring in the United States:
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Last month, a 14-year-old leukemia patient objected to a life saving blood transfusion dying shortly thereafter
- All pharmacists must dispense emergency contraception in Washington State.
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Connecticut passed a similar mandate for all hospitals.
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New York State unanimously voted that contraceptives must be covered in prescription drug plans for religious and faith-based ministries, with limited exceptions.
What do we do when everybody's freedom cannot be respected, who retains the right to exercise an objection of conscience- and under what circumstances?
Bioethics International © |
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Your donations sustain BEI's education, training and advisory programs that benefit doctors, nurses, medical associations, universities, the United Nations, et al, and ultimately YOU the patient. As the Veteran Affairs states, "ethics and quality care can never truly be separated."
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ERA GALA 2007
ERA GALA 2007
ERA GALA 2006 | |
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Greetings!
It is with great joy that we are emailing you Bioethics International's (BEI) quarterly newsletter.
This issue highlights the top bioethics news from the fall of 2007, such as a study release that found 'doctors who fear their own death are more likely to speed up the death of sick newborns'. Also highlighted are BEI's selected fall projects to empower responsible action in healthcare, life sciences and biotechnology. Lastly, do not forget to check out BEI's featured articles.
We look forward to hearing your feedback and as always ways to serve you better!
All the best,
Jennifer Miller |
| Health, Life & Biotech News |
Twins separated at birth... for research: The identical twins were separated at birth and adopted by different families, as part of a psychological study. In her early 30s Schein started looking into information about their birth mother and in the process found out that she had a twin. The women were re-united, happily, via an adoption agency in 2004. Read on
Schools ponder role as child nears death: Kids' Do Not Resuscitate orders prompt debate: As the school bus rolled to a stop outside her Lake County home, Beth Jones adjusted the bright yellow document protruding from the pouch of her daughter's wheelchair, making sure it was clearly visible. In bold letters it warned, "Do Not Resuscitate." The DNR order goes everywhere with Katie, including her 2nd-grade classroom.... Now, district officials find themselves in the unusual position of having planned the steps its staff will, or won't, take to permit a child to die on school grounds. Although DNR orders are common in hospitals and nursing homes, such life-and-death drama rarely plays out in schools, where officials realize how sensitive and traumatic the situation could be for nurses, teachers and students. Read on
Doctors' life-view a factor in baby deaths: Doctors who fear their own death are more likely to speed up the death of sick newborns, according to new research. The study found doctors were more likely to help poorly babies die when it was obvious further medical treatment would be futile or that they would be severely disabled. Read on
Prenatal care weighs needs of 2 patients: The American Medical Association (AMA) provided commentary on maternal-fetal-societal conflict management, and in particular how clinicians should respond when a pregnant woman's habits impact her fetus. Read on
The pitter patter of tiny carbon footprints: Writing in the Medical Journal of Australia, two academics made world headlines this week by endorsing a Chinese model of population control to reduce the human carbon footprint. Barry Walters, a professor of obstetrics at the University of Western Australia, has called for a carbon tax on newborns. He who pollutes must pay: "Every newborn baby in Australia represents a potent source of greenhouse gas emissions for an average of 80 years, not simply by breathing, but by the profligate consumption of resources typical of our society", Walters explained. His solution? A "baby levy" of AUS$5,000 on third and subsequent children, plus an annual tax of AUS$400 to AUS$800 annually for the life of the child to purchase and maintain the four hectares of trees needed to sequester 17 metric tons of carbon dioxide. Read on
Banking adult stem cells for $7,500 plus: Mark Weinreb, a onetime bagel baron from Long Island, has his sights trained on one of medicine's hottest commodities: He plans to collect and store adult, or mature, stem cells from people across the country. With scientists racing to find ways to use stem cells to fight disease, Weinreb heads a new company - Manhattan-based NeoStem - that plans to harvest those cells from the blood of Long Islanders for a $7,500 fee, a plan not without skeptics. NeoStem will store the cells indefinitely in case the donor ever needs them. Read on
In Hospice Care, Longer Lives Mean Money Lost: Hundreds of hospice providers across the country are facing the catastrophic financial consequence of what would otherwise seem a positive development: their patients are living longer than expected. Over the last eight years, the refusal of patients to die according to actuarial schedules has led the federal government to demand that hospices exceeding reimbursement limits repay hundreds of millions of dollars to Medicare. Read on
Electric pulse stimulation awakens man barely conscious for 5 years: A 38-year-old man who spent more than five years in a mute, barely conscious state as a result of a severe head injury is now communicating regularly with family members and recovering his ability to move after having his brain stimulated with pulses of electric current, neuroscientists are reporting. Read on
Google-funded 23andMe launches, offers $999 DNA test: Google Inc-funded 23andMe launched on 11/19/07 and began offering a DNA saliva test for $999 per person, which would help U.S. users of the online site learn about disease risk, inherited traits and their ancestry. Eventually users, who sign up for the saliva test online and receive it by mail, will also be able to participate in research.... Those who are tested may choose to learn their risk for developing certain cancer, Alzheimer's disease, diabetes and other illnesses, and get a referral from 23andMe to genetic counselors. Read on
The benefits, and potential side effects of sharing medical records online: from Google to Microsoft: Microsoft launched HealthVault, a free web-based service that allows users to store their medical records online and eventually share them with doctors and health care professionals.... These latest developments - and dozens of similar initiatives - could push the online sharing of personal health information into the mainstream. Read on |
| Emergency Preparedness Ethics and Clinician Liability News |
SJC ruling adds to doctor liability: Doctor can be sued for patients' car accidents: The state Supreme Judicial Court ruled on 11/12/07 that a doctor can be sued over a car accident caused by his patient, greatly expanding potential liability for the medical profession. A divided court said that the mother of a boy who was hit by a car and died can sue the physician who prescribed numerous medications to the driver, including narcotics that can cause drowsiness. The mother's lawyers alleged that the physician failed to warn his patient about the side effects of the medication and the potential danger of driving while taking them. Read on
Couple awarded $21 milion in Florida 'wrongful birth' case: In what is being called a "wrongful birth" case, a jury awarded more than $21 million to a couple who claimed a doctor misdiagnosed a severe birth defect in their son, leading them to have a second child with similar problems. Read on
Transplant surgeon charged with trying to hasten patient's death: A San Francisco transplant surgeon was criminally charged with excessively prescribing drugs to a 25-year-old disabled man last year in order to hasten his death and harvest his organs sooner. Read on
Report probes New Orleans hospital deaths
A state law enforcement investigators' report - obtained by CNN from a confidential source close to the investigation - into the deaths of patients at a New Orleans hospital in the aftermath of Hurricane Katrina provides new details about the events that occurred at Memorial Medical Center. The forensic pathologists hired by the state concluded that as many as nine patients located on the seventh floor of Memorial were possible victims of homicide, though none of the pathologists were called to testify in person before the grand jury. Read on
Tackling discrimination in disasters: World report released: This year's annual World Disasters Report, launched 11/13/07 by the International Federation of Red Cross and Red Crescent Societies (IFRC), examines the issue of discrimination in disasters. It looks at which groups are discriminated against and why, how discrimination manifests itself, and how it increases vulnerability. Among the groups identified as often discriminated against - often unintentionally, the Report lists the elderly, people with disabilities, certain minorities and women - people whose views are seldom sought out or heard..... It also points to the responsibility of aid agencies and governments to identify and address discriminatory attitudes and procedures. Race, colour, gender, language, religion, politics, opinion, national or social origin, economic condition and birth are just some of the causes of discrimination that can compromise certain groups' access to aid. Read on |
| Bioethics International News |
BEI is chosen to run three new hospitals' Pandemic Preparedness Ethics training programs, Grand Rounds format. Topics to be covered include the just allocation of limited resources including ventilators, triage and duty to care ethics, patient surge management and much more. Nationwide 2008.
BEI presents on "The just allocation of healthcare resources" to the Ethical Culture Society. New York, September 16, 2007.
BEI advises the American Medical Association's (AMA) National Disaster Life Support Education Consortium (NDLSEC) on disaster preparedness ethics. The NDLSEC brings together multidisciplinary expertise of public and private stakeholder organizations and distinguished individuals in disaster preparedness, professional education and curriculum development. The work groups regularly review and critique the National Disaster Life Support (NDLS) courses. The intent is to establish the NDLS Program as the standard curricula for training all potential emergency responders, including citizen responders, in an effective and coordinated manner through an all-hazards approach. Washington, DC, October 1-2, 2007.
BEI supports the Manhattan Institute Wriston Lecture "Keeping Life Human" by Leon R. Kass, Hertog Fellow, American Enterprise Institute, Professor, Committee on Social Thought, University of Chicago. New York City, October 18, 2007.
BEI joins Dr. Robert George for his fall lecture on 'Embryo Ethics: Justice and Nascent Human Life' at the MHI. New York City, October 19, 2007.
BEI hosts the 2nd Annual ERA GALA in New York City, cosponsored by Delta Airlines and Coca Cola, to support just access to and allocations of medical resources for the world's most vulnerable patients, daily and during disasters. View pictures New York City, November 13, 2007.
BEI's invited expert, Dr. Fred Mirarchi, publishes the first study on DNRs and patient safety in the Journal of Emergency Medicine. Dr. Mirarchi is chairman of the Department of Emergency Medicine of Hamot Medical Center, assistant clinical professor of the West Penn Allegheny Health System, Allegheny General Hospital and Drexel University School of Medicine, fellow of the American Academy of Emergency Medicine and the American College of Emergency Physicians and consulting staff for emedicine.com. The study release is timely given the emergence of DNR order use in elementary schools. Read on November 16, 2007.
BEI participates in 'The Ethics of Brain Implants and Post-operative Settings' seminar at the NY State Psychiatric Institute, cohosted by Columbia University's Division of Psychiatry, Law and Ethics and leading neuroethicist Dr. Paul Ford of the Cleveland Clinic. New York City, December 6, 2007.
BEI supports panel on organ trafficking at the United Nations with Art Caplan cosponsored by IHEU-Appignani Center for Bioethics, and the Council of Europe with participants Rachel Mayanja, UN Assistant Secretary-General; the Deputy Secretary General of the Council of Europe; Dr. Thomas Diflo, NYU; Eric Grossmann, M.D., Vice-chairperson and Medical Director of New York Organ Donor Network; and Ana Lita Director IHEU-Appignani Center for Bioethics. New York City, December 11, 2007.
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