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Hearts of Hope

  AUGUST E-NEWS

In This Issue
Tetrology of Fallot
CSHCS
Quick Links
About Us

Featured story from the heart...

Kiley was 6 days old, they did an ultrasound because her murmur was still do pronounced. They discovered that she has Tetralogy of Fallot, Pulmonary Atresia, and Brochopulmonary Collateral Vessels.

 

 
 READ how this amazing child has triumphed over this severe heart defect. 

 

If you would like to share your child's story, please email us at: storiesofhope@heartsofhopemi.org
Tetrology of Fallot

 

fallot 
 
Tetralogy of Fallot occurs when the right side of the heart does not develop properly while a baby is in the mother's womb. Tetralogy of Fallot is a serious heart problem because it obstructs blood from reaching the lungs 

 

Click HERE To Learn More.

 

 

A heart transplant is recommended for children who have serious heart dysfunction and will not be able to live without having the heart replaced. Some of the illnesses that affect the heart in this way include complex congenital (present at birth) heart disease and cardiomyopathy (disease of the heart muscle in which the heart loses its ability to pump blood effectively).
Are you having a hard time with expenses due
to your child's medical bills?
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CSHCS

Children's Special Health Care Services (CSHCS) is a program within the Michigan Department of Community Health. It is for children and some adults with special health care needs and their families.
 
Many of our children are eligable for this additional health care coverage. To find out if your child is eligable, click HERE 
Stay connected with other HOH members



Hearts of Hope would like to help our members stay connected to eachother through our 
"Sharing Program".
If you would like to share you childs CarePage, blog page or webpage with us to share with other HOH members, please e-mail us at:
ATT: Kristy
kshadik@comcast.net
with the name of your child's webpage.

Back to School
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There are several challenges that children born with congenital heart defects may face as they go back to school. The best thing you can do as a parent is be prepared and help prepare the school!
 
Congenital Heart Defects: Information For TeachersCongenital Heart Defects: Information For TeachersWill your child struggle at school? Will your child struggle at school? Being Born With Congenital Heart Malformation Brings Challenges At School

Hearts of Hope Links





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BHBH
Join Hearts of Hope at the

Big House Big Heart

10K, 5K & 1-Mile
 October 9, 2011.

PLACE: University of Michigan Football Stadium

 

WALKERS, STROLLERS and WHEELCHAIRS WELCOME!

 

DATE: Sunday, October 9, 2011
 

 

This is a unique event because it finishes on the University of Michigan's famous football field 50-yard-line! It is even more special because of the charitable component. A portion of each registration fee ($4.00 - $9.00) goes to several programs at the U of M Hospital, including C.S. Mott Children's Hospital!!


 You can participate as a runner, walker, wheeler or stroller and gather "pledges" to help raise much needed funds for HOH or you can make a direct donation either on line or by mail to Hearts of Hope.


To register as a Hearts of Hope runner, walker or wheeler make sure you choose "Hearts of Hope S.E. Michigan" on the drop down box under charity teams when registering. 

 

Click  HERE  to register.

  

Once registered, please send an e-mail to

heartsofhopemi@yahoo.com

so we can add your name to our team roster and e-mail you your team packet to help you gather pledges.

 

To donate with a credit card, click

HERE

  and please make sure to choose Hearts of Hope as your selected charity.

 

 To donate by mail, send check or money order to: Hearts of Hope, 3343 Vardon Dr, Rochester Hills, MI 48307. Make payable to: Hearts of Hope.

  

We look forward to seeing you there!!

  

runners

 

 

golf
 

Thanks to all who joined us at our annual Golf Classic!  

  .

It was a fantastic turn out with over 160 golfers. With your contributions we raised over $18,000.00 for Hearts of Hope allowing us to carry on our mission throughout the year.  

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walk for kids

 Join some of the "Hearts of Hope Families" at the Detroit Zoo on 
 Saturday, September 10th
for the Rainbow Connections
 
"Walk for Kids"
 To download a registration form, click HERE

 

Many of our "heart children" have had their wishes granted by this wonderful organization. To learn more about the Rainbow Connections ability to make our children's wishes come true, click HERE 
  
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Merchandise Available!  
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bearBella


 

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You can now bring awareness to the #1 birth defect by wearing one of our HOH awareness shirts.  scarredheart

 

Click HERE to order yours today!
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HELP US HELP OTHERS....

There are many happenings within our community. If you know of an upcoming event or fundraiser, please contact us with any information about the event. We also ask that you update us if your home address, e-mail or phone number has changed so that we may keep you informed of upcoming events.

 

HOH is on Facebook!

We have a discussion board on facebook. Go to the Hearts of Hope group page and begin posting or responding to topics on the discussion board. We want to use this service to help network parents. This is a wonderful way to get and sta connected with other heart families.

 

Lastly, you are invited to share your child's story on our website which provides "hope" to new families beginning their heart journey. If you would like to help us offer this "hope" or if you have an existing CarePage set up and would like to share your child's CarePage, please e-mail us with your CarePage name or bio and photo to storiesofhope@heartsofhopemi.org 

 

We appreciate your support. Together we will make a difference in the lives of those affected by congenital heart defects.

 

Sincerely,

 

Hearts of Hope S.E. Michigan 


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carepage
Stay Connected with Friends and Family during your child's hospitalization!

CarePages are private personalized Web pages provided to you FREE.
Starting a CarePage is easy! We can help you set yours up in less than 10 minutes. To get started click here and then on the CarePages logo!
Legal Disclaimer: The information contained is made available by Hearts of Hope for informational purposes only and is not intended to substitute the services of a healthcare professional or to replace the medical advice of physicians. The reader should consult a physician in all matters relating to health issues.