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HOH 
Hearts of Hope
  AUGUST E-NEWS
In This Issue
Pulmonary Stenosis
CSHCS
Fall Picnic
HOH Merchandise
Quick Links
About Us

Featured story from the heart...

Stephan
2 year old Stephan was born with critical pulmonary stenosis and had a very difficult beginning.
 
 READ how this amazing young boy has triumphed over this severe heart defect. 
 
If you would like to share your child's story, please email us at: storiesofhope@heartsofhopemi.org
Pulmonary Stenosis
 
pulmonary stenosis 
 
In a baby born with critical pulmonary stenosis, the opening is so small that the heart cannot pump enough blood to meet the baby's needs. Unless the problem is treated early, the baby will develop problems due to right-sided heart failure. 
 
Click HERE To Learn More.
 
 
http://www.giftoflifemichigan.org/showusyourheart/Default.aspx
A heart transplant is recommended for children who have serious heart dysfunction and will not be able to live without having the heart replaced. Some of the illnesses that affect the heart in this way include complex congenital (present at birth) heart disease and cardiomyopathy (disease of the heart muscle in which the heart loses its ability to pump blood effectively).

To learn more click HERE
Are you having a hard time with expenses due
to your child's medical bills?
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CSHCS

Children's Special Health Care Services (CSHCS) is a program within the Michigan Department of Community Health. It is for children and some adults with special health care needs and their families.
 
Many of our children are eligable for this additional health care coverage. To find out if your child is eligable, click HERE 
Stay connected with other HOH members



Hearts of Hope would like to help our members stay connected to eachother through our 
"Sharing Program".
If you would like to share you childs CarePage, blog page or webpage with us to share with other HOH members, please e-mail us at:
ATT: Kristy
kshadik@comcast.net
with the name of your child's webpage.

Back to School
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There are several challenges that children born with congenital heart defects may face as they go back to school. The best thing you can do as a parent is be prepared and help prepare the school!
 
Congenital Heart Defects: Information For TeachersCongenital Heart Defects: Information For TeachersWill your child struggle at school? Will your child struggle at school? Being Born With Congenital Heart Malformation Brings Challenges At School

Hearts of Hope Links





donation
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Join us on Facebook
golf







Join Hearts of Hope at the
Big House Big Heart
10K, 5K & 1-Mile
 October 3, 2010.

run
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Currently we have over 25
"Hearts of Hope Families" commited to join us at this race!!

WALKERS, STROLLERS and WHEELCHAIRS WELCOME!

DATE: Sunday, October 3, 2010
PLACE: University of Michigan Football Stadium

 This is a unique event because it finishes on the University of Michigan's famous football field 50-yard-line! It is even more special because of the charitable component. A portion of each registration fee ($4.00 - $9.00) goes to several programs at the U of M Hospital, including C.S. Mott Children's Hospital!!

 You can participate as a runner, walker, wheeler or stroller and gather "pledges" to help raise much needed funds for HOH or you can make a direct donation either on line or by mail to Hearts of Hope. Each donor and/or sponsor will be given a tax deductible card with our agency Tax ID number on it.

To register as a runner, walker or wheeler
click HERE

Make sure that you hit Hearts of Hope on the drop down when asked team name.

Once registered, please send an e-mail to heartsofhopemi@yahoo.com so we can add your name to our team roster and e-mail you your team packet to help you gather pledges.

To donate with a credit card, click HERE  and please make sure to choose Hearts of Hope as your selected charity.

To donate by mail, send check or money order to: Hearts of Hope, 3343 Vardon Dr, Rochester Hills, MI 48307. Make payable to: Hearts of Hope.
big heart
We look forward to seeing you there!!

golf

Join us for our Fall Picnic 

Sunday, October 10, 2010  

fall festival  .

Thelma Spencer Park

3701 John R Road
Rochester Hills, Michigan

(east side of John R, between Auburn and South Blvd.)

 .
 Details and registration to come.
Please continue to check our website!
 
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rainbow walk

 Join some of the "Hearts of Hope Families" at the Detroit Zoo on 
 Saturday, September 11th
for the Rainbow Connections
 
"Walk for Kids"
 To download a registration form, click HERE
 
Many of our "heart children" have had their wishes granted by this wonderful organization. To learn more about the Rainbow Connections ability to make our children's wishes come true, click HERE 
  
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New Merchandise Available!  
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bearBella


 
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night light 
 

You can now bring awareness to the #1 birth defect by wearing one of our HOH awareness shirts.  scarredheart

 

Click HERE to order yours today!
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There are many happenings within our community. If you know of an upcoming event or fundraiser, please contact us with any information about the event. We also ask that you update us if your home address, e-mail or phone number has changed so that we may keep you informed of upcoming events.

Lastly, you are invited to share your child's story on our website which provides "hope" to new families beginning their heart journey. If you would like to help us offer this "hope" or if you have an existing CarePage set up and would like to share your child's CarePage, please e-mail us with your CarePage name or bio and photo to storiesofhope@heartsofhopemi.org .

We appreciate your support. Together we will make a difference in the lives of those affected by congenital heart defects.
 
Sincerely,

Hearts of Hope S.E. Michigan

 

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carepage
Stay Connected with Friends and Family during your child's hospitalization!

CarePages are private personalized Web pages provided to you as a FREE service by Hearts of Hope.
Starting a CarePage is easy! We can help you set yours up in less than 10 minutes. To get started click here and then on the CarePages logo!
Legal Disclaimer: The information contained is made available by Hearts of Hope for informational purposes only and is not intended to substitute the services of a healthcare professional or to replace the medical advice of physicians. The reader should consult a physician in all matters relating to health issues.