header
Hearts of Hope
   DECEMBER E-NEWS
In This Issue
Order your 2010 HOH Calendar
Donate your extra tube feeding supplies
Heart Ball in Memory of Ethin Twigg
Merchandise
How you can help
Rainbow Connection
Quick Links
Meet HOH  Member

hank

Hank Wyatt Van Ast

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My middle name means "Little Warrior" because I am battling Hypoplastic Right Heart Syndrome.

Click HERE to read more about Hank and his family.
Featured Congenital Heart Defect
HRHS
Hypoplastic RIGHT Heart Syndrome

 HRHS refers to underdevelopment of the right sided structures of the heart. The major problem is pulmonary valve atresia (absence). Pulmonary atresia occurs when the pulmonary valve fails to form normally while the baby is in the mother's womb.

Learn more about HRHS
2010 Heart Angels Calendar is ready for purchase! 
calander
The 2010 Heart Angels Calendar is ready for ordering!!! Help support Hearts of Hope for families with children with heart defects. All profits from the sale of this calendar will be donated to Hearts of Hope. Click HERE to order yours today!!!
Home IV and Tube Feeding Supplies
tube feed
Do you have an abundance of home IV or tube feeding supplies that you no longer need and do not know where to donate to?
OR
 Are you in NEED of supplies that your insurance company will not pay for?

The Oley Foundation has an equipment supply exchange that provides patients with FREE supplies donated by members who no longer need them!!

To learn more about this non profit organization and fantastic program, click HERE
 

The 1st Annual

 "Ethin's Heart Still Beats"
 Heart Ball

In memory of
 Ethin RaiLuc Twigg 1/9/09-6/27/09

January 9, 2010
VFW Hall
9075 Mason Dr
Newaygo, MI 49337

All proceeds from this event will be donated to the University of Michigan Mott's Children's HospitaU of Ml Congenital Heart Center 

Tickets are $75 for one or $125 for two

For more information, contact:
 Jessica Twigg
513 Sunset Dr.
Newaygo, MI 49337
chdhlhs09@yahoo.com
616-634-3029
Hearts of Hope Links
In the News
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Featured below are some news articles  related to Congenital Heart Defects...

Method To Combat Congenital Heart Disease In Children Developed By UC San Diego Engineer

Causes of congenital heart disease - Researchers peer inside embryonic/fetal hearts

Fewer Heart Patients Need Antibiotics Before Dental Procedures
Stay connected with other HOH members



Hearts of Hope would like to help our members stay connected through our 

"Sharing Program".
 
If you would like to share you child's CarePage, blog page or webpage, please e-mail Kristy with the name of your child's webpage.
ATT: Kristy
kshadik@comcast.net
Please be sure to
 
update us if your home address, e-mail address or phone number have changed so that we can keep you informed of upcoming events.Thanks!


donation

Forward this email
Greetings!

Thanks to all who joined us for the 2009 Fall Festival!

fall festival











We had a great turnout and beautiful weather. We hope you all had the opportunity to reuni
te with some old fellow heart families and create some new friendships!!
 
golf

SAVE THE DATE
for the Hearts of Hope 
"Day for Hearts" Celebration


heart balloons
Saturday, February 6th, 2010
12:30 - 3:00pm
at
The Troy Community Center

3179 Livernois
Troy, MI 48083
MAP

We welcome all families affected by congenital heart defects as well as the professionals who work with them. Our afternoon will be filled with activities, clowns, games, and special guest appearances by some much loved characters. Lunch and beverages will be provided. This is a terrific opportunity to meet other families, share stories, offer support, spread hope and create friendships that will last a lifetime. 

Registration details to come
!

golf

Order your HOH merchandise on-line!!

HOH shirts
We are now offering our one of a kind HOH ornaments along with Heart Angel shirts!

Order yours now, supplies are limited.

 
golf




Looking for an EASY way to donate to
 Hearts of Hope this holiday season? 
GO SHOPPING ON-LINE!!

Are you doing some on-line holiday shopping??
Why not give Hearts of Hope up to 26% of the money you spend every time you shop on-line with no extra cost to you?  When you buy your Holiday gifts at the iGive.com Mall, up to 26% of each purchase is donated to Hearts of Hope, at no cost to you!

.
And there is more!
.
iGive is a FREE service, and their online mall features over 680 brand-name stores like The Children's Place, Toys "R" Us, Pottery Barn, Disney Shopping, amazon.com, ebay, Shutterfly and Snapfish with super savings and deals every day....and free donations to Hearts of Hope!

If you are shopping on-line anyways, why not donate part of your purchase to HOH?
We have already received $200 in donations from your on-line shopping!

Visit www.iGive.com/HeartsofHope
 and change online shopping for good.
We'll appreciate it!!
i-give
Membership is free and your privacy is guaranteed. 
golf

 gift
Wish Child Holiday Toy Drive!

The Rainbow Connection has been granting wishes to Michigan children with life threatening or terminal illnesses since 1985.

They have made many
wishes come true for our Hearts of Hope families!

Thursday, December 3rd ~ 8:00 am - 8:00 pm 
Wish Child Holiday Toy Drive

Held at The Rainbow Connection Office
621 University - Rochester

Bring your unwrapped gifts to place under the Tree and make a Holiday difference for a local Rainbow Connection Family. Refreshments and Holiday Cheer will be served throughout the day-
Stop in for a visit and see where the magic all begins!

Need Gift Ideas?

Top 10 Gift List
I-Pods Nano and Shuffle
I-Tunes Gift Card
Card Games
Video Games (Wii, DS, Playstation)
Bath Gels & Lotion
Jewelry making sets
Board games
Bionicles
Cars & Trucks
Gift Cards



golf

 heart of a child
SAVE THE DATE for
The Heart of a Child's
4th Annual
Dinner and Silent Auction.
.
Saturday,
February 13th, 2010 at
 Rock Finacial Showplace in Novi, MI.
.
The Heart of a Child is a non-profit organization benefiting children with congenital heart defects through Cardiovascular research at Children's Hospital of Michigan. Over the past 3 years, The Heart of a Child has donated over $100,000 towards research.
CHM.

golf
There are many events happening within our community. If you know of an upcoming event, please contact us with any information about the event. Lastly, you are invited to share your child's story on our website which provides "hope" to new families beginning their heart journey. If you would like to help us offer this "hope" or if you have an existing CarePage set up and would like to share your child's CarePage, please e-mail us with your CarePage name or bio and photo to storiesofhope@heartsofhopemi.org .
We appreciate your support. Together we will make a difference in the lives of those affected by congenital heart defects.
 
Sincerely,

Hearts of Hope S.E. Michigan

 
carepage
Stay Connected with Friends and Family during your child's hospitalization!

CarePages are private personalized Web pages provided to you as a FREE service by Hearts of Hope.
Starting a CarePage is easy! We can help you set yours up in less than 10 minutes.
To get started click here!
Legal Disclaimer: The information contained is made available by Hearts of Hope for informational purposes only and is not intended to substitute the services of a healthcare professional or to replace the medical advice of physicians. The reader should consult a physician in all matters relating to health issues.